What are the essential features of resilience for informal caregivers of people living with dementia? A Delphi consensus examination

References

• Bosanquet, N., Huttin, C., & Kurz, A. (1997). Alzheimer's disease: An international perspective on care delivery (Rep. No. 11). London: Imperial College of Science, Technology and Medicine, University of London.
   Google Scholar
• Brunner, F., Lienhardt, S.B., Kissling, R.O., Bachmann, L.M., & Weber, U. (2008). Diagnostic criteria and follow-up parameters in complex regional pain syndrome type I – a Delphi survey. European Journal of Painy, 12, 48–52.
   PubMed Web of Science ®Google Scholar
• Chappell, N.L., & Dujela, C. (2008). Caregiving: predicting at-risk status. Canadian Journal on Aging, 27, 169–179.
   PubMed Web of Science ®Google Scholar
• Cherry, M.G., Salmon, J.M., Dickson, J.M., Powell, D., Sikdar, S., & Ablett, J. (2013). Factors influencing the resilience of carers of individuals with dementia. Reviews in Clinical Gerontology, 23, 251–266.
   Google Scholar
• Cooper, C., Balamurali, T.B., & Livingston, G. (2007). A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. International Psychogeriatric, 19, 175–195.
   PubMed Web of Science ®Google Scholar
• Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D.A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308–2314.
   PubMed Web of Science ®Google Scholar
• Donnellan, W.J., Bennett, K.M., & Soulsby, L.K. (2015). What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study. Aging and Mental Health, 19, 932–939.
   Google Scholar
• Dröes, R.M., Breebaart, E., Ettema, T.P., van, T.W., & Mellenbergh, G.J. (2000). Effect of integrated family support versus day care only on behavior and mood of patients with dementia. International Psychogeriatric, 12, 99–115.
   PubMed Web of Science ®Google Scholar
• Gartland, D., Bond, L., Olsson, C.A., Buzwell, S., & Sawyer, S.M. (2011). Development of a multi-dimensional measure of resilience in adolescents: The Adolescent Resilience Questionnaire. BMC Medical Research Methodology, 11, 134.
   PubMed Web of Science ®Google Scholar
• Gaugler, J.E., Davey, A., Pearlin, L.I., & Zarit, S.H. (2000). Modeling caregiver adaptation over time: The longitudinal impact of behavior problems. Psychology and Aging, 15, 437–450.
   PubMed Web of Science ®Google Scholar
• Gaugler, J.E., Kane, R.L., & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. The Journals of Gerontology B Psychology Science Society Science, 62, 38–44.
   PubMed Web of Science ®Google Scholar
• Hasson, F., & Keeney, S. (2011). Enhancing rigour in the Delphi technique research. Technological Forecasting & Social Change, 78, 1695–1704.
   Web of Science ®Google Scholar
• Huber, M., Knottnerus, J.A., Green, L., van der Horst, H., Jadad, A.R., Kromhout, D., … Smid, H. (2011). How should we define health? BMJ, 343, d4163.
   PubMed Web of Science ®Google Scholar
• Johnson, N., Davis, T., & Bosanquet, N. (2000). The epidemic of Alzheimer's disease: How can we manage the costs? PharmacoEconomics, 18, 215–223.
   PubMed Web of Science ®Google Scholar
• Junger, S., Payne, S., Brearley, S., Ploenes, V., & Radbruch, L. (2012). Consensus building in palliative care: A Europe-wide Delphi study on common understandings and conceptual differences. Journal of Pain and Symptom Management, 44, 192–205.
   PubMed Web of Science ®Google Scholar
• Lawton, M.P., Moss, M., Hoffman, C., & Perkinson, M. (2000). Two transitions in daughters' caregiving careers. Gerontologist, 40, 437–448.
   PubMed Web of Science ®Google Scholar
• Lindeman, C.A. (1975). Delphi survey of priorities in clinical nursing research. Nursing Research, 24, 434–441.
   PubMed Web of Science ®Google Scholar
• Ludwig, B. (1997). Predicting the future: Have you considered using the Delphi methodology? Journal of Extension, 35, 1–4.
   Google Scholar
• Luthar, S.S., Cicchetti, D., & Becker, B. (2000). The construct of resilience: A critical evaluation and guidelines for future work. Child Development, 71, 543–562.
   PubMed Web of Science ®Google Scholar
• Lynn, M.R., Layman, E.L., & Englebardt, S.P. (1998). Nursing administration research priorities: A national Delphi study. The Journal of Nursing Administration, 28, 7–11.
   PubMed Web of Science ®Google Scholar
• Mahoney, R., Regan, C., Katona, C., & Livingston, G. (2005). Anxiety and depression in family caregivers of people with Alzheimer disease: The LASER-AD study. The American Journal of Geriatric Psychiatry, 13, 795–801.
   PubMed Web of Science ®Google Scholar
• McKenna, H.P. (1994). The Delphi technique: A worthwhile research approach for nursing? The Journal of Nursing Administration, 19, 1221–1225.
   Web of Science ®Google Scholar
• Moniz-Cook, E., Vernooij-Dassen, M., Woods, R., Verhey, F., Chattat, R., De, V.M., … Orrell, M. (2008). A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging and Mental Health, 12, 14–29.
   PubMed Web of Science ®Google Scholar
• O'Rourke, N., Kupferschmidt, A.L., Claxton, A., Smith, J.Z., Chappell, N., & Beattie, B.L. (2010). Psychological resilience predicts depressive symptoms among spouses of persons with Alzheimer disease over time. Aging and Mental Health, 14, 984–993.
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250–267.
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2004). Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging and Mental Health, 8, 438–449.
   PubMed Web of Science ®Google Scholar
• Rutter, M. (2012). Resilience as a dynamic concept. Development and Psychopathology, 24, 335–344.
   PubMed Web of Science ®Google Scholar
• Schulz, R., O'Brien, A.T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist, 35, 771–791.
   PubMed Web of Science ®Google Scholar
• Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., & Vitaliano, P.P. (1992). Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging, 7, 622–631.
   PubMed Web of Science ®Google Scholar
• Ungar, M. (2003). Qualitative contributions to resilience research. Qualitative Social Work, 2, 85–102.
   Google Scholar
• van der Lee, J., Bakker, T.J.E.M., Duivenvoorden, H.J., & Dröes, R.M. (2014). Multivariate models of subjective caregiver burden in dementia: A systematic review. Ageing Research and Review, 15, 76–93.
   PubMed Web of Science ®Google Scholar
• van der Maaden, T., van der Steen, J.T., de Vet, H.C., Achterberg, W.P., Boersma, F., Schols, J.M., … Hertogh, C.M. (2015). Development of a practice guideline for optimal symptom relief for patients with pneumonia and dementia in nursing homes using a Delphi study. International Journal of Geriatric Psychiatry, 30, 487–496.
   PubMed Web of Science ®Google Scholar
• Vernooij-Dassen, M.J., Felling, A.J., Brummelkamp, E., Dauzenberg, M.G., van den Bos, G.A., & Grol, R. (1999). Assessment of caregiver's competence in dealing with the burden of caregiving for a dementia patient: A Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. Journal of the American Geriatrics Society, 47, 256–257.
   PubMed Web of Science ®Google Scholar
• Vitaliano, P.P., Zhang, J., & Scanlan, J.M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129, 946–972.
   PubMed Web of Science ®Google Scholar
• Wiles, J.L., Wild, K., Kerse, N., & Allen, R.E. (2012). Resilience from the point of view of older people: ‘There's still life beyond a funny knee’. Social Science & Medicine, 74, 416–424.
   PubMed Web of Science ®Google Scholar
• Wilks, S.E., & Croom, B. (2008). Perceived stress and resilience in Alzheimer's disease caregivers: Testing moderation and mediation models of social support. Aging and Mental Health, 12, 357–365.
   PubMed Web of Science ®Google Scholar
• Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21, 152–169.
   Google Scholar
• Windle, G., & Bennett, K.M. (2011). Caring relationships: How to promote resilience in challenging times. In M. Ungar (Ed.), The social ecology of resilience: A handbook of theory and practice (pp. 219–231). New York, NY: Springer.
   Google Scholar
• World Health Organization. (2012). Dementia: A public health priority. Geneva: Author.
   Google Scholar