References
- Aarsland, D., Larsen, J. P., Tandberg, E., & Laake, K. (2000). Predictors of nursing home placement in Parkinson's disease: A population-based, prospective study. Journal of the American Geriatrics Society, 48(8), 938–942.
- Abendroth, M., Lutz, B. J., & Young, M. E. (2012). Family caregivers' decision process to institutionalize persons with Parkinson's disease: A grounded theory study. International Journal of Nursing Studies, 49(4), 445–454.
- Alves, G., Forsaa, E. B., Pedersen, K. F., Dreetz Gjerstad, M., & Larsen, J. P. (2008). Epidemiology of Parkinson's disease. Journal of Neurology, 255(Suppl. 5), 18–32.
- Carers, U. K. (2016). State of caring. London, UK: Carers UK.
- Chaudhuri, K. R., Martinez-Martin, P., Brown, R. G., Sethi, K., Stocchi, F., Odin, P., … Schapira, A. H. (2007). The metric properties of a novel non-motor symptoms scale for Parkinson's disease: Results from an international pilot study. Movement Disordorders: Official Journal of the Movement Disorder Society, 22(13), 1901–1911.
- Collin, C., Wade, D.T., Davies, S., & Horne, V. (1988). The Barthel ADL Index: a reliability study. International disability studies, 10(2), 61–63.
- Cummings, J. L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D. A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314.
- Drutyte, G., Forjaz, M. J., Rodriguez-Blazquez, C., Martinez-Martin, P., & Breen, K. C. (2014). What impacts on the stress symptoms of Parkinson's carers? Results from the Parkinson's UK Members' Survey. Disability and Rehabilitation, 36(3), 199–204.
- Edwards, N. E., & Scheetz, P. S. (2002). Predictors of burden for caregivers of patients with Parkinson's disease. The Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses, 34(4), 184–190.
- Fahn, S., & Elton, R. L. (1987). UPDRS development committee, Unified Parkinson's disease rating scale. In S. Fahn, C. D. Marsden, D. B. Calne, & M. Goldstein (Eds.), Recent Developments in Parkinson's Disease (pp. 153–163). New Jersey, NJ: Macmillan.
- Goldsworthy, B., & Knowles, S. (2008). Caregiving for Parkinson's disease patients: An exploration of a stress-appraisal model for quality of life and burden. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 63(6), P372–P376.
- Greenwell, K., Gray, W. K., van Wersch, A., van Schaik, P., & Walker, R. (2015). Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: A systematic review. Parkinsonism & Related Disorders, 21(1), 1–11.
- Hand, A., Walker, R. W., Gray, W. K., & Oates, L. L. (2016). The care needs project: Understanding the experience of people with Parkinson's in institutional care and understanding the care needs of people with Parkinson's [Abstract]. Movement Disordorders: Official Journal of the Movement Disorder Society, 31(Suppl. 2), 168–169.
- Hooker, K., Manoogian-O'Dell, M., Monahan, D. J., Frazier, L. D., & Shifren, K. (2000). Does type of disease matter? Gender differences among Alzheimer's and Parkinson's disease spouse caregivers. The Gerontologist, 40(5), 568–573.
- Hughes, A. J., Daniel, S. E., Kilford, L., & Lees, A. J. (1992). Accuracy of clinical diagnosis of idiopathic Parkinson's disease: A clinico-pathological study of 100 cases. Journal of Neurology, Neurosurgery & Psychiatry, 55(3), 181–184.
- Jenkinson, C., Dummett, S., Kelly, L., Peters, M., Dawson, J., Morley, D., & Fitzpatrick, R. (2012). The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer). Parkinsonism & Related Disorders, 18(5), 483–487.
- Konstam, V., Holmes, W., Wilczenski, F., Baliga, S., Lester, J., & Priest, R. (2003). Meaning in the lives of caregivers of individuals with Parkinson's disease. Journal of Clinical Psychology in Medical Settings, 10(1), 17–25.
- Lau, K.-M., & Au, A. (2011). Correlates of informal caregiver distress in Parkinson's disease: A meta-analysis. Clinical Gerontologist, 34, 117–131.
- Leiknes, I., Lien, U., & Severinsson, E. (2015). The relationship among caregiver burden, demographic variables, and the clinical characteristics of patients with Parkinson's disease: A systematic review of studies using various caregiver burden instruments. Open Journal of Nursing, 5, 855–877.
- Lyons, K. S., Stewart, B. J., Archbold, P. G., & Carter, J. H. (2009). Optimism, pessimism, mutuality, and gender: Predicting 10-year role strain in Parkinson's disease spouses. The Gerontologist, 49(3), 378–387.
- Mahoney, F., & Barthel, D. (1965). Functional evaluation: The Barthel index. Maryland State Medical Journal, 14, 61–65.
- Marinus, J., Visser, M., van Hilten, J. J., Lammers, G. J., & Stiggelbout, A. M. (2003). Assessment of sleep and sleepiness in Parkinson disease. Sleep, 26(8), 1049–1054.
- Martinez-Martin, P., Arroyo, S., Rojo-Abuin, J. M., Rodriguez-Blazquez, C., Frades, B., & de Pedro Cuesta, J. (2008). Burden, perceived health status, and mood among caregivers of Parkinson's disease patients. Movement Disordorders: Official Journal of the Movement Disorder Society, 23(12), 1673–1680.
- Martinez-Martin, P., Forjaz, M. J., Frades-Payo, B., Rusinol, A. B., Fernandez-Garcia, J. M., Benito-Leon, J., … Catalan, M. J. (2007). Caregiver burden in Parkinson's disease. Movement Disordorders: Official Journal of the Movement Disorder Society, 22(7), 924–931; quiz 1060.
- McDonnell, A., , , Kennedy, F., Wood, B., Ramawswamy, B., Whitfield, M., & Tod, A. (2014). Putting people with Parkinson's in control: Exploring the impact of quality social care (Project report to Parkinson's UK). London: Parkinson's UK.
- McLennon, S. M., Habermann, B., & Davis, L. L. (2010). Deciding to institutionalize: Why do family members cease caregiving at home ? The Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses, 42(2), 95–103.
- McRae, C., Fazio, E., Hartsock, G., Kelley, L., Urbanski, S., & Russell, D. (2009). Predictors of loneliness in caregivers of persons with Parkinson's disease. Parkinsonism & Related Disorders, 15(8), 554–557.
- Miyashita, M., Narita, Y., Sakamoto, A., Kawada, N., Akiyama, M., Kayama, M., … Fukuhara, S. (2011). Health-related quality of life among community-dwelling patients with intractable neurological diseases and their caregivers in Japan. Psychiatry and Clinical Neurosciences, 65(1), 30–38.
- Morley, D., Dummett, S., Peters, M., Kelly, L., Hewitson, P., Dawson, J., … Jenkinson, C. (2012). Factors influencing quality of life in caregivers of people with Parkinson's disease and implications for clinical guidelines. Parkinson's Disease, 2012, 190901.
- Nasreddine, Z. S., Phillips, N. A., Bedirian, V., Charbonneau, S., Whitehead, V., Collin, I., … Chertkow, H. (2005). The Montreal Cognitive Assessment, MoCA: A brief screening tool for mild cognitive impairment. Journal of the American Geriatrics Society, 53(4), 695–699.
- Novak, M., & Guest, C. (1989). Application of a multidimensional caregiver burden inventory. The Gerontologist, 29(6), 798–803.
- O'Reilly, F., Finnan, F., Allwright, S., Smith, G. D., & Ben-Shlomo, Y. (1996). The effects of caring for a spouse with Parkinson's disease on social, psychological and physical well-being. The British Journal of General Practice: The Journal of the Royal College of General Practitioners, 46(410), 507–512.
- Peters, M., Fitzpatrick, R., Doll, H., Playford, D., & Jenkinson, C. (2011). Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life ? Parkinsonism & Related Disorders, 17(5), 348–352.
- Peto, V., Jenkinson, C., Fitzpatrick, R., & Greenhall, R. (1995). The development and validation of a short measure of functioning and well-being for individuals with Parkinsons-disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 4(3), 241–248.
- Porter, B., Henry, S. R., Gray, W. K., & Walker, R. W. (2010). Care requirements of a prevalent population of people with idiopathic Parkinson's disease. Age and Ageing, 39(1), 57–61.
- Shin, H., Youn, J., Kim, J. S., Lee, J. Y., & Cho, J. W. (2012). Caregiver burden in Parkinson disease with dementia compared to Alzheimer disease in Korea. Journal of Geriatric Psychiatry and Neurology, 25(4), 222–226.
- UK Department of Health. (2014). The care act, Chapter 23. London, UK: The Stationery Office Ltd.
- Walker, R. W., Palmer, J., Stancliffe, J., Wood, B. H., Hand, A., & Gray, W. K. (2014). Experience of care home residents with Parkinson's disease: Reason for admission and service use. Geriatrics & Gerontology International, 14(4), 947–953.
- Wanless, D., Forder, J., Fernández, J.-L., Poole, T., Beesley, L., Henwood, M., & Moscone, F. (2006). Wanless social care review: Securing good care for older people, taking a long-term view, London: King's Fund.
- Yeandle, S., & Buckner, L. (2015). Valuing Carers: The rising value of carers’ support. London, UK: Carers UK.