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Review

Interventions to enhance access to and utilization of formal community care services for home dwelling persons with dementia and their informal carers. A scoping review

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Pages 200-211 | Received 03 Apr 2018, Accepted 09 Sep 2018, Published online: 21 Jan 2019

References

  • Access to Timely Formal Care (ActifCare) study. (2017). Actifcare Best Practice Recommendations. www.actifcare.eu
  • Alzheimer’s Association (2018). Dementia Care Practice Recommendations. https://www.alz.org/dementia-care-practice-recommendations/downloads/gny003_dcpr.pdf
  • Ament, B. H., Wolfs, C. A., Kempen, G. I., Ambergen, T., Verhey, F. R., & De Vugt, M. E. (2015). The benefit of a geriatric nurse practitioner in a multidisciplinary diagnostic service for people with cognitive disorders. The BMC Research Notes, 8(1), 217. doi:10.1186/s13104-015-1189-6
  • Andersen, R. (1995). Revisiting the behavioral model and access to medical care: Does it matter?. Journal of Health and Social Behavior, 36(1), 1–10. doi:10.2307/2137284. PMID 7738325.
  • Amjad, H., Wong, S. K., Roth, D. L., Huang, J., Willink, A., Black, B. S., … Samus, Q. M. (2018). Health Services utilization in older adults with dementia receiving care coordination: The MIND at Home Trial. Health Services Research, 53(1), 556–579.
  • Aranda, M. P., Villa, V. M., Trejo, L., Ramírez, R., & Ranney, M. (2003). El Portal Latino Alzheimer's project: Model program for Latino caregivers of Alzheimer's disease-affected people. Social Work, 48(2), 259–271. 213p. doi:sw/48.2.259
  • Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.
  • Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Morgan, R., Looman, W. J., … Kunik, M. E. (2013). Caregiver outcomes of partners in dementia care: Effect of a care coordination program for veterans with dementia and their family members and friends. Journal of the American Geriatrics Society, 61(8), 1377–1386. doi:10.1111/jgs.12362
  • Bieber, A., Broda, A., & Stephan, A. (2014). Structural aspects of access to formal dementia care services across the European countries. ActifCare (ACcess to Timely Formal Care), JPND research, Work Package 2 Deliverable D2.1
  • Bieber, A., Stephan, A., Verbeek, H., Verhey, F., Kerpershoek, L., Wolfs, C., D., … Meyer, G. (2018). Access to community care for people with dementia and their informal carers: Case vignettes for a European comparison of structures and common pathways to formal care. Zeitschrift Für Gerontologie Und Geriatrie, 51(5), 530–536. doi:10.1007/s00391-017-1266-7
  • Boustani, M., Sachs, G., & Callahan, C. M. (2007). Can primary care meet the biopsychosocial needs of older adults with dementia? Journal of General Internal Medicine, 22(11), 1625–1627. doi:10.1007/s11606-007-0386-y
  • Broda, A., Bieber, A., Meyer, G., Hopper, L., Joyce, R., Irving, K., … Stephan, A. & ActifCare. (2017). Perspectives of policy and political decision makers on access to formal dementia care: Expert interviews in eight European countries. BMC Health Services Research, 17(1), 518. doi:10.1186/s12913-017-2456-0
  • Brodaty, H., Thomson, C., Thompson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20(6), 537–546.
  • Callahan, C. M., Boustani, M. A., Unverzagt, F. W., Austrom, M. G., Damush, T. M., Perkins, A. J., … Hendrie, H. C. (2006). Effectiveness of collaborative care for older adults with Alzheimer disease in primary care: A randomized controlled trial. Journal of the American Medical Association, 295(18), 2148–2157. doi:10.1001/jama.295.18.2148
  • Carpentier, N., & Grenier, A. (2012). Successful linkage between formal and informal care systems: The mobilization of outside help by caregivers of persons with Alzheimer’s disease. Qualitative Health Research, 22(10), 1330–1344.
  • Donath, C., Gräßel, E., Großfeld-Schmitz, M., Menn, P., Lauterberg, J., Wunder, S., … Holle, R. (2010). Effects of general practitioner training and family support services on the care of home-dwelling dementia patients-results of a controlled cluster-randomized study. BMC Health Services Research, 10(1), 314. doi:10.1186/1472-6963-10-314
  • Emme von der Ahe, H., Weidner, F., Laag, U., & Blome, S. (2011). Entlastungsprogramm bei Demenz - Ede II. Abschlussbericht zum Modellvorhaben zur Weiterentwicklung der Pflegeversicherung nach §8 Abs. 3 SGB [Relief program for dementia - Ede II. Final report on the model project for the further development of long-term care insurance pursuant to § 8 (3) SGB]. Retrieved from http://www.dip.de/fileadmin/data/pdf/projekte/Abschlussbericht_EDe_II_Web_aktualisiert.pdf
  • Emme von der Ahe, H., Weidner, F., Laag, U., Isfort, M., & Meyer, S. (2010). Entlastungsprogramm bei Demenz. Abschlussbericht zum Modellvorhaben zur Weiterentwicklung der Pflegeversicherung nach §8 Abs. 3 SGB XI. [Relief program for dementia. Final report on the model project for the further development of long-term care insurance according to §8 Abs. 3 SGB XI SGB]. Retrieved from http://www.dip.de/fileadmin/data/pdf/material/Endbericht_EDe_Enlastungsprogramm_bei_Demenz.pdf
  • Gaugler, J. E., Kane, R. L., Kane, R. A., & Newcomer, R. (2005). Early community-based service utilization and its effects on institutionalization in dementia caregiving. Gerontologist, 45(2), 177–185.
  • Harris, D. P., Chodosh, J., Vassar, S. D., Vickrey, B. G., & Shapiro, M. F. (2009). Primary care providers' views of challenges and rewards of dementia care relative to other conditions. Journal of the American Geriatrics Society, 57(12), 2209–2216. doi:10.1111/j.1532-5415.2009.02572.x
  • Hasson, F., Keeney, S., & McKenna, H. (2000). Research guidelines for the Delphi survey technique. Journal of Advanced Nursing, 32(4), 1008–1015.
  • Hinton, L., Franz, C. E., Reddy, G., Flores, Y., Kravitz, R. L., & Barker, J. C. (2007). Practice constraints, behavioral problems, and dementia care: Primary care physicians' perspectives. Journal of General Internal Medicine, 22(11), 1487–1492. doi:10.1007/s11606-007-0317-y
  • Keeney, S., Hasson, F., & McKenna, H. (2006). Consulting the oracle: Ten lessons from using the Delphi technique in nursing research. Journal of Advanced Nursing, 53(2), 205–212. doi:10.1111/j.1365-2648.2006.03716.x
  • Kerpershoek, L., de Vugt, M., Wolfs, C., Jelley, H., Orrel, M., Woods, B., … Engedal, K. (2016). Access to timely formal dementia care in Europe: Protocol of the Actifcare (ACcess to Timely Formal Care) study. BMC Health Services Research, 16(1), 423.
  • Kerpershoek, L., de Vugt, M., Wolfs, C., Jelley, H., Orrel, M., Woods, B., … Verhey, F. (2016). Experiences of people with dementia, informal carers and healthcare professionals with access to formal care. The Access To Timely Formal Care (ActifCare) study. BMC Health Services Research, 16(1). Work Package 2 Deliverable D2.2.
  • Lathren, C. R., Sloane, P. D., Hoyle, J. D., Zimmerman, S., & Kaufer, D. I. (2013). Improving dementia diagnosis and management in primary care: A cohort study of the impact of a training and support program on physician competency, practice patterns, and community linkages. BMC Geriatrics, 13(1), 134.
  • Lawton, M. P., Brody, E. M., Saperstein, A., & Grimes, M. (1989). Respite services for caregivers: Research findings for service planning. Home Health Care Services Quarterly, 10(1-2), 5–32. doi:10.1300/J027v10n01_02
  • Lee, L., Hillier, L. M., & Harvey, D. (2014). Integrating community services into primary care: Improving the quality of dementia care. Neurodegenerative Disease Management, 4(1), 11–21. doi:10.2217/nmt.13.72
  • Levac, D., Colquhoun, H., & O'Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), 69. doi:10.1186/1748-5908-5-69
  • Longworth, D. L. (2011). Accountable care organizations, the patient-centered medical home, and health care reform: What does it all mean? Cleveland Clinic Journal of Medicine, 78(9), 571–582. doi:10.3949/ccjm.78gr.11003
  • Luppa, M., Luck, T., Brähler, E., König, H.-H., & Riedel-Heller, S. G. (2008). Prediction of institutionalisation in dementia. A systematic review. Dementia and Geriatric Cognitive Disorders, 26(1), 65–78.
  • McCallion, P., Toseland, R. W., Gerber, T., & Banks, S. (2004). Increasing the use of formal services by caregivers of people with dementia. Social Work, 49(3), 441–450. doi:sw/49.3.441
  • McDonald, K. M., Sundaram, V., & Bravata, D. M. (2007). Closing the Quality Gap: A critical analysis of quality improvement strategies. Technical Reviews, 9(7).
  • Mukadam, N., Cooper, C., & Livingston, G. (2013). Improving access to dementia services for people from minority ethnic groups. Current Opinion in Psychiatry, 26(4), 409–414. doi:10.1097/YCO.0b013e32835ee668
  • Newcomer, R., Spitalny, M., Fox, P., & Yordi, C. (1999). Effects of the Medicare Alzheimer's Disease Demonstration on the use of community-based services. Health Services Research, 34(3), 645–667.
  • Nikmat, A. W., Hawthorne, G., & Al-Mashoor, S. H. (2011). Quality of life in dementia patients: Nursing home versus home care. International Psychogeriatrics, 23(10), 1692–1700.
  • Phillipson, L., Jones, S. C., & Magee, C. (2014). A review of the factors associated with the non-use of respite services by carers of people with dementia: Implications for policy and practice. Health & Social Care in the Community, 22(1), 1–12. doi:10.1111/hsc.12036
  • Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer's & Dementia, 9(1), 63–75 e62. doi:10.1016/j.jalz.2012.11.007
  • Reilly, S., Miranda-Castillo, C., Malouf, R., Hoe, J., Toot, S., Challis, D., & Orrell, M. (2015). Case management approaches to home support for people with dementia. Cochrane Database of Systematic Reviews, 1, CD008345. doi:10.1002/14651858.CD008345.pub2
  • Romero, B., Seeher, K., Wenz, M., & Berner, A. (2007). Erweiterung der Inanspruchnahme ambulanter und sozialer Hilfen als Wirkung eines stationären multimodalen Behandlungsprogramms für Demenzkranke und deren betreuende Angehörige. [Extension of the use of outpatient and social assistance as an effect of a stationary multimodal treatment program for dementia patients and their informal carers]. Neurogeriatrie, 4(4), 170–175.
  • Røsvik, J., Michelet, M., Eriksen, S., Bergh, S., Engedal, K., Kerpershoek, L., … Selbaek, G. (2018). Best practice recommendations for access to and use of formal community care for people with dementia: The Delphi process of the Access to Timely Formal Care (ActifCare) study. Manuscript in preparation.
  • Samus, Q. M., Johnston, D., Black, B. S., Hess, E., Lyman, C., Vavilikolanu, A., … Lyketsos, C. G. (2014). A multidimensional home-based care coordination intervention for elders with memory disorders: The maximizing independence at home (MIND) pilot randomized trial. American Journal of Geriatric Psychiatry, 22(4), 398–414. doi:10.1016/j.jagp.2013.12.175
  • Stephan, A., Bieber, A., Broda, A., & Meyer, G. (2016). Experiences of people with dementia, informal carers and healthcareprofessionals with access to formal care. The Access To Timely Formal Care (ActifCare)study, JPND research, Work Package 2Deliverable D2.2.
  • Stephan, A., Bieber, A., Verhey, F. R. J., de Vugt, M. E., Woods, R., Sjölund, B., … Meyer, G. (April, 2015). Access to Timely Formal Care (Actifcare) – Piloting Focus Groups Of A European Study: Preliminary findings and experiences with focus groups with people with dementia. Poster session presented at The International Association of Gerontology and Geriatrics European Region Congress 2015, Dublin, Ireland.
  • Stephan, A., Bieber, A., Hopper, L., Joyce, R., Irving, K., Zanetti, O., … Meyer, G. (2018). Barriers and facilitators to the access to formal dementia care: Findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries. BMC Geriatrics, 18(1), 131. doi:10.1186/s12877-018-0816-1
  • Tompkins, S. A., & Bell, P. A. (2009). Examination of a psychoeducational intervention and a respite grant in relieving psychosocial stressors associated with being an Alzheimer's caregiver. Journal of Gerontological Social Work, 52(2), 89–104. doi:10.1080/01634370802561877
  • Verkade, P. J., van Meijel, B., Brink, C., van Os-Medendorp, H., Koekkoek, B., & Francke, A. L. (2010). Delphi research exploring essential components and preconditions for case management in people with dementia. BMC Geriatrics, 10(1), 54. doi:10.1186/1471-2318-10-54
  • Vickrey, B. G., Mittman, B. S., Connor, K. I., Pearson, M. L., Della Penna, R. D., Ganiats, T. G., Jr., D. R. W., … Lee, M. (2006). The effect of a disease management intervention on quality and outcomes of dementia care. Annals of Internal Medicine, 145(10), 713–726.
  • Weber, S. R., Pirraglia, P. A., & Kunik, M. E. (2011). Use of services by community-dwelling patients with dementia: A systematic review. American Journal of Alzheimer's Disease & Other Dementiasr, 26(3), 195–204. doi:10.1177/1533317510392564
  • Weinberger, M., Gold, D. T., Divine, G. W., Cowper, P. A., Hodgson, L. G., Schreiner, P. J., & George, L. K. (1993). Social service interventions for caregivers of patients with dementia: Impact on health care utilization and expenditures. Journal of the American Geriatrics Society, 41(2), 153–156.

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