Relationship continuity and person-centred care in how spouses make sense of challenging care needs

References

• Beach, M. C., & Inui, T. & The Relationship-Centered Care Network (2006). Relationship-centered care: A constructive reframing. Journal of General Internal Medicine, 21(S1), S3–S8.
   PubMed Web of Science ®Google Scholar
• Bodley-Scott, S. E. M., & Riley, G. A. (2015). How partners experience personality change after traumatic brain injury – its impact on their emotions and their relationship. Brain Impairment, 16(3), 205–220.
   Web of Science ®Google Scholar
• Brooker, D. J. (2004). What is person-centred care in dementia?. Reviews in Clinical Gerontology, 13(3), 215–222.
   Google Scholar
• Chen, C. K., Clayton, K., & Chodosh, J. (2017). The relationship between ‘what we believe’ and ‘how we care’ among daughters caring for a parent with dementia. American Journal of Alzheimer's Disease & Other Dementiasr, 32(2), 90–95.
   PubMed Web of Science ®Google Scholar
• Chesla, C., Martinson, I., & Muwaswes, M. (1994). Continuities and discontinuities in family members’ relationships with Alzheimer’s patients. Family Relations, 43(1), 3–9.
   Web of Science ®Google Scholar
• Edvardsson, D., & Innes, A. (2010). Measuring person-centered care: A critical comparative review of published tools. The Gerontologist, 50(6), 834–846.
   PubMed Web of Science ®Google Scholar
• Faul, F., Erdfelder, E., Lang, A. G., & Buchner, A. (2007). G*Power 3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39(2), 175–191.
   PubMed Web of Science ®Google Scholar
• Gaugler, J. E., Hobday, J. V., & Savik, K. (2013). The CARES Observational Tool: A valid and reliable instrument to assess person-centred dementia care. Geriatric Nursing, 34(3), 194–198.
   PubMed Web of Science ®Google Scholar
• Health Foundation (2015). Person-centred care around the world. London, UK: The Health Foundations. Available at: http://personcentredcare.health.org.uk/resources/person-centred-care-around-world
   Google Scholar
• Johnson, R. B., & Onwuegbuzie, A. J. (2004). Mixed methods research: A research paradigm whose time has come. Educational Researcher, 33(7), 14–26.
   Google Scholar
• Kim, S. K., & Park, M. (2017). Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis. Clinical Interventions in Aging, 12, 381–397.
   PubMed Web of Science ®Google Scholar
• Kinney, J. M., & Stephens, M. A. P. (1989). Caregiving Hassles Scale: Assessing the daily hassles of caring for a family member with dementia. The Gerontologist, 29(3), 328–332.
   PubMed Web of Science ®Google Scholar
• Kitwood, T. (1993). Towards a theory of dementia care: The interpersonal process. Ageing and Society, 13(1), 51–67.
   Web of Science ®Google Scholar
• Kitwood, T. (1997). Dementia reconsidered. The person comes first. Buckingham: Open University Press.
   Google Scholar
• Kuo, L. M., Huang, H. L., Hsu, W. C., & Yea-Ing, L. (2014). Health-related quality of life and self-efficacy of managing behavior problems for family caregivers of vascular dementia and Alzheimer’s disease patients. Dementia and Geriatric Cognitive Disorders, 38, 310–320.
   PubMed Web of Science ®Google Scholar
• Lewis, R. D. H. (1998). The impact of the marital relationship on the experience of caring for an elderly spouse with dementia. Ageing and Society, 18(2), 209–231.
   Web of Science ®Google Scholar
• Martinez, T., Suarez-Alvarez, J., & Yanguas, J. (2016). Instruments for assessing person centered care in gerontology. Psicotherma, 28(2), 114–121.
   PubMed Web of Science ®Google Scholar
• Murray, J., & Livingston, G. (1998). A qualitative study of adjustment to caring for an older spouse with psychiatric illness. Ageing and Society, 18(6), 659–671.
   Web of Science ®Google Scholar
• Nolan, M. R., Davies, S., Brown, J., Keady, J., & Nolan, J. (2004). Beyond ‘person-centred’ care: A new vision for gerontological nursing. Journal of Clinical Nursing, 13(s1), 45–53.
   PubMed Web of Science ®Google Scholar
• Paparella, G. (2016). Person-centred care in Europe: a cross-country comparison of health system performance, strategies and structures. Oxford: Picker Institute Europe. Available at: http://www.pickereurope.org/wp-content/uploads/2016/02/12-02-16-Policy-briefing-on-patient-centred-care-in-Europe.pdf.
   Google Scholar
• Poveda, B., Osborne-Crowley, K., Laidlaw, K., Macleod, F., & Power, K. (2017). Social cognition, behaviour and relationship continuity in dementia of the Alzheimer type. Brain Impairment, 18(2), 175–187.
   Web of Science ®Google Scholar
• Riley, G. A., Fisher, G., Hagger, B. F., Elliott, A., Le Serve, H., & Oyebode, J. R. (2013). The Birmingham Relationship Continuity Measure: The development and evaluation of a measure of the perceived continuity of spousal relationships in dementia. International Psychogeriatrics, 25(2), 263–274.
   PubMed Web of Science ®Google Scholar
• Riley, G. A., Evans, L., & Oyebode, J. R. (2018). Relationship continuity and emotional well-being in spouses of people with dementia. Aging & Mental Health, 22(3), 299–305.
   PubMed Web of Science ®Google Scholar
• Stratton, P. (1997). Attributional coding of interview data: Meeting the needs of long-haul passengers. In N. Hayes (ed.), Doing qualitative analysis in psychology (pp.115–142). Hove, East Sussex: Psychology Press.
   Google Scholar
• Villa, D., & Riley, G. A. (2017). Partners’ experiences of relationship continuity in acquired brain injury. Cogent Psychology, 4, 1380891.
   Web of Science ®Google Scholar
• Walters, A. H., Oyebode, J. R., & Riley, G. A. (2010). The dynamics of continuity and discontinuity for women caring for a spouse with dementia. Dementia: The International Journal of Social Research and Practice, 9(2), 169–189.
   Google Scholar
• Ward, S., Opie, J., & O’Connor, D. W. (2003). Family carers’ responses to behavioural and psychological symptoms of dementia. International Journal of Geriatric Psychiatry, 18, 1007–1012.
   PubMed Web of Science ®Google Scholar
• Williamson, G. M., Martin-Cook, K., Weiner, M. F., Svetlik, D. A., Saine, K., Hynan, L. S., … Schulz, R. (2005). Caregiver resentment: Explaining why care recipients exhibit problem behavior. Rehabilitation Psychology, 50(3), 215–223.
   Web of Science ®Google Scholar