The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK

References

• Brodaty, H., Gresham, M., & Luscombe, G. (1997). The prince henry hospital dementia caregivers’ training programme. International Journal of Geriatric Psychiatry, 12(2), 183–192.
   PubMed Web of Science ®Google Scholar
• Brooker, D., Evans, S., & Dröes, R. (2017). Framing outcomes of post-diagnostic psychosocial interventions in dementia. Working with Older People, 21(1), 13–21.
   Google Scholar
• Brooker, D., Evans, S. C., Evans, S. B., Atkinson, T., Bray, J., Henderson, C., & Dröes, R. (2018). Cross Country Validation of the Dutch Meeting Centres Support Programme: The impact on people living with dementia in Italy, Poland and UK.
   Google Scholar
• Brooker, D., La Fontaine, J., Evans, S., Bray, J., & Saad, K. (2014). Public health guidance to facilitate timely diagnosis of dementia: Alzheimer's cooperative valuation in Europe recommendations. International Journal of Geriatric Psychiatry, 29(7), 682–693.
   PubMed Web of Science ®Google Scholar
• Burgener, S., & Twigg, P. (2002). Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer’s Disease and Associated Disorders, 16(2), 88–102.
   PubMed Web of Science ®Google Scholar
• Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Lawrence Earlbaum Associates.
   Google Scholar
• Cummings, J., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D., & Gornbein, J. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314.
   PubMed Web of Science ®Google Scholar
• Dam, A. E. H., D., Vugt, M. E., van Boxtel, M. P. J., & Verhey, F. R. J. (2017). Effectiveness of an online social support intervention for caregivers of people with dementia: The study protocol of a randomised controlled trial. Trials, 18, 395. http://doi.org/10.1186/s13063-017-2097-y
   PubMed Web of Science ®Google Scholar
• Dickinson, C., Dow, J., Gibson, G., Hayes, L., Robalino, S., & Robinson, L. (2017). Psychosocial intervention for caregivers of people with dementia: What components are most effective and when? A systematic review of systematic reviews. International Psychogeriatrics, 29(01), 31–43.
   PubMed Web of Science ®Google Scholar
• Dröes, R., Breebaart, E., Meiland, F., van Tilburg, W., & Mellenbergh, G. (2004). Effect of Meeting Centres Support Programme on feeling of competence of informal caregivers and delay of institutionalization of people with dementia. Aging & Mental Health, 8(3), 201–211.
   PubMed Web of Science ®Google Scholar
• Dröes, R., Breebaart, E., van Tilburg, W., & Mellenbergh, G. (2000). Effect of integrated family support versus day care only on behaviour and mood of patients with dementia. International Psychogeriatrics, 12(1), 99–116. The
   PubMed Web of Science ®Google Scholar
• Dröes, R., Meiland, F., Schmitz, M., & van Tilburg, W. (2011). An evaluation of the Meeting Centres Support Programme among persons with dementia and their caregivers. Nonpharmacological Therapies in Dementia, 2(1), 19–39.
   Google Scholar
• Dröes, R., Meiland, F., & van Tilburg, W. (2006). The Meeting Centres Support Programme for persons with dementia and their caregivers; From development to Implementation. In: B. Miesen & G. Jones (eds.), Caregiving in Dementia IV. Oxford, UK: Routledge.
   Google Scholar
• Dröes, R., Van Mierlo, L., van der Roest, H., & Meiland, F. (2010). Focus and effectiveness of psychosocial interventions for people with dementia in institutional settings from the perspective of coping with the disease. Non-Pharmacological Therapies in Dementia, 1(2), 139–161.
   Google Scholar
• Dröes, R. M., Meiland, F. J. M., Evans, S., Brooker, D., Farina, E., Szcześniak, D., … Chattat, R. (2017). Comparison of the adaptive implementation and evaluation of the Meeting Centers Support Program for people with dementia and their family caregivers in Europe; study protocol of the MEETINGDEM project. BMC, 17(1), 78.
   Google Scholar
• Froelich, L., Andreasen, N., Tsolaki, M., Foucher, A., Kavanagh, S., van Baelen, B., & Schwalen, S. (2009). Long-term treatment of patients with Alzheimer’s disease in primary and secondary care: results from an International Survey. Current Medical Research and Opinion, 25(12), 3059–3068.
   PubMed Web of Science ®Google Scholar
• Goldberg, D., & Williams, P. (1998). A user’s guide to the general health questionnaire. Windsor, UK: NFER-Nelson.
   Google Scholar
• Hellström, I., Nolan, M., & Lundh, U. (2007). Sustaining ‘couplehood’: Spouses’ strategies for living positively with dementia. Dementia, 6(3), 383–409.
   Google Scholar
• Henderson, C., Rehill, A., Brooker, D., Evans, S. C., Evans, S. B., Bray, J., … Knapp, M. (2018). Costs and Cost-Effectiveness of the Meeting Centres Support Programme for People Living with Dementia in Italy, Poland and the UK.
   Google Scholar
• Holst, G., & Edberg, A. K. (2011). Wellbeing among people with dementia and their next of kin over a period of 3 years. Scandinavian Journal of Caring Sciences, 25(3), 549–557.
   PubMed Web of Science ®Google Scholar
• Hughes, M. E., Waite, L. J., Hawkley, L. C., & Cacioppo, J. T. (2004). A short scale for measuring loneliness in large surveys: Results from two population-based studies. Research on Aging, 26(6), 655–672. doi: 10.1177/0164027504268574.
   PubMed Web of Science ®Google Scholar
• Kannan, H., Bolge, S., D., Valle, M., Alvir, J., & Petrie, C. (2011). The association between Alzheimer’s disease symptom severity and caregiver outcomes: A cross-sectional study. The Primary Care Companion to CNS Disorders, 13(3), 995–1006.
   Google Scholar
• Luengo-Fernandez, R., Leal, J., & Gray, A. (2010). Dementia 2010: The economic burden of dementia and associated research funding in the United Kingdom. Cambridge, UK: Alzheimer’s Research Trust.
   Google Scholar
• Mangiaracina, F, Chattat, R., Farina, E., Saibene, F. L., Gamberini, G., Brooker, D … Meiland, F. (2017). Not re-inventing the wheel: The Adaptive implementation of the Meeting Centres Support Programme in four European countries. Aging and Mental Health, 21(1), 40–48.
   PubMed Web of Science ®Google Scholar
• Marziali, E., & Climans, R. (2009). New technology to connect frontotemporal dementia spousal caregivers online. The Canadian Review of Alzheimer´s Disease and Other Dementias, 12(2), 23–26.
   Google Scholar
• Meiland, F., Dröes, R., de Lange, J., Vernooij-Dassen, M. V., & Tilburg, W. (2010). Predictors of effective support in meeting Centres for people with dementia and their caregivers. Nonpharmacological Therapies in Dementia, 1(3), 251–270.
   Google Scholar
• Moniz-Cook, E., Vernooij-Dassen, M., Woods, R., Verhey, F., Chattat, R., de Vugt, M. … Orrell, R. M., For The Interdem* Group. (2008). A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging & Mental Health, 12(1), 1429. doi: 10.1080/13607860801919850
   Web of Science ®Google Scholar
• Organisation for Economic Co-operation and Development (OECD)/European Union (EU) (2016). Health at a Glance: Europe 2016: State of Health in the EU Cycle. Paris: OECD Publishing.
   Google Scholar
• Reisberg, B., Ferris, S., de Leon, M., & Crook, T. (1982). The global deterioration scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139(9), 1136–1139.
   PubMed Web of Science ®Google Scholar
• Russell, D. (1996). UCLA loneliness scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40.
   PubMed Web of Science ®Google Scholar
• Schulz, R., O’Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes1. Gerontologist, 35(6), 771–791.
   PubMed Web of Science ®Google Scholar
• Selwood, A., Johnston, K., Katona, C., Lyketsos, C., & Livingston, G. (2007). Systematic review of the effect of psychological interventions on family caregivers of people with dementia. Journal of Affective Disorders, 101(1–3), 75–89.
   PubMed Web of Science ®Google Scholar
• Smits, C. H., de Lange, J., Dröes, R., Meiland, F., Vernooij-Dassen, M., & Pot, A. M. (2007). Effects of combined intervention programmes for people with dementia living at home and their caregivers: a systematic review. International Journal of Geriatric Psychiatry, 22(12), 1181–1193. doi: 10.1002/gps.1805
   PubMed Web of Science ®Google Scholar
• Szcześniak, D., Rymaszewska, J., Saibene, F., Urbańska, K., d’Arma, A., Brooker, D., … Farina, E. (2018). Meeting Centres Support Programme highly appreciated by people with dementia and caregivers: a European cross-country evaluation.
   Google Scholar
• Szcześniak, D., Droes, R. M., Meiland, F., Brooker, D., Farina, E., Chattat, R., … Rymaszewska, J. (2018). Does the community based combined Meeting Centre Support Programme facilitate the pathway to day care activities for people living with dementia? An explorative implementation study in four European countries. International Psychogeriatrics, 1–18. doi: 10.1017/S1041610217002885
   Web of Science ®Google Scholar
• Thomas, S., Dalton, J., Harden, M., Eastwood, A., & Parker, G. (2017). Updated meta-review of evidence on support for caregivers. (Health Services and Delivery Research, No. 5.12). Southampton, UK: NIHR Journals Library.
   Google Scholar
• Van't Leven, N., Prick, A., Groenewoud, J., Roelofs, P., Lange, J., & Pot, A. (2013). Dyadic interventions for community-dwelling people with dementia and their family caregivers: a systematic review. International Psychogeriatrics, 25(10), 1581–1603.
   PubMed Web of Science ®Google Scholar
• Vernooij-Dassen, M., Felling, A., Brummelkamp, E., Dauzenberg, M., van de Bos, G., & Grol, R. (1999). Assessment of caregiver’s competence in dealing with the burden of caregiving for a dementia patient: A Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. Journal of the American Geriatrics Society, 47(2), 256–257.
   PubMed Web of Science ®Google Scholar
• World Health Organisation. (2016). Dementia Fact Sheet 2016. Retrieved from http://www.who.int/mediacentre/factsheets/fs362/en/.
   Google Scholar