6,276
Views
26
CrossRef citations to date
0
Altmetric
Quality of life and cognitive function

Psychological predictors of ‘living well’ with dementia: findings from the IDEAL study

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, & ORCID Icon show all
Pages 956-964 | Received 31 Jul 2018, Accepted 24 Dec 2018, Published online: 05 Mar 2019

References

  • Aspinwall, L. G., & Taylor, S. E. (1992). Modeling cognitive adaptation: A longitudinal investigation of the impact of individual differences and coping on college adjustment and performance. Journal of Personality and Social Psychology, 63,989–1003.
  • Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioural change. Psychological Review, 84,191–215.
  • Bech, P. (2004). Measuring the dimension of psychological general well-being by the WHO-5. Quality of Life Newsletter, 32,15–16. Retrieved from http://www.pro-newsletter.com/images/PDF/qoln32.pdf
  • Blascovich, J., & Tomaka, J. (1991). Measures of self-esteem. In J. P. Robinson & P. R.Shaver (Eds.), Measures of personality and social psychological attitudes (pp.115–160). San Diego, CA: Academic Press.
  • Burgener, S. C., & Berger, B. (2008). Measuring perceived stigma in persons with progressive neurological disease: Alzheimer’s Dementia and Parkinson’s Disease. Dementia, 7,31–53.
  • Carver, C. S., & Scheier, M. F. (2014). Dispositional optimism. Trends in Cognitive Sciences, 18,293–299.
  • Clare, L., Nelis, S. M., Quinn, C., Martyr, A., Henderson, C., Hindle, J. V., … Morris, R. G. (2014). Improving the experience of dementia and enhancing active life-living well with dementia: Study protocol for the IDEAL study. Health and Quality of Life Outcomes, 12,164.
  • Clare, L., Woods, R. T., Nelis, S. M., Martyr, A., Marková, I. S., Roth, I., … Morris, R. G. (2014). Trajectories of quality of life in early‐stage dementia: Individual variations and predictors of change. International Journal of Geriatric Psychiatry, 29,616–623.
  • Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: The Connor‐Davidson resilience scale (CD‐RISC). Depression and Anxiety, 18,76–82.
  • Cozzarelli, C. (1993). Personality and self-efficacy as predictors of coping with abortion. Journal of Personality and Social Psychology, 65,124–126.
  • Dawson, N. T., Powers, S. M., Krestar, M., Yarry, S. J., & Judge, K. S. (2013). Predictors of self-reported psychosocial outcomes in individuals with dementia. The Gerontologist, 53,748–759.
  • Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1),71–75.
  • Ettema, T. P., Dröes, R. M., de Lange, J., Ooms, M. E., Mellenbergh, G. J., & Ribbe, M. W. (2005). The concept of quality of life in dementia in the different stages of the disease. International Psychogeriatrics, 17,353–370.
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12,189–198.
  • Glaesmer, H., Rief, W., Martin, A., Mewes, R., Brähler, E., Zenger, M., & Hinz, A. (2012). Psychometric properties and population‐based norms of the Life Orientation Test Revised (LOT‐R). British Journal of Health Psychology, 17,432–445.
  • Hindle, J. V., Watermeyer, T. J., Roberts, J., Brand, A., Hoare, Z., Martyr, A., & Clare, L. (2018). Goal-orientated cognitive rehabilitation for dementias associated with Parkinson’s disease – A pilot randomised controlled trial. International Journal of Geriatric Psychiatry, 33,718–728.
  • Hobfoll, S. E. (2002). Social and psychological resources and adaptation. Review of General Psychology, 6,307–324.
  • Hsieh, S., Schubert, S., Hoon, C., Mioshi, E., & Hodges, J. R. (2013). Validation of the Addenbrooke’s Cognitive Examination III in frontotemporal dementia and Alzheimer’s disease. Dementia and Geriatric Cognitive Disorders, 36,242–250.
  • Institute of Medicine. (2012). Living well with chronic illness: A call for public health action. Washington, DC: National Academics Press.
  • Jakobsen, J. C., Gluud, C., Wetterslev, J., & Winkel, P. (2017). When and how should multiple imputation be used for handling missing data in randomised clinical trials – A practical guide with flowcharts. BMC Medical Research Methodology, 17,162.
  • Kobau, R., Sniezek, J., Zack, M. M., Lucas, R. E., & Burns, A. (2010). Well‐being assessment: An evaluation of well‐being scales for public health and population estimates of well‐being among US adults. Applied Psychology: Health and Well-Being, 2,272–297.
  • Kinney, J. M., & Rentz, C. A. (2005). Observed well-being among individuals with dementia: Memories in the Making©, an art program, versus other structured activity. American Journal of Alzheimer’s Disease & Other Dementias®, 20,220–227.
  • Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12,269–287.
  • Kitwood, T. M. (1997). Dementia reconsidered: The person comes first. Buckingham, UK: Open University press.
  • Lee, V., Cohen, S. R., Edgar, L., Laizner, A. M., & Gagnon, A. J. (2006). Meaning-making intervention during breast or colorectal cancer treatment improves self-esteem, optimism, and self-efficacy. Social Science and Medicine, 62,3133–3145.
  • Little, R. J. A., & Rubin, D. B. (2002). Statistical analysis with missing data. London, UK: Wiley.
  • Liu, Y., Wang, Z., Zhou, C., & Li, T. (2014). Affect and self-esteem as mediators between trait resilience and psychological adjustment. Personality and Individual Differences, 66,92–97.
  • Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (2000). Quality of life in Alzheimer’s disease: Patient and caregiver reports. In S. M. Albert & R. G. Logsdon (Eds.), Assessing quality of life in dementia (pp.17–30). New York, NY: Springer.
  • Luszczynska, A., Scholz, U., & Schwarzer, R. (2005). The general self-efficacy scale: Multicultural validation studies. The Journal of Psychology, 139,439–457.
  • Martyr, A., Clare, L., Nelis, S. M., Marková, I. S., Roth, I., Woods, R. T., … Morris, R. G. (2012). Verbal fluency and awareness of functional deficits in early-stage dementia. The Clinical Neuropsychologist, 26,501–519.
  • Martyr, A., Nelis, S. M., Quinn, C., Wu, Y.-T., Lamont, R. A., Henderson, C., … Clare, L. (2018). Living well with dementia: A systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia. Psychological Medicine, 48,2130–2139.
  • Meevissen, Y. M., Peters, M. L., & Alberts, H. J. (2011). Become more optimistic by imagining a best possible self: Effects of a two week intervention. Journal of Behavior Therapy and Experimental Psychiatry, 42,371–378.
  • Mitchell, W. (2018). Somebody I used to know. London, UK: Bloomsbury Publishing.
  • Moyle, W., Mcallister, M., Venturato, L., & Adams, T. (2007). Quality of life and dementia: The voice of the person with dementia. Dementia, 6,175–191.
  • Oliver, K. (2016). Walk the walk, talk the talk. London, UK: Foget-Mr-Knots.
  • Pfeffer, R. I., Kurosaki, T. T., Harrah, C. H., Chance, J. M., & Filos, S. (1982). Measurement of functional activities in older adults in the community. Journal of Gerontology, 37,323–329.
  • Quinn, C., Toms, G., Jones, C., Brand, A., Edwards, R. T., Sanders, F., & Clare, L. (2016). A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (the SMART study). International Psychogeriatrics, 28,787–800.
  • Rosenberg, M. (1965). Society and the adolescent self-image. Princeton, NJ: Princeton University Press.
  • Rini, C. K., Dunkel-Schetter, C., Wadhwa, P. D., & Sandman, C. A. (1999). Psychological adaptation and birth outcomes: The role of personal resources, stress, and sociocultural context in pregnancy. Health Psychology, 18,333–345.
  • Rubin, D. B. (1996). Multiple imputation after 18+ years (with discussion). Journal of the American Statistical Association, 91,473–489.
  • Rutter, M. (1985). Resilience in the face of adversity. Protective factors and resistance to psychiatric disorder. The British Journal of Psychiatry, 147,598–611.
  • Sabat, S. R., Fath, H., Moghaddam, F. M., & Harré, R. (1999). The maintenance of self-esteem: Lessons from the culture of Alzheimer’s sufferers. Culture and Psychology, 5(1),5–31.
  • Sandler, I. (2001). Quality and ecology of adversity as common mechanisms of risk and resilience. American Journal of Community Psychology, 29(1),19–61.
  • Scheier, M. F., Carver, C. S., & Bridges, M. W. (1994). Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): A reevaluation of the Life Orientation Test. Journal of Personality and Social Psychology, 67,1063–1078.
  • Schwarzer, R., & Jerusalem, M. (1995). Generalized Self-Efficacy Scale. In J.Weinman, S.Wright, & M.Johnston (Eds.), Measures in health psychology: A user’s portfolio. Causal and control beliefs (pp.35–37). Windsor, UK: nferNelson.
  • Silarova, B., Nelis, S. M., Ashworth, R. M., Ballard, C., Bieńkiewicz, M., Henderson, C., … Clare, L. (2018). Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. BMC Public Health, 18,1214. doi: 10.1186/s12889-018-6129-7
  • Sinclair, S. J., Blais, M. A., Gansler, D. A., Sandberg, E., Bistis, K., & LoCicero, A. (2010). Psychometric properties of the Rosenberg Self-Esteem Scale: Overall and across demographic groups living within the United States. Evaluation & the Health Professions, 33(1),56–80.
  • Steptoe, A., Wright, C., Kunz-Ebrecht, S. R., & Iliffe, S. (2006). Dispositional optimism and health behaviour in community‐dwelling older people: Associations with healthy ageing. British Journal of Health Psychology, 11(1),71–84.
  • Stoner, C. R., Orrell, M., & Spector, A. (2018). The Positive Psychology Outcome Measure (PPOM) for people with dementia: Psychometric properties and factor structure. Archives of Gerontology and Geriatrics, 76,182–187.
  • Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38,1161–1173.
  • Taylor, S. E., & Brown, J. D. (1988). Illusion and well-being: A social psychological perspective on mental health. Psychological Bulletin, 103,193–210.
  • Teoh, V., Sims, J., & Milgrom, J. (2009). Psychosocial predictors of quality of life in a sample of community-dwelling stroke survivors: A longitudinal study. Topics in Stroke Rehabilitation, 16,157–166.
  • Thompson, S. C., Sobolew-Shubin, A., Galbraith, M. E., Schwankovsky, L., & Cruzen, D. (1993). Maintaining perceptions of control: Finding perceived control in low-control circumstances. Journal of Personality and Social Psychology, 64,293–304.
  • Topp, C. W., Østergaard, S. D., S⊘ndergaard, S., & Bech, P. (2015). The WHO-5 Well-Being Index: A systematic review of the literature. Psychotherapy and Psychosomatics, 84,167–176.
  • Wolverson, E. L., Clarke, C., & Moniz-Cook, E. D. (2016). Living positively with dementia: A systematic review and synthesis of the qualitative literature. Aging and Mental Health, 20,676–699.
  • World Health Organization. (1992). International statistical classification of diseases and related health problems, 10th revision (ICD-10). Geneva, Switzerland: World Health Organization.
  • World Health Organization, Regional office for Europe. (1998). Well-being measures in primary health care/The DepCare project: Report on a WHO meeting. E60246. Retrieved from http://www.euro.who.int/__data/assets/pdf_file/0016/130750/E60246.pdf
  • Young, D. K. W., Ng, P. Y. N., & Kwok, T. (2017). Predictors of the health‐related quality of life of Chinese people with major neurocognitive disorders and their caregivers: The roles of self‐esteem and caregiver’s burden. Geriatrics & Gerontology International, 17,2319–2328.