Use and impact of the Alzheimer Experience: a free online media production to raise public awareness and enhance knowledge and understanding of dementia

References

• Barbosa, A., Nolan, M., Sousa, L., & Figueiredo, D. (2015). Supporting Direct Care Workers in Dementia Care: Effects of a Psychoeducational Intervention. American Journal of Alzheimer's Disease & Other Dementiasr, 30(2), 130–138.
   PubMed Web of Science ®Google Scholar
• Barbosa, A., Nolan, M., Sousa, L., & Figueiredo, D. (2017). Person-centredness in direct care workers caring for residents with dementia: Effects of a psycho-educational intervention. Dementia, 16(2), 192–203.
   PubMedGoogle Scholar
• Barbosa, A., Nolan, M., Sousa, L., Marques, A., & Figueiredo, D. (2016). Effects of a Psychoeducational Intervention for Direct Care Workers Caring for People With Dementia: Results From a 6-Month Follow-Up Study. American Journal of Alzheimer's Disease & Other Dementiasr, 31(2), 144–155.
   PubMed Web of Science ®Google Scholar
• Blom, M. M., Zarit, S. H., Groot Zwaaftink, R. B. M., Cuijpers, P., & Pot, A. M. (2015). Effectiveness of an Internet Intervention for Family Caregivers of People with Dementia: Results of a Randomized Controlled Trial. PLoS One, 10(2), e0116622.
   PubMed Web of Science ®Google Scholar
• Cahill, S., Clark, M., O'Connell, H., Lawlor, B., Coen, R. F., & Walsh, C. (2008). The attitudes and practices of general practitioners regarding dementia diagnosis in Ireland. International Journal of Geriatric Psychiatry, 23(7), 663–669.
   PubMed Web of Science ®Google Scholar
• Cahill, S., Pierce, M., Werner, P., Darley, A., & Bobersky, A. (2015). A Systematic Review of the Public’s Knowledge and Understanding of Alzheimer’s Disease and Dementia. Alzheimer Disease & Associated Disorders, 29(3), 255–275.
   PubMed Web of Science ®Google Scholar
• Carpenter, B. D., Balsis, S., Otilingam, P. G., Hanson, P. K., & Gatz, M. (2009). The Alzheimer's Disease Knowledge Scale: development and psychometric properties. Gerontologist, 49(2), 236–247.
   PubMed Web of Science ®Google Scholar
• Cheng, S.-T., Fung, H. H., Chan, W. C., & Lam, L. C. W. (2016). Short-Term Effects of a Gain- Focused Reappraisal Intervention for Dementia Caregivers: A Double-Blind Cluster- Randomized Controlled Trial. The American Journal of Geriatric Psychiatry, 24(9), 740–750.
   PubMed Web of Science ®Google Scholar
• Cheng, S. T., Lam, L. C., Chan, L. C., Law, A. C., Fung, A. W., Chan, W. C., … Chan, W. M. (2011). The effects of exposure to scenarios about dementia on stigma and attitudes toward dementia care in a Chinese community. International Psychogeriatrics, 23(09), 1433–1441.
   PubMed Web of Science ®Google Scholar
• Cheston, R., Hancock, J., & White, P. (2016). A cross-sectional investigation of public attitudes toward dementia in Bristol and South Gloucestershire using the Approaches to Dementia Questionnaire. International Psychogeriatrics, 28(10), 1717–1724.
   PubMed Web of Science ®Google Scholar
• Devlin, E., MacAskill, S., & Stead, M. (2007). ‘We're still the same people’: developing a mass media campaign to raise awareness and challenge the stigma of dementia. International Journal of Nonprofit and Voluntary Sector Marketing, 12(1), 47–58.
   Google Scholar
• Di, T. F., Canevelli, M., Di, A. P., & Vanacore, N. (2015). The Italian Dementia National Plan. Commentary.Annali Dell'Istituto Superiore di Sanita, 51(4), 261–264.
   PubMed Web of Science ®Google Scholar
• Geschke, K., Scheurich, A., Schermuly, I., Laux, N., Böttcher, A., & Fellgiebel, A. (2012). Effectivity of early psychosocial counselling for family caregivers in general practioner based dementia care. Deutsche Medizinische Wochenschrift, 137(43), 2201–2206.
   PubMed Web of Science ®Google Scholar
• Groot Zwaaftink, R., & Veerbeek, M. (2013). Met Andere Ogen: Twee jaar Alzheimer Experience. Denkbeeld, 25(6), 6–9.
   Google Scholar
• Hayden, L. J., Glynn, S. M., Hahn, T. J., Randall, F., & Randolph, E. (2012). The use of Internet technology for psychoeducation and support with dementia caregivers. Psychological Services, 9(2), 215–218.
   PubMed Web of Science ®Google Scholar
• Iliffe, S., De Lepeleire, J., van Hout, H., Kenny, G., Lewis, A., & Vernooij-Dassen, M. & The Diadem Group (2005). Understanding obstacles to the recognition of and response to dementia in different European countries: A modified focus group approach using multinational, multi-disciplinary expert groups. Aging & Mental Health, 9(1), 1–6.
   PubMed Web of Science ®Google Scholar
• Kwok, T., Wong, B., Ip, I., Chui, K., Young, D., & Ho, F. (2013). Telephone-delivered psychoeducational intervention for Hong Kong Chinese dementia caregivers: a single- blinded randomized controlled trial. Clinical Interventions in Aging, 8, 1191–1197 doi 10.2147/CIA.S48264.
   PubMed Web of Science ®Google Scholar
• Lintern, T., Woods, B., & Phair, L. (2000). Before and after training: a case study of intervention. Journal of Dementia Care, 8, 15–17.
   Google Scholar
• Lipsey, M. W., & Wilson, D. B. (1993). The efficacy of psychological, educational, and behavioral treatment: Confirmation from meta-analysis. American psychologist, 48(12), 1181–1209.
   Google Scholar
• Livingston, G., Barber, J., Rapaport, P., Knapp, M., Griffin, M., King, D., … Cooper, C. (2013). Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial. Britsh Medical Journal, 347(oct25 2), f6276.
   PubMed Web of Science ®Google Scholar
• Livingstone, G., Cooper, C., Woods, J., Milne, A., & Katona, C. (2008). Successful ageing in adversity – the LASER longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry, 79, 641–645.
   PubMed Web of Science ®Google Scholar
• Melville, K. M., Casey, L. M., & Kavanagh, D. J. (2010). Dropout from Internet-based treatment for psychological disorders. British Journal of Clinical Psychology, 49(4), 455–471. PMID: 19799804.
   PubMed Web of Science ®Google Scholar
• Milne, A. (2010). The ‘D’ word: Reflections on the relationship between stigma, discrimination and dementia. Journal of Mental Health, 19(3), 227–233.
   PubMed Web of Science ®Google Scholar
• Mukadam, N., & Livingston, G. (2012). Reducing the stigma associated with dementia: approaches and goals. Aging Health, 8(4), 377–386.
   Google Scholar
• Prince, M., Comas-Herrera, A., Knapp, M., Guerchet, M., & Karagiannidou, M. (2016). World Alzheimer report 2016: improving healthcare for people living with dementia: coverage, quality and costs now and in the future. London: Alzheimer’s Disease International.
   Google Scholar
• Prince, M., Wimo, A., Guerchet, M., Ali, G., Wu, T., & Prina, M. (2015). World Alzheimer Report 2015. The Global Impact of Dementia. An analysis of prevalence, incidence, cost & trends. London: Alzheimer’s Disease International. Retrieved December 13, 2017, from https://www.alz.co.uk/research/WorldAlzheimerReport2015.pdf.
   Google Scholar
• Vernooij-Dassen, M. J. F. J., Moniz-Cook, E. D., Woods, R. T., De Lepeleire, J., Leuschner, A., Zanetti, O., … & Iliffe, S. (2005). Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. International Journal of Geriatric Psychiatry, 20(4), 377–386.
   PubMed Web of Science ®Google Scholar
• Werner, P., & Kermel Schiffman, I. (2017). Exposure to a national multimedia Alzheimer's disease awareness campaign: Assessing stigmatic beliefs towards persons with the disease. International Journal of Geriatric Psychiatry, 33, e336–e342.
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2012). Dementia: a public health priority. Geneva: World Health Organization.
   Google Scholar