The role of symptom appraisal, concealment and social support in optimizing dyadic mental health in heart failure

References

• Amtmann, D., Cook, K. F., Jensen, M. P., Chen, W.-H., Choi, S., Revicki, D., … Lai, J.-S. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173–182. doi:10.1016/j.pain.2010.04.025
   PubMed Web of Science ®Google Scholar
• Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing & Health, 13(6), 375–384. doi:10.1002/nur.4770130605
   PubMed Web of Science ®Google Scholar
• Benjamin, E. J., Virani, S. S., Callaway, C. W., Chamberlain, A. M., Chang, A. R., Cheng, S., … Muntner, P. (2018). Heart disease and stroke statistics–2018 update: A report from the American Heart Association. Circulation, 137(12), e67–e492. doi:10.1161/CIR.0000000000000558
   PubMed Web of Science ®Google Scholar
• Berg, C. A., & Upchurch, R. (2007). A Developmental-contextual model of couples coping with chronic illness across the adult life span. Psychological Bulletin, 133(6), 920–954. doi:10.1037/0033-2909.133.6.920
   PubMed Web of Science ®Google Scholar
• Bidwell, J. T., Lyons, K. S., & Lee, C. S. (2017). Caregiver well-being and patient outcomes in heart failure: A meta-analysis. The Journal of Cardiovascular Nursing, 32(4), 372–382. doi:10.1097/JCN.0000000000000350
   PubMed Web of Science ®Google Scholar
• Bouldin, E. D., Aikens, J. E., Piette, J. D., & Trivedi, R. B. (2019). Relationship and communication characteristics associated with agreement between heart failure patients and their care partners on patient depressive symptoms. Aging & Mental Health, 23, 1122–1129. doi:10.1080/13607863.2018.1481923
   PubMed Web of Science ®Google Scholar
• Buck, H. G., Harkness, K., Wion, R., Carroll, S. L., Cosman, T., Kaasalainen, S., … Arthur, H. M. (2015). Caregivers’ contributions to heart failure self-care: A systematic review. 14, 79–89. doi:10.1177/1474515113518434
   Google Scholar
• Buck, H. G., Stromberg, A., Chung, M. L., Donovan, K. A., Harkness, K., Howard, A. M., … Evangelista, L. S. (2018). A systematic review of heart failure dyadic self-care interventions focusing on intervention components, contexts, and outcomes. International Journal of Nursing Studies, 77, 232–242. doi:10.1016/j.ijnurstu.2017.10.007
   PubMed Web of Science ®Google Scholar
• Carter, J. H., Lyons, K. S., Stewart, B. J., Archbold, P. G., & Scobee, R. (2010). Does age make a difference in caregiver strain? Comparison of young versus older caregivers in ealry-stage Parkinson's disease. Movement Disorders, 25(6), 724–730. doi:10.1002/mds.22888
   PubMed Web of Science ®Google Scholar
• Chung, M. L., Lennie, T. A., Mudd-Martin, G., & Moser, D. K. (2015). Adherence to a low-sodium diet in patients with heart failure is best when family members also follow the diet: A multicenter observational study. The Journal of Cardiovascular Nursing, 30(1), 44–50. doi:10.1097/JCN.0000000000000089
   PubMed Web of Science ®Google Scholar
• Dharmarajan, K., Wang, Y., Lin, Z., Normand, S.-L. T., Ross, J. S., Horwitz, L. I., … Krumholz, H. M. (2017). Association of changing hospital readmission rates with mortality rates after hospital discharge. JAMA, 318(3), 270–278. doi:10.1001/jama.2017.8444
   PubMed Web of Science ®Google Scholar
• Druley, J. A., Stephens, M. A. P., & Coyne, J. C. (1997). Emotional and physical intimacy in coping with Lupus: Women's dilemmas of disclosure and approach. Health Psychology, 16(6), 506–514. doi:10.1037//0278-6133.16.6.506
   PubMed Web of Science ®Google Scholar
• Falconier, M. K., & Kuhn, R. (2019). Dyadic coping in couples: A conceptual integration and a review of the empirical literature. Frontiers in Psychology, 26, 571. doi:10.3389/fpsyg.2019.00571
   Google Scholar
• Freedland, K. E., Hesseler, M. J., Carney, R. M., Steinmeyer, B. C., Skala, J. A., Dávila-Román, V. G., & Rich, M. W. (2016). Major depression and long-term survival of patients with heart failure. Psychosomatic Medicine, 78(8), 896–903. doi:10.1097/PSY.0000000000000346
   PubMed Web of Science ®Google Scholar
• Haedtke, C. A., Moser, D. K., Pressler, S. J., Chung, M. L., Wingate, S., & Goodlin, S. J. (2019). Influence of depression and gender on symptom burden among patients with advanced heart failure: Insight from the pain assessment, incidence and nature in heart failure study. Heart & Lung, 48, 201–207. doi:10.1016/j.hrtlng.2019.02.002
   PubMed Web of Science ®Google Scholar
• Hooker, S. A., Schmiege, S. J., Trivedi, R. B., Amoyal, N. R., & Bekelman, D. B. (2018). Mutuality and heart failure self-care in patients and their informal caregivers. European Journal of Cardiovascular Nursing, 17(2), 102–113. doi:10.1177/1474515117730184
   PubMed Web of Science ®Google Scholar
• Jani, B. D., Mair, F. S., Roger, V. L., Weston, S. A., Jiang, R., & Chamberlain, A. M. (2016). Comorbid depression and heart failure: A community cohort study. PLoS One, 11(6), e0158570. doi:10.1371/journal.pone.0158570
   PubMed Web of Science ®Google Scholar
• Jurgens, C. Y. (2006). Somatic awareness, uncertainty, and delay in care-seeking in acute heart failure. Research in Nursing & Health, 29(2), 74–86. doi:10.1002/nur.20118
   PubMed Web of Science ®Google Scholar
• Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic Data Analysis. New York: The Guildford Press.
   Google Scholar
• Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606–613. doi:jgi01114 [pii] doi:10.1046/j.1525-1497.2001.016009606.x
   PubMed Web of Science ®Google Scholar
• Lee, C. S., Gelow, J. M., Mudd, J. O., Green, J. K., Hiatt, S. O., Chien, C., & Riegel, B. (2015). Profiles of self-care management versus consulting behaviors in adults in heart failure. European Journal of Cardiovascular Nursing, 14(1), 63–72. doi:10.1177/1474515113519188
   PubMed Web of Science ®Google Scholar
• Lee, C. S., & Lyons, K. S. (2019). Patterns, relevance and predictors of dyadic mental health over time in lung cancer. Psycho-Oncology, 28(8), 1721–1727. doi:10.1002/pon.5153
   PubMed Web of Science ®Google Scholar
• Lee, C. S., Mudd, J. O., Auld, J., Gelow, J. M., Hiatt, S. O., Chien, C. V., … Lyons, K. S. (2017). Patterns, relevance and predictors of heart failure dyadic symptom appraisal. European Journal of Cardiovascular Nursing, 16(7), 595–604. doi:10.1177/1474515117700760
   PubMed Web of Science ®Google Scholar
• Li, Q., & Loke, A. Y. (2014). A literature review on the mutual impact of the spousal caregiver-cancer patients dyads: ‘communication’, ‘reciprocal influence’, and ‘caregiver-patient congruence’. European Journal of Oncology Nursing, 18(1), 58–65. doi:10.1016/j.ejon.2013.09.003
   PubMed Web of Science ®Google Scholar
• Lyons, K. S., & Lee, C. S. (e-pub). The role of dyadic symptom appraisal on physical and mental health over time in care dyads living with lung cancer. Journal of Family Nursing. doi:10.1177/1074840719889967
   Google Scholar
• Lyons, K. S., Lee, C. S. (in press). Understanding the family care dyad: A comparison of two multilevel models. European Journal of Cardiovascular Nursing
   Web of Science ®Google Scholar
• Lyons, K. S., Gelow, J. M., Hiatt, S., Mudd, J. O., Auld, J., Chien, C. V., & Lee, C. S. (2018). The role of dyadic confidence on engagement in heart failure care behaviors. The Gerontologist, 58(4), 635–643. doi:10.1093/geront/gnx030
   PubMed Web of Science ®Google Scholar
• Lyons, K. S., & Lee, C. S. (2018). The theory of dyadic illness management. Journal of Family Nursing, 24(1), 8–28. doi:10.1177/1074840717745669
   PubMed Web of Science ®Google Scholar
• Merz, E. L., Malcarne, V. L., Ko, C. M., Sadler, M., Kwack, L., Varni, J. W., & Sadler, G. R. (2011). Dyadic concordance among prostate cancer patients and their partners and health-related quality of life: Does it matter?. Psychology & Health, 26(6), 651–666. doi: 10.1080/08870441003721251
   PubMed Web of Science ®Google Scholar
• Miller, L. M., Kaye, J. A., Lyons, K. S., Lee, C. S., Whitlatch, C. J., & Caserta, M. S. (2019). Well-being in dementia: A cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners. International Psychogeriatrics, 31(5), 617–626. doi:10.1017/S104161021800203X
   PubMed Web of Science ®Google Scholar
• Moon, H., Townsend, A. L., Whitlatch, C. J., & Dilworth-Anderson, P. (2017). Quality of life for dementia caregiving dyads: Effects of incongruent perceptions of everyday care and values. The Gerontologist, 57(4), 657–666. doi:10.1093/geront/gnw055
   PubMed Web of Science ®Google Scholar
• Mosoiu, D., Rogozea, L., Landon, A., Bisoc, A., & Tint, D. (2019). Palliative care in heart failure: A public health emergency. American Journal of Therapeutics, doi:10.1097/MJT.0000000000001067
   PubMed Web of Science ®Google Scholar
• Mozaffarian, D., Benjamin, E. J., Go, A. S., Arnett, D. K., Blaha, M. J., & Cushman, M. &. (2016). Heart disease and stroke statistics–2016 update: A report from the American Heart Association. Circulation, 133, e38–e360. doi:10.1161/CIR.0000000000000366
   PubMed Web of Science ®Google Scholar
• Neugarten, B. L. (1979). Time, age, and the life cycle. The American Journal of Psychiatry, 136(7), 887–894. doi:10.1176/ajp.136.7.887
   PubMed Web of Science ®Google Scholar
• Northouse, L. L. (2012). Helping patients and their family caregivers cope with cancer. Oncology Nursing Forum, 39(5), 500–506. doi:10.1188/12.ONF.500-506
   PubMed Web of Science ®Google Scholar
• Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., & Mood, D. W. (2010). Interventions with family caregivers of cancer patients: A meta-analysis of randomized trials. CA: A Cancer Journal for Clinicians, 60, 317–339. doi:10.3322/caac.20081
   PubMed Web of Science ®Google Scholar
• Pucciarelli, G., Vellone, E., Savini, S., Simeone, S., Ausili, D., Alvaro, R., … Lyons, K. S. (2017). Roles of changing physical function and caregiver burden on quality of life in stroke: A longitudinal dyadic analysis. Stroke, 48(3), 733–739. doi:10.1161/STROKEAHA.116.014989
   PubMed Web of Science ®Google Scholar
• Regan, T. W., Lambert, S. D., Kelly, B., Falconier, M., Kissane, D., & Levesque, J. V. (2015). Couples coping with cancer: Exploration of theoretical frameworks from dyadic studies. Psycho-Oncology, 24(12), 1605–1617. doi:10.1002/pon.3854
   PubMed Web of Science ®Google Scholar
• Roger, V. L., Weston, S. A., Redfield, M. M., Hellermann-Homan, J. P., Killian, J., Yawn, B. P., & Jacobsen, S. J. (2004). Trends in heart failure incidence and survival in a community-based population. JAMA, 292(3), 344–350. doi:10.1001/jama.292.3.344
   PubMed Web of Science ®Google Scholar
• Rutledge, T., Reis, V. A., Linke, S. E., Greenberg, B. H., & Mills, P. J. (2006). Depression in heart failure: A meta-analytic review of prevalence, intervention effects, and associations with clinical outcomes. Journal of the American College of Cardiology, 48(8), 1527–1537. doi:10.1016/j.jacc.2006.06.055
   PubMed Web of Science ®Google Scholar
• Sayer, A. G., & Klute, M. M. (2005). Multilevel models for dyads. In V. L. Bengtson, A. C. Acock, K. R. Allen, P. Dilworth-Anderson, & D. M. Klein (Eds.), Sourcebook on family theory and research (pp. 289–313). Thousand Oaks, CA: Sage.
   Google Scholar
• Stull, D. E. (1996). The multidimensional Caregiver Index (MCSI): Its measurement and structure. Journal of Clinical Geropsychology, 2(3), 175–196.
   Google Scholar
• Thompson, L., & Walker, A. J. (1982). The dyad as the unit of analysis: Conceptual and methodological issues. Journal of Marriage and the Family, 44(4), 889–900. doi:10.2307/351453
   Web of Science ®Google Scholar
• Trivedi, R., Slightam, C., Fan, V. S., Rosland, A. M., Nelson, K., Timko, C., … Piette, J. D. (2016). A Couples' Based Self-Management Program for Heart Failure: Results of a Feasibility Study, doi:10.3389/fpubh.2016.00171
   Google Scholar
• Vellone, E., Chung, M. L., Cocchieri, A., Rocco, G., Alvaro, R., & Riegel, B. (2014). Effects of self-care on quality of life in adults with heart failure and their spousal caregivers: Testing dyadic dynamics using the actor-partner interdependence model. Journal of Family Nursing, 20(1), 120–141. doi:10.1177/1074840713510205
   PubMed Web of Science ®Google Scholar
• Zimet, G., Powell, S. S., Farley, G. K., Werkman, S., & Berkoff, K. A. (1990). Psychometric characteristics of the Multidimensional Scale of perceived social support. Journal of Personality Assessment, 55(3), 610–617.
   PubMed Web of Science ®Google Scholar