References
- Abrams, J. A., Maxwell, M., Pope, M., & Belgrave, F. Z. (2014). Carrying the world with the grace of a lady and the grit of a warrior: Deepening our understanding of the “strong black woman” schema. Psychology of Women Quarterly, 38(4), 503–518. doi:https://doi.org/10.1177/0361684314541418
- Ajrouch, K. J., Antonucci, T. C., & Janevic, M. R. (2001). Social networks among Blacks and Whites: The interaction between race and age. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 56(2), S112–S118. doi:https://doi.org/10.1093/geronb/56.2.s112
- Allen, R. S., Oliver, J. S., Eichorst, M. K., Mieskowski, L., Payne-Foster, P., & Sörensen, S. (2019). Preparation and planning for future care in the Deep South: Adapting a validated tool for cultural sensitivity. The Gerontologist, 59(6), e643–e652. doi:https://doi.org/10.1093/geront/gny102
- Amjad, H., Towle, V., & Fried, T. (2014). Association of experience with illness and end-of-life care with advance care planning in older adults. Journal of the American Geriatrics Society, 62(7), 1304–1309. doi:https://doi.org/10.1111/jgs.12894
- Bauer, G. R. (2014). Incorporating intersectionality theory into population health research methodology: Challenges and the potential to advance health equity. Social Science & Medicine, 110, 10–17. doi:https://doi.org/10.1016/j.socscimed.2014.03.022
- Beauboeuf-Lafontant, T. (2008). Listening past the lies that make us sick: A voice-centered analysis of strength and depression among black women. Qualitative Sociology, 31(4), 391–406. doi:https://doi.org/10.1007/s11133-008-9113-1
- Bischoff, K. E., Sudore, R. L., Miao, Y., Boscardin, W. J., & Smith, A. K. (2013). Advance care planning and the quality of end-of-life care in older adults. Journal of the American Geriatrics Society, 61(2), 209–214. doi:https://doi.org/10.1111/jgs.12105
- Bonanno, G. A. (2004). Loss, trauma, and human resilience: Have we underestimated the human capacity to thrive after extremely aversive events? The American Psychologist, 59(1), 20–28. doi:https://doi.org/10.1037/0003-066X.59.1.20
- Boulware, L. E., Cooper, L. A., Ratner, L. E., LaVeist, T. A., & Powe, N. R. (2003). Race and trust in the health care system. Public Health Reports (Washington, D.C. : 1974), 118(4), 358–365. doi:https://doi.org/10.1093/phr/118.4.358
- Brinkman-Stoppelenburg, A., Rietjens, J. A. C., & van der Heide, A. (2014). The effects of advance care planning on end-of-life care: A systematic review. Palliative Medicine, 28(8), 1000–1025. doi:https://doi.org/10.1177/0269216314526272
- Bullock, K., McGraw, S. A., Blank, K., & Bradley, E. H. (2005). What matters to older African Americans facing end-of-life decisions? A focus group study. Journal of Social Work in End-of-Life & Palliative Care, 1(3), 3–19. doi:https://doi.org/10.1300/J457v01n03_02
- Carr, D. (2004). Black/White differences in psychological adjustment to spousal loss among older adults. Research on Aging, 26(6), 591–622. doi:https://doi.org/10.1177/0164027504268495
- Carr, D. (2011). Racial differences in end-of-life planning: Why don't Blacks and Latinos prepare for the inevitable? Omega, 63(1), 1–20. doi:https://doi.org/10.2190/OM.63.1.a
- Carr, D. (2012). “I don't want to die like that...”: The impact of significant others' death quality on advance care planning. The Gerontologist, 52(6), 770–781. doi:https://doi.org/10.1093/geront/gns051
- Carr, D., & Khodyakov, D. (2007). End-of-life health care planning among young-old adults: An assessment of psychosocial influences. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 62(2), S135–S141. doi:https://doi.org/10.1093/geronb/62.2.s135
- Carr, D., & Luth, E. A. (2017). Advance care planning: Contemporary issues and future directions. Innovation in Aging, 1(1), igx012. doi:https://doi.org/10.1093/geroni/igx012
- Carr, D., Moorman, S. M., & Boerner, K. (2013). End-of-life planning in a family context: Does relationship quality affect whether (and with whom) older adults plan? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 68(4), 586–592. doi:https://doi.org/10.1093/geronb/gbt034
- Choi, S., Kim, M., & McDonough, I. M. (2019). Do older adults with Alzheimer's disease engage in estate planning and advance care planning preparation? Aging & Mental Health, 23(7), 872–879. doi:https://doi.org/10.1080/13607863.2018.1461192
- Choi, S., McDonough, I. M., Kim, M., & Kim, G. (2020). The association between the number of chronic health conditions and advance care planning varies by race/ethnicity. Aging & Mental Health, 24(3), 453–463. doi:https://doi.org/10.1080/13607863.2018.1533521
- Cooney, T. M., Shapiro, A., & Tate, C. E. (2019). End-of-life care planning: The importance of older adults' marital status and gender. Journal of Palliative Medicine, 22(8), 902–907. doi:https://doi.org/10.1089/jpm.2018.0451
- Detering, K. M., Hancock, A. D., Reade, M. C., & Silvester, W. (2010). The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. BMJ, 340, c1345. doi:https://doi.org/10.1136/bmj.c1345
- Gerald, L. B., Sanderson, B., Fish, L., Li, Y., Bittner, V., Brooks, C. M., & Bailey, W. C. (2000). Advance directives in cardiac and pulmonary rehabilitation patients. Journal of Cardiopulmonary Rehabilitation, 20(6), 340–345. doi:https://doi.org/10.1097/00008483-200011000-00002.
- Gerst, K., & Burr, J. A. (2008). Planning for end-of-life care: Black-White differences in the completion of advance directives. Research on Aging, 30(4), 428–449. doi:https://doi.org/10.1177/0164027508316618
- Harris, G. M., Allen, R. S., Dunn, L., & Parmelee, P. (2013). “Trouble won't last always”: Religious coping and meaning in the stress process. Qualitative Health Research, 23(6), 773–781. doi:https://doi.org/10.1177/1049732313482590
- Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (2011). Acceptance and commitment therapy: The process and practice of mindful change. New York, NY: The Guilford Press.
- Heckhausen, J., Wrosch, C., & Schulz, R. (2010). A motivational theory of life-span development. Psychological Review, 117(1), 32–60. doi:https://doi.org/10.1037/a0017668
- Higgins, E. T. (1997). Beyond pleasure and pain. American Psychologist, 52(12), 1280–1300. doi:https://doi.org/10.1037/0003-066X.52.12.1280
- Johnson, K. S., Kuchibhatla, M., & Tulsky, J. A. (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care? Journal of the American Geriatrics Society, 56(10), 1953–1958. doi:https://doi.org/10.1111/j.1532-5415.2008.01919.x
- Kang, J. H., Bynum, J., Zhang, L., Grodstein, F., & Stevenson, D. G. (2019). Predictors of advance care planning in older women: The Nurses' Health Study. Journal of the American Geriatrics Society, 67(2), 292–301. doi:https://doi.org/10.1111/jgs.15656
- McAfee, C. A., Jordan, T. R., Sheu, J. J., Dake, J. A., & Miller, B. A. K. (2019). Predicting racial and ethnic disparities in advance care planning using the Integrated Behavioral Model. OMEGA - Journal of Death and Dying, 78(4), 369–389. doi:https://doi.org/10.1177/0030222817691286
- Melhado, L., & Bushy, A. (2011). Exploring uncertainty in advance care planning in African Americans: Does low health literacy influence decision making preference at end of life. The American Journal of Hospice & Palliative Care, 28(7), 495–500. doi:https://doi.org/10.1177/1049909110398005
- Michael, S. T., Crowther, M., Schmid, B., & Allen, R. S. (2003). Widowhood and spirituality: Coping responses to bereavement. Journal of Women & Aging, 15(2–3), 145–165. doi:https://doi.org/10.1300/J074v15n02_09
- Moorman, S. M., & Carr, D. (2008). Spouses' effectiveness as end-of-life health care surrogates: Accuracy, uncertainty, and errors of overtreatment or undertreatment. The Gerontologist, 48(6), 811–819. doi:https://doi.org/10.1093/geront/48.6.811
- Moorman, S. M., Carr, D., & Boerner, K. (2014). The role of relationship biography in advance care planning. Journal of Aging and Health, 26(6), 969–992. doi:https://doi.org/10.1177/0898264314534895
- Morrison, R. S., Zayas, L. H., Mulvihill, M., Baskin, S. A., & Meier, D. E. (1998). Barriers to completion of health care proxies: An examination of ethnic differences. Archives of Internal Medicine, 158(22), 2493–2497. doi:https://doi.org/10.1001/archinte.158.22.2493
- Noah, B. A. (2012). The role of race in end of life care. Journal of Health Care Law & Policy, 15(2), 349–378.
- Park, J. J., & Sela, A. (2018). Not my type: Why affective decision makers are reluctant to make financial decisions. Journal of Consumer Research, 45(2), 298–319. doi:https://doi.org/10.1093/jcr/ucx122
- Pence, K. M. (2006). The role of wealth transformations: An application to estimating the effect on tax incentives on saving. Contributions to Economic Analysis & Policy, 5(1), 1–24.
- Pew Research Center. (2013, November). Views on end-of-life medical treatments. https://www.pewforum.org/2013/11/21/views-on-end-of-life-medical-treatments/.
- Robards, J., Evandrou, M., Falkingham, J., & Vlachantoni, A. (2012). Marital status, health and mortality. Maturitas, 73(4), 295–299. doi:https://doi.org/10.1016/j.maturitas.2012.08.007
- Servais, M. A. (2004). Overview of HRS public data files for cross-sectional and longitudinal analysis. Ann Arbor: Survey Research Center, Institute for Social Research, University of Michigan. https://hrs.isr.umich.edu/publications/biblio/5835.
- Shapiro, S. P. (2015). Do advance directives direct? Journal of Health Politics, Policy and Law, 40(3), 487–530. doi:https://doi.org/10.1215/03616878-2888424
- Shin, S. H., Kim, G., & Park, S. (2018). Widowhood status as a risk factor for cognitive decline among older adults. The American Journal of Geriatric Psychiatry, 26(7), 778–787. doi:https://doi.org/10.1016/j.jagp.2018.03.013
- Silveira, M. J., Wiitala, W., & Piette, J. (2014). Advance directive completion by elderly Americans: A decade of change. Journal of the American Geriatrics Society, 62(4), 706–710. doi:https://doi.org/10.1111/jgs.12736
- Smith, A. K., McCarthy, E. P., Paulk, E., Balboni, T. A., Maciejewski, P. K., Block, S. D., & Prigerson, H. G. (2008). Racial and ethnic differences in advance care planning among patients with cancer: Impact of terminal illness acknowledgment, religiousness, and treatment preferences. Journal of Clinical Oncology, 26(25), 4131–4137. doi:https://doi.org/10.1200/JCO.2007.14.8452
- Song, M.-K., Ward, S. E., Fine, J. P., Hanson, L. C., Lin, F.-C., Hladik, G. A., … Bridgman, J. C. (2015). Advance care planning and end-of-life decision making in dialysis: A randomized controlled trial targeting patients and their surrogates. American Journal of Kidney Diseases, 66(5), 813–822. doi:https://doi.org/10.1053/j.ajkd.2015.05.018
- Sörensen, S., Chapman, B. P., Duberstein, P. R., Pinquart, M., & Lyness, J. M. (2017). Assessing future care preparation in late life: Two short measures. Psychological Assessment, 29(12), 1480–1495. doi:https://doi.org/10.1037/pas0000446
- Sörensen, S., Mak, W., Chapman, B., Duberstein, P. R., & Lyness, J. M. (2012). The relationship of preparation for future care to depression and anxiety in older primary care patients at 2-year follow-up. The American Journal of Geriatric Psychiatry, 20(10), 887–894. doi:https://doi.org/10.1097/JGP.0b013e31822ccd8c
- Sörensen, S., & Pinquart, M. (2001). Developing a measure of older adults' preparation for future care needs. International Journal of Aging & Human Development, 53(2), 137–165. doi:https://doi.org/10.2190/1R0D-30TC-F4K1-F0DW
- Sudore, R. L., & Fried, T. R. (2010). Redefining the “planning” in advance care planning: Preparing for end-of-life decision making. Annals of Internal Medicine, 153(4), 256–261. doi:https://doi.org/10.7326/0003-4819-153-4-201008170-00008
- Sudore, R. L., Schickedanz, A. D., Landefeld, C. S., Williams, B. A., Lindquist, K., Pantilat, S. Z., & Schillinger, D. (2008). Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults. Journal of the American Geriatrics Society, 56(6), 1006–1013. doi:https://doi.org/10.1111/j.1532-5415.2008.01701.x
- Sudore, R. L., Yaffe, K., Satterfield, S., Harris, T. B., Mehta, K. M., Simonsick, E. M., … Schillinger, D. (2006). Limited literacy and mortality in the elderly: The health, aging, and body composition study. Journal of General Internal Medicine, 21(8), 806–812. doi:https://doi.org/10.1111/j.1525-1497.2006.00539.x
- Tennyson, S., & Yang, H. K. (2014). The role of life experience in long-term care insurance decisions. Journal of Economic Psychology, 42, 175–188. doi:https://doi.org/10.1016/j.joep.2014.04.002
- Teno, J. M., Gruneir, A., Schwartz, Z., Nanda, A., & Wetle, T. (2007). Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatrics Society, 55(2), 189–194. doi:https://doi.org/10.1111/j.1532-5415.2007.01045.x
- Tschirhart, E. C., Du, Q., & Kelley, A. S. (2014). Factors influencing the use of intensive procedures at the end of life. Journal of the American Geriatrics Society, 62(11), 2088–2094. doi:https://doi.org/10.1111/jgs.13104
- U.S. Census Bureau. (2018). America’s families and living arrangements: 2018. Table A1, marital status of people 15 years and over, by age, sex, and personal earnings: 2018. Washington, DC: U.S. Government Printing Office. https://www.census.gov/data/tables/2018/demo/families/cps-2018.html.
- Utz, R. L., Carr, D., Nesse, R. M., & Wortman, C. B. (2002). The effect of widowhood on older adults' social participation: An evaluation of activity, disengagement, and continuity theories. The Gerontologist, 42(4), 522–533. doi:https://doi.org/10.1093/geront/42.4.522
- Volandes, A. E., Paasche-Orlow, M., Gillick, M. R., Cook, E. F., Shaykevich, S., Abbo, E. D., & Lehmann, L. (2008). Health literacy not race predicts end-of-life care preferences. Journal of Palliative Medicine, 11(5), 754–762. https://doi.org/https://doi.org/10.1089/jpm.2007.0224
- Watson, N. N., & Hunter, C. D. (2015). Anxiety and depression among African American women: The costs of strength and negative attitudes toward psychological help-seeking. Cultural Diversity & Ethnic Minority Psychology, 21(4), 604–612. doi:https://doi.org/10.1037/cdp0000015
- West, S. K., & Hollis, M. (2012). Barriers to completion of advance care directives among African Americans ages 25-84: A cross-generational study. Omega, 65(2), 125–137. doi:https://doi.org/10.2190/OM.65.2.c