References
- A-Tjak, J. G. L., Davis, M. L., Morina, N., Powers, M. B., Smits, J. A. J., & Emmelkamp, P. M. G. (2015). A meta-analysis of the efficacy of acceptance and commitment therapy for clinically relevant mental and physical health problems. Psychotherapy and Psychosomatics, 84(1), 30–36. https://doi.org/10.1159/000365764
- Alzheimer’s Society. (2014). Dementia 2014: Opportunity for change. https://www.alzheimers.org.uk/sites/default/files/migrate/downloads/dementia_2014_opportunity_for_change.pdf
- Bond, F. W., Hayes, S. C., Baer, R. A., Carpenter, K. M., Guenole, N., Orcutt, H. K., Waltz, T., & Zettle, R. D. (2011). Preliminary psychometric properties of the Acceptance and Action Questionnaire-II: A revised measure of psychological inflexibility and experiential avoidance. Behavior Therapy, 42(4), 676–688. https://doi.org/10.1016/j.beth.2011.03.007
- Brown, M., Glendenning, A., Hoon, A. E., & John, A. (2016). Effectiveness of web-delivered Acceptance and Commitment Therapy in relation to mental health and well-being: A systematic review and meta-analysis. Journal of Medical Internet Research, 18(8), e221. https://doi.org/10.2196/jmir.6200
- Carter, G., Monaghan, C., & Santin, O. (2020). What is known from the existing literature about peer support interventions for carers of individuals living with dementia: A scoping review. Health & Social Care in the Community, 28(4), 1134–1151. https://doi.org/10.1111/hsc.12944
- Cheng, S. T., Zhang, F., Li, K. K., Losada, A., Au, A., Thompson, L. W., & Gallagher-Thompson, D. (2020). The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis. Psychology and Aging, 35(1), 55–77. https://doi.org/10.1037/pag0000401
- Collins, R., & Kishita, N. (2020). Prevalence of depression and burden among informal caregivers of people with dementia: A meta-analysis. Ageing and Society, 40(11), 2355–2392. https://doi.org/10.1017/S0144686X19000527
- Durlak, J. A. (2009). How to select, calculate, and interpret effect sizes. Journal of Pediatric Psychology, 34(9), 917–928. https://doi.org/10.1093/jpepsy/jsp004
- Eaton, W. W., Smith, C., Ybarra, M., Muntaner, C., & Tien, A. (2004). Center for Epidemiologic Studies Depression Scale: Review and Revision (CESD and CESD-R). In M. E. Maruish & M. E. Maruish (Eds.), The use of psychological testing for treatment planning and outcomes assessment: Instruments for adults (3rd ed., Vol. 3, pp. 363–377). Lawrence Erlbaum Associates Publishers.
- Ewing, G., Austin, L., Diffin, J., & Grande, G. (2015). Developing a person-centred approach to carer assessment and support. British Journal of Community Nursing, 20(12), 580–584. https://doi.org/10.12968/bjcn.2015.20.12.580
- Ewing, G., Austin, L., & Grande, G. (2016). The role of the Carer Support Needs Assessment Tool in palliative home care: A qualitative study of practitioners’ perspectives of its impact and mechanisms of action. Palliative Medicine, 30(4), 392–400. https://doi.org/10.1177/0269216315596662
- Friðriksdóttir, N., Saevarsdóttir, T., Halfdánardóttir, S. ., Jónsdóttir, A., Magnúsdóttir, H., Olafsdóttir, K. L., Guðmundsdóttir, G., & Gunnarsdóttir, S. (2011). Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression. Acta Oncologica, 50(2), 252–258. https://doi.org/10.3109/0284186X.2010.529821
- Gillanders, D. T., Bolderston, H., Bond, F. W., Dempster, M., Flaxman, P. E., Campbell, L., Kerr, S., Tansey, L., Noel, P., Ferenbach, C., Masley, S., Roach, L., Lloyd, J., May, L., Clarke, S., & Remington, B. (2014). The development and initial validation of the cognitive fusion questionnaire. Behavior Therapy, 45(1), 83–101. https://doi.org/10.1016/j.beth.2013.09.001
- Gloster, A. T., Walder, N., Levin, M. E., Twohig, M. P., & Karekla, M. (2020). The empirical status of acceptance and commitment therapy: A review of meta-analyses. Journal of Contextual Behavioral Science, 18, 181–192. https://doi.org/10.1016/j.jcbs.2020.09.009
- Gould, R. L., Wetherell, J. L., Kimona, K., Serfaty, M. A., Jones, R., Graham, C. D., Lawrence, V., Livingston, G., Wilkinson, P., Walters, K., Le Novere, M., Leroi, I., Barber, R., Lee, E., Cook, J., Wuthrich, V. M., & Howard, R. J. (2021). Acceptance and commitment therapy for late-life treatment-resistant generalised anxiety disorder: A feasibility study. Age and Ageing, 50(5), 1751–1761. https://doi.org/10.1093/ageing/afab059
- Hann, K. E. J., & McCracken, L. M. (2014). A systematic review of randomized controlled trials of Acceptance and Commitment Therapy for adults with chronic pain: Outcome domains, design quality, and efficacy. Journal of Contextual Behavioral Science, 3(4), 217–227. https://doi.org/10.1016/j.jcbs.2014.10.001
- Hayes, S. C., Levin, M. E., Plumb-Vilardaga, J., Villatte, J. L., & Pistorello, J. (2013). Acceptance and commitment therapy and contextual behavioral science: Examining the progress of a distinctive model of behavioral and cognitive therapy. Behavior Therapy, 44(2), 180–198. https://doi.org/10.1016/j.beth.2009.08.002
- Hopkinson, M. D., Reavell, J., Lane, D. A., & Mallikarjun, P. (2019). Cognitive behavioral therapy for depression, anxiety, and stress in caregivers of dementia patients: A systematic review and meta-analysis. The Gerontologist, 59(4), e343–e362. https://doi.org/10.1093/geront/gnx217
- Jacobson, N. S., & Truax, P. (1991). Clinical significance: A statistical approach to defining meaningful change in psychotherapy research. Journal of Consulting and Clinical Psychology, 59(1), 12–19. https://doi.org/10.1037/0022-006X.59.1.12
- Julious, S. A. (2005). Sample size of 12 per group rule of thumb for a pilot study. Pharmaceutical Statistics, 4(4), 287–291. https://doi.org/10.1002/pst.185
- Kaddour, L., & Kishita, N. (2020). Anxiety in informal dementia carers: A meta-analysis of prevalence . Journal of Geriatric Psychiatry and Neurology, 33(3), 161–172. https://doi.org/10.1177/0891988719868313
- Kishita, N., & Laidlaw, K. (2017). Cognitive behaviour therapy for generalized anxiety disorder: Is CBT equally efficacious in adults of working age and older adults? Clinical Psychology Review, 52, 124–136. https://doi.org/10.1016/j.cpr.2017.01.003
- Kroenke, K., Spitzer, R. L., & Williams, J. B. (2001). The PHQ-9: Validity of a brief depression severity measure. Journal of General Internal Medicine, 16(9), 606–613.
- Lancaster, G. A., Dodd, S., & Williamson, P. R. (2004). Design and analysis of pilot studies: Recommendations for good practice. Journal of Evaluation in Clinical Practice, 10(2), 307–312. https://doi.org/10.1111/j.2002.384.doc.x
- Lappalainen, P., Pakkala, I., Lappalainen, R., & Nikander, R. (2021). Supported web-based Acceptance and Commitment Therapy for older family caregivers (CareACT) compared to usual care. Clinical Gerontologist. Advance online publication. https://doi.org/10.1080/07317115.2021.1912239
- Loh, A. Z., Tan, J. S., Zhang, M. W., & Ho, R. C. (2017). The Global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. Journal of the American Medical Directors Association, 18(2), 111–116. https://doi.org/10.1016/j.jamda.2016.08.014
- Losada, A., Márquez-González, M., Romero-Moreno, R., & López, J. (2014). Development and validation of the Experiential Avoidance in Caregiving Questionnaire (EACQ). Aging & Mental Health, 18(7), 897–904. https://doi.org/10.1080/13607863.2014.896868
- Losada, A., Márquez-González, M., Romero-Moreno, R., Mausbach, B. T., López, J., Fernández-Fernández, V., & Nogales-González, C. (2015). Cognitive–behavioral therapy (CBT) versus acceptance and commitment therapy (ACT) for dementia family caregivers with significant depressive symptoms: Results of a randomized clinical trial. Journal of Consulting and Clinical Psychology, 83(4), 760–772. https://doi.org/10.1037/ccp0000028
- Luengo-Fernandez, R., Leal, J., & Gray, A. (2015). UK research spend in 2008 and 2012: Comparing stroke, cancer, coronary heart disease and dementia. BMJ Open, 5(4), e006648. https://doi.org/10.1136/bmjopen-2014-006648
- Marquez-Gonzalez, M. A.-O., Romero-Moreno, R., Cabrera, I., Olmos, R., Perez-Miguel, A., & Losada, A. (2020). Tailored versus manualized interventions for dementia caregivers: The functional analysis-guided modular intervention. Psychology and Aging, 35(1), 41–45. https://doi.org/10.1037/pag0000412
- National Institute for Health and Care Excellence. (2011). Common mental health problems: Identification and pathways to care [NICE Clinical guideline No. 123]. https://www.nice.org.uk/guidance/cg123.
- Prince, M., Knapp, M., Guerchet, M., McCrone, P., Prina, M., Comas-Herrera, A., Wittenberg, R., Adelaja, B., Hu, B., King, D., Rehill, A., Salimkumar, D. (2014). Dementia UK: Second edition – Overview. https://www.alzheimers.org.uk/sites/default/files/migrate/downloads/dementia_uk_update.pdf
- Radhakrishnan, M., Hammond, G., Jones, P. B., Watson, A., McMillan-Shields, F., & Lafortune, L. (2013). Cost of Improving Access to Psychological Therapies (IAPT) programme: An analysis of cost of session, treatment and recovery in selected Primary Care Trusts in the East of England region. Behaviour Research and Therapy, 51(1), 37–45. https://doi.org/10.1016/j.brat.2012.10.001
- Scott, J. L., Dawkins, S., Quinn, M. G., Sanderson, K., Elliott, K.-E J., Stirling, C., Schüz, B., & Robinson, A. (2016). Caring for the carer: A systematic review of pure technology-based cognitive behavioral therapy (TB-CBT) interventions for dementia carers. Aging & Mental Health, 20(8), 793–803. https://doi.org/10.1080/13607863.2015.1040724
- Spitzer, R. L., Kroenke, K., Williams, J. B. W., & Löwe, B. (2006). A brief measure for assessing generalized anxiety disorder: The GAD-7. Archives of Internal Medicine, 166(10), 1092–1097.
- Teare, M. D., Dimairo, M., Shephard, N., Hayman, A., Whitehead, A., & Walters, S. J. (2014). Sample size requirements to estimate key design parameters from external pilot randomised controlled trials: A simulation study. Trials, 15(1), 264. https://doi.org/10.1186/1745-6215-15-264
- Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., & Vitaliano, P. P. (1992). Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging, 7(4), 622–631. https://doi.org/10.1037//0882-7974.7.4.622
- Thabane, L., Ma, J., Chu, R., Cheng, J., Ismaila, A., Rios, L. P., Robson, R., Thabane, M., Giangregorio, L., & Goldsmith, C. H. (2010). A tutorial on pilot studies: The what, why and how. BMC Medical Research Methodology, 10(1), 1. https://doi.org/10.1186/1471-2288-10-1
- Thompson, E. M., Destree, L., Albertella, L., & Fontenelle, L. F. (2021). Internet-based acceptance and commitment therapy: A transdiagnostic systematic review and meta-analysis for mental Health Outcomes. Behavior Therapy, 52(2), 492–507. https://doi.org/10.1016/j.beth.2020.07.002
- Wang, J., Wu, X., Lai, W., Long, E., Zhang, X., Li, W., Zhu, Y., Chen, C., Zhong, X., Liu, Z., Wang, D., & Lin, H. (2017). Prevalence of depression and depressive symptoms among outpatients: A systematic review and meta-analysis. BMJ Open, 7(8), e017173. https://doi.org/10.1136/bmjopen-2017-017173
- Whitehead, A. L., Julious, S. A., Cooper, C. L., & Campbell, M. J. (2016). Estimating the sample size for a pilot randomised trial to minimise the overall trial sample size for the external pilot and main trial for a continuous outcome variable. Statistical Methods in Medical Research, 25(3), 1057–1073. https://doi.org/10.1177/0962280215588241