Preliminary evaluation and implications of the SPECAL method as an intervention for informal dementia care partners

References

• Alzheimer’s Association. (2021a). Alzheimer’s disease facts and figures. https://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf
   Google Scholar
• Alzheimer’s Association. (2021b). Dementia vs. Alzheimer’s disease: What is the difference? https://www.alz.org/alzheimers-dementia/difference-between-dementia-and-alzheimer-s
   Google Scholar
• Astell, A., Bouranis, N., Hoey, J., Lindauer, A., Mihailidis, A., Nugent, C., Robillard, J., & Technology and Dementia Professional Interest Area. (2019). Technology and dementia: The future is now. Dementia and Geriatric Cognitive Disorders, 47(3), 131–139. https://doi.org/10.1159/000497800
   PubMed Web of Science ®Google Scholar
• Blandin, K., & Pepin, R. (2017). Dementia grief: A theoretical model of a unique grief experience. Dementia (London, England), 16(1), 67–78. https://doi.org/10.1177/1471301215581081
   PubMedGoogle Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Brodaty, H., Thomson, C., Thompson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss don’t use services. International Journal of Geriatric Psychiatry, 20(6), 537–546. https://doi.org/10.1002/gps.1322
   PubMed Web of Science ®Google Scholar
• Burleson, B. R., & Goldsmith, D. J. (1998). How the comforting process works: Alleviating emotional distress through conversationally induced reappraisals. In P. A. Andersen & L. K. Guerrero (Eds.), Communication and emotion (pp. 246–275). Academic Press.
   Google Scholar
• Burleson, B. R., Metts, S., & Kirch, M. W. (2000). Communication in close relationships. In C. Hendrick & S. S. Hendrick (Eds.), Close relationships: A sourcebook (pp. 245–258). Sage.
   Google Scholar
• Bute, J. J., Donovan-Kicken, E., & Martins, N. (2007). Effects of communication-debilitating illnesses and injuries on close relationships: A relational maintenance perspective. Health Communication, 21(3), 235–246. https://doi.org/10.1080/10410230701307675
   PubMed Web of Science ®Google Scholar
• Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396.
   PubMed Web of Science ®Google Scholar
• Contented Dementia Trust. (2012). The SPECAL method. http://www.contenteddementiatrust.org/wp-content/uploads/2012/03/Contented-Dementia-Brochure-.pdf
   Google Scholar
• Donovan-Kicken, E., & Bute, J. J. (2008). Uncertainty of social network members in the case of communication-debilitating illness or injury. Qualitative Health Research, 18(1), 5–18. https://doi.org/10.1177/1047932307309005
   PubMed Web of Science ®Google Scholar
• Eggenberger, E., Heimerl, K., & Bennett, M. I. (2013). Communication skills training in dementia care: A systematic review of effectiveness, training content, and didactic methods in different care settings. International Psychogeriatrics, 25(3), 345–358. https://doi.org/10.1017/s1041610212001664
   PubMed Web of Science ®Google Scholar
• Farran, C. J., Miller, B. H., Kaufman, J. E., Donner, E., & Fogg, L. (1999). Finding meaning through caregiving: Development of an instrument for family caregivers of persons with Alzheimer’s disease. Journal of Clinical Psychology, 55(9), 1107–1125. https://doi.org/10.1002/(SICI)1097-4679(199909)55:9<1107::AID-JCLP8>3.0.CO;2-V
   PubMed Web of Science ®Google Scholar
• James, O. (2008). Contented Dementia: 24-h wraparound care for lifelong well-being. Vermilion.
   Google Scholar
• Kitwood, T. (1997). Dementia reconsidered: The person comes first. Oxford University Press.
   Google Scholar
• Martin, Y., Gilbert, P., McEwan, K., & Irons, C. (2006). The relation of entrapment, shame and guilt to depression, in carers of people with dementia. Aging & Mental Health, 10(2), 101–106. https://doi.org/10.1080/13607860500311953
   PubMed Web of Science ®Google Scholar
• McCrae, N., Penhallow, J., Rees, O., & Norman, I. (2020). The Specialized Early Care for Alzheimer’s method of caring for people with dementia: An investigation of what works and how. Scandinavian Journal of Caring Sciences, 34(3), 736–744. https://doi.org/10.1111/scs.12778
   PubMed Web of Science ®Google Scholar
• National Institute on Aging. (2017). Symptoms and diagnosis of Alzheimer’s disease. What are the signs of Alzheimer’s disease? https://www.nia.nih.gov/health/what-are-signs-alzheimers-disease
   Google Scholar
• Nguyen, H., Terry, D., Phan, H., Vickers, J., & McInerney, F. (2019). Communication training and its effects on carer and care-receiver outcomes in dementia settings: A systematic review. Journal of Clinical Nursing, 28(7–8), 1050–1069. https://doi.org/10.1111/jocn.14697
   PubMed Web of Science ®Google Scholar
• Petrovsky, D., Sefcik, J., Hodgson, N., & Gitlin, L. (2020). Harsh communication: Characteristics of caregivers and persons with dementia. Aging & Mental Health, 24(10), 1709–1716. https://doi.org/10.1080/13607863.2019.1667296
   PubMed Web of Science ®Google Scholar
• Polk, D. (2005). Communication and family caregiving for Alzheimer’s dementia: Linking attributions and problematic integration. Health Communication, 18(3), 257–273. https://doi.org/10.1207/s15327027hc1803_4
   PubMed Web of Science ®Google Scholar
• Pritchard, E. J., & Dewing, J. (2001). A multi-method evaluation of an independent dementia care service and its approach. Aging & Mental Health, 5(1), 63–72.
   PubMed Web of Science ®Google Scholar
• Prunty, M. M., & Foli, K. J. (2019). Guilt experienced by caregivers to individuals with dementia: A conceptual analysis. International Journal of Older People Nursing, 14(2), e12227–13. https://doi.org/10.1111/opn.12227
   PubMed Web of Science ®Google Scholar
• Riachi, R. (2018). Person-centred communication in dementia care: A qualitative study of the use of the SPECAL method by care workers in the UK. Journal of Social Work Practice, 32, 1–321. https://doi.org/10.1080/02650533.2017.1381948
   Web of Science ®Google Scholar
• Riachi, R., & Markwell, S. (2020). Improving well-being in dementia clients and carers. Journal of Public Mental Health, 19(4), 321–326. https://doi.org/10.1108/JPMH-05-2020-0039
   Web of Science ®Google Scholar
• Rote, S., Angel, J., & Hinton, L. (2019). Characteristics and consequences of family support in Latino dementia care. Journal of Cross-Cultural Gerontology, 34(4), 337–354. https://doi.org/10.1007/s10823-019-09378-4
   PubMed Web of Science ®Google Scholar
• Small, J., Geldart, K., & Gutman, G. (2000). Communication between individuals with dementia and their caregivers during activities of daily living. American Journal of Alzheimer’s Disease & Other Dementiasr, 15(5), 291–302. https://doi.org/10.1177/153331750001500511
   Google Scholar
• Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Rubert, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: Contributions of the REACH Project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26(4), 429–453. https://doi.org/10.1177/0164027504264493
   Web of Science ®Google Scholar
• Tracy, S. J. (2018). A phronetic iterative approach to data analysis in qualitative research. Journal of Qualitative Research, 19(2), 61–76. https://doi.org/10.1002/9781118901731.iecrm0187
   Google Scholar
• Watts, P., & O’Connor, S. J. (2017). Communication in dementia. In S. Schussler & C. Lohrmann (Eds.), Dementia in nursing homes (1st ed., pp. 105–121). Springer International Publishing.
   Google Scholar
• Weigel, K. A. (2017). Patient-/Person-centered care. In S. Schussler & C. Lohrmann (Eds.), Dementia in nursing homes (1st ed., pp. 21–27). Springer International Publishing.
   Google Scholar
• Wiginton, K., Rhea, D. J., & Oomen, J. (2004). Using the Anger Response Inventory to evaluate the effect of shame and guilt on interpersonal communication skills. American Journal of Health Education, 35(3), 152–157. https://doi.org/10.1080/19325037.2004.10603631
   Google Scholar
• Wray, A. (2020). The dynamics of dementia communication. Oxford University Press.
   Google Scholar
• Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30–41. https://doi.org/10.1207/s15327752jpa5201_2
   Web of Science ®Google Scholar