Application of the International Classification of Functioning, Disability and Health (ICF) in dementia research and practice: A scoping review

References

• Abdi, S., Spann, A., Borilovic, J., de Witte, L., & Hawley, M. (2019). Understanding the care and support needs of older people: A scoping review and categorisation using the WHO international classification of functioning, disability and health framework (ICF). BMC Geriatrics, 19(1), 195. https://doi.org/10.1186/s12877-019-1189-9
   PubMed Web of Science ®Google Scholar
• Alzheimer’s disease facts and figures. (2021). Alzheimers Dement, 17(3), 327–406. https://doi.org/10.1002/alz.12328
   PubMed Web of Science ®Google Scholar
• Anner, J., Schwegler, U., Kunz, R., Trezzini, B., & de Boer, W. (2012). Evaluation of work disability and the international classification of functioning, disability and health: What to expect and what not. BMC Public Health, 12, 470. https://doi.org/10.1186/1471-2458-12-470
   PubMed Web of Science ®Google Scholar
• Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
   Google Scholar
• Badarunisa, M. B., Sebastian, D., Rangasayee, R. R., & Kala, B. (2015). ICF-based analysis of communication disorders in dementia of Alzheimer’s type. Dementia and Geriatric Cognitive Disorders Extra, 5(3), 459–469. https://doi.org/10.1159/000441183
   PubMedGoogle Scholar
• Boonen, A., Braun, J., van der Horst Bruinsma, I. E., Huang, F., Maksymowych, W., Kostanjsek, N., Cieza, A., Stucki, G., & van der Heijde, D. (2010). ASAS/WHO ICF core sets for ankylosing spondylitis (AS): How to classify the impact of AS on functioning and health. Annals of the Rheumatic Diseases, 69(1), 102–107. https://doi.org/10.1136/ard.2008.104117
   PubMed Web of Science ®Google Scholar
• Brush, J. A., Threats, T. T., & Calkins, M. P. (2003). Influences on perceived function of a nursing home resident. Journal of Communication Disorders, 36(5), 379–393. https://doi.org/10.1016/S0021-9924(03)00049-2
   PubMed Web of Science ®Google Scholar
• Byrne, K., & Orange, J. B. (2005). Conceptualizing communication enhancement in dementia for family caregivers using the WHO-ICF framework. Advances in Speech Language Pathology, 7(4), 187–202. https://doi.org/10.1080/14417040500337062
   Google Scholar
• Cerniauskaite, M., Quintas, R., Boldt, C., Raggi, A., Cieza, A., Bickenbach, J. E., & Leonardi, M. (2011). Systematic literature review on ICF from 2001 to 2009: Its use, implementation and operationalisation. Disability and Rehabilitation, 33(4), 281–309. https://doi.org/10.3109/09638288.2010.529235
   PubMed Web of Science ®Google Scholar
• Chen, J. H., Hong, C. T., Wu, D., Chi, W. C., Yen, C. F., Liao, H. F., … Liou, T. H. (2019). Dementia-related functional disability in moderate to advanced Parkinson’s disease: Assessment using the World Health Organization Disability Assessment Schedule 2.0. International Journal of Environmental Research and Public Health, 16(12), 2230. https://doi.org/10.3390/ijerph16122230
   Google Scholar
• Chenoweth, L., Stein-Parbury, J., Lapkin, S., Wang, A., Liu, Z., & Williams, A. (2019). Effects of person-centered care at the organisational-level for people with dementia. A systematic review. PLoS One, 14(2), e0212686. https://doi.org/10.1371/journal.pone.0212686
   PubMed Web of Science ®Google Scholar
• Chi, W.-C., Chang, K.-H., Escorpizo, R., Yen, C.-F., Liao, H.-F., Chang, F.-H., Chiou, H.-Y., Teng, S.-W., Chiu, W.-T., & Liou, T.-H. (2014). Measuring disability and its predicting factors in a large database in Taiwan using the World Health Organization Disability Assessment Schedule 2.0. International Journal of Environmental Research and Public Health, 11(12), 12148–12161. https://doi.org/10.3390/ijerph111212148
   PubMed Web of Science ®Google Scholar
• Coenen, M., Cabello, M., Umlauf, S., Ayuso-Mateos, J. L., Anczewska, M., Tourunen, J., Leonardi, M., Cieza, A., & PARADISE Consortium. (2016). Psychosocial difficulties from the perspective of persons with neuropsychiatric disorders. Disability and Rehabilitation, 38(12), 1134–1145. https://doi.org/10.3109/09638288.2015.1074729
   PubMed Web of Science ®Google Scholar
• Cornelis, E., Gorus, E., Beyer, I., Bautmans, I., & De Vriendt, P. (2017). Early diagnosis of mild cognitive impairment and mild dementia through basic and instrumental activities of daily living: Development of a new evaluation tool. PLOS Medicine, 14(3), e1002250. https://doi.org/10.1371/journal.pmed.1002250
   PubMed Web of Science ®Google Scholar
• De Vriendt, P., Gorus, E., Bautmans, I., & Mets, T. (2012). Conversion of the Mini-Mental State Examination to the International Classification of Functioning, Disability and Health terminology and scoring system. Gerontology, 58(2), 112–119. https://doi.org/10.1159/000330088
   PubMed Web of Science ®Google Scholar
• De Vriendt, P., Gorus, E., Cornelis, E., Bautmans, I., Petrovic, M., & Mets, T. (2013). The advanced activities of daily living: A tool allowing the evaluation of subtle functional decline in mild cognitive impairment. The Journal of Nutrition, Health & Aging, 17(1), 64–71. https://doi.org/10.1007/s12603-012-0381-9
   PubMed Web of Science ®Google Scholar
• Dreier-Wolfgramm, A., Michalowsky, B., Austrom, M. G., van der Marck, M., Iliffe, S., Alder, C., Vollmar, H. C., Thyrian, J. R., Wucherer, D., Zwingmann, I., & Hoffmann, W. (2017). Dementia care management in primary care: Current collaborative care models and the case for interprofessional education. Zeitschrift Fur Gerontologie Und Geriatrie, 50(Suppl 2), 68–77. https://doi.org/10.1007/s00391-017-1220-8
   PubMedGoogle Scholar
• Dutzi, I., Schwenk, M., Kirchner, M., Bauer, J. M., & Hauer, K. (2019). "What would you like to achieve?" Goal-setting in patients with dementia in geriatric rehabilitation. BMC Geriatrics, 19(1), 280. https://doi.org/10.1186/s12877-019-1296-7
   PubMed Web of Science ®Google Scholar
• Elo, S., & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115. https://doi.org/10.1111/j.1365-2648.2007.04569.x
   PubMed Web of Science ®Google Scholar
• Fazio, S., Pace, D., Flinner, J., & Kallmyer, B. (2018a). The fundamentals of person-centered care for individuals with dementia. The Gerontologist, 58(suppl_1), S10–S19. https://doi.org/10.1093/geront/gnx122
   PubMed Web of Science ®Google Scholar
• Fazio, S., Pace, D., Maslow, K., Zimmerman, S., & Kallmyer, B. (2018b). Alzheimer’s association dementia care practice recommendations. The Gerontologist, 58(suppl_1), S1–S9. https://doi.org/10.1093/geront/gnx182
   PubMedGoogle Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Hopper, T. (2007). The ICF and dementia. Seminars in Speech and Language, 28(4), 273–282. https://doi.org/10.1055/s-2007-986524
   PubMedGoogle Scholar
• Huang, S.-W., Chang, K.-H., Escorpizo, R., Chi, W.-C., Yen, C.-F., Liao, H.-F., Chang, F.-H., Chiu, W.-T., Lin, J.-W., & Liou, T.-H. (2016). Functioning and disability analysis by using WHO Disability Assessment Schedule 2.0 in older adults Taiwanese patients with dementia. Disability and Rehabilitation, 38(17), 1652–1663. https://doi.org/10.3109/09638288.2015.1107636
   PubMed Web of Science ®Google Scholar
• Huang, S.-W., Chi, W.-C., Yen, C.-F., Chang, K.-H., Liao, H.-F., Escorpizo, R., Chang, F.-H., & Liou, T.-H. (2017). Does more education mean less disability in people with dementia? A large cross-sectional study in Taiwan. BMJ Open, 7(4), e013841. https://doi.org/10.1136/bmjopen-2016-013841
   PubMed Web of Science ®Google Scholar
• Jelsma, J. (2009). Use of the International Classification of Functioning, Disability and Health: A literature survey. Journal of Rehabilitation Medicine, 41(1), 1–12. https://doi.org/10.2340/16501977-0300
   PubMed Web of Science ®Google Scholar
• Johnston, K., Preston, R., Strivens, E., Qaloewai, S., & Larkins, S. (2020). Understandings of dementia in low and middle income countries and amongst indigenous peoples: A systematic review and qualitative meta-synthesis. Aging & Mental Health, 24(8), 1183–1195. https://doi.org/10.1080/13607863.2019.1606891
   PubMed Web of Science ®Google Scholar
• Kim, J.-M., Stewart, R., Glozier, N., Prince, M., Kim, S.-W., Yang, S.-J., Shin, I.-S., & Yoon, J.-S. (2005). Physical health, depression and cognitive function as correlates of disability in an older Korean population. International Journal of Geriatric Psychiatry, 20(2), 160–167. https://doi.org/10.1002/gps.1266
   PubMed Web of Science ®Google Scholar
• Kirch, S., Gorus, E., Brys, C., Cornelis, E., & De Vriendt, P. (2018). Improving clarity and transparency in cognitive assessment: Conversion of the Cambridge Cognition Examination to the International Classification of Functioning, Disability and Health. European Geriatric Medicine, 9(4), 455–466. https://doi.org/10.1007/s41999-018-0066-y
   PubMed Web of Science ®Google Scholar
• Lee, H. H., Hong, C. T., Wu, D., Chi, W. C., Yen, C. F., Liao, H. F., … Liou, T. H. (2019). Association between ambulatory status and functional disability in elderly people with dementia. International Journal of Environmental Research Public Health, 16(12), 2168. https://doi.org/10.3390/ijerph16122168
   Google Scholar
• Lee, K. H., Lee, J. Y., & Kim, B. (2020). Person-centered care in persons living with dementia: A systematic review and meta-analysis. Gerontologist. https://doi.org/10.1093/geront/gnaa207
   Google Scholar
• Linden, M. (2017). Definition and assessment of disability in mental disorders under the perspective of the International Classification of Functioning Disability and Health (ICF). Behavioral Sciences & the Law, 35(2), 124–134. https://doi.org/10.1002/bsl.2283
   PubMed Web of Science ®Google Scholar
• Loke, S. C., Lim, W. S., Someya, Y., Hamid, T. A., & Nudin, S. S. (2016). Examining the disability model from the international classification of functioning, disability, and health using a large data set of community-dwelling Malaysian older adults. Journal of Aging and Health, 28(4), 704–725. https://doi.org/10.1177/0898264315609907
   PubMed Web of Science ®Google Scholar
• Lomax, C. L., Brown, R. G., & Howard, R. J. (2004). Measuring disability in patients with neurodegenerative disease using the ‘Yesterday Interview’. International Journal of Geriatric Psychiatry, 19(11), 1058–1064. https://doi.org/10.1002/gps.1210
   PubMed Web of Science ®Google Scholar
• Luttenberger, K., Reppermund, S., Schmiedeberg-Sohn, A., Book, S., & Graessel, E. (2016). Validation of the Erlangen test of activities of daily living in persons with mild dementia or mild cognitive impairment (ETAM). BMC Geriatrics, 16, 111. https://doi.org/10.1186/s12877-016-0271-9
   PubMed Web of Science ®Google Scholar
• Madden, R. H., & Bundy, A. (2019). The ICF has made a difference to functioning and disability measurement and statistics. Disability and Rehabilitation, 41(12), 1450–1462. https://doi.org/10.1080/09638288.2018.1431812
   PubMed Web of Science ®Google Scholar
• Maki, Y., Sakurai, T., Okochi, J., Yamaguchi, H., & Toba, K. (2018). Rehabilitation to live better with dementia. Geriatrics & Gerontology International, 18(11), 1529–1536. https://doi.org/10.1111/ggi.13517
   PubMed Web of Science ®Google Scholar
• Malara, A., Sgrò, G., Ceravolo, F., Curinga, G., Renda, G. F., Spadea, F., & Rispoli, V. (2015). Profiles of ICF disability in Alzheimer and vascular dementia. Journal of Aging Research and Lifestyle, 4(3), 1–5. https://doi.org/10.14283/jarcp.2015.62
   Google Scholar
• Marques, A., Rocha, V., Pinto, M., Sousa, L., & Figueiredo, D. (2015). Comorbidities and medication intake among people with dementia living in long-term care facilities. Revista Portuguesa de Saúde Pública, 33(1), 42–48. https://doi.org/10.1016/j.rpsp.2014.07.005
   Google Scholar
• McKay, R., McDonald, R., Lie, D., & McGowan, H. (2012). Reclaiming the best of the biopsychosocial model of mental health care and ‘recovery’ for older people through a ‘person-centred’ approach. Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists, 20(6), 492–495. https://doi.org/10.1177/1039856212460286
   PubMed Web of Science ®Google Scholar
• Mirolsky-Scala, G., & Kraemer, T. (2009). Fall management in Alzheimer-related dementia: A case study. Journal of Geriatric Physical Therapy (2001), 32(4), 181–189. https://doi.org/10.1519/00139143-200932040-00007
   PubMed Web of Science ®Google Scholar
• Molony, S. L., Kolanowski, A., Van Haitsma, K., & Rooney, K. E. (2018). Person-centered assessment and care planning. The Gerontologist, 58(suppl_1), S32–S47. https://doi.org/10.1093/geront/gnx173
   PubMedGoogle Scholar
• Muò, R., Schindler, A., Vernero, I., Schindler, O., Ferrario, E., & Frisoni, G. B. (2005). Alzheimer’s disease-associated disability: An ICF approach. Disability and Rehabilitation, 27(23), 1405–1413. https://doi.org/10.1080/09638280500052542
   PubMed Web of Science ®Google Scholar
• Nasiri, S., Zahedi, G., Kuntz, S., & Fathi, M. (2019). Knowledge representation and management based on an ontological CBR system for dementia caregiving. Neurocomputing, 350, 181–194. https://doi.org/10.1016/j.neucom.2019.04.027
   Web of Science ®Google Scholar
• Obayashi, K., Kodate, N., & Masuyama, S. (2020). Measuring the impact of age, gender and dementia on communication-robot interventions in residential care homes. Geriatrics & Gerontology International, 20(4), 373–378. https://doi.org/10.1111/ggi.13890
   PubMed Web of Science ®Google Scholar
• Okawa, Y., & Ueda, S. (2008). Implementation of the International Classification of Functioning, Disability and Health in national legislation and policy in Japan. International Journal of Rehabilitation Research. Internationale Zeitschrift Fur Rehabilitationsforschung. Revue Internationale de Recherches de Readaptation, 31(1), 73–77. https://doi.org/10.1097/MRR.0b013e3282f2d972
   PubMed Web of Science ®Google Scholar
• Oppert, M. L., O’Keeffe, V. J., & Duong, D. (2018). Knowledge, facilitators and barriers to the practice of person-centred care in aged care workers: A qualitative study. Geriatric Nursing (New York, N.Y.), 39(6), 683–688. https://doi.org/10.1016/j.gerinurse.2018.05.004
   PubMed Web of Science ®Google Scholar
• Patterson, C. (2018). The state of the art of dementia research: New frontiers. The World Alzheimer Report.
   Google Scholar
• Prince, M., Acosta, D., Albanese, E., Arizaga, R., Ferri, C., Guerra, M., Huang, Y., Jacob, K. S., Jimenez-Velazquez, I., Rodriguez, J. L., Salas, A., Sosa, A. L., Sousa, R., Uwakwe, R., van der Poel, R., Williams, J., & Wortmann, M. (2008). Ageing and dementia in low and middle income countries-Using research to engage with public and policy makers. International Review of Psychiatry (Abingdon, England), 20(4), 332–343. https://doi.org/10.1080/09540260802094712
   PubMed Web of Science ®Google Scholar
• Riffin, C. A., & Wolff, J. L. (2021). Chapter 11 - Identifying, assessing, and supporting family caregivers in health and long-term care: Current progress and future opportunities. In J. E. Gaugler (Ed.), Bridging the family care gap (pp. 341–365). Academic Press.
   Google Scholar
• Rocha, V., Marques, A., Pinto, M., Sousa, L., & Figueiredo, D. (2013). People with dementia in long-term care facilities: An exploratory study of their activities and participation. Disability and Rehabilitation, 35(18), 1501–1508. https://doi.org/10.3109/09638288.2012.742677
   PubMed Web of Science ®Google Scholar
• Rodríguez-Blázquez, C., Damián, J., Andrés-Prado, M. J., Almazán-Isla, J., Alcalde-Cabero, E., Forjaz, M. J., Castellote, J. M., González-Enríquez, J., Martínez-Martín, P., Comín, M., & de Pedro-Cuesta, J., & DISCAP-ARAGON Research Group. (2016). Associations between chronic conditions, body functions, activity limitations and participation restrictions: A cross-sectional approach in Spanish non-clinical populations. BMJ Open, 6(6), e010446. https://doi.org/10.1136/bmjopen-2015-010446
   PubMed Web of Science ®Google Scholar
• Sagahutu, J. B., Kagwiza, J., Cilliers, F., & Jelsma, J. (2021). The impact of a training programme incorporating the conceptual framework of the International Classification of Functioning (ICF) on knowledge and attitudes regarding interprofessional practice in Rwandan health professionals: A cluster randomized control trial. BMC Medical Education, 21(1), 139. https://doi.org/10.1186/s12909-021-02537-7
   PubMed Web of Science ®Google Scholar
• Scherer, M. J., Federici, S., Tiberio, L., Pigliautile, M., Corradi, F., & Meloni, F. (2012). ICF core set for matching older adults with dementia and technology. Ageing International, 37(4), 414–440. https://doi.org/10.1007/s12126-010-9093-9
   Google Scholar
• Schmiedeberg-Sohn, A., Graessel, E., & Luttenberger, K. (2015). A direct performance test for assessing activities of daily living in patients with mild degenerative dementia: The development of the ETAM and preliminary results. Dementia and Geriatric Cognitive Disorders Extra, 5(1), 74–84. https://doi.org/10.1159/000369550
   PubMedGoogle Scholar
• Sousa, R., Ferri, C., Acosta, D., Albanese, E., Guerra, M., Huang, Y., Jacob, K. S., Jotheeswaran, A. T., Rodriguez, J. L., Pichardo, G. R., Rodriguez, M. C., Salas, A., Sosa, A. L., Williams, J., Zuniga, T., & Prince, M. (2009). Contribution of chronic diseases to disability in elderly people in countries with low and middle incomes: A 10/66 Dementia Research Group population-based survey. The Lancet, 374(9704), 1821–1830. https://doi.org/10.1016/S0140-6736(09)61829-8
   PubMed Web of Science ®Google Scholar
• Steele, C., Berry, K., & Brown, L. J. E. (2021). Healthcare professionals’ experiences of using a biopsychosocial approach to understand behavioural and psychological symptoms of dementia: A qualitative interview study. International Journal of Older People Nursing, 17(2), e12427. https://doi.org/10.1111/opn.12427
   PubMed Web of Science ®Google Scholar
• Tricco, A., Lillie, E., Zarin, W., O’Brien, K., Colquhoun, H., Levac, D., Moher, D., Peters, M., Horsley, T., Weeks, L., Hempel, S., Akl, E., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M., Garritty, C., … Straus, S. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
   PubMed Web of Science ®Google Scholar
• Ustün, B., Chatterji, S., Kostanjsek, N., Rehm, J., Kennedy, C., Epping-Jordan, J., Saxena, S., von Korff, M., Pull, C., & WHO/NIH Joint Project. (2010). Developing the World Health Organization Disability Assessment Schedule 2.0. Bulletin of the World Health Organization, 88(11), 815–823. https://doi.org/10.2471/BLT.09.067231
   PubMed Web of Science ®Google Scholar
• van Hoof, J., Kort, H. S., Hensen, J., Duijnstee, M., & Rutten, P. (2010b). Thermal comfort and the integrated design of homes for older people with dementia. Building and Environment, 45(2), 358–370. https://doi.org/10.1016/j.buildenv.2009.06.013
   Web of Science ®Google Scholar
• Van Hoof, J., Kort, H., Duijnstee, M., Rutten, P., & Hensen, J. (2010a). The indoor environment and the integrated design of homes for older people with dementia. Building and Environment, 45(5), 1244–1261. https://doi.org/10.1016/j.buildenv.2009.11.008
   Web of Science ®Google Scholar
• Vatanabe, I. P., Manzine, P. R., & Cominetti, M. R. (2020). Historic concepts of dementia and Alzheimer’s disease: From ancient times to the present. Revue Neurologique, 176(3), 140–147. https://doi.org/10.1016/j.neurol.2019.03.004
   PubMed Web of Science ®Google Scholar
• Vos, T., Lim, S., Abbafati, C., Abbas, K., Abbasi, M., Abbasifard, M., Abbasi-Kangevari, M., Abbastabar, H., Abd-Allah, F., Abdelalim, A., Abdollahi, M., Abdollahpour, I., Abolhassani, H., Aboyans, V., Abrams, E., Abreu, L. G., Abrigo, M., Abu-Raddad, L. J., Abushouk, A., … Murray, C. (2020). Global burden of 369 diseases and injuries in 204 countries and territories, 1990–2019: A systematic analysis for the Global Burden of Disease Study 2019. The Lancet, 396(10258), 1204–1222. https://doi.org/10.1016/S0140-6736(20)30925-9
   PubMed Web of Science ®Google Scholar
• Wang, J., Wu, B., Bowers, B. J., Lepore, M. J., Ding, D., McConnell, E. S., & Corazzini, K. N. (2019). Person-centered dementia care in China: A bilingual literature review. Gerontology & Geriatric Medicine, 5, 2333721419844349. https://doi.org/10.1177/2333721419844349
   Web of Science ®Google Scholar
• World Health Organization. (2001). The international classification of functioning, disability and health (ICF). WHO. www.who.int/classifcatons/icf/en/
   Google Scholar
• World Health Organization. (2012). Dementia: A public health priority. World Health Organization.
   Google Scholar
• World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment. WHO.
   Google Scholar
• Yokokawa, K. (2012). Usefulness of video for observing lifestyle impairments in dementia patients. Psychogeriatrics, 12(2), 137–141. https://doi.org/10.1111/j.1479-8301.2012.00428.x
   PubMed Web of Science ®Google Scholar