Are mobile apps meeting the needs of caregivers of people living with dementia? An evaluation of existing apps for caregivers

References

• Bangor, A., Kortum, P. T., & Miller, J. T. (2008). An empirical evaluation of the system usability scale. International Journal of Human-Computer Interaction, 24(6), 574–594. https://doi.org/10.1080/10447310802205776
   Web of Science ®Google Scholar
• Baranzini, D. (2018). SPSS single dataframe aggregating SPSS multiply imputed split files. https://doi.org/10.13140/RG.2.2.33750.70722
   Google Scholar
• Black, B. S., Johnston, D., Rabins, P. V., Morrison, A., Lyketsos, C., & Samus, Q. M. (2013). Unmet needs of community-residing persons with dementia and their informal caregivers: Findings from the maximizing independence at home study. Journal of the American Geriatrics Society, 61(12), 2087–2095. https://doi.org/10.1111/jgs.12549
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2022). Conceptual and design thinking for thematic analysis. Qualitative Psychology, 9(1), 3–26. https://doi.org/10.1037/qup0000196
   Google Scholar
• Brooke, J. (1996). Usability evaluation in industry, chap. SUS: A “quick and dirty” usability scale.
   Google Scholar
• Brown, E. L., Ruggiano, N., Li, J., Clarke, P. J., Kay, E. S., & Hristidis, V. (2019). Smartphone-based health technologies for dementia care: Opportunities, challenges, and current practices. Journal of Applied Gerontology: The Official Journal of the Southern Gerontological Society, 38(1), 73–91. https://doi.org/10.1177/0733464817723088
   PubMed Web of Science ®Google Scholar
• Brown, J., & Kim, H. N. (2019). Lessons learned from conducting Alzheimer’s disease caregiver mHealth app training and focus group sessions [Paper presentation]. Proceedings of the Human Factors and Ergonomics Society Annual Conference, Los Angeles, CA. November.
   Google Scholar
• Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396.
   PubMed Web of Science ®Google Scholar
• Faul, F., Erdfelder, E., Buchner, A., & Lang, A. (2009). Statistical power analyses using G* Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41(4), 1149–1160. https://doi.org/10.3758/BRM.41.4.1149
   PubMed Web of Science ®Google Scholar
• Greeson, J. K., Treglia, D., Morones, S., Hopkins, M., & Mikell, D. (2020). Youth Matters: Philly (YMP): Development, usability, usefulness, & accessibility of a mobile web-based app for homeless and unstably housed youth. Children and Youth Services Review, 108, 104586. https://doi.org/10.1016/j.childyouth.2019.104586
   Web of Science ®Google Scholar
• Harrington, C. N., Wilcox, L., Connelly, K., Rogers, W., & Sanford, J. (2018). Designing health and fitness apps with older adults: Examining the value of experience-based co-design [Paper presentation]. Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare, New York, NY. May.
   Google Scholar
• Jakobsen, J. C., Gluud, C., Wetterslev, J., & Winkel, P. (2017). When and how should multiple imputation be used for handling missing data in randomised clinical trials–A practical guide with flowcharts. BMC Medical Research Methodology, 17(1), 1–10. https://doi.org/10.1186/s12874-017-0442-1
   PubMed Web of Science ®Google Scholar
• Kleinke, K. (2017). Multiple imputation under violated distributional assumptions: A systematic evaluation of the assumed robustness of predictive mean matching. Journal of Educational and Behavioral Statistics, 42(4), 371–404. https://doi.org/10.3102/1076998616687084
   Web of Science ®Google Scholar
• Klug, B. (2017). An overview of the system usability scale in library website and system usability testing. Weave: Journal of Library User Experience, 1(6). https://doi.org/10.3998/weave.12535642.0001.602
   Google Scholar
• Krauskopf, P., & Golden, A. (2016). AIDSInfo HIV/AIDS Guidelines App and DementiAssist App. Journal for Nurse Practitioners, 12(8), E373–E375. https://doi.org/10.1016/j.nurpra.2016.06.001
   Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer Publishing Company.
   Google Scholar
• Lynch, S. H., Shuster, G., & Lobo, M. L. (2018). The family caregiver experience–examining the positive and negative aspects of compassion satisfaction and compassion fatigue as caregiving outcomes. Aging & Mental Health, 22(11), 1424–1431. https://doi.org/10.1080/13607863.2017.1364344
   PubMed Web of Science ®Google Scholar
• McCabe, M., You, E., & Tatangelo, G. (2016). Hearing their voice: A systematic review of dementia family caregivers’ needs. The Gerontologist, 56(5), e70–e88. https://doi.org/10.1093/geront/gnw078
   PubMed Web of Science ®Google Scholar
• McCoy, C. E. (2017). Understanding the intention-to-treat principle in randomized controlled trials. The Western Journal of Emergency Medicine, 18(6), 1075–1078. https://doi.org/10.5811/westjem.2017.8.35985
   PubMed Web of Science ®Google Scholar
• MindSea. (2021). 28 mobile app statistics to know in 2021. https://mindsea.com. https://mindsea.com/app-stats/
   Google Scholar
• Montazeri, A., Vahdaninia, M., Mousavi, S. J., & Omidvari, S. (2009). The Iranian version of 12-item short form health survey (SF-12): Factor structure, internal consistency and construct validity. BMC Public Health, 9(1), 341–310. https://doi.org/10.1186/1471-2458-9-341
   PubMedGoogle Scholar
• Nielsen, M. G., Ørnbøl, E., Vestergaard, M., Bech, P., Larsen, F. B., Lasgaard, M., & Christensen, K. S. (2016). The construct validity of the perceived stress scale. Journal of Psychosomatic Research, 84, 22–30. https://doi.org/10.1016/j.jpsychores.2016.03.009
   PubMed Web of Science ®Google Scholar
• Núñez-Naveira, L., Alonso-Búa, B., de Labra, C., Gregersen, R., Maibom, K., Mojs, E., Krawczyk-Wasielewska, A., & Millán-Calenti, J. C. (2016). UnderstAID, an ICT platform to help informal caregivers of people with dementia: A pilot randomized controlled study. BioMed Research International, 2016, 5726465. https://doi.org/10.1155/2016/5726465
   PubMed Web of Science ®Google Scholar
• Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Pieh, C., Budimir, S., & Probst, T. (2020). The effect of age, gender, income, work, and physical activity on mental health during coronavirus disease (COVID-19) lockdown in Austria. Journal of Psychosomatic Research, 136, 110186. https://doi.org/10.1016/j.jpsychores.2020.110186
   PubMed Web of Science ®Google Scholar
• Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer’s & Dementia, 9(1), 63–75.e2. https://doi.org/10.1016/j.jalz.2012.11.007
   PubMed Web of Science ®Google Scholar
• Queluz, F. N., Kervin, E., Wozney, L., Fancey, P., McGrath, P. J., & Keefe, J. (2020). Understanding the needs of caregivers of persons with dementia: A scoping review. International Psychogeriatrics, 32(1), 35–52. https://doi.org/10.2196/12274
   PubMed Web of Science ®Google Scholar
• Riffin, C., Van Ness, P. H., Wolff, J. L., & Fried, T. (2017). Family and other unpaid caregivers and older adults with and without dementia and disability. Journal of the American Geriatrics Society, 65(8), 1821–1828. https://doi.org/10.1111/jgs.14910
   PubMed Web of Science ®Google Scholar
• Rosa, E., Lussignoli, G., Sabbatini, F., Chiappa, A., Di Cesare, S., Lamanna, L., & Zanetti, O. (2010). Needs of caregivers of the patients with dementia. Archives of Gerontology and Geriatrics, 51(1), 54–58. https://doi.org/10.1016/j.archger.2009.07.008
   PubMed Web of Science ®Google Scholar
• Sheehan, O. C., Haley, W. E., Howard, V. J., Huang, J., Rhodes, J. D., & Roth, D. L. (2020). Stress, burden, and well-being in dementia and nondementia caregivers: Insights from the Caregiving Transitions Study. The Gerontologist, 670–679. https://doi.org/10.1093/geront/gnaa108
   Google Scholar
• Stoyanov, S. R., Hides, L., Kavanagh, D. J., Zelenko, O., Tjondronegoro, D., & Mani, M. (2015). Mobile app rating scale: A new tool for assessing the quality of health mobile apps. JMIR mHealth and uHealth, 3(1), e27. https://doi.org/10.2196/mhealth.3422
   PubMed Web of Science ®Google Scholar
• Tabachnick, B. G., & Fidell, L. S. (2013). Using multivariate statistics (6th ed.), Pearson, London, England.
   Google Scholar
• Terhorst, Y., Philippi, P., Sander, L. B., Schultchen, D., Paganini, S., Bardus, M., Santo, K., Knitza, J., Machado, G. C., Schoeppe, S., Bauereiß, N., Portenhauser, A., Domhardt, M., Walter, B., Krusche, M., Baumeister, H., & Messner, E.-M. (2020). Validation of the mobile application rating scale (MARS). PloS One, 15(11), e0241480. https://doi.org/10.1371/journal.pone.0241480
   PubMed Web of Science ®Google Scholar
• Thorpe, J., Forchhammer, B. H., & Maier, A. M. (2019). Adapting mobile and wearable technology to provide support and monitoring in rehabilitation for dementia: Feasibility case series. JMIR Formative Research, 3(4), e12346. https://doi.org/10.2196/12346
   PubMedGoogle Scholar
• Toye, C., Lester, L., Popescu, A., McInerney, F., Andrews, S., & Robinson, A. L. (2014). Dementia knowledge assessment tool version two: Development of a tool to inform preparation for care planning and delivery in families and care staff. Dementia (London, England), 13(2), 248–256. https://doi.org/10.1177/1471301212471960
   PubMedGoogle Scholar
• Vaismoradi, M., Jones, J., Turunen, H., & Snelgrove, S. (2016). Theme development in qualitative content analysis and thematic analysis. Journal of Nursing Education and Practice, 6(5), 100–110. https://doi.org/10.5430/jnep.v6n5p100
   Google Scholar
• Ware, J. E., Jr, Kosinski, M., & Keller, S. D. (1996). A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34(3), 220–233. https://doi.org/10.1097/00005650-199603000-00003
   PubMed Web of Science ®Google Scholar
• Wozney, L., de Souza, L. M., Freitas, Kervin, E., Queluz, F., McGrath, P. J., & Keefe, J. (2018). Commercially available mobile apps for caregivers of people with Alzheimer disease or other related dementias: Systematic search. JMIR Aging, 1(2), e12274. https://doi.org/10.2196/12274
   PubMedGoogle Scholar
• Yap, P. (2010). Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Annals of the Academy Medicine of Singapore, 39, 758–763.
   PubMed Web of Science ®Google Scholar
• Zarit, S., Orr, N. K., & Zarit, J. M. (1985). The hidden victims of Alzheimer’s disease: Families under stress. New York, NY: NYU press.
   Google Scholar