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Use of community and long-term care by people with dementia in the UK: A review of some issues in service provision and carer and user preferences

Pages 311-319 | Published online: 09 Jun 2010

  • ASHBY , D. , WEST , C.R. and AMES , D. 1989 . The ordered logistic regression model in psychiatry: rising prevalence of dementia in old people's homes . Statistics in Medicine , 8 : 1317 – 1326 .
  • ASKHAM , J. and THOMPSON , C. 1990 . Dementia and home care: a research report on a home support scheme for dementia sufferers , Mitcham : Age Concern .
  • AUDIT COMMISSION . 1997 . The coming of age: improving care services for older people , London : Audit Commission .
  • BALDOCK , J. 1997 . Social care in old age: more than a funding problem . Social Policy and Administration , 31 : 73 – 89 .
  • BANERJEE , S. 1993 . Prevalence and recognition rates of psychiatric disorder in the elderly clients of a community care service . International Journal of Geriatric Psychiatry , 8 : 125 – 131 .
  • BANERJEE , S. and MACDONALD , A. 1996 . Mental disorder in an elderly home care population: associations with health and service use . British Journal of Psychiatry , 168 : 750 – 756 .
  • BENNETT , N. , JARVIS , L. , ROWLANDS , O. , SINGLETON , N. and HASLEDEN , L. 1996 . Living in Britain: results from the 1994 General Household Survey , London : HMSO .
  • BONEHAM , M.A. , WILLIAMS , K.E. , COPELAND , J.R.M. , McKIBBIN , P. , WILSON , K. , SCOTT , A. and SAUNDERS , P.A. 1997 . Elderly people from ethnic minorities in Liverpool: mental illness, unmet need, and barriers to service use . Health and Social Care in the Community , 5 : 173 – 180 .
  • BOURGEOIS , M.S. , SCHULZ , R. and BURGIO , L. 1996 . Interventions for caregivers of patients with Alzheimer's disease: a review and analysis of content, process and outcomes . International Journal of Aging and Human Development , 43 (1) : 35 – 92 .
  • BRODATY , H. , GRESHAM , M. and LUSCOMBE , G. 1997 . The Prince Henry Hospital Caregivers' Training Programme . International Journal of Geriatric Psychiatry , 12 : 183 – 192 .
  • BURHOLT , V. , WENGER , G.C. and SCOTT , A. 1997 . Dementia, disability and contact with formal services: a comparison of dementia sufferers and non-sufferers in rural and urban settings . Health and Social Care in the Community , 5 (6) : 384 – 397 .
  • CARERS (RECOGNITION & SERVICES) ACT 1995 (1995). London: HMSO
  • CARR , J.S. 1992 . Tayside Dementia Services Planning Survey , Starling : Dementia Services Development Centre .
  • CHALLIS , D. 1992 . Providing alternatives to long stay hospital care for frail elderly patients: is it cost effective? . International Journal of Geriatric Psychiatry , 7 : 773 – 781 .
  • CHALLIS , D. and DARTON , R. 1990 . “ Evaluation research and experiment in social gerontology ” . In Researching Social Gerontology , Edited by: PEACE , S.M. 226 London : Sage Publications Ltd .
  • CHALLIS , D. , DARTON , R. , HUGHES , J. , STEWART , K. and WEINER , K. 1998 . Care management study: report on national data , London : Department of Health Social Care Group .
  • CHALLIS , D. , VON ABENDORFF , R. , BROWN , P. and CHESTERMAN , J. 1997 . “ Care management and dementia: an evaluation of the Lewisham intensive case management scheme ” . In Dementia: challenges and new directions , Edited by: HUNTER , S. 139 – 164 . London : Jessica Kingsley .
  • COOPER , B. and FEARN , G. 1998 . Dementia care needs in an area population: case register data and morbidity survey estimates . International Journal of Geriatric Psychiatry , 13 : 550 – 555 .
  • COTRELL , V. 1996 . Respite use by dementia caregivers: preferences and reasons for initial use . Journal of Gerontological Social Work , 26 (3/4) : 35 – 54 .
  • CULLEN , M. , BLIZARD , R. , LIVINGSTON , G. and MANN , A. 1993 . The Gospel Oak project 1987-1990: provision and use of community services . Health Trends , 25 (4) : 142 – 146 .
  • CUMELLA , S. , MESURIER , N.I. and TOMLIN , H. 1996 . Social work in practice: an evaluation of the care management received by elderly people from social workers based in GP practices in south Worcestershire , Worcester : The Martley Press .
  • DOWNS , M. 1997 . Progress report: the emergence of the person in dementia research . Ageing and Society , 17 (5) : 597 – 607 .
  • EDWARDS , P. and KENNY , D. 1997 . Community care trends 1997 , London : Local Government Management Board .
  • ELY , M. , MELZER , D. , OPIT , L. and BRAYNE , C. 1996 . Estimating the numbers and characteristics of elderly people with cognitive disability in local populations . Research, Policy and Planning , 14 (2) : 13 – 18 .
  • ELY , M. , BRAYNE , C. , HUPPERT , F.A. , O'CONNOR , D.W. and POLLITT , P.A. 1997 . Cognitive impairment: a challenge for community care. A comparison of the domiciliary service receipt of cognitively impaired and equally dependent physically impaired elderly women . Age and Ageing , 26 : 301 – 308 .
  • GILLEARD , C.J. , BELFORD , H. , GILLEARD , E. , WHITTICK , J.E. and GLEOHILL , K. 1984 . Emotional distress amongst the supporters of the elderly mentally infirm . British Journal of Psychiatry , 145 : 172 – 177 .
  • GLENDINNING , C. , SCHUNK , M. and McLAUGHLIN , E. 1997 . Paying for long-term domiciliary care: a comparative perspective . Ageing and Society , 17 : 123 – 140 .
  • GORDON , D.S. , SPICKER , P. , BALLINGER , B.R. , GILLIES , B. , McWILLIAM , N. , MUTCH , W.J. and SEED , P. 1997 . Identifying older people with dementia: the effectiveness of a multiservice census . International Journal of Geriatric Psychiatry , 12 : 636 – 641 .
  • HATFIELD , B. , HUXLEY , P. , MOHAMAD , H. , MAWER , J. and RUFFLEY , P. 1994 . Supporting older people with dementia: the service needs of informal carers . Social Services Research , 4 : 10 – 11 .
  • HENWOOD , M. 1992 . Through a glass darkly: community care and elderly people , London : King's Fund Institute .
  • HUDSON , H. 1994 . “ Case management: the Epic model. A case of not grasping the nettle ” . In Community Care: New Agendas and Challenges from the UK and Overseas , Edited by: CHALLIS , D. , DAVIES , B. and TRASKE , K. 149 – 59 . Aldershot : Arena .
  • INDEPENDENT HEALTHCARE ASSOCIATION . 1997 . NHS & Community Care Act … Four years on: an independent review , London : Independent Healthcare Association .
  • JOSEPH ROWNTREE FOUNDATION INQUIRY . 1996 . Meeting the costs of continuing care , York : Joseph Rowntree Foundation .
  • KNAPP , M. , WILKINSON , D. and WRIGGLESWORTH , R. 1998 . The economic consequences of Alzheimer's disease in the context of new drug developments . International Journal of Geriatric Psychiatry , 13 : 531 – 543 .
  • LEEK , S. and FLETCHER , C.L. 1996 . Home care services for people with dementia , Wolverhampton : University of Wolverhampton Educational Research Unit .
  • LEVIN , E. , MORIARTY , J. and GORBACH , P. 1994 . Better for the break , London : HMSO .
  • LEVIN , E. , SINCLAIR , I. and GORBACH , P. 1989 . Families, services and confusion in old age , Aldershot : Avebury .
  • LEWIS , J. and GLENNERSTER , H. 1996 . Implementing the new community care , Buckingham : Open University Press .
  • LIVINGSTON , G. , HAWKINS , A. , GRAHAM , N. , BLIZARD , B. and MANN , A. 1990 . The Gospel Oak study: prevalence rates of dementia, depression and activity limitation among elderly residents in inner London . Psychological Medicine , 20 : 137 – 146 .
  • LIVINGSTON , G. , MANELA , M. and KATONA , C. 1997 . Cost of community care for older people . British Journal of Psychiatry , 171 : 56 – 69 .
  • LIVINGSTON , G. , THOMAS , A. , GRAHAM , N. , BLIZARD , B. and MANN , A. 1990 . The Gospel Oak Project: the use of health and social services by dependent elderly people in the community . Health Trends , 22 (2) : 70 – 73 .
  • MACDONALD , A.J.D. , MANN , A.H. , JENKINS , R. , RICHARD , L. , GODLOVE , C. and RODWELL , G. 1982 . An attempt to determine the impact of four types of care upon the elderly in London by the study of matched groups . Psychological Medicine , 12 : 193 – 200 .
  • MANDELSTAM , M. and SCHWER , B. 1995 . Community care practice and the law , London : Jessica Kingsley Publishers Ltd .
  • Medical Research Council Cognitive Function and Ageing Study (MRC CFAS) and Resource Implications Study (RIS MRC CFAS) . 1999 . Profile of disability in elderly people: estimates from a longitudinal population study . British Medical Journal , 318 : 1108 – 1111 .
  • MELZER , D. , ELY , M. and BRAYNE , C. 1997a . Cognitive impairment in elderly people: population based estimate of the future in England, Scotland, and Wales . British Medical Journal , 315 : 462
  • MELZER , D. , ELY , M. and BRAYNE , C. 1997b . Local population differences and the needs of people with cognitive impairment . International Journal of Geriatric Psychiatry , 12 : 883 – 887 .
  • MURRAY , J.M. , MANELA , M.V. , SHUTTLEWORTH , A. and LIVINGSTON , G.A. 1997 . Caring for an older spouse with a psychiatric illness . Aging & Mental Health , 1 ( 3 ) : 256 – 260 .
  • NHS CENTRE FOR REVIEWS AND DISSEMINATION . 1997 . Mental health promotion in high risk groups . Effective Health Care , 3 (3) : 1 – 12 .
  • NOCON , A. and QURESHI , H. 1996 . Outcomes of community care for users and carers: a social services perspective , Buckingham : Open University Press .
  • O'CONNOR , D.W. , POLLITT , P.A. , HYDE , J.B. , FELLOWS , J.L. , MILLER , N.D. , BROOK , C.P.B. , REISS , B.B. and ROTH , M. 1989a . The prevalence of dementia as measured by the Cambridge Mental Disorders of the Elderly Examination . Acta Psychiatrica Scandanavica , 79 : 190 – 198 .
  • O'CONNOR , D.W. , POLLITT , P.A. , BROOK , C.P.B. and REINS , B.B. 1989b . The distribution of services to demented elderly people living in the community . International Journal of Geriatric Psychiatry , 4 : 339 – 344 .
  • O'CONNOR , D.W. , POLLITT , P.A. , BROOK , C.P.B. , REINS , B.B. and ROTH , M. 1991 . Does early intervention reduce the number of elderly people with dementia admitted to institutions for long term care? . British Medical Journal , 302 : 871 – 875 .
  • OPIT , L. and PAHL , J. 1993 . Institutional care for elderly people: can we predict admissions? . Research, Policy and Planning , 10 (2) : 2 – 5 .
  • PHILP , I. , MCKEE , K.J. , ARMSTRONG , G.K. , BALLINGER , B.R. , GILHOOLY , M.L.M. , GORDON , D.S. , MUTCH , W.J. and WHITTICK , J.E. 1997 . Institutionalization risk amongst people with dementia supported by family carers in a Scottish city . Aging & Mental Health , 1 : 339 – 345 .
  • PHILP , I. , MCKEE , K.J. , MELDRUM , P. , BALLINGER , B.R. , GILHOOLY , M.L.M. , GORDON , N.S. , MUTCH , W.J. and WHITTICK , J.E. 1995 . Community care for demented and non-demented elderly people: a comparison study of financial burden, service use, and unmet needs in family supporters . British Medical Journal , 310 : 1503 – 1506 .
  • POLLITT , P. , ANDERSON , I. and O'Connor , D.W. 1991 . For better or worse: the experience of caring for an elderly dementing spouse . Ageing and Society , 11 : 443 – 469 .
  • QURESHI , H. , PATMORE , C. , NICHOLAS , E. and BAMFORD , C. 1998 . Outcomes in Community Care Practice Number Five, Overview: outcomes of social care for older people and carers , York : Social Policy Research Unit .
  • Resource Implications Study of the Medical Research Council Cognitive Function and Ageing Study (RIS MRC CFAS) . 1998 . Mental and physical frailty in older people: the costs and benefits of informal care . Ageing and Society , 18 : 317 – 354 .
  • RIORDAN , J.M. and BENNET , A.V. 1998 . An evaluation of an augmented domiciliary service to older people with dementia and their carers . Aging & Mental Health , 2 (2) : 137 – 143 .
  • ROYAL COMMISSION ON LONG TERM CARE . 1999 . With respect to old age: long term care--rights and responsibilities. Cm 4192-I , London : Stationery Office .
  • SCHNEIDER , J. , MANN , A. and NETTEN , A. 1997 . Residential care for elderly people: an exploratory study of quality measurement . Mental Health Research Review , 4 : 12 – 15 .
  • SECRETARIES OF STATE FOR HEALTH, SOCIAL SECURITY, WALES AND SCOTLAND . 1989 . Caring for People: community care in the next decade and beyond, Cm 849 , London : MSO .
  • SECRETARY OF STATE FOR HEALTH . 1998 . Modernising social services: promoting independence, improving protection, raising standards. Cm 4169 , London : Stationery Office .
  • SHAH , A. , PHONGSATHORN , V. , GEORGE , C. , BIELAWSKA , C. and KATONA , C. 1994 . Physical dependency and dementia in NHS continuing care wards and contracted NHS beds in voluntary nursing homes . International Journal of Geriatric Psychiatry , 9 : 229 – 232 .
  • SOCIAL SERVICES INSPECTORATE . 1997 . At home with dementia: inspection of services for older people with dementia in the community , London : Department of Health .
  • STALKER , K. , GILLIARD , J. and DOWNS , M. 1999 . Eliciting user perspectives on what works . International Journal of Geriatric Psychiatry , 14 : 120 – 134 .
  • WARD , M. , MACDONALD , L. , HIGGS , P. and WEINSTEIN , C. 1992 . A survey of long-term care elderly patients in the South West Thames Region . Health Trends , 24 : 18 – 19 .
  • WARRINGTON. , J. and EAGLES , J.M. 1996 . A comparison of cognitively impaired attenders and their co-resident carers at day hospitals and day centres in Aberdeen . International Journal of Geriatric Psychiatry , 11 : 251 – 256 .
  • WOOD , P. and CASTLEDEN , M. 1993 . Dependency, quality and staffing of institutions for elderly people . Health Trends , 25 : 97 – 101 .

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