1,419
Views
1
CrossRef citations to date
0
Altmetric
Original Articles

‘You’re 18 now, goodbye’: the experiences of young people with attention deficit hyperactivity disorder of the transition from child to adult services

ORCID Icon, ORCID Icon, & ORCID Icon

References

  • Ahmed, A. A., S. Cress, and L. Lovett. 2009. “Adult ADHD: The New Kid on the Block Has Grown Up.” Psychiatric Bulletin 33: 37. doi:10.1192/pb.33.1.37a.
  • Anderson, D. L., S. E. Watt, and D. C. Shanley. 2017. “Ambivalent Attitudes about Teaching Children with Attention Deficit/Hyperactivity Disorder (ADHD).” Emotional and Behavioural Difficulties 22 (4): 1–18. doi:10.1080/13632752.2017.1298242.
  • Barkley, R. A., M. Fischer, L. Smallish, and K. Fletcher. 2004. “Young Adult Follow-Up of Hyperactive Children: Antisocial Activities and Drug Use.” Journal of Child Psychology and Psychiatry, and Allied Disciplines 45 (2): 195–211.
  • Belling, R., S. McLaren, M. Paul, T. Ford, T. Kramer, T. Weaver, K. Hovish, Z. Islam, S. White, and S. P. Singh. 2014. “The Effect of Organisational Resources and Eligibility Issues on Transition from Child and Adolescent to Adult Mental Health Services.” Journal of Health Services Research & Policy 19 (3): 169–176. doi:10.1177/1355819614527439.
  • Biddle, L., J. L. Donovan, D. Gunnell, and D. Sharp. 2006. “Young Adults’ Perceptions of GPs as a Help Source for Mental Distress: A Qualitative Study.” The British Journal of General Practice 56 (533): 924–931.
  • Biederman, J., and S. V. Faraone. 2006. “The Effects of Attention-Deficit/Hyperactivity Disorder on Employment and Household Income.” Medscape General Medicine 8 (3): 12.
  • Bolea-Alamanac, B., D. J. Nutt, M. Adamou, P. Asherson, S. Bazire, D. Coghill, D. Heal, et al. 2014. “Evidence-Based Guidelines for the Pharmacological Management of Attention Deficit Hyperactivity Disorder: Update on Recommendations from the British Association for Psychopharmacology.” Journal of Psychopharmacology (Oxford, England) 28 (3): 179–203. doi:10.1177/0269881113519509.
  • Braun, V., and V. Clarke. 2006. “Using thematic analysis in psychology”. Qualitative Research in Psychology 3 (2): 77–101.
  • Brinkman, W. B., S. N. Sherman, A. R. Zmitrovich, M. O. Visscher, L. E. Crosby, K. J. Phelan, and E. F. Donovan. 2012. “In Their Own Words: Adolescent Views on ADHD and Their Evolving Role Managing Medication.” Academic Pediatrics 12 (1): 53–61. doi:10.1016/j.acap.2011.10.003.
  • Chang, Z., P. Lichtenstein, B. M. D’Onofrio, A. Sjölander, and H. Larsson. 2014. “Serious Transport Accidents in Adults with Attention-Deficit/Hyperactivity Disorder and the Effect of Medication.” JAMA Psychiatry 71 (3): 319–325. doi:10.1001/jamapsychiatry.2013.4174.
  • Charach, A., E. Yeung, T. Volpe, T. Goodale, and S. Dosreis. 2014. “Exploring Stimulant Treatment in ADHD: Narratives of Young Adolescents and Their Parents.” BMC Psychiatry 14: 110. doi:10.1186/1471-244x-14-110.
  • Coghill, D. 2015. “Services for Adults with ADHD: Work in Progress: Commentary On… Specialist Adult ADHD Clinics in East Anglia.” BJPsych Bull 39 (3): 140–143. doi:10.1192/pb.bp.114.048850.
  • Cortese, S., C. R. Moreira-Maia, D. St Fleur, C. Morcillo-Penalver, L. A. Rohde, and S. V. Faraone. 2016. “Association between ADHD and Obesity: A Systematic Review and Meta-Analysis.” The American Journal of Psychiatry 173 (1): 34–43. doi:10.1176/appi.ajp.2015.15020266.
  • Davey, A., A. Asprey, M. Carter, and J. L. Campbell. 2013. “Trust, Negotiation, and Communication: Young Adults’ Experiences of Primary Care Services.” BMC Family Practice 14: 202. doi:10.1186/1471-2296-14-202.
  • Faraone, S. V., J. Biederman, and E. Mick. 2006. “The Age-Dependent Decline of Attention Deficit Hyperactivity Disorder: A Meta-Analysis of Follow-Up Studies.” Psychological Medicine 36 (02): 159–165. doi:10.1017/S003329170500471X.
  • Flanagan, S. M., and B. Hancock. 2010. “‘Reaching the Hard to Reach’ - Lessons Learned from the VCS (Voluntary and Community Sector). A Qualitative Study.” BMC Health Services Research 10: 92. doi:10.1186/1472-6963-10-92.
  • Hall, C. L., K. Newell, J. Taylor, K. Sayal, and C. Hollis. 2015. “Services for Young People with Attention Deficit/Hyperactivity Disorder Transitioning from Child to Adult Mental Health Services: A National Survey of Mental Health Trusts in England.” Journal of Psychopharmacology (Oxford, England) 29 (1): 39–42. doi:10.1177/0269881114550353.
  • Hall, C. L., K. Newell, J. Taylor, K. Sayal, K. D. Swift, and C. Hollis. 2013. “‘Mind the Gap’–Mapping Services for Young People with ADHD Transitioning from Child to Adult Mental Health Services.” BMC Psychiatry 13: 186. doi:10.1186/1471-244X-13-186.
  • Hoare, P., and T. Beattie. 2003. “Children with Attention Deficit Hyperactivity Disorder and Attendance at Hospital.” European Journal of Emergency Medicine : Official Journal of the European Society for Emergency Medicine 10 (2): 98–100. doi:10.1097/01.mej.0000072631.17469.71.
  • Hovish, K., T. Weaver, Z. Islam, M. Paul, and S. P. Singh. 2012a. “Transition Experiences of Mental Health Service Users, Parents, and Professionals in the United Kingdom: A Qualitative Study.” Psychiatric Rehabilitation Journal 35 (3): 251–257. doi:10.2975/35.3.2012.251.257.
  • Hovish, K., T. Weaver, Z. Islam, M. Paul, and S. P. Singh. 2012b. “Transition Experiences of Mental Health Service Users, Parents, and Professionals in the United Kingdom: A Qualitative Study.” Psychiatric Rehabilitation Journal 35 (3): 251–257. doi:10.2975/35.3.2012.251.257.
  • Matheson, L., P. Asherson, I. C. K. Wong, P. Hodgkins, J. Setyawan, R. Sasane, and S. Clifford. 2013. “Adult ADHD Patient Experiences of Impairment, Service Provision and Clinical Management in England: A Qualitative Study.” BMC Health Services Research 13: 184. doi:10.1186/1472-6963-13-184.
  • Mays, N., and C. Pope. 2000. “Assessing Quality in Qualitative Research.” BMJ: British Medical Journal 320 (7226): 50–52. doi:10.1136/bmj.320.7226.50.
  • McCarthy, S., M. L. Lynda Wilton, P. H. Murray, P. Asherson, and I. C. Wong. 2012. “Persistence of Pharmacological Treatment into Adulthood, in UK Primary Care, for ADHD Patients Who Started Treatment in Childhood or Adolescence.” BMC Psychiatry 12 (1): 219. doi:10.1186/1471-244X-12-219.
  • McLaren, S., R. Belling, M. Paul, T. Ford, T. Kramer, T. Weaver, K. Hovish, Z. Islam, S. White, and S. P. Singh. 2013. “‘Talking a Different Language’: An Exploration of the Influence of Organizational Cultures and Working Practices on Transition from Child to Adult Mental Health Services.” BMC Health Services Research 13: 254. doi:10.1186/1472-6963-13-254.
  • National Institute for Health and Care Excellence (NICE). 2008. Clinical Guideline 72: Attention deficit hyperactivity disorder. London: NICE.
  • National Institute for Health and Care Excellence (NICE). 2016. NICE guideline NG43: Transition from children‘s to adult’s services for young people using health and care services. London: NICE.
  • Newlove-Delgado, T., T. J. Ford, W. Hamilton, K. Stein, and O. C. Ukoumunne. 2017. “Prescribing of Medication for Attention Deficit Hyperactivity Disorder among Young People in the Clinical Practice Research Datalink 2005-2013: Analysis of Time to Cessation.” European Child & Adolescent Psychiatry. doi:10.1007/s00787-017-1011-1.
  • Patton, M. Q. 1990. Qualitative Research and Evaluation Methods. 2nd ed. Newbury Park, CA: Sage.
  • Plaistow, J., K. Masson, D. Koch, J. Wilson, R. M. Stark, P. B. Jones, and B. R. Lennox. 2014. “Young People’s Views of UK Mental Health Services.” Early Intervention in Psychiatry 8 (1): 12–23. doi:10.1111/eip.12060.
  • QSR. 2012. NVivo Qualitative Data Analysis Software. Victoria: QSR International Pty .
  • Richardson, M., D. A. Moore, R. Gwernan-Jones, J. Thompson-Coon, O. Ukoumunne, M. Rogers, R. Whear, et al. 2015. “Non-Pharmacological Interventions for Attention-Deficit/Hyperactivity Disorder (ADHD) Delivered in School Settings: Systematic Reviews of Quantitative and Qualitative Research.” Health Technology Assessment (Winchester, England) 19 (45): 1–470. doi:10.3310/hta19450.
  • Singh, I., T. Kendall, C. Taylor, A. Mears, C. Hollis, M. Batty, and S. Keenan. 2010a. “Young People’s Experience of ADHD and Stimulant Medication: A Qualitative Study for the NICE Guideline.” Child and Adolescent Mental Health 15 (4): 186–192. doi:10.1111/j.1475-3588.2010.00565.x.
  • Singh, S. P., M. Paul, T. Ford, T. Kramer, T. Weaver, S. McLaren, K. Hovish, Z. Islam, R. Belling, and S. White. 2010b. “Process, Outcome and Experience of Transition from Child to Adult Mental Healthcare: Multiperspective Study.” The British Journal of Psychiatry: the Journal of Mental Science 197 (4): 305–312. doi:10.1192/bjp.bp.109.075135.
  • Strauss, A. L., and J. M. Corbin. 1990. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, Calif: Sage Publications.
  • Swift, K. D., C. L. Hall, V. Marimuttu, L. Redstone, K. Sayal, and C. Hollis. 2013. “Transition to Adult Mental Health Services for Young People with Attention Deficit/Hyperactivity Disorder (ADHD): A Qualitative Analysis of Their Experiences.” BMC Psychiatry 13: 74. doi:10.1186/1471-244X-13-74.
  • Taggart, H., S. Lee, and L. McDonald. 2014. Perceptions of Wellbeing and Mental Health in English Secondary Schools: A Cross Sectional Study. London: Centre Forum.
  • Tatlow-Golden, M., L. Prihodova, B. Gavin, W. Cullen, and F. McNicholas. 2016. “What Do General Practitioners Know about ADHD? Attitudes and Knowledge among First-Contact Gatekeepers: Systematic Narrative Review.” BMC Family Practice 17 (1): 129. doi:10.1186/s12875-016-0516-x.
  • Travell, C., and J. Visser. 2006. “‘ADHD Does Bad Stuff to You’: Young People’s and Parents’ Experiences and Perceptions of Attention Deficit Hyperactivity Disorder (ADHD).” Emotional and Behavioural Difficulties 11 (3): 205–216. doi:10.1080/13632750600833924.
  • Uchida, M., T. J. Spencer, S. V. Faraone, and J. Biederman. 2015. “Adult Outcome of ADHD: An Overview of Results from the MGH Longitudinal Family Studies of Pediatrically and Psychiatrically Referred Youth with and without ADHD of Both Sexes.” Journal of Attention Disorders. doi:10.1177/1087054715604360.
  • Wong, I. C. K., P. Asherson, A. Bilbow, S. Clifford, D. Coghill, R. DeSoysa, C. Hollis, et al. 2009. “Cessation of Attention Deficit Hyperactivity Disorder Drugs in the Young (Caddy)–A Pharmacoepidemiological and Qualitative Study.” Health Technology Assessment (Winchester, England) 13 (50): iii-iv, ix-xi, 1–120. doi:10.3310/hta13490.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.