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Article

Giving a socially distanced voice to disabled young people: Insights from the Educational Pathways and Work Outcomes longitudinal study

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References

  • Abrams, L. S. (2010). Sampling ‘hard to reach’ populations in qualitative research: The case of incarcerated youth. Qualitative Social Work, 9(4), 536–550. https://doi.org/10.1177/1473325010367821
  • Archer-Kuhn, B., Beltrano, N. R., Hughes, J., Saini, M., & Tam, D. (2021). Recruitment in response to a pandemic: Pivoting a community-based recruitment strategy to facebook for hard-to-reach populations during COVID-19. International Journal of Social Research Methodology, 1–12. https://doi.org/10.1080/13645579.2021.1941647
  • Archibald, M. M., AmbagtSheer, R. C., Casey, M. G., & Lawless, M. (2019). Using Zoom videoconferencing for qualitative data collection: Perceptions and experiences of researchers and participants. International Journal of Qualitative Methods, 18, 1–18. https://doi.org/10.1177/1609406919874596
  • Ashbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, O. (2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders, 51(5), 1772–1780. https://doi.org/10.1007/s10803-020-04577-2
  • Bassett, R., Beagan, B. L., Ristovski-Slijepocevic, S., & Chapman, G. E. (2008). Tough teens: The methodological challenges of interviewing teenagers in research participants. Journal of Adolescent Research, 23(2), 119–131. https://doi.org/10.1177/0743558407310733
  • Beresford, B. (1997). Personal accounts: Involving disabled children in research. Social Policy Research Unit.
  • Brady, G., & Franklin, A. (2019). Challenging dominant notions of participation and protection through a co-led disabled young researcher study. Journal of Children’s Services, 14(3), 174–185. https://doi.org/10.1108/JCS-03-2019-0016
  • Bushin, N. (2007). Interviewing with children in their homes: Putting ethical principles into practice and developing flexible techniques. Children’s Geographies, 5(3), 235–251. https://doi.org/10.1080/14733280701445796
  • Cameron, H. (2005). Asking the tough questions: A guide to ethical practices in interviewing young children. Early Child Development and Care, 175(6), 597–610. https://doi.org/10.1080/03004430500131387
  • Campbell, A. (2008). For their own good: Recruiting children for research. Childhood, 15(1), 30–49. https://doi.org/10.1177/0907568207086834
  • Carlsson, E., Patterson, B., Scott-Findlay, S., Ehnfors, M., & Ehrenberg, A. (2007). Methodological issues in interviews involving people with communication impairments after acquired brain damage. Qualitative Health Research, 17(10), 1361–1371. https://doi.org/10.1177/1049732307306926
  • Cassidy, S., Nicolaidis, C., Davis, B., Des Roches, R., Eisenman, D., Onaiwu, M., Kapp, S., Kripke, C., Rodgers, J., & Waisman, T. (2020). An expert discussion on autism in the COVID-19 pandemic. Autism in Adulthood, 2(2), 106–117. https://doi.org/10.1089/aut.2020.29013.sjc
  • Chatzitheochari, S., & Platt, L. (2019). Disability differentials in educational attainment in England: Primary and secondary effects. British Journal of Sociology, 70(2), 502–525. https://doi.org/10.1111/1468-4446.12372
  • Christensen, P., & James, A. (2000). Research with children: Perspectives and practices. Routledge.
  • Clark, T. (2010). Gaining and maintaining access: Exploring the mechanisms that support and challenge the relationship between gatekeepers and researchers. Qualitative Social Work, 10(4), 485–502. https://doi.org/10.1177/1473325009358228
  • Cowie, H., & Myers, C.-A. (2021). The impact of the COVID-19 pandemic on the mental health and well-being of children and young people. Children and Society, 35(1), 62–74. https://doi.org/10.1111/chso.12430
  • Ellard-Gray, A., Jeffrey, N., Choubak, M., & Crann, S. (2015). Finding the hidden participant: Solutions for recruiting hidden, hard-to-reach and vulnerable populations. International Journal of Qualitative Methods, 14(5), 1–10. https://doi.org/10.1177/1609406915621420
  • Gaynor, Z., Alevizos, K., & Butler, J. (2020) IS THAT CLEAR?: Effective communication in a neurodiverse world, Acrobat Global.
  • Goodall, C. (2018). “I felt closed in and like I couldn’t breathe”: A qualitative study exploring the mainstream educational experiences of autistic young people. Autism and Developmental Language Impairments, 3, 1–16. https://doi.org/10.1177/2396941518804407
  • Halfon, N., Houtrow, A., Larson, K., & Newacheck, P. (2012). The changing landscape of disability in childhood. The Future of Children, 22(1), 13–42. https://doi.org/10.1353/foc.2012.0004
  • Harden, J., Scott, S., Backett-Milburn, K., & Jackson, S. (2000). Can’t talk, won’t talk?: Methodological issues in researching children. Sociological Research Online, 5(2), 104–115. https://doi.org/10.5153/sro.486
  • Harrington, C., Foster, M., Rodger, S., & Ashburner, J. (2013). Engaging young people with autism spectrum disorder in research interviews. British Journal of Learning Disabilities, 42(2), 153–161. https://doi.org/10.1111/bld.12037
  • Hill, M. (1997). Participatory research with children. Child and Family Social Work, 2(3), 171–183. https://doi.org/10.1046/j.1365-2206.1997.00056.x
  • Holt, L., & Evans, R. (2017). Geographies of children and young people: Methodological approaches. In T. Skelton, L. Holt, & R. Evans (Eds.), Methodological approaches (pp. ix–xvi). Springer Nature.
  • Ison, N. L. (2009). Having their say: Email interviews for research data collection with people who have verbal communication impairments. International Journal of Social Research Methodology, 12(2), 161–172. https://doi.org/10.1080/13645570902752365
  • James, N. (2016). Using email interviews in qualitative educational research: Creating space to think and time to talk. International Journal of Qualitative Studies in Education, 29(2), 150–163. https://doi.org/10.1080/09518398.2015.1017848
  • Jenkin, E., Wilson, E., Campaign, R., & Clarke, M. (2020). The principles and ethics of including children with disability in child research. Child Sociology, 34(1), 1–16. https://doi.org/10.1111/chso.12356
  • Jenner, B. M., & Myers, K. C. (2019). Intimacy, rapport, and exceptional disclosure: A comparison of in-person and mediated interview contexts. International Journal of Social Research Methodology, 22(2), 165–177. https://doi.org/10.1080/13645579.2018.1512694
  • Kim, L. E., & Ashbury, K. (2020). “Like a rug had been pulled from under you”: The impact of COVID-19 on teachers in England during the first six weeks of the UK lockdown. British Journal of Educational Psychology, 90(4), 1062–1083. https://doi.org/10.1111/bjep.12381
  • Kirk, S. (2007). Methodological and ethical issues in conducting qualitative research with children and young people: A literature review. International Journal of Nursing Studies, 44(7), 1250–1260. https://doi.org/10.1016/j.ijnurstu.2006.08.015
  • Levine, R. (2007). Ethnographic studies of childhood: A historical overview. American Anthropologist, 109(2), 247–260. https://doi.org/10.1525/aa.2007.109.2.247
  • Liddiard, K., Runswick-Cole, K., Goodley, D., Whitney, S., Vogelmann, E., & Watts, L., MBE. (2019). “I was excited by the idea of a project that focuses on those unasked questions”: Co-Producing disability research with disabled young people. Children and Society, 33(2), 154–167. https://doi.org/10.1111/chso.12308
  • MacDonald, K., & Greggans, A. (2008). Dealing with chaos and complexity: The reality of interviewing children and families in their own homes. Journal of Clinical Nursing, 17(23), 3123–3130. https://doi.org/10.1111/j.1365-2702.2008.02495.x
  • McDowell, L. (2001). ‘It’s that Linda again’: Ethical, practical and political issues involved in longitudinal research with young men. Ethics, Place & Environment, 4(2), 87–100. https://doi.org/10.1080/13668790124226
  • McLaughlin, J., & Coleman-Fountain, E. (2019). Visual methods and voice in disabled childhoods research: Troubling narrative authenticity. Qualitative Research, 19(4), 363–381. https://doi.org/10.1177/1468794118760705
  • Meyer, H., & Wilson, P. (2009). Sampling lesbian, gay, and bisexual populations. Journal of Counselling Psychology, 56(1), 23–31. https://doi.org/10.1037/a0014587
  • O’Reilly, M., Ronzoni, P., & Dogra, N. (2013). Research with children: Theory and practice. SAGE.
  • Parsons, S., & Platt, L. (2013). Disability among young children: Prevalence, heterogeneity and socio-economic disadvantage. Centre for Longitudinal Studies.
  • Patton, M. Q. (2002). Qualitative research and evaluation methods. SAGE.
  • Powell J. (2003). Constructing Disability and Social Inequality Early in the Life Course: the case of special education in Germany and the United States. DSQ, 23(2), 10.18061/dsq.v23i2.414
  • Preece, D., & Jordan, R. (2010). Obtaining the views of children and young people with autism spectrum disorders about their experience of daily life and social care support. British Journal of Learning Disabilities, 38(1), 10–20. https://doi.org/10.1111/j.1468-3156.2009.00548.x
  • Punch, S., & Graham, E. (2017). Interviewing children at home: Exploring the use of individual and focus group interviews. In T. Skelton, L. Holt, & R. Evans (Eds.), Methodological approaches (pp. 199–222). Springer Nature.
  • Purdie-Vaughns, V., & Eibach, R. (2008). Intersectional invisibility: The distinctive advantages and disadvantages of multiple subordinate-group identities. Sex Roles, 59(5–6), 377–391. https://doi.org/10.1007/s11199-008-9424-4
  • Qvortrup, J. (1997). A voice for Children in statistical and social Accounting: A plea for children’s rights to be heard. In A. James, and A. Prout (Eds.), Constructing and reconstructing childhood: Contemporary issues in the sociological study of childhood (pp. 85–103). Routledge.
  • Shepherd, J. (2015). ‘Interrupted interviews’: Listening to young people with autism in transition to college. Exchanges: The Warwick Research Journal, 2(2), 249–262. https://doi.org/10.31273/eirj.v2i2.114
  • Stafford, L. (2017). ‘What about my voice’: Emancipating the voices of children with disabilities through participant-centred methods. Children’s Geographies, 15(5), 600–613. https://doi.org/10.1080/14733285.2017.1295134
  • Teachman, G., & Gibson, B. E. (2013). Children and youth with disabilities: Innovative methods for single qualitative interviews. Qualitative Health Research, 23(2), 264–274. https://doi.org/10.1177/1049732312468063
  • Thompson, C., & Rudolph, L. (2000). Counselling children. Brooks/Cole.
  • Thunberg, S., & Arnell, L. (2021). Pioneering the use of technologies in qualitative research – A research review of the use of digital interviews. International Journal of Social Research Methodology, 1–12. https://doi.org/10.1080/13645579.2021.1935565
  • Topping, M., Douglas, J., & Winkler, D. (2021). General considerations for conducting online qualitative research and practice implications for interviewing people with acquired brain injury. International Journal of Qualitative Methods, 20, 1–15. https://doi.org/10.1177/16094069211019615
  • Watson, N. (2012). Theorising the lives of disabled children: How can disability theory help? Children and Society, 26(3), 192–202. https://doi.org/10.1111/j.1099-0860.2012.00432.x
  • Weller, S. (2017). Using internet video calls in qualitative (longitudinal) interviews: Some implications for rapport. International Journal of Social Research Methodology, 20(6), 613–625. https://doi.org/10.1080/13645579.2016.1269505
  • Whitehurst, T. (2007). Liberating silent voices – Perspectives of children with profound & complex learning needs on inclusion. British Journal of Learning Disabilities, 35(1), 55–61. https://doi.org/10.1111/j.1468-3156.2006.00405.x
  • Wickenden, M., & Kembhavi-Tam, G. (2014). Ask us too! Doing participatory research with disabled children in the global south. Childhood, 21(3), 400–417. https://doi.org/10.1177/0907568214525426
  • Williams, P. (2020). ‘It all sounds very interesting, but we’re just too busy!’: Exploring why ‘gatekeepers’ decline access to potential research participants with learning disabilities. European Journal of Special Needs Education, 35(1), 1–14. https://doi.org/10.1080/08856257.2019.1687563
  • Wilson, C., & Powell, M. (2001). A guide to interviewing children: Essential skills for counsellors, police, lawyers and social workers. Allen and Urwin.