1,178
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Parents’ perceptions of parental consent procedures for social science research in the school context

, &
Received 02 Feb 2023, Accepted 23 May 2023, Published online: 21 Jun 2023

References

  • Albala, I., Doyle, M., & Appelbaum, P. S. (2010). The evolution of consent forms for research: A quarter century of changes. IRB: Ethics & Human Research, 32(3), 7–11. https://www.jstor.org/stable/25703699
  • Borgatta, E. F., & Bohrnstedt, G. W. (1980). Level of measurement: Once over again. Sociological Methods & Research, 9(2), 147–160. https://doi.org/10.1177/004912418000900202
  • Burgess, M. M. (2007). Proposing modesty for informed consent. Social Science & Medicine, 65(11), 2284–2295. https://doi.org/10.1016/j.socscimed.2007.08.006
  • Button, K. S., Ioannidis, J. P. A., Mokrysz, C., Nosek, B. A., Flint, J., Robinson, E. S. J., & Munafò, M. R. (2013). Power failure: Why small sample size undermines the reliability of neuroscience. Nature Reviews Neuroscience, 14(5), 365–376. https://doi.org/10.1038/nrn3475
  • Children’s Online Privacy Protection Act, § 15 U.S.C. §§ 6501–6506. (2013). http://uscode.house.gov/view.xhtml
  • Courser, M. W., Shamblen, S. R., Lavrakas, P. J., Collins, D., & Ditterline, P. (2009). The impact of active consent procedures on nonresponse and nonresponse error in youth survey data: Evidence from a new experiment. Evaluation Review, 33(4), 370–395. https://doi.org/10.1177/0193841X09337228
  • Dent, C. W., Galaif, J., Sussman, S., Stacy, A., Burtun, D., & Flay, B. R. (1993). Demographic, psychosocial and behavioral differences in samples of actively and passively consented adolescents. Addictive Behaviors, 18(1), 51–56. https://doi.org/10.1016/0306-46039390008-W
  • Ellickson, P. L., & Hawes, J. A. (1989). An assessment of active versus passive methods for obtaining parental consent. Evaluation Review, 13(1), 45–55. https://doi.org/10.1177/0193841X8901300104
  • Esbensen, F.-A., Deschenes, E. P., Vogel, R. E., West, J., Arboit, K., & Harris, L. (1996). Active parental consent in school-based research. Evaluation Review, 20(6), 737–753. https://doi.org/10.1177/0193841X9602000605
  • Esbensen, F. A., Miller, M. H., Taylor, T., He, N., & Freng, A. (1999). Differential attrition rates and active parental consent. Evaluation Review, 23(3), 316–335. https://doi.org/10.1177/0193841X9902300304
  • Field, M. J., & Behrman, R. E. 2004. Understanding and Agreeing to Children's Participation in Clinical Research Field. The National Academies Press. https://doi.org/10.17226/10958
  • Flory, J., & Emanuel, E. (2005). Interventions to improve research participants’ understanding in informed consent for research. A systematic review. American Journal of Ophthalmology, 139(2), 399. https://doi.org/10.1016/j.ajo.2004.12.040
  • General Data Protection Regulation, § L 119/1. (2016). https://ec.europa.eu/info/law/law-topic/data-protection_en
  • Green, K. H., Van De Groep, I. H., Te Brinke, L. W., van der Cruijsen, R., van Rossenberg, F., & El Marroun, H. (2022). A perspective on enhancing representative samples in developmental human neuroscience: Connecting science to society. Frontiers in Integrative Neuroscience, 16, 16. https://www.frontiersin.org/articles/10.3389/fnint.2022.981657
  • Gummer, T., Roßmann, J., & Silber, H. (2021). Using instructed response items as attention checks in web surveys: Properties and implementation. Sociological Methods & Research, 50(1), 238–264. https://doi.org/10.1177/0049124118769083
  • Hein, I. M., De Vries, M. C., Troost, P. W., Meynen, G., Van Goudoever, J. B., & Lindauer, R. J. L. (2015). Informed consent instead of assent is appropriate in children from the age of twelve: Policy implications of new findings on children’s competence to consent to clinical research. BMC Medical Ethics, 16(1), 76. https://doi.org/10.1186/s12910-015-0067-z
  • Higgerson, R. A., Olsho, L. E. W., Christie, L. M., Rehder, K., Doksum, T., Gedeit, R., Giuliano, J. S., Brennan, B., Wendlandt, R., & Randolph, A. G. (2014). Variability in IRBs regarding parental acceptance of passive consent. Pediatrics, 134(2), e496–503. https://doi.org/10.1542/peds.2013-4190
  • Holder, M. D., Coleman, B., & Wallace, J. M. (2010). Spirituality, religiousness, and happiness in children aged 8–12 years. Journal of Happiness Studies, 11(2), 131–150. https://doi.org/10.1007/s10902-008-9126-1
  • Homan, R. (2001). The principle of assumed consent: The ethics of gatekeeping. Journal of the Philosophy of Education, 35(3), 329–343. https://doi.org/10.1111/1467-9752.00230
  • Horn, K. A., Branstetter, S. A., Dino, G. A., Jarrett, T. D., Tworek, C., & Zhang, J. (2009). Potential effects of active parental consent: Enrolling teen smokers into a school-based cessation program. Nicotine & Tobacco Research, 11(11), 1359–1367. https://doi.org/10.1093/ntr/ntp146
  • Isles, A. (2013). Understood consent versus informed consent: A new paradigm for obtaining consent for pediatric research studies. Frontiers in Pediatrics, 1, 1. https://www.frontiersin.org/article/10.3389/fped.2013.00038
  • JASP Team. (2017). JASP (Version 0.8.1). https://jasp-stats.org/faq/how-do-i-cite-jasp/
  • Jelsma, J., Burgess, T., & Henley, L. (2012). Does the requirement of getting active consent from parents in school-based research result in a biased sample? An empirical study. Journal of Empirical Research on Human Research Ethics: JERHRE, 7(5), 56–62. https://doi.org/10.1525/jer.2012.7.5.56
  • Kees, J., Berry, C., Burton, S., & Sheehan, K. (2017). An analysis of data quality: Professional panels, student subject pools, and amazon’s mechanical turk. Journal of Advertising, 46(1), 141–155. https://doi.org/10.1080/00913367.2016.1269304
  • Kuzon, W. M. J., Urbanchek, M. G., & McCabe, S. (1996). The seven deadly sins of statistical analysis. Annals of Plastic Surgery, 37(3), 265–272. https://doi.org/10.1097/00000637-199609000-00006
  • Lakens, D. (2022). Sample size justification. Collabra: Psychology, 8(1), 33267. https://doi.org/10.1525/collabra.33267
  • Lakens, D., Scheel, A., & Isager, P. (2018). Equivalence testing for psychological research: A tutorial. Advances in Methods and Practices in Psychological Science, 1(2), 259–269. https://doi.org/10.1177/2515245918770963
  • Liu, C., Cox, R. B., Washburn, I. J., Croff, J. M., & Crethar, H. C. (2017). The effects of requiring parental consent for research on adolescents’ risk behaviors: A meta-analysis. Journal of Adolescent Health, 61(1), 45–52. https://doi.org/10.1016/j.jadohealth.2017.01.015
  • Livingstone, S. (2018). Children: A special case for privacy? Intermedia, 46(2), 18–23. https://www.iicom.org/wp-content/uploads/im-july2018-childrenspecialcaseforprivacy-min.pdf
  • Manti, S., & Licari, A. (2018). How to obtain informed consent for research. Breathe, 14(2), 145–152. https://doi.org/10.1183/20734735.001918
  • Morey, R. D., & Rouder, J. N. (2022). Bayesfactor: Computation of Bayes factors for common designs (R package version 0.9.12-4.4). https://CRAN.R-project.org/package=BayesFactor
  • Pokorny, S. B., Jason, L. A., Schoeny, M. E., Townsend, S. M., & Curie, C. J. (2001). Do participation rates change when active consent procedures replace passive consent. Evaluation Review, 25(5), 567–580. https://doi.org/10.1177/0193841X0102500504
  • R Development Core Team. (2013). R: A language and environment for statistical computing. R Foundation for Statistical Computing. http://www.R-project.org/
  • Rothstein, M. A., & Shoben, A. B. (2013). Does consent bias research? The American Journal of Bioethics, 13(4), 27–37. https://doi.org/10.1080/15265161.2013.767955
  • Secor-Turner, M., Sieving, R., Widome, R., Plowman, S., & Vanden Berk, E. (2010). Active parent consent for health surveys with urban middle school students: Processes and outcomes. The Journal of School Health, 80(2), 73–79. quiz 108–110. https://doi.org/10.1111/j.1746-1561.2009.00468.x.
  • Shaw, T., Cross, D., Thomas, L. T., & Zubrick, S. R. (2015). Bias in student survey findings from active parental consent procedures. British Educational Research Journal, 41(2), 229–243. https://doi.org/10.1002/berj.3137
  • Spence, S., White, M., Adamson, A. J., & Matthews, J. N. S. (2015). Does the use of passive or active consent affect consent or completion rates, or dietary data quality? Repeat cross-sectional survey among school children aged 11-12 years. British Medical Journal Open, 5(1), e006457. https://doi.org/10.1136/bmjopen-2014-006457
  • Stein, B. D., Jaycox, L. H., Langley, A., Kataoka, S. H., Wilkins, W. S., & Wong, M. (2007). Active parental consent for a school-based community violence screening: Comparing distribution methods. The Journal of School Health, 77(3), 116–120. https://doi.org/10.1111/j.1746-1561.2007.00180.x
  • Szucs, D., Ioannidis, J. P. A., & Wagenmakers, E. J. (2017). Empirical assessment of published effect sizes and power in the recent cognitive neuroscience and psychology literature. PLOS Biology, 15(3), e2000797. https://doi.org/10.1371/journal.pbio.2000797
  • Unger, J. B., Gallaher, P., Palmer, P. H., Baezconde Garbanati, L., Trinidad, D. R., Cen, S., & Johnson, C. A. (2004). Characteristics of adolescents who provide neither parental consent nor refusal for participation in school-based survey research. Evaluation Review, 28(1), 52–63. https://doi.org/10.1177/0193841X03254421
  • Waligora, M., Dranseika, V., & Piasecki, J. (2014). Child’s assent in research: Age threshold or personalisation? BMC Medical Ethics, 15(1), 44. https://doi.org/10.1186/1472-6939-15-44
  • Weithorn, L. A., & Campbell, S. B. (1982). The competency of children and adolescents to make informed treatment decisions. Child Development, 53(6), 1589–1598. Scopus. https://doi.org/10.2307/1130087.
  • Wolfenden, L., Kypri, K., Freund, M., & Hodder, R. (2009). Obtaining active parental consent for school-based research: A guide for researchers. Australian and New Zealand Journal of Public Health, 33(3), 270–275. https://doi.org/10.1111/j.1753-6405.2009.00387.x