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Research Article

Consent through art: a critique of a visual method developed with peer-researchers in southern Nepal

ORCID Icon, & ORCID Icon
Received 25 Oct 2022, Accepted 25 Jul 2023, Published online: 08 Aug 2023

References

  • Balakrishnan, V., & Cornforth, S. (2013). Using working agreements in participatory action research: Working through moral problems with Malaysian students. Educational Action Research, 21(4), 582–602. https://doi.org/10.1080/09650792.2013.832347
  • Baum, F. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60(10), 854–857. https://doi.org/10.1136/jech.2004.028662
  • Cameron, M. (1998). On the edge of the auspicious: Gender and caste in Nepal. University of Illinois Press. http://www.fau.edu/anthro/documents/Negotiating_Marriage_in_Nepal.pdf
  • Cargo, M., & Mercer, S. L. (2008). The value and challenges of participatory research: Strengthening its practice. Annual Review of Public Health, 29(1), 325–350. https://doi.org/10.1146/annurev.publhealth.29.091307.083824
  • Carlisle, S., & Cropper, S. (2009). Investing in lay researchers for community-based health action research: Implications for research, policy and practice. Critical Public Health, 19(1), 59–70. https://doi.org/10.1080/09581590802225712
  • Cooke, B. (2001). The social psychological limits of participation? In B. Cooke & U. Kothari (Eds.), Participation: The new tyranny?. Zed Books. 102–121.
  • Dawson, L., & Kass, N. E. (2005). Views of US researchers about informed consent in international collaborative research. Social Science & Medicine, 61(6), 1211–1222. https://doi.org/10.1016/j.socscimed.2005.02.004
  • DePalma, R. (2010). Socially just research for social justice: Negotiating consent and safety in a participatory action research project. International Journal of Research & Method in Education, 33(3), 215–227. https://doi.org/10.1080/1743727X.2010.511713
  • Devotta, K., Woodhall-Melnik, J., Pedersen, C., Wendaferew, A., Dowbor, T. P., Guilcher, S. J. T., Hamilton-Wright, S., Ferentzy, P., Hwang, S. W., & Matheson, F. I. (2016). Enriching qualitative research by engaging peer interviewers: A case study. Qualitative Research, 16(6), 661–680. https://doi.org/10.1177/1468794115626244
  • Elliott, E., Watson, A. J., & Harries, U. (2002). Harnessing expertise: Involving peer interviewers in qualitative research with hard‐to‐reach populations. Health Expectations, 5(2), 172–178. https://doi.org/10.1046/j.1369-6513.2002.00158.x
  • Gautam, A., Bhatta, D. N., & Aryal, U. R. (2015). Diabetes related health knowledge, attitude and practice among diabetic patients in Nepal. BMC Endocrine Disorders, 15(1), 25. https://doi.org/10.1186/s12902-015-0021-6
  • Gyawali, B., Hansen, M. R. H., Povlsen, M. B., Neupane, D., Andersen, P. K., McLachlan, C. S., Sandbæk, A., Vaidya, A., Kallestrup, P., & Soundy, A. (2018). Awareness, prevalence, treatment, and control of type 2 diabetes in a semi-urban area of Nepal: Findings from a cross-sectional study conducted as a part of COBIN-D trial. PloS One, 13(11), e0206491. https://doi.org/10.1371/journal.pone.0206491
  • Jagosh, J., Macaulay, A. C., Pluye, P., Salsberg, J., Bush, P. L., Henderson, J., Sirett, E., Wong, G., Cargo, M., Herbert, C. P., Seifer, S. D., Green, L. W., & Greenhalgh, T. (2012). Uncovering the benefits of participatory research: Implications of a realist review for health research and practice. The Milbank Quarterly, 90(2), 311–346. https://doi.org/10.1111/j.1468-0009.2012.00665.x
  • Khanal, S., Veerman, L., Nissen, L., & Hollingworth, S. (2017). Use of healthcare services by patients with non-communicable diseases in Nepal: A qualitative study with healthcare providers. Journal of Clinical & Diagnostic Research: JCDR, 11(6), LC01. https://doi.org/10.7860/JCDR/2017/25021.9970
  • Khanlou, N., & Peter, E. (2005). Participatory action research: Considerations for ethical review. Social Science & Medicine, 60(10), 2333–2340. https://doi.org/10.1016/j.socscimed.2004.10.004
  • Logie, C., James, L., Tharao, W., & Loutfy, M. R. (2012). Opportunities, ethical challenges, and lessons learned from working with peer research assistants in a multi-method HIV community-based research study in Ontario, Canada. Journal of Empirical Research on Human Research Ethics, 7(4), 10–19. https://doi.org/10.1525/jer.2012.7.4.10
  • Marsh, V. M., Kamuya, D. K., Parker, M. J., & Molyneux, C. S. (2011). Working with concepts: The role of community in international collaborative biomedical research. Public Health Ethics, 4(1), 26–39. https://doi.org/10.1093/phe/phr007
  • Ministry of Health, New ERA, & ICF. (2017). Nepal demographic and health survey. Ministry of Health.
  • Minkler, M. (2004). Ethical challenges for the “outside” researcher in community-based participatory research. Health Education & Behavior, 31(6), 684–697. https://doi.org/10.1177/1090198104269566
  • Mishra, S. R., Neupane, D., Bhandari, P. M., Khanal, V., & Kallestrup, P. (2015). Burgeoning burden of non-communicable diseases in Nepal: A scoping review. Globalization and Health, 11(1), 32. https://doi.org/10.1186/s12992-015-0119-7
  • Morrison, J., & Arjyal, A. (2021). A funfair without the candy floss: Engaging communities to prevent diabetes in Nepal. Public Health, 193, 23–25. https://doi.org/10.1016/j.puhe.2021.01.012
  • Morrison, J., Arjyal, A., Priyadarshani, A., Sah, S., & Baral, S. (2018). Pictorial consent process for participatory research about type 2 diabetes in rural Nepal. Part of the Jeevan Shakti mela - festival for lifeforce. UCL Institute for Global Health, Herd International, Janakpur Women’s Development Centre. https://www.ucl.ac.uk/global-health/sites/global_health/files/pictorial_consent_process_final.pdf
  • National Commission for the Protection of Human Subjects of Biomedical and Behavioural Research. (1979). The Belmont report: Ethical principles and guidelines for the protection of human subjects of research. US Dept of Health, Education and Welfare.
  • National Planning Commission. (2011). Population census preliminary report. Central Statistics Department, National Planning Commission, Government of Nepal.
  • O’Reilly de Brún, M., de Brún, T., Okonkwo, E., Bonsenge-Bokanga, J.-S., Silva, M. M. D. A., Ogbebor, F., Mierzejewska, A., Nnadi, L., van Weel-Baumgarten, E., & Van Weel, C. (2016). Using participatory learning & action research to access and engage with ‘hard to reach’migrants in primary healthcare research. BMC Health Services Research, 16(1), 25. https://doi.org/10.1186/s12913-015-1247-8
  • Ryan, L., Kofman, E., & Aaron, P. (2011). Insiders and outsiders: Working with peer researchers in researching Muslim communities. International Journal of Social Research Methodology, 14(1), 49–60. https://doi.org/10.1080/13645579.2010.481835
  • Sharma, A., Bhandari, P. M., Neupane, D., Kaplan, W. A., & Mishra, S. R. (2018). Challenges constraining insulin access in Nepal—A country with no local insulin production. International Health, 10(3), 182–190. https://doi.org/10.1093/inthealth/ihy012
  • Shore, N. (2006). Re-conceptualizing the Belmont report: A community-based participatory research perspective. Journal of Community Practice, 14(4), 5–26. https://doi.org/10.1300/J125v14n04_02
  • Shrestha, R., Ghale, A., Chapagain, B. R., Gyawali, M., & Acharya, T. (2017). Survey on the availability, price and affordability of selected essential medicines for non-communicable diseases in community pharmacies of Kathmandu valley. SAGE Open Medicine, 5, 2050312117738691. https://doi.org/10.1177/2050312117738691
  • UNDP, & Government of Nepal. (2014). Nepal human development report. Government of Nepal, National Planning Commission.
  • Yadav, B., Prakash, S., Sah, P., Yadav, K., & Yadav, M. (2016). Knowledge of Type-II Diabetes mellitus and its complications among population of Siraha district, Nepal. International Journal of Innovative and Applied Research, 4(8), 19–30.