References
- Armstrong, D. 1995. “The Rise of Surveillance Medicine.” Sociology of Health and Illness 17 (3): 393–404. doi:https://doi.org/10.1111/1467-9566.ep10933329.
- Arribas-Ayllon, M. 2016. “After Geneticization.” Social Science & Medicine (1982) 159: 132–139. doi:https://doi.org/10.1016/j.socscimed.2016.05.011.
- Arteaga, I. 2019. “From Attitudes to Materialities: Understanding Bowel Control for Colorectal Cancer Patients in London.” In Medical Materialities, edited by Aaron Parkhurst and Timothy Carroll, 36–50. London: Routledge.
- Atkinson, P., K. Featherstone, and M. Gregory. 2013. “Kinscapes, Timescapes and Genescapes: Families Living with Genetic Risk.” Sociology of Health & Illness 35 (8): 1227–1241. doi:https://doi.org/10.1111/1467-9566.12034.
- Becker, G. 1999. Disrupted Lives, How People Create Meaning in a Chaotic World. Berkeley, CA: University of California Press.
- Bharadwaj, A. 2002. “Uncertain Risk: Genetic Screening for Susceptibility to Hæmochromatosis.” Health, Risk & Society 4 (3): 227–240. doi:https://doi.org/10.1080/1369857021000016605.
- Brodersen, J., H. Thorsen, and S. Kreiner. 2010. “Consequences of Screening in Lung Cancer: Development and Dimensionality of a Questionnaire.” Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research 13 (5): 601–612. doi:https://doi.org/10.1111/j.1524-4733.2010.00697.x.
- Bury, M. 1982. “Chronic Illness as Biographical Disruption.” Sociology of Health & Illness 4 (2): 167–182. doi:https://doi.org/10.1111/1467-9566.ep11339939.
- Caiata-Zufferey, M. 2015. “Genetically at-Risk Status and Individual Agency. A Qualitative Study on Asymptomatic Women Living with Genetic Risk of Breast/Ovarian Cancer.” Social Science & Medicine (1982) 132: 141–148. doi:https://doi.org/10.1016/j.socscimed.2015.03.037.
- Charmaz, K. 1983. “Loss of Self: A Fundamental Form of Suffering in the Chronically Ill.” Sociology of Health & Illness 5 (2): 168–195. doi:https://doi.org/10.1111/1467-9566.ep10491512.
- Deleuran, M. 2018. “Cancer Genetic Counseling in China and Denmark; A Comparative Anthropological Perspective.” PhD diss., Aarhus University, Denmark.
- Dumit, J. 2012. Drugs for Life. How Pharmaceutical Companies Define Our Health. Durham and London: Duke University Press..
- Finkler, K. 2000. Experiencing the New Genetics: Family and Kinship on the Medical Frontier. Philadelphia: University of Pennsylvania Press.
- Fitzmaurice, C., and Global Burden of Disease Cancer Collaboration 2018. “Global, Regional, and National Cancer Incidence, Mortality, Years of Life Lost, Years Lived with Disability, and Disability-Adjusted Life-Years for 29 Cancer Groups, 2006 to 2016: A Systematic Analysis for the Global Burden of Disease Study.” Journal of Clinical Oncology 36 (15_suppl): 1568–1568. doi:https://doi.org/10.1200/JCO.2018.36.15_suppl.1568.
- Forrest, L. E., M. B. Delatycki, L. Skene, and M. Aitken. 2007. “Communicating Genetic Information in Families-A Review of Guidelines and Position Papers.” European Journal of Human Genetics: EJHG 15 (6): 612–618. doi:https://doi.org/10.1038/sj.ejhg.5201822.
- Foucault, M. 1988. Politics, Philosophy, Culture: interviews and Other Writings 1977-1984, New York: Routledge.
- Gibbon, S. 2007. Breast Cancer Genes and the Gendering of Knowledge: Science and Citizenship in the Cultural Context of the ‘New’ Genetics. London: Palgrave.
- Greene, J. 2007. Prescribing by Numbers. Drugs and the Definition of Disease. Baltimore, MD: The John Hopkins University Press.
- Hallowell, N. 1999. “Doing the Right Thing: Genetic Risk and Responsibility.” Sociology of Health and Illness 21 (5): 597–621. doi:https://doi.org/10.1111/1467-9566.00175.
- Hallowell, N., A. Arden-Jones, R. Eeles, C. Foster, A. Lucassen, C. Moynihan, and M. Watson. 2006. “Guilt, Blame and Responsibility: Men’s Understanding of Their Role in the Transmission of BRCA1/2 Mutations within Their Family.” Sociology of Health & Illness 28 (7): 969–988.
- Høyer, K. L. 2019. “Data as Promise: Reconfiguring Danish Public Health through Personalized Medicine.” Social Studies of Science 49 (4): 531–555.
- Järvinen, H. J., L. Renkonen-Sinisalo, K. Aktán-Collán, P. Peltomäki, L. A. Aaltonen, and J.-P. Mecklin. 2009. “Ten Years after Mutation Testing for Lynch Syndrome: Cancer Incidence and Outcome in Mutation-Positive and Mutation-Negative Family Members.” Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology 27 (28): 4793–4797. doi:https://doi.org/10.1200/JCO.2009.23.7784.
- Jauho, M. 2019. “Patients-in-Waiting or Chronically Healthy Individuals? People with Elevated Cholesterol Talk about Risk.” Sociology of Health & Illness 41 (5): 867–881. doi:https://doi.org/10.1111/1467-9566.12866.
- Jöhncke, S. 2010. “Velfærdsstaten Som Integrationsprojekt.” In Integration. Antropologiske Perspektiver, edited by Karen Fogh Olwig and Karsten Pærregaard, 37–64. Kbh: Museum Tusculanum.
- Johnson-Hanks, J. 2002. “On the Limits of Life Stages in Ethnography: Toward a Theory of Vital Conjunctures.” American Anthropologist 104 (3): 865–880. doi:https://doi.org/10.1525/aa.2002.104.3.865.
- Kenen, R., A. Ardern-Jones, and R. Eeles. 2003. “Living with Chronic Risk: Healthy Women with a Family History of Breast/Ovarian Cancer.” Health, Risk Soc 5 (3): 315–331. doi:https://doi.org/10.1080/13698570310001607003.
- Koch, L., and M. N. Svendsen. 2005. “Providing Solutions-Defining Problems: The Imperative of Disease Prevention in Genetic Counselling.” Social Science & Medicine (1982) 60 (4): 823–832. doi:https://doi.org/10.1016/j.socscimed.2004.06.019.
- Konrad, M. 2003. “Predictive Genetic Testing and the Making of the Pre-Symptomatic Person: Prognostic Moralities Amongst Huntington’s-Affected Families.” Anthropology & Medicine 10 (1): 23–49. doi:https://doi.org/10.1080/13648470301269.
- Konrad, M. 2005. Narrating the New Predictive Genetics. Ethics, Ethnography, Science. Cambridge: Cambridge University Press.
- Lau, S. R. 2018. A Matter of Course. An Ethnographic Assemblage of the Routinization of Statins in Denmark. PhD diss., The Department of Anthropology, The University of Copenhagen, Copenhagen.
- Lau, S. R., J. S. Andersen, F. Dela, and B. Oxlund. 2019. “The Rise of Statins in Denmark: Making the Case for a Localized Approach to the Routinization of Pharmaceutical Prevention of Cardiovascular Disease.” BioSocieties 14 (2): 228–250. doi:https://doi.org/10.1057/s41292-018-0126-z.
- Lippman, A. 1992. “Led (Astray) by Genetic Maps: The Cartography of the Human Genome and Health Care.” Social Science & Medicine (1982) 35 (12): 1469–1476. doi:https://doi.org/10.1016/0277-9536(92)90049-v.
- Lock, M., J. Freeman, G. Chilibeck, B. Beveridge, and M. Padolsky. 2007. “Susceptibility Genes and the Question of Embodied Identity.” Medical Anthropology Quarterly 21 (3): 256–276.
- Lupton, D. 1995. The Imperative of Health: Public Health and the Regulated Body. Thousand Oaks, CA: Sage Publications, Inc.
- Lynch, H. T., S. Lanspa, and T. Shaw. 2017. “Phenotypic and Genotypic Heterogeneity of Lynch Syndrome: A Complex Diagnostic Challenge.” Familial Cancer 17 (3): 403–414.
- Manderson, L., and A. Wahlberg. 2020. “Chronic Living in a Communicable World.” Medical Anthropology 39 (5): 428–439. doi:https://doi.org/10.1080/01459740.2020.1761352.
- Mozersky, J. 2012. “Who’s to Blame? Accounts of Genetic Responsibility and Blame among Ashkenazi Jewish Women at Risk of BRCA Breast cancer.” Sociology of Health & Illness 34 (5): 776–790. doi:https://doi.org/10.1111/j.1467-9566.2011.01427.x.
- Novas, C., and N. Rose. 2000. “Genetic Risk and the Birth of the Somatic Individual.” Economy and Society 29 (4): 485–513. doi:https://doi.org/10.1080/03085140050174750.
- Petersen, H. V. 2012. Mutation Carriers’ Perspectives on Lynch Syndrome: Self-Concept and Lived Experiences. Faculty of Medicine Doctoral Dissertation Series 2012:99, Lund University.
- Rabinow, P., and R. Dreyfus. 1982. Michel Foucault: Beyond Structuralism and Hermeneutics. Chicago: University of Chicago Press.
- Sachs, L. 1997. “Risk as Diagnosis.” In: Cancer, AIDS, and Quality of Life, edited by J. A. Levy, C. Jasmin, G. Bez. Boston, MA: Springer.
- Scambler, G., and A. Hopkins. 1986. “Being Epileptic: Coming to Terms with Stigma.” Sociology of Health & Illness 8 (1): 26–43.
- Siiger, C. 2009. “Politik og Praksis i Hverdagen. En antropologisk undersøgelse af intentioner og pragmatik i det sociale arbejde på boformer for hjemløse.” Institut for Antropologi, Det samfundsvidenskabelige Fakultet, Københavns Universitet.
- Svendsen, M. N. 2005. “Pursuing Knowledge about a Genetic Risk of Cancer.” In Managing Uncertainty. Ethnographic Studies of Illness, Risk and the Struggle for Control, edited by V. Steffen, R. Jenkins, and H. Jessen. Copenhagen: Museum Tusculanum.
- Svendsen, M. N. 2006. “The Social Life of Genetic Knowledge: A Case-Study of Choices and Dilemmas in Cancer Genetic Counselling in Denmark.” Medical Anthropology 25 (2): 139–170. doi:https://doi.org/10.1080/01459740600667120.
- Timmermans, S., and M. Buchbinder. 2010. “Patients-in-Waiting: Living between Sickness and Health in the Genomics Era.” Journal of Health and Social Behavior 51 (4): 408–423. doi:https://doi.org/10.1177/0022146510386794.
- Timmermans, S., and M. Buchbinder. 2012. Saving Babies? The Consequences of Newborn Genetic Screening. Chicago: University of Chicago Press.
- Will, C. M., and K. Weiner. 2014. “Sustained Multiplicity in Everyday Cholesterol Reduction: Repertoires and Practices in Talk about ‘healthy living’.” Sociology of Health & Illness 36 (2): 291–304. doi:https://doi.org/10.1111/1467-9566.12070.
- Zhu, J. 2013. “Projecting Potentiality: Understanding Maternal Serum Screening in Contemporary China.” Current Anthropology 54 (S7): S36–S44. doi:https://doi.org/10.1086/670969.