461
Views
9
CrossRef citations to date
0
Altmetric
Original Articles

Nurturing Women and the BRCA Genes: Gender, Activism and the Paradox of Health Awareness

Pages 157-171 | Published online: 16 Aug 2006

References

  • d'Agincourt-Canning , L . 2001 . Experiences of genetic risk: disclosure and the gendering of responsibility . Bioethics , 15 ( 3 ) : 231 – 247 .
  • Anglin , MK . 1997 . Working from the inside out; implications of breast cancer activism for bio-medial policies and practices . Social Science and Medicine , 44 ( 9 ) : 1043 – 1415 .
  • Blackstone , A . 2004 . “It's just about being fair”: activism and the politics of volunteering in the breast cancer movement . Gender and Society , 18 ( 3 ) : 350 – 368 .
  • Bourret , P . 2005 . BRCA patients and clinical collectives: new configurations of action in cancer genetic practices . Social Studies of Science , 35 : 41 – 68 .
  • Clarke , A , Mamo , L , Shim , J , Fishman , J and Fosket , J . 2003 . Biomedicalization: technoscientific transformations of health and illness, and U.S. biomedicine . American Sociological Review , 68 : 161 – 194 .
  • Department of Health . 2000 . “Investing in the future: research and genetics.” . In The Cancer Plan: a plan for investment, a plan for reform’ , 86 – 91 . London : DH Publications .
  • Eckman , A . 1998 . “ Beyond “The Yentl Syndrome:” making women visible in post-1990 women's health discourse ” . In The Visible Woman Imaging Technologies, Gender, and Science , Edited by: Treichler , P , Cartwright , L and Penley , C . New York : New York University Press .
  • Epstein , S . 1996 . Impure Science: AIDS, Activism and the Politics of Knowledge , Berkeley : University of California Press .
  • Evans , JP . 2001 . The complexities of predictive genetic testing . British Medical Journal , 322 : 1052 – 1056 .
  • Finkler , K . 2000 . Experiencing the New Genetics , Philadelphia : University of Pennsylvania Press .
  • Franklin , S . 2003 . Re-thinking nature-culture . Anthropological Theory , 3 ( 1 ) : 65 – 68 .
  • Gibbon , S . 2006 . Breast Cancer Genes and the Gendering of Knowledge , Basingstoke : Palgrave Macmillan .
  • Gibbon , S . “ Genealogical hybridities; the making and unmaking of blood relatives and predictive knowledge in breast cancer genetics ” . In Ways of Knowing; Epistemologies in Practice , Edited by: Edwards , J , Wade , P and Harvey , P . Oxford : Berg . forthcoming
  • Gibbon , S . 2002 . Family trees in clinical cancer genetics: re-examining geneticisation . Science as Culture , 11 ( 4 ) : 429 – 457 .
  • Gilligan , C . 1982 . In a Different Voice: Psychological Theory and Women's Development , London : Harvard University Press .
  • Ginsburg , F . 1987 . Procreation stories; reproduction, nurturance and procreation in life narratives of abortion activists . American Ethnology , 14 ( 4 ) : 623 – 634 .
  • Hallowell , N , Ardern-Jones , A , Eeles , R , Foster , C , Lucassen , A and Watson , M . 2005 . Men's decision-making about predictive BRCA 1/2 testing: the role of the family . Journal of Genetic Counseling , 14 ( 3 ) : 207 – 217 .
  • Hallowell , N . 1999 . “ Doing the right thing: genetic risk and responsibility ” . In Sociological Perspective on the New Genetics , Edited by: Conrad , P and Gabe , J . 97 – 120 . Oxford : Blackwell Publishers .
  • Kaufert , P . 1996 . “ Women and the debate over mammography: an economic, political, and moral history ” . In Gender and Health: An International Perspective , Edited by: Sargents , CF and Brettell , CB . 167 – 86 . Upper Saddle River , NJ : Prentice-Hall .
  • Kaufert , P . 1998 . “ Women, resistance and the breast cancer movement ” . In Pragmatic Women and Body Politics , Edited by: Lock , M and Kaufert , P . 287 – 309 . Cambridge : Cambridge University Press .
  • Klawiter , M . 2004 . Breast cancer in two regimes: the impact of social movements on illness experience . Sociology of Health and Illness , 26 ( 6 ) : 845 – 874 .
  • Kolker , E . 2004 . Framing as a cultural resource in health social movements: funding activism and the breast cancer movement in the US 1990–1993 . Sociology of Health and Illness , 26 ( 6 ) : 820 – 844 .
  • Lantz , P and Booth , K . 1998 . The social construction of the breast cancer epidemic . Social Science and Medicine , 46 ( 7 ) : 907 – 918 .
  • Lerner , BH . 2001 . The Breast Cancer Wars: Hope, Fear and The Pursuit of a Cure in Twentieth Century America , Oxford : Oxford University Press .
  • Lock , M . 1998 . Breast cancer: reading the omens . Anthropology Today , 14 ( 4 ) : 7 – 16 .
  • Lock , M , Young , A and Cambrosio , A . 2000 . Living and Working with the New Medical Technologies. Intersections of Inquiry , Cambridge : Cambridge University Press .
  • Lucassen , A , Watson , E and Eccles , D . 2001 . Evidence based case report: advice about mammography for a young woman with a family history of breast cancer . British Medical Journal , 322 : 1040 – 1042 .
  • Marteau , T and Richards , M . 1999 . The Troubled Helix: Social and Psychological Implications of the New Human Genetics , Cambridge : Cambridge University Press .
  • Martin , E . 1989 . The Woman in the Body , Cambridge : Open University Press .
  • Moll , A . 2000 . “ Pathology and the clinic: an ethnographic presentation of two atheroscleroses ” . In Living and Working with the New Medical Technologies. Intersections of Inquiry , Edited by: Lock , M , Young , A and Cambrosio , A . 82 – 102 . Cambridge : Cambridge University Press .
  • Oudshoorn , N and Pinch , T . 2003 . How Users Matter. The Co-Construction of Users and Technology, MIT Press , MA : Cambridge .
  • Rabinow , P . 1999 . French DNA: Trouble in Purgatory , Chicago , IL : Chicago University Press .
  • Rapp , R . 1999 . Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America , New York : Routledge .
  • Rose , N and Novas , C . 2005 . “ Biological citizenship ” . In Global Assemblages, Technology, Politics and Ethics as Anthropological Problems , Edited by: Ong , A and Collier , SJ . Oxford : Blackwell Publishing .
  • Saywell , C , Beattie , L and Henderson , L . 2000 . “ Sexualised illness: the newsworthy body in media representations of breast cancer ” . In Ideologies of Breast Cancer , Edited by: Potts , L . 37 – 62 . London : Macmillan .
  • Silverman , D . 1987 . Communication and Medical Practice: Social Relations in the Clinic , London : Sage .
  • Stacey , M . 1999 . “ The new genetics; a feminist view ” . In The Troubled Helix: Social and Psychological Implications of the New Human Genetics , Edited by: Marteau , T and Richards , M . 331 – 350 . Cambridge : Cambridge University Press .
  • Stockdale , A . 1999 . “ Waiting for the cure: mapping the social relations of human gene therapy research ” . In Sociological Perspective on the New Genetics , Edited by: Conrad , P and Gabe , J . 79 – 97 . Oxford : Blackwell Publishers .
  • Wonderling , D , Hopwood , P , Cull , A , Douglas , F , Watson , M , Burn , J and McPherson , K . 2001 . A descriptive study of UK cancer genetics services: an emerging clinical response to the new genetics . British Journal of Cancer , 85 ( 2 ) : 166 – 170 .
  • Yanagisako , S and Delaney , C . 1995 . Naturalising Power: Essays in Feminist Cultural Analysis , New York : Routledge .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.