Of butterflies and wolves: enacting lupus transformations on the Internet

References

• Benedek , TG . 2002 . “ Historical background of discoid and systemic lupus erythematosus ” . In Dubois’ lupus erythematosus , Edited by: Wallace , D and Hahn , B . 3 – 16 . Philadelphia : Lippincott, Williams and Wilkins .
   Google Scholar
• Centers for Disease Control. 2002 . Fact sheet: Lupus. . http://www.cdc.gov/od/oc/media/pressrel/fs020503.htm
   Google Scholar
• Centers for Disease Control. 1991 . Good days, bad days: The self in chronic illness and time , New Brunswick , NJ : Rutgers University Press .
   Google Scholar
• Chute , EE . 1998 . The social means of going on: Adapting to chronic illness. PhD diss. , SUNY at Stony Brook .
   Google Scholar
• Clarke , JN . 2000 . The search for legitimacy and the “expertization” of the lay person: The case of chronic fatigue syndrome . Social Work in Health Care , 30 ( 3 ) : 73 – 93 .
   PubMed Web of Science ®Google Scholar
• Cohn , S . 1999 . Taking time to smell the roses: Accounts of people with chronic fatigue syndrome and their struggle for legitimization . Anthropology & Medicine , 6 ( 2 ) : 195 – 214 .
   Google Scholar
• Csordas , TJ . 1994 . “ Introduction: The body as representation and being in the world ” . In Embodiment and Experience , Edited by: Csordas , T . 1 – 25 . Cambridge : Cambridge University Press .
   Google Scholar
• Dickerson , S , Reinhart , AM , Feeley , TH , Bidani , R , Rich , E , Carc , V and Hershey , CO . 2004 . Patient Internet use for health information at three primary care clinics . Journal of the American Infomatics Association , 11 ( 6 ) : 499 – 505 .
   PubMed Web of Science ®Google Scholar
• DiGiacomo , SM . 1992 . Metaphor as illness: Postmodern dilemmas in the representation of body, mind and disorder . Medical Anthropology , 14 : 109 – 37 .
   PubMedGoogle Scholar
• Dossa , P . 2002 . Narrative mediation of conventional and new “mental health” paradigms: Reading the stories of immigrant Iranian women . Medical Anthropology Quarterly , 16 ( 3 ) : 341 – 59 .
   PubMed Web of Science ®Google Scholar
• Druley , JA , Parris Stephens , MA and Coyne , J . 1997 . Emotional and physical intimacy in coping with lupus: Women's dilemmas of disclosure and approach . Health Psychology , 16 ( 6 ) : 506 – 14 .
   PubMed Web of Science ®Google Scholar
• Ehrenreich , B . 2001 . Welcome to Cancerland . Harper's Magazine , 303 ( 1818 ) : 43 – 53 .
   Google Scholar
• Goffman , E . 1963 . Stigma: Notes on the management of spoiled identity , Englewood Cliffs , NJ : Prentice Hall .
   Google Scholar
• Good , BJ . 1994 . Medicine, rationality and experience: An anthropological perspective , Cambridge : Cambridge University Press .
   Google Scholar
• Hawkins , A . 1993 . Reconstructing illness: Studies in pathography , West Lafayette , IN : Purdue University Press .
   Google Scholar
• Honkasalo , M . 2001 . Vicissitudes of pain and suffering: Chronic pain and liminality . Medical Anthropology , 19 : 319 – 53 .
   PubMedGoogle Scholar
• Karasz , A and Ouellette , SC . 1995 . Role strain and psychological well-being in women with systemic lupus erythematosus . Women and Health , 23 ( 3 ) : 41 – 59 .
   PubMed Web of Science ®Google Scholar
• Kierans , CM and Maynooth , UI . 2001 . Sensory and narrative identity: The narration of illness process among chronic renal sufferers in Ireland . Anthropology & Medicine , 8 ( 2/3 ) : 237 – 53 .
   Google Scholar
• Kirmayer , LJ . 1992 . The body's insistence on meaning: Metaphor as presentation and representation in illness experience . Medical Anthropology Quarterly , 6 ( 4 ) : 323 – 46 .
   Web of Science ®Google Scholar
• Lysloff , RTA . 2003 . Musical community on the Internet: An on-line ethnography . Cultural Anthropology , 18 ( 2 ) : 233 – 63 .
   Web of Science ®Google Scholar
• Mattingly , C . 1998 . Healing dramas and clinical plots: The narrative structure of experience , Cambridge : Cambridge University Press .
   Google Scholar
• Moss , P and Dyck , I . 2002 . Women, body, illness: Space and identity in the everyday lives of women with chronic illness , Lanham , MD : Rowman and Littlefield .
   Google Scholar
• Murray , E , Burns , J , See Tai , S , Lai , R and Nazareth , I . 2004 . “ Interactive Health Communication Applications for People with Chronic Illness ” . In The Cochrane Database of Systematic Reviews 4 , John Wiley and Sons Ltd, The Cochrane Collaboration .
   Google Scholar
• Napier , ADavid . 2003 . The age of immunology: Conceiving a future in an alienating world , Chicago : University of Chicago Press .
   Google Scholar
• Reed , A . 2005 . “My blog is me”: Texts and persons in UK online journal culture (and anthropology) . Ethnos , 70 ( 2 ) : 220 – 42 .
   Web of Science ®Google Scholar
• Sacks , JJ , Helmick , CG , Langmaid , G and Sniezek , JE . 2002 . Trends in death from systemic lupus erythematosus – United States 1979–1998 . MMWR Weekly , 51 ( 17 ) : 371 – 4 .
   PubMedGoogle Scholar
• Sang-Cheol , Bae . 2001 . Variable effects of social support by race, economic status, and disease activity in systemic lupus erythematosus . Journal of Rheumatology , 28 ( 6 ) : 1245 – 51 .
   PubMed Web of Science ®Google Scholar
• Saris , AJ . 1995 . Telling stories: Life histories, illness narratives, and institutional landscapes . Culture, Medicine and Psychiatry , 19 : 39 – 72 .
   PubMed Web of Science ®Google Scholar
• Sontag , S . 1990 . Illness as metaphor and AIDS and its metaphors , New York : Doubleday .
   Google Scholar
• Stoller , Paul . 2004 . Stranger in the village of the sick , Boston : Beacon Press .
   Google Scholar
• Ware , N . 1999 . Toward a model of social course in chronic illness: The example of chronic fatigue syndrome . Culture Medicine and Psychiatry , 23 : 303 – 31 .
   PubMed Web of Science ®Google Scholar
• Werner , A , Isaksen , LW and Malterud , K . 2003 . “I am not the kind of woman who complains of everything”: Illness stories of self and shame in women with chronic pain . Social Science and Medicine , 59 : 1035 – 45 .
   Web of Science ®Google Scholar
• Whitehead , K and Williams , J . 2001 . Medical treatment of women with lupus: The case for sharing knowledge and decision-making . Disability and Society , 16 ( 1 ) : 103 – 21 .
   Web of Science ®Google Scholar
• Young , AA . 1980 . The discourse on stress and the reproduction of conventional knowledge . Social Science and Medicine , 14B ( 3 ) : 133 – 46 .
   Google Scholar