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Original Articles

Supported decision making for people with mental health disorders in clinical practice: a systematic review

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Pages 3-9 | Received 02 Jul 2019, Accepted 30 Sep 2019, Published online: 15 Oct 2019

References

  • Arstein-Kerslake, A. (2016). Legal capacity and supported decision-making: Respecting rights and empowering people (SSRN Scholarly Paper No. ID 2818153). Retrieved from https://papers.ssrn.com/abstract=2818153
  • Bach, M., & Kerzer, L. (2014). A new paradigm for protecting autonomy and the right to legal capacity. Retrieved from http://repositoriocdpd.net:8080/handle/123456789/449
  • Burns, T., Rugkåsa, J., Molodynski, A., Dawson, J., Yeeles, K., Vazquez-Montes, M., … Priebe, S. (2013). Community treatment orders for patients with psychosis (OCTET): A randomised controlled trial. The Lancet, 381, 1627–1633. doi:10.1016/S0140-6736(13)60107-5
  • Carney, T. (2017). Prioritising supported decision-making: running on empty or a basis for glacial-to-steady progress? Laws, 6, 18. doi:10.3390/laws6040018
  • Ciompi, L. (1991). Das Pilotprojekt” Soteria Bern” zur Behandlung akut Schizophrener. I. Konzeptuelle Grundlagen, praktische Realisierung, klinische Erfahrungen. Nervenarzt, 62, 428–435.
  • Ciompi, L., & Hoffmann, H. (2004). Soteria Berne: An innovative milieu therapeutic approach to acute schizophrenia based on the concept of affect-logic. World Psychiatry, 3, 140.
  • Ciompi, L., Kupper, Z., Aebi, E., & Dauwalder, H. (1993). Das Pilotprojekt’Soteria Bern” zur Behandlung akut Schizophrener II. Ergebnisse einer vergleichenden prospektiven Verlaufsstudie ueber 2 Jahre. Der Nervenarzt.
  • Committee on the Rights of Persons with Disabilities. (2015). Guidelines on article 14 of the Convention on the Rights of Persons with Disabilities.
  • Craigie, J. (2015). A fine balance: Reconsidering patient autonomy in light of the UN Convention on the Rights of Persons with Disabilities. Bioethics, 29, 398–405. doi:10.1111/bioe.12133
  • Davidson, G., Kelly, B., Macdonald, G., Rizzo, M., Lombard, L., Abogunrin, O., … Martin, A. (2015). Supported decision making: A review of the international literature. International Journal of Law and Psychiatry, 38, 61–67. doi:10.1016/j.ijlp.2015.01.008
  • de Jong, M. H., Kamperman, A. M., Oorschot, M., Priebe, S., Bramer, W., van de Sande, R., … Mulder, C. L. (2016). Interventions to reduce compulsory psychiatric admissions: A systematic review and meta-analysis. JAMA Psychiatry, 73, 657. doi:10.1001/jamapsychiatry.2016.0501
  • Devi, N. (2013). Supported decision-making and personal autonomy for persons with intellectual disabilities: Article 12 of the UN Convention on the Rights of Persons with Disabilities. The Journal of Law, Medicine & Ethics, 41, 792–806. doi:10.1111/jlme.12090
  • Engman, T., Manning, F., & Ekecrantz, L. S. (2008). A new profession is born–Personligt ombud, PO. Socialstyrelsen Fhebe Hjälm.
  • Eytan, A., Chatton, A., Safran, E., & Khazaal, Y. (2013). Impact of psychiatrists’ qualifications on the rate of compulsory admissions. Psychiatric Quarterly, 84, 73–80. doi:10.1007/s11126-012-9228-0
  • Flynn, E., & Arstein-Kerslake, A. (2014). Legislating personhood: Realising the right to support in exercising legal capacity. International Journal of Law in Context, 10, 81–104. doi:10.1017/S1744552313000384
  • Freeman, M. C., Kolappa, K., de Almeida, J. M. C., Kleinman, A., Makhashvili, N., Phakathi, S., … Thornicroft, G. (2015). Reversing hard won victories in the name of human rights: A critique of the General Comment on Article 12 of the UN Convention on the Rights of Persons with Disabilities. The Lancet Psychiatry, 2, 844–850. doi:10.1016/S2215-0366(15)00218-7
  • Gooding, P. (2015). Psychiatrists’ perceptions of supported decision-making: A Victorian empirical study. Psychiatry, Psychology and Law, 22, 701–722. doi:10.1080/13218719.2014.983217
  • Gregersen, T. A., Birkelund, R., Wolderslund, M., Netsey-Afedo, M. L., Steffensen, K. D., & Ammentorp, J. (2019). What matters in clinical trial decision-making: A systematic review of interviews exploring cancer patients’ experiences. Scandinavian Journal of Caring Sciences, 33, 266–278. doi:10.1111/scs.12637
  • Haarakangas, K., Seikkula, J., Alakare, B., & Aaltonen, J. (2007). Open dialogue: An approach to psychotherapeutic treatment of psychosis in northern Finland. In Collaborative therapy: Relationships and conversations that make a difference (pp. 221–233), New York, London, Routledge.
  • Harding, R., & Taşcıoğlu, E. (2018). Supported decision-making from theory to practice: Implementing the right to enjoy legal capacity. Societies, 8, 25. doi:10.3390/soc8020025
  • Hoffman, S. J., Sritharan, L., & Tejpar, A. (2016). Is the UN Convention on the Rights of Persons with Disabilities impacting mental health laws and policies in high-income countries? A case study of implementation in Canada. BMC International Health and Human Rights, 16, 28. doi:10.1186/s12914-016-0103-1
  • Intentional Peer Support (2019). Retrieved May 27, 2019 from https://www.intentionalpeersupport.org/what-is-ips/?v=1ee0bf89c5d1.
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). The PRISMA Group. Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement. PLoS Med, 6(7), e1000097. doi:10.1371/journal.pmed1000097
  • Jacobsen, T. B. (2012). Involuntary treatment in Europe: Different countries, different practices. Current Opinion in Psychiatry, 25, 307–310. doi:10.1097/YCO.0b013e32835462e3
  • Jesperson, M. (2007). Personal ombudsman in Skåne: A user-controlled service with personal agents. In Alternatives beyond psychiatry (pp. 299–303). Shrewsbury, UK: Peter Lehmann Publishing.
  • Kayess, R., & French, P. (2008). Out of darkness into light? Introducing the Convention on the Rights of Persons with Disabilities. Human Rights Law Review, 8, 1–34. doi:10.1093/hrlr/ngm044
  • Khazaal, Y., Chatton, A., Pasandin, N., Zullino, D., & Preisig, M. (2009). Advance directives based on cognitive therapy: A way to overcome coercion related problems. Patient Education and Counseling, 74, 35–38. doi:10.1016/j.pec.2008.08.006
  • Khazaal, Y., Manghi, R., Delahaye, M., Machado, A., Penzenstadler, L., & Molodynski, A. (2014). Psychiatric advance directives, a possible way to overcome coercion and promote empowerment. Frontiers in Public Health, 2, 37. doi:10.3389/fpubh.2014.00037
  • Kohn, N. A., Blumenthal, J. A., & Campbell, A. T. (2012). Supported decision-making: A viable alternative to guardianship. Penn St. L. Rev, 117, 1111.
  • Martin, W., Michalowski, S., Stavert, J., Ward, A., Ruck Keene, A., Caughey, C., … McGregor, R. (2016). Three Jurisdictions Report: Towards Compliance with CRPD Art. 12 in Capacity/Incapacity Legislation across the UK. Retrieved from https://autonomy.essex.ac.uk/wp-content/uploads/2017/01/EAP-3J-Final-Report-2016.pdf
  • Molodynski, A., Khazaal, Y., & Callard, F. (2016). Coercion in mental healthcare: Time for a change in direction. BJPsych International, 13, 1–3. doi:10.1192/S2056474000000854
  • Morrissey, F. (2012). The United Nations Convention on the Rights of Persons with Disabilities: A new approach to decision-making in mental health law. European Journal of Health Law, 19, 423–440. doi:10.1163/15718093-12341237
  • Mosher, L. R., Menn, A., & Matthews, S. M. (1975). Soteria: Evaluation of a home-based treatment for schizophrenia. American Journal of Orthopsychiatry, 45, 455. doi:10.1111/j.1939-0025.1975.tb02556.x
  • Nilsson, I. (2006). Det lönar sig–ekonomiska effekter av verksamheter med personligt ombud. Retrieved from https://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/9670/2006-123-6_20061236.pdf
  • Patel, J., & Ackermann, R. J. (2018). Issues in geriatric care: Medical decision-making. FP Essentials, 468, 35–38.
  • Pathare, S., & Shields, L. S. (2012). Supported decision-making for persons with mental illness: A review. Public Health Reviews, 34, 1–40. doi:10.1007/BF03391683
  • Peisah, C., Sorinmade, O. A., Mitchell, L., & Hertogh, C. M. P. M. (2013). Decisional capacity: Toward an inclusionary approach. International Psychogeriatrics, 25, 1571–1579. doi:10.1017/S1041610213001014
  • Ryan, C. J., & Callaghan, S. (2014). Treatment refusal in anorexia nervosa: The hardest of cases. Commentary on ‘Anorexia nervosa: the diagnosis: a postmodern ethics contribution to the bioethics debate on involuntary treatment for anorexia nervosa’ by Sacha Kendall. Journal of Bioethical Inquiry, 11, 43–45. doi:10.1007/s11673-013-9498-8
  • Seo, M. K., Kim, S. H., & Rhee, M. (2013). Coercion in psychiatric care: Can paternalism justify coercion? International Journal of Social Psychiatry, 59, 217–223. doi:10.1177/0020764011431543
  • Series, L. (2015). Relationships, autonomy and legal capacity: Mental capacity and support paradigms. International Journal of Law and Psychiatry, 40, 80–91. doi:10.1016/j.ijlp.2015.04.010
  • South Australia Office of the Public Advocate. (2011). South Australian Supported Decision Making Project Report of Preliminary ‘Phase I’. Office of the Public Advocate & Julia Farr MS McLeod Benevolent Fund.
  • Stainton, T. (2016). Supported decision-making in Canada: Principles, policy, and practice. Research and Practice in Intellectual and Developmental Disabilities, 3, 1–11. doi:10.1080/23297018.2015.1063447
  • Szmukler, G. (2017). The UN Convention on the Rights of Persons with Disabilities: ‘Rights, will and preferences’ in relation to mental health disabilities. International Journal of Law and Psychiatry, 54, 90–97. doi:10.1016/j.ijlp.2017.06.003
  • Szmukler, G. (2018). Men in white coats: Treatment under coercion. Oxford, UK: Oxford University Press.
  • Szmukler, G. (2019). ‘Capacity’, ‘best interests’, ‘will and preferences’ and the UN Convention on the Rights of Persons with Disabilities. World Psychiatry), 18, 34–41. doi:10.1002/wps.20584
  • Szmukler, G., Daw, R., & Callard, F. (2014). Mental health law and the UN Convention on the rights of Persons with Disabilities. International Journal of Law and Psychiatry, 37, 245–252. doi:10.1016/j.ijlp.2013.11.024
  • Tan, J. O. A., Hope, P. T., Stewart, D. A., & Fitzpatrick, P. R. (2006). Competence to make treatment decisions in anorexia nervosa: Thinking processes and values. Philosophy, Psychiatry, & Psychology: PPP, 13, 267–282. doi:10.1353/ppp.2007.0032
  • Then, S.-N. (2013). Evolution and innovation in guardianship laws: Assisted decision-making. Sydney Law Review, 35, 133.
  • United Nations. (2006). Convention on the rights of persons with disabilities. New York, NY: United Nations.
  • Wallace, M. (2012). Evaluation of the supported decision making project. Office of the Public Advocate.
  • Werner, S., & Chabany, R. (2016). Guardianship law versus supported decision-making policies: Perceptions of persons with intellectual or psychiatric disabilities and parents. The American Journal of Orthopsychiatry, 86, 486–499. doi:10.1037/ort0000125
  • World Health Organization. (2017). Promoting recovery in mental health and related services: Handbook for personal use and teaching: WHO Quality Rights training to act, unite and empower for mental health (pilot version). Geneva, Switzerland: World Health Organization.

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