Residential supports for people with intellectual disabilities: Questions and challenges from the UK

References

• Acheson D. Independent inquiry into inequalities in health. The Stationery Office, London 1998
   Google Scholar
• Aman M.G., Burrow W.H., Wolford P.L. The Aberrant Behavior Checklist-Community: Factor validity and effect of subject variables for adults in group homes. American Journal on Mental Retardation 1995; 100: 283–292
   PubMedGoogle Scholar
• Azmi S., Hatton C., Emerson E., Caine A. Listening to adolescents and adults with intellectual disabilities from South Asian communities. Journal of Applied Research in Intellectual Disabilities 1997; 10: 250–263
   Web of Science ®Google Scholar
• Bliss V., Emerson E., Quinn H., Thomas D. North West audit of residential supports for people with learning disabilities. Hester Adrian Research Centre, University of Manchester, Manchester 1998
   Google Scholar
• Cambridge P., Hayes L., Knapp M. Care in the community: Five years on. Ashgate, Aldershot 1994
   Google Scholar
• Dalgleish M. Assessments of residential environments for mentally retarded adults in Britain. Mental Retardation 1983; 21: 204–208
   PubMedGoogle Scholar
• Dalgleish M., Matthews R. Some effects of staffing levels and group size on the quality of day care for severely mentally handicapped adults. The British Journal of Mental Subnormality 1981; 27: 30–35
   Web of Science ®Google Scholar
• Davies L., Felce D., Lowe K., de Paiva S. The evaluation of NIMROD, a community-based service for people with mental handicap: revenue costs. Health Services Management Research 1991; 4: 170–180
   PubMedGoogle Scholar
• Department of Health. Needs and responses. Department of Health, London 1989
   Google Scholar
• Department of Health. Health care for adults with learning disabilities (Mental Handicap). HSG(92)42. Department of Health, London 1992a
   Google Scholar
• Department of Health. Social care for adults with learning disabilities (Mental Handicap). Local authority circular LAC(92)15. Department of Health, London 1992b
   Google Scholar
• Department of Health. Services for people with learning disabilities and challenging behaviour or mental health needs. Department of Health, London 1993
   Google Scholar
• Department of Health and Social Security. Better services for the mentally handicapped. DHSS, London 1971
   Google Scholar
• Department of Health and Social Security. Mental handicap: progress, problems and priorities. DHSS, London 1980
   Google Scholar
• Department of Health and Social Security. Helping mentally handicapped people with special problems. DHSS, London 1984
   Google Scholar
• Donnelly M., McGilloway S., Mays N., Perry S., Knapp M., Kavanagh S., Beecham J., Fenyo A., Astin J. Opening new doors: An evaluation of community care for people discharged from psychiatric and mental handicap hospitals. HMSO, London 1994
   Google Scholar
• Emerson E., Cooper J., Hatton C. Quality and costs in a residential further education facility for people with dual sensory impairments. Journal of Visual Impairment and Blindness 1995; 89: 402–416
   Web of Science ®Google Scholar
• Emerson E., Hatton C. Moving out: The impact of relocation from hospital to community on the quality of life of people with learning disabilities. HMSO, London 1994
   Google Scholar
• Emerson E., Hatton C. Residential provision for people with intellectual disabilities in England, Wales and Scotland. Journal of Applied Research in Intellectual Disabilities 1998; 11: 1–14
   Web of Science ®Google Scholar
• Emerson E., Hatton C. Deinstitutionalization in the UK. Outcomes for service users. Journal of Intellectual and Developmental Disability 1996; 21: 17–37
   Web of Science ®Google Scholar
• Emerson E., Hatton C. Regional and local variations in residential provision for people with learning disabilities in England. Tizard Learning Disability Review 1997; 2: 43–46
   Google Scholar
• Emerson E., Hatton C., Bauer I., Bjorgvinsdottir S., Brak W., Firkowska-Mankiewicz A., Haroardottir H., Kavaliunaite A., Kebbon L., Kristoffersen E., Saloviita T., Schippers H., Timmons B., Timcev L., Tossebro J., Wiit U. Patterns of institutionalisation across 15 European Countries. European Journal of Mental Disability 1996; 3: 29–32
   Google Scholar
• Emerson E., Hatton C., Robertson J., Henderson D., Cooper J. A descriptive analysis of the relationships between social context, engagement and stereotypy in residential services for people with severe and complex disabilities. Journal of Applied Research in Intellectual Disabilities 1999; 12: 11–29
   Google Scholar
• Emerson E., Robertson J., Hatton C., Gregory N., Kessissoglou S., Hallam A., Knapp M., Järbrink K., Netten A., Walsh P., Linehan C., Hillery J., Durkan J. Quality and costs of residential supports for people with learning disabilities: Predicting variation in quality and costs. Hester Adrian Research Centre, University of Manchester, Manchester 1999a
   Google Scholar
• Emerson E., Robertson J., Gregory N., Kessissoglou S., Hatton C., Hallam A., Knapp M., Järbrink K., Netten A. Quality and costs of residential supports for people with learning disabilities: An observational study of supports provided to people with severe learning disabilities in residential campuses and dispersed housing schemes. Hester Adrian Research Centre, University of Manchester, Manchester 1999b
   Google Scholar
• Felce D. Quality of support for ordinary living. Deinstitutionalization and community Living: Intellectual disability services in Britain, Scandinavia and the USA, Mansell J., Ericsson K.. Chapman and Hall, London 1996; 117–133, In
   Google Scholar
• Felce D. The determinants of staff and resident activity in residential services for people with severe intellectual disability: Moving beyond size, building design, location and number of staff. Journal of Intellectual & Developmental Disabilities 1998; 23: 103–119
   Web of Science ®Google Scholar
• Felce D., Lowe K., Emerson E. Residential services working practices scale. Welsh Centre on Learning Disabilities Applied Research Unit, Cardiff 1995
   Google Scholar
• Felce D., Lowe K., Perry J., Baxter H., Jones E., Hallam A., Beecham J. Service support to people in Wales with severe intellectual disability and severe challenging behaviours: Processes, outcomes and costs. Journal of Intellectual Disability Research 1998; 42: 390–408
   PubMed Web of Science ®Google Scholar
• Felce D., Repp A. The behavioral and social ecology of community houses. Research in Developmental Disabilities 1992; 13: 27–42
   PubMed Web of Science ®Google Scholar
• Felce D., Repp A.C., Thomas M., Ager A., Blunden R. The relationship of staff:client ratios, interactions, and residential placement. Research in Developmental Disabilities 1991; 12: 315–331
   PubMed Web of Science ®Google Scholar
• Fleming I., Stenfert Krose B. Evaluation of a community care project for people with learning difficulties. Journal of Mental Deficiency Research 1990; 34: 451–464
   PubMedGoogle Scholar
• Fryers T. Epidemiological thinking in mental retardation: Issues in taxonomy and population frequency. International Review of Research in Mental Retardation 1993; 19: 97–133
   Google Scholar
• Ganesh S., Potter J., Fraser W. An audit of physical health needs of adults with profound learning disability in a hospital population. Mental Handicap Research 1994; 7: 228–236
   Google Scholar
• Mental Health Foundation. Building expectations: Inquiry into community services and opportunities for people with learning disabilities. Mental Health Foundation, London 1996
   Google Scholar
• Hatton C., Azmi S., Caine A., Emerson E. People from the South Asian communities who care for adolescents and adults with intellectual disabilities: family circumstances, service support and carer stress. British Journal of Social Work 1998; 28: 821–837
   Web of Science ®Google Scholar
• Hatton C., Emerson E. Residential provision for people with learning disabilities: A research review. Hester Adrian Research Centre, University of Manchester, Manchester 1996
   Google Scholar
• Hatton C., Emerson E., Robertson J., Henderson D., Cooper J. The quality and costs of services for adults with multiple disabilities: A comparative evaluation. Research in Developmental Disabilities 1995; 16: 439–460
   PubMedGoogle Scholar
• Hatton C., Emerson E., Robertson J., Henderson D., Cooper J. Factors associated with staff support and user lifestyle in services for people with multiple disabilities: A path analytic approach. Journal of Intellectual Disability Research 1996; 40: 466–477
   PubMed Web of Science ®Google Scholar
• Jones E., Perry J., Lowe K., Felce D., Toogood S., Dunstan F., Allen D., Pagler J. Opportunity and the promotion of activity among adults with severe learning disabilities living in community housing: The impact of training in Active Support. Welsh Centre for Learning Disabilities, Cardiff 1997
   Google Scholar
• Kavanagh S., Opit L. The cost of caring: The economics of providing for the intellectually disabled. Politeia, London 1998
   Google Scholar
• Knapp M., Cambridge P., Thomason C., Beecham J., Allen C., Darton R. Care in the community: Challenge and demonstration. Ashgate, Aldershot 1992
   Google Scholar
• Mannion R., Smith K., Ferguson B., Hennessy S., Emerson E., Kiernan C., Alborz A. Unit Costs of Health & Social Care, Netten A., Dennett J.. PSSRU, University of Kent at Canterbury, Canterbury 1997, In
   Google Scholar
• Mansell J., Felce D., Jenkins J., de Kock U. Increasing staff ratios in an activity with severely mentally handicapped people. British Journal of Mental Subnormality 1982; 28: 97–99
   Web of Science ®Google Scholar
• Mansell J., Felce D., Jenkins J., de Kock U., Toogood S. Developing staffed housing for people with mental handicaps. Tunbridge Wells, Costello 1987
   Google Scholar
• Nihira K., Leland H., Lambert N. Adaptive behavior scale — residential and community2nd Edition. Pro-Ed, Austin, TX 1993
   Google Scholar
• Orlowska D., McGill P., Mansell J. Staff-staff and staff-resident verbal interactions in a community-based group home for people with moderate and severe mental handicaps. Mental Handicap Research 1991; 4: 3–19
   Google Scholar
• Parrott R., Emerson E., Hatton C., Wolstenholme J. Future demand for residential provision for people with learning disabilities. Hester Adrian Research Centre, Manchester 1997
   Google Scholar
• Perry J., Felce D. Outcomes of ordinary housing services in Wales: objective indicators. Mental Handicap Research 1994; 7: 286–311
   Google Scholar
• Pratt M.W., Luszcz M.A., Brown M.E. Measuring the dimensions of the quality of care in small community residences. American Journal of Mental Deficiency 1980; 85: 188–194
   PubMedGoogle Scholar
• Raynes N.V., Sumpton R.C. Differences in the quality of residential provision for mentally handicapped people. Psychological Medicine 1987; 17: 999–1008
   PubMed Web of Science ®Google Scholar
• Raynes N.V., Wright K., Shiell A., Pettipher C. The cost and quality of community residential care: An evaluation of the services for adults with learning disabilities. David Fulton Publishers, London 1994
   Google Scholar
• Reid D.H., Parsons M.B., Green C.W. Staff management in human services: Behavioral research and application. Charles C. Thomas, Springfield, Ill. 1989
   Google Scholar
• Repp A.C., Felce D., de Kock U. Observational studies of staff working with mentally retarded persons: A review. Research in Developmental Disabilities 1987; 8: 331–350
   PubMed Web of Science ®Google Scholar
• Russell O., Foster R., Lauruol J., Simons K. Quantifying needs and looking towards the future: A survey of the health and social care needs of people with learning difficulties living in bristol and district. Norah Fry Research Centre, Bristol 1994
   Google Scholar
• Seys D., Duker P. Effects of staff management on the quality of residential care for mentally retarded individuals. American Journal on Mental Retardation 1988; 93: 290–299
   PubMedGoogle Scholar
• Watson L. Housing needs and community care: The housing pathways pilot programme. National Federation of Housing Associations and Chartered Institute of Housing, London 1996
   Google Scholar