Joining the conspiracy? negotiating ethics and emotions in researching (around) AIDS in southern africa

References

• Aggleton P Parker R 2002 A Conceptual Framework and Basis for Action: HIV/AIDS Stigma and Discrimination Geneva UNAIDS
   Google Scholar
• Alderson P 1995 Listening to Children: Children and Social Research Ethics London Barnardo's
   Google Scholar
• Allen , T and Heald , S . 2004 . HIV/AIDS policy in Africa: what has worked in Uganda and what has failed in Botswana? . Journal of International Development , 16 : pp. 1141–1154
   Google Scholar
• Alonzo , AA and Reynolds , NR . 1995 . Stigma, HIV and AIDS: an exploration and elaboration of a stigma trajectory . Social Science and Medicine , 41 : pp. 303–315
   Google Scholar
• Alubo , O , Zwandor , A , Jolayemi , T and Omudu , E . 2002 . Acceptance and stigmatization of PLWA in Nigeria . AIDS Care , 14 ( 1 ) : pp. 117–126
   Google Scholar
• Ansell , N and Blerk , Lvan . 2004 . Children's migration as a household/family strategy: coping with AIDS in Malawi and Lesotho . Journal of Southern African Studies , 30 ( 3 ) : pp. 673–690
   Google Scholar
• Ashforth A 2001 AIDS Witchcraft and the Problem of Power in Post-Apartheid South Africa School of Social Science, Institute for Advanced Study NJ Princeton
   Google Scholar
• Baggaley , R and Praag , Evan . 2000 . Antiretroviral interventions to reduce mother-to-child transmission of human immunodeficiency virus: challenges for health systems, communities and society . Bulletin of the World Health Organization , 78 ( 8 ) : pp. 1036–1044
   Google Scholar
• Baylies , C and Bujra , J . 1997 . Social science research on AIDS in Africa: questions of content, methodology and ethics . Review of African Political Economy , 73 : pp. 380–387
   Google Scholar
• Benner , P . 2000 . The roles of embodiment, emotion and lifeworld for rationality and agency in nursing practice . Nursing Philosophy , 1 : pp. 5–19
   Google Scholar
• Besio , K . 2003 . ‘Steppin’ in it: postcoloniality in northern Pakistan’ . Area , 35 ( 1 ) : pp. 24–33
   Google Scholar
• British Sociological Association 2002 Statement of ethical practice [online] Available at:, http://www.britsoc.org.uk/about/ethic.htm, (accessed 21 May 2003)
   Google Scholar
• Campbell , C . 1999 . Action as will-power . Sociological Review , 47 : pp. 48–61
   Google Scholar
• Cloke , P . 2002 . Deliver us from evil? Prospects for living ethically and acting politically in human geography . Progress in Human Geography , 26 ( 5 ) : pp. 587–604
   Google Scholar
• Corbridge , S . 1998 . Development ethics: distance, difference, plausibility . Ethics, Place and Environment , 1 ( 1 ) : pp. 35–53
   Google Scholar
• Cree , VE , Kay , H and Tisdall , K . 2002 . Research with children: sharing the dilemmas . Child and Family Social Work , 7 : pp. 47–56
   Google Scholar
• Cutchin , MP . 2002 . Ethics and geography: continuity and emerging syntheses . Progress in Human Geography , 26 ( 5 ) : pp. 656–664
   Google Scholar
• Damasio A 1999 The Feeling of What Happens: Body, Emotion and the Making of Consciousness London Heinemann
   Google Scholar
• Farmer , P . 1994 . AIDS-talk and the constitution of cultural models . Social Science and Medicine , 38 ( 6 ) : pp. 801–809
   Google Scholar
• Farmer , P , Leandre , F , Mukherjee , JS , Claude , MS , Nevil , P , Smith-Fawj , MC , Koenig , SP , Castro , A , Becerra , MC , Sachs , J , Attaran , A and Kim , JY . 2001 . Community-based approaches to HIV treatment in resource-poor settings . Lancet , 358 : pp. 404–409
   Google Scholar
• Gilligan C 1982 Different Voice: Psychological Theory and Women's Development Cambridge MA Harvard University Press
   Google Scholar
• Goldin , CS . 1994 . Stigmatization and AIDS: critical issues in public health . Social Science and Medicine , 39 ( 9 ) : pp. 1359–1366
   Google Scholar
• Gormley N Bondi L 1999 Ethical issues in practical contexts in: J. D. Proctor & D. M. Smith (Eds) Geography and Ethics: Journeys in a Moral Terrain London Routledge
   Google Scholar
• Haraway D 1995 Cyborgs and symbionts: living together in the new world order in: C. H. Gray (Ed.) The Cyborg Handbook London Routledge
   Google Scholar
• Hay , I and Foley , P . 1998 . Ethics, geography and responsible citizenship . Journal of Geography in Higher Education , 22 ( 2 ) : pp. 169–183
   Google Scholar
• ICRW 2002a Addressing HIV-related Stigma and Resulting Discrimination in Africa: a Three-country Study in Ethiopia, Tanzania and Zambia Washington DC ICRW
   Google Scholar
• ICRW 2002b Understanding HIV-related Stigma and Resulting Discrimination in sub-Saharan Africa: Emerging Themes from Early Data Collection in Ethiopia, Tanzania and Zambia Washington DC ICRW
   Google Scholar
• Laurier , E and Parr , H . 2000 . Emotions and interviewing in health and disability research . Ethics, Place and Environment , 3 ( 1 ) : pp. 98–102
   Google Scholar
• Lie , G and Biswalo , P . 1994 . Perceptions of the appropriate HIV/AIDS counsellor in Arusha and Kilimanjaro regions of Tanzania: implications for hospital counselling . AIDS Care , 6 ( 2 ) : pp. 139–151
   Google Scholar
• Metzel , D . 2000 . Research with the mentally incompetent: the dilemma of informed consent . Ethics, Place and Environment , 3 ( 1 ) : pp. 87–90
   Google Scholar
• Miller JB 1976 Toward a New Psychology of Women Boston Beacon Press
   Google Scholar
• Paley , J . 2002 . Virtues of autonomy: the Kantian ethics of care . Nursing Philosophy , 3 : pp. 133–143
   Google Scholar
• Parker R Aggleton P 2002 HIV/AIDS-related Stigma and Discrimination: a Conceptual Framework and an Agenda for Action Population Council/Horizons Program, Washington, DC
   Google Scholar
• Pratt ML 1992 Imperial Eyes: Travel Writing and Transculturation London Routledge
   Google Scholar
• Proctor JD 1999 ‘Introduction: overlapping terrains’ in: J. D. Proctor & D. M. Smith (Eds) Geography and Ethics: Journeys in a Moral Terrain London Routledge
   Google Scholar
• Robinson F 1999 Globalizing Care: Ethics, Feminist Theory, and International Relations Westview, Boulder, CO
   Google Scholar
• Robson , E . 2001 . Interviews worth the tears? Exploring dilemmas of research with young carers in Zimbabwe . Ethics, Place and Environment , 4 ( 2 ) : pp. 135–142
   Google Scholar
• Ruiz , PO and Vallejos , RM . 1999 . The role of compassion in moral education . Journal of Moral Education , 28 ( 1 ) : pp. 5–17
   Google Scholar
• Schoepf , BG . 2001 . International AIDS research in anthropology: taking a critical perspective on the crisis . Annual Review of Anthropology , 30 : pp. 335–361
   Google Scholar
• Silk , J . 1998 . Caring at a distance . Ethics, Place and Environment , 1 ( 2 ) : pp. 165–182
   Google Scholar
• Silk , J . 2000 . Caring at a distance: (im)partiality, moral motivation and the ethics of representation . Ethics, Place and Environment , 3 ( 3 ) : pp. 303–309
   Google Scholar
• Silverstein K 1999 Millions for Viagra, pennies for diseases of the poor Nation (Nairobi, Available at, http://www.thenation.com/doc.mhtml/%3F=19990719&5=Silverstein, (accessed 19 January 2003))
   Google Scholar
• Smith , DM . 1994 . On professional responsibility to distant others . Area , 26 ( 4 ) : pp. 359–367
   Google Scholar
• Smith , DM . 1997 . Back to the good life: towards an enlarged conception of social justice . Environment and Planning D: Society and Space , 15 : pp. 19–35
   Google Scholar
• Smith , DM . 1998 . How far should we care? On the spatial scope of beneficence . Progress in Human Geography , 22 ( 1 ) : pp. 15–38
   Google Scholar
• Smith DM 1999 Conclusion: towards a context-sensitive ethics in: J. D. Proctor & D. M. Smith (Eds) Geography and Ethics: Journeys in a Moral Terrain London Routledge
   Google Scholar
• Solomon RC 1995 Justice as vengeance, vengeance as justice: a partial defence of Polymarchus in: J. P. Stera, T. R. Machan, A. M. Jagger, W. A. Galston, C. C. Gould, M. Fisk & R. C. Solomon (Eds) Morality and Social Justice: Point/Counterpoint pp. 251–300 London Rowman and Littlefield
   Google Scholar
• Solomon , RC . 1996 . Emotions, ethics, and the “internal ought” . Cognition and Emotion , 10 ( 5 ) : pp. 529–550
   Google Scholar
• Solomon , RC . 1997 . Beyond ontology: ideation, phenomenology and the cross cultural study of emotion . Journal for the Theory of Social Behaviour , 27 ( 2–3 ) : pp. 289–303
   Google Scholar
• Taylor , B . 2001 . HIV, stigma and health: integration of theoretical concepts and the lived experiences of individuals . Journal of Advanced Nursing , 35 ( 5 ) : pp. 792–798
   Google Scholar
• UNAIDS 2000 Report on the Global HIV/AIDS Epidemic Geneva UNAIDS
   Google Scholar
• UNAIDS 2001 Advocacy for Action on Stigma and HIV/AIDS in Africa UNAIDS Intercountry Team for Eastern and Southern Africa, Pretoria
   Google Scholar
• UNAIDS 2004 Report on the Global HIV/AIDS Epidemic Geneva UNAIDS
   Google Scholar
• USAID/UNICEF/UNAIDS 2002 Children on the Brink 2002: a Joint Report on Orphan Estimates and Program Strategies USAID/UNICEF/UNAIDS
   Google Scholar
• Valentine , G . 2003 . Geography and ethics: in pursuit of social justice—ethics and emotions in geographies of health and disability research . Progress in Human Geography , 27 ( 3 ) : pp. 275–380
   Google Scholar
• Weiser , J . 1999 . Adapting traditional healing practices . AIDS Action , 46 : p. 7
   Google Scholar
• Wenstop , F and Magnus , P . 2001 . Value focused rationality in AIDS policy . Health Policy , 57 ( 1 ) : pp. 57–72
   Google Scholar
• Whatmore , S . 1997 . Dissecting the autonomous self: hybrid cartographies for a relational ethics . Environment and Planning D: Society and Space , 15 : pp. 37–53
   Google Scholar
• WHO Global Programme on AIDS . 1991 . AIDS: credible messengers . World AIDS Day Features , 1 : pp. 1–3
   Google Scholar
• Widdowfield , R . 2000 . The place of emotions in academic research . Area , 32 ( 2 ) : pp. 199–208
   Google Scholar
• Wiener , J . 2001 . Confidentiality and paradox: the location of ethical space . Journal of Analytical Psychology , 46 ( 3 ) : pp. 431–442
   Google Scholar
• Wilton , RD . 2000 . Sometimes it's OK to be a spy: ethics and politics in geographies of disability . Ethics, Place and Environment , 3 ( 1 ) : pp. 91–97
   Google Scholar
• Young , L and Ansell , N . 2003 . Fluid households, complex families: the impacts of children's migration as a response to HIV/AIDS in southern Africa . Professional Geographer , 55 ( 4 ) : pp. 464–479
   Google Scholar
• Zizek S 2000 The Profile Absolute London Verso
   Google Scholar