Rethinking resilience in families of children with disabilities: a socioecological approach

References

• Ainbinder, J. G., Blanchard, L. W., Singer, G. H., Sullivan, M. E., Powers, L. K., Marquis, J., & Santelli, B. (1998). A qualitative study of parent to parent support for parents of children with special needs. Journal of Pediatric Psychology, 23(2), 99–109. doi:10.1093/jpepsy/23.2.99
   PubMed Web of Science ®Google Scholar
• Allen, T., Herst, D., Bruck, C., & Sutton, M. (2000). Consequences associated with work-to family conflict: A review and agenda for future research. Journal of Occupational Health Psychology, 5, 278–308. doi:10.1037/1076-8998.5.2.278
   PubMedGoogle Scholar
• Armstrong, M. I., Birnie-Lefcovitch, S., & Ungar, M. T. (2005). Pathways between social support, family wellbeing, quality of parenting, and child resilience: What we know. Journal of Child and Family Studies, 14, 269–281. doi:10.1007/s10826-005-5054-4
   Google Scholar
• Bailey Jr., D. B., Golden, R. N., Roberts, J., & Ford, A. (2007). Maternal depression and developmental disability: Research critique. Mental Retardation & Developmental Disabilities Research Reviews, 13, 321–329. doi:10.1002/mrdd.20172
   PubMedGoogle Scholar
• Baker, J. K., Seltzer, M., & Greenberg, J. S. (2011). Longitudinal effects of adaptability on behavior problems and maternal depression in families of adolescents with autism. Journal of Family Psychology, 25, 601–609. doi:10.1037/a0024409
   PubMed Web of Science ®Google Scholar
• Bernheimer, L. P., & Weisner, T. S. (2007). ‘Let me just tell you what I do all day…’ The family story at the center of intervention research and practice. Infants & Young Children, 20, 192–201. doi:10.1097/01.IYC.0000277751.62819.9b
   Web of Science ®Google Scholar
• Blacher, J., & Baker, B. (2007). Positive impact of intellectual disability on families. American Journal on Mental Retardation, 112(1), 330–348. Retrieved from http://dx.doi.org/10.1352/0895-8017(2007)112%5B0330:PIOIDO%5D2.0.CO;2
   PubMedGoogle Scholar
• Bourke-Taylor, H., Pallant, J. F., Law, M., & Howie, L. (2012). Predicting mental health among mothers of school-aged children with developmental disabilities: The relative contribution of child, maternal and environmental factors. Research in Developmental Disabilities, 33, 1732–1740. doi:10.1016/j.ridd.2012.04.011
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner, U. (1989). Ecological systems theory. Annals of Child Development, 6, 187–249.
   Google Scholar
• Browne, D., Rokeach, A., Wiener, J., Hoch, J., Meunier, J., & Thurston, S. (2013). Examining the family-level and economic impact of complex child disabilities as a function of child hyperactivity and service integration. Journal of Developmental & Physical Disabilities, 25, 181–201. doi:10.1007/s10882-012-9295-z
   Web of Science ®Google Scholar
• Bubolz, M. M., & Sontag, M. S. (1993). Human ecology theory. In P. G. Boss (Ed.), Sourcebook of family theories and methods: A contextual approach (pp. 419–448). New York, NY: Plenum Press.
   Google Scholar
• Capra, F. (2007). Systems theory and the new paradigm. In C. Merchant (Ed.), Ecology: Key concepts in critical theory (2nd ed., pp. 365–372). Amherst, NY: Humanity Books.
   Google Scholar
• Crnic, K., Greenberg, M., Ragozin, A., Robinson, N., & Basham, R. (1983). Effects of stress and social support on mothers and premature and full-term infants. Child Development, 54, 209–217. doi:10.2307/1129878
   PubMed Web of Science ®Google Scholar
• Dabrowska, A. A., & Pisula, E. E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54, 266–280. doi:10.1111/j.1365-2788.2010.01258.x
   PubMed Web of Science ®Google Scholar
• Dews, J., & Wilcox, W. B. (2011). If momma ain’t happy: explaining declines in marital satisfaction among new mothers. Journal of Marriage and Family, 73(1), 1–12. doi:10.1111/j.1741-3737.2010.00782.x
   Web of Science ®Google Scholar
• Dowling, M., & Dolan, L. (2001). Families with children with disabilities – Inequalities and the social model. Disability & Society, 16(1), 21–35. doi:10.1080/09687590020020840
   Web of Science ®Google Scholar
• Eisenhower, A., & Blacher, J. (2006). Mothers of young adults with intellectual disability: Multiple roles, ethnicity and wellbeing. Journal of Intellectual Disability Research, 50, 905–916. doi:10.1111/j.1365-2788.2006.00913.x
   PubMed Web of Science ®Google Scholar
• Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism & Developmental Disorders, 40, 1274–1284. doi:10.1007/s10803-010-0986-y
   PubMed Web of Science ®Google Scholar
• Emerson, E., Hatton, C., Blacher, J., Llewellyn, G., & Graham, H. (2006). Risk factors for early signs of delayed development. 39th Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities, San Diego, CA.
   Google Scholar
• Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health, 32(1), 53–59. doi:10.1111/j.1753-6405.2008.00166.x
   PubMed Web of Science ®Google Scholar
• Emerson, E., Shahtahmasebi, S., Lancaster, G., & Berridge, D. (2010). Poverty transitions among families supporting a child with intellectual disability. Journal of Intellectual & Developmental Disability, 35, 224–234. doi:10.3109/13668250.2010.518562
   PubMed Web of Science ®Google Scholar
• Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31, 1011–1027. doi:10.1111/j.1467-9566.2009.01174.x
   PubMed Web of Science ®Google Scholar
• Ferguson, P. M. (2002). A place in the family: An historical interpretation of research on parental reactions to having a child with a disability. Journal of Special Education, 36(3), 124–130. doi:10.1177/00224669020360030201
   Web of Science ®Google Scholar
• Freedman, R. I., Litchfield, L. C., & Warfield, M. E. (1995). Balancing work and family: Perspectives of parents of children with developmental disabilities. Families in Society, 76, 507–514.
   Web of Science ®Google Scholar
• Gill, J., & Liamputtong, P. (2009). ‘Walk a mile in my shoes’: Researching the lived experience of mothers of children with autism. Journal of Family Studies, 15, 309–319. doi:10.5172/jfs.15.3.309
   Web of Science ®Google Scholar
• Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Strategies for qualitative research. Chicago: Aldine.
   Google Scholar
• Glidden, L. M., & Jobe, B. M. (2006). The longitudinal course of depression in adoptive and birth mothers of children with intellectual disabilities. Journal of Policy & Practice in Intellectual Disabilities, 3(2), 139–142. doi:10.1111/j.1741-1130.2006.00067.x
   Google Scholar
• Green, S. (2007). ‘We’re tired, not sad’: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64, 150–163. doi:10.1016/j.socscimed.2006.08.025
   PubMed Web of Science ®Google Scholar
• Greer, F. A., Grey, I. M., & McClean, B. (2006). Coping and positive perceptions in Irish mothers of children with intellectual disabilities. Journal of Intellectual Disabilities, 10, 231–248. doi:10.1177/1744629506064017
   PubMedGoogle Scholar
• Hatton, C., & Emerson, E. (2009). Does socioeconomic position moderate the impact of child behaviour problems on maternal health in South Asian families with a child with intellectual disabilities? Journal of Intellectual & Developmental Disability, 34(1), 10–16. doi:10.1080/13668250802676012
   PubMed Web of Science ®Google Scholar
• Human Resources and Skills Development Canada (HRSDC). (2011). Disability in Canada: A 2006 Profile ( Cat. No.: HS64-11/2010). Ottawa, ON: Author. Retrieved from http://www.hrsdc.gc.ca/eng/disability_issues/reports/disability_profile/2011/index.shtml
   Google Scholar
• Knestricht, T., & Kuchey, D. (2009). Welcome to Holland: Characteristics of resilient families raising children with severe disabilities. Journal of Family Studies, 15, 227–244. doi:10.5172/jfs.15.3.227
   Web of Science ®Google Scholar
• Llewellyn, G., Dunn, P., Fante, M., Turnbull, L., & Grace, R. (1999). Family factors influencing out-of-home placement decisions. Journal of Intellectual Disability Research, 43, 219–233. doi:10.1046/j.1365-2788.1999.00189.x
   PubMed Web of Science ®Google Scholar
• Llewellyn, G., McConnell, D., Thompson, K., & Whybrow, S. (2005). Out-of-home placement of school-age children with disabilities and high support needs. Journal of Applied Research in Intellectual Disabilities, 18(1), 1–6. doi:10.1111/j.1468-3148.2004.00201.x
   Web of Science ®Google Scholar
• Luhmann, M., Hofmann, W., Eid, M., & Lucas, R. E. (2012). Subjective well-being and adaptation to life events: A meta-analysis. Journal of Personality and Social Psychology, 102, 592–615. doi:10.1037/a0025948
   PubMed Web of Science ®Google Scholar
• Masten, A. S., & Powell, J. L. (2003). A resilience framework for research, policy, and practice. In S. S. Luthar (Ed.), Resilience and vulnerability: Adaptation in the context of childhood adversities (pp. 1–28). New York, NY: Cambridge University Press.
   Google Scholar
• Matthey, S.,Barnett, B.,Ungerer, J.,& Waters, B. (2000). Paternal and maternal depressed mood during the transition to parenthood. Journal of Affective Disorders, 60(2), 75−85. doi:10.1016/S0165-0327(99)00159-7
   Google Scholar
• Maul, C., & Singer, G. (2009). ‘Just good different things’: Specific accommodations families make to positively adapt to their children with developmental disabilities. Topics in Early Childhood Special Education, 29, 155–170. doi:10.1177/0271121408328516
   Web of Science ®Google Scholar
• McConnell, D., Breitkreuz, R., & Savage, A. (2011). From financial hardship to child difficulties: Main and moderating effects of perceived social support. Child: Care, Health & Development, 37, 679–691. doi:10.1111/j.1365-2214.2010.01185.x
   PubMed Web of Science ®Google Scholar
• McCubbin, H., & McCubbin, M. (1988). Typologies of resilient families. Emerging roles of social class and ethnicity. Family Relations, 37, 247–254. doi:10.2307/584557
   Web of Science ®Google Scholar
• McLaughlin, J., Goodley, D., Clavering, E., & Fisher, P. (2008). Families raising disabled children: Enabling care and social justice. London: Palgrave Macmillan.
   Google Scholar
• McManus, B. M., Carle, A., Acevedo-Garcia, D., Ganz, M., Hauser-Cram, P., & McCormick, M. (2011). Modeling the social determinants of caregiver burden among families of children with developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 116, 246–260. doi:10.1352/1944-7558-116.3.246
   PubMedGoogle Scholar
• Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 119, e1040–e1046. doi:10.1542/peds.2006-2819
   PubMed Web of Science ®Google Scholar
• Murray, S. (2007). Families’ care of their children with severe disabilities in Australia. Community, Work & Family, 10, 215–230. doi:10.1080/13668800701270141
   Google Scholar
• Nelson, S., Kushley, K., English, T., Dunn, E.W., & Lyubomrisky, S. (2013). In defense of parenthood: Children are associated with more joy than misery. Psychological Sciences, 24(1), 3–10. doi:10.1177/0956797612447798
   PubMed Web of Science ®Google Scholar
• Olsson, M. B., & Hwang, C. P. (2008). Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities. Journal of Intellectual Disability Research, 52, 1102–1113. doi:10.1111/j.1365-2788.2008.01081.x
   PubMed Web of Science ®Google Scholar
• Olsson, M. B., Larsman, P., & Hwang, P. C. (2008). Relationships among risk, sense of coherence, and well-being in parents of children with and without intellectual disabilities. Journal of Policy & Practice in Intellectual Disabilities, 5, 227–236. doi:10.1111/j.1741-1130.2008.00184.x
   Web of Science ®Google Scholar
• Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. Autism: The International Journal of Research & Practice, 9, 191–212. doi:10.1177/1362361305049033
   PubMed Web of Science ®Google Scholar
• Park, J., Turnbull, A. P., & Turnbull, H. (2002). Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68, 151.
   Web of Science ®Google Scholar
• Pousada, M., Guillamón, N., Hernández-Encuentra, E., Muñoz, E., Redolar, D., Boixadós, M., & Gómez-Zúñiga, B. (2013). Impact of caring for a child with cerebral palsy on the quality of life of parents: A systematic review of the literature. Journal of Developmental and Physical Disabilities, 25(5), 1–33. doi:10.1007/s10882-013-9332-6
   Web of Science ®Google Scholar
• Read, J. (2000). Disability, the family and society. Buckingham: Open University Press.
   Google Scholar
• Reichman, N. E., Corman, H., & Noonan, K. (2008). Impact of child disability on the family. Maternal & Child Health Journal, 12, 679–683. doi:10.1007/s10995-007-0307-z
   PubMed Web of Science ®Google Scholar
• Resch, J., Elliott, T. R., & Benz, M. R. (2012). Depression among parents of children with disabilities. Families, Systems & Health: The Journal of Collaborative Family Healthcare, 30, 291–301. doi:10.1037/a0030366
   PubMed Web of Science ®Google Scholar
• Risdal, D., & Singer, G. (2004). Marital adjustment in parents of children with disabilities: A historical review and meta-analysis. Research and Practice for Persons with Severe Disabilities, 29(2), 95–103. doi:10.2511/rpsd.29.2.95
   Web of Science ®Google Scholar
• Rodger, S. S., & Mandich, A. A. (2005). Getting the run around: Accessing services for children with developmental co-ordination disorder. Child: Care, Health & Development, 31, 449–457. doi:10.1111/j.1365-2214.2005.00524.x
   PubMed Web of Science ®Google Scholar
• Rubin, H., & Rubin, I. (2011). Qualitative interviewing: The art of hearing data (3rd ed.). Los Angeles, CA: Sage.
   Google Scholar
• Runswick-Cole, K., & Goodley, D. (2013). Resilience: A disability studies and community psychology approach. Social and Personality Psychology Compass, 7(2), 67–78. doi:10.1111/spc3.12012
   Google Scholar
• Ryan, S., & Runswick-Cole, K. (2008). Repositioning mothers: Mothers, disabled children and disability studies. Disability & Society, 23, 199–210. doi:10.1080/09687590801953937
   Web of Science ®Google Scholar
• Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 95–106. doi:10.1352/0047-6765(2000)038<0195:TOAWPC>2.0.CO;2
   Google Scholar
• Seltzer, M. M., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impacts of parenting a child with disability. American Journal on Mental Retardation, 106, 265–286. doi:10.1352/0895-8017(2001)106<0265:LCIOPA>2.0.CO;2
   PubMedGoogle Scholar
• Shearn, J., & Todd, S. (2000). Maternal employment and family responsibilities: The perspectives of mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 13(3), 109–131. doi:10.1046/j.1468-3148.2000.00021.x
   Web of Science ®Google Scholar
• Short-Thompson, C. (2008). A parenting odyssey: Shouldering grief, welcoming joy. Women’s Studies in Communication 31, 249–257. doi:10.1080/07491409.2008.10162540
   Google Scholar
• Smith, L., Greenberg, J., & Seltzer, M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism & Developmental Disorders, 42, 1818–1826. doi:10.1007/s10803-011-1420-9
   PubMed Web of Science ®Google Scholar
• Statistics Canada. (2012). Median total income, by family type, by province and territory (CANSIM, Table 111–0009). Retrieved July 2, 2013, from http://www.statcan.gc.ca/tables-tableaux/sum-som/l01/cst01/famil108a-eng.htm.
   Google Scholar
• Strauss, A. L., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory. Thousand Oaks, CA: Sage.
   Google Scholar
• Thorne, S. (2008). Interpretive description. Walnut Creek, CA: West Coast Press.
   Google Scholar
• Tobing, L. E., & Glenwick, D. S. (2006). Predictors and moderators of psychological distress in mothers of children with pervasive developmental disorders. Journal of Family Social Work, 10(4), 1–22. doi:10.1300/J039v10n04_01
   Google Scholar
• Twenge, J., Campbell, K., & Foster, C. (2003). Parenthood and marital satisfaction: A meta-analytic review. Journal of Marriage and Family, 65, 574–583. doi:10.1111/j.1741-3737.2003.00574.x
   Web of Science ®Google Scholar
• Ungar, M. (2011). The social ecology of resilience: Addressing contextual and cultural ambiguity of a nascent construct. American Journal of Orthopsychiatry, 81, 1–17. doi:10.1111/j.1939-0025.2010.01067.x
   PubMed Web of Science ®Google Scholar
• Ungar, M. (2004). Nurturing hidden resilience in troubled youth. Toronto: University of Toronto Press.
   Google Scholar
• Voysey, M. (1972). Impression management by parents with disabled children. Journal of Health & Social Behavior, 13(1), 80–89. doi:10.2307/2136975
   PubMed Web of Science ®Google Scholar
• Warfield, M. E. M. (2001). Employment, parenting, and wellbeing among mothers of children with disabilities. Mental retardation, 39, 297–309. doi:10.1352/0047-6765(2001)039<0297:EPAWBA>2.0.CO;2
   PubMedGoogle Scholar
• Weisner, T. S., Matheson, C., Coots, J., & Bernheimer, L. P. (2005). Sustainability of daily routines as a family outcome. In A. E. Maynard & M. I. Martini (Eds.), Learning in cultural context (pp. 41–73). New York: Kluwer Academic/Plenum.
   Google Scholar
• White, L. K., Booth, A., & Edwards, J. N. (1986). Children and marital happiness: Why the negative correlation? Journal of Family Issues, 7(2), 131–147. doi:10.1177/019251386007002002
   Web of Science ®Google Scholar
• Winkel, G., Saegert, S., & Evans, G. W. (2009). An ecological perspective on theory, methods, and analysis in environmental psychology: Advances and challenges. Journal of Environmental Psychology, 29, 318–328. doi:10.1016/j.jenvp.2009.02.005
   Web of Science ®Google Scholar
• Ylvén, R., Björck-Åkesson, E., & Granlund, M. (2006). Literature review of positive functioning in families with children with a disability. Journal of Policy & Practice in Intellectual Disabilities, 3, 253–270. doi:10.1111/j.1741-1130.2006.00089.x
   Google Scholar