322
Views
1
CrossRef citations to date
0
Altmetric
Articles

Travel information needs of informal carers of people living with dementia

, &
Pages 2618-2630 | Received 17 Nov 2022, Accepted 26 Jun 2023, Published online: 02 Jul 2023

References

  • Adams, K. B. (2006). The transition to caregiving: The experience of family members embarking on the dementia caregiving career. Journal of Gerontological Social Work, 47(3–4), 3–29. https://doi.org/10.1300/J083v47n03_02
  • Amaya, A., Bach, R., Keusch, F., & Kreuter, F. (2021). New data sources in social science research: Things to know before working with reddit data. Social Science Computer Review, 39(5), 943–960. https://doi.org/10.1177/0894439319893305
  • Barnes, M., Henwood, F., & Smith, N. (2016). Information and care: A relational approach. Dementia, 15(4), 510–525. https://doi.org/10.1177/1471301214527750
  • Bauer, I. L. (2019). Caregivers of travelers with dementia – a neglected travel population. Journal of Travel Medicine, 26(7), Article taz061. https://doi.org/10.1093/jtm/taz061
  • Bieger, T., & Laesser, C. (2004). Information sources for travel decisions: Toward a source process model. Journal of Travel Research, 42(4), 357–371. https://doi.org/10.1177/0047287504263030
  • Bremer, P., Cabrera, E., Leino-Kilpi, H., Lethin, C., Saks, K., Sutcliffe, C., Soto, M., Zwakhalen, S. M. G., & Wübker, A. (2015). Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries. Health Policy, 119(11), 1459–1471. https://doi.org/10.1016/j.healthpol.2015.09.014
  • Cheng, S.-T. (2017). Dementia caregiver burden: A research update and critical analysis. Current Psychiatry Reports, 19(9), Article 64. https://doi.org/10.1007/s11920-017-0818-2
  • Cherry, M. G., Salmon, P., Dickson, J. M., Powell, D., Sikdar, S., & Ablett, J. (2013). Factors influencing the resilience of carers of individuals with dementia. Reviews in Clinical Gerontology, 23(4), 251–266. https://doi.org/10.1017/S0959259813000130
  • Choe, Y., Kim, J. (Jamie)., & Fesenmaier, D. R. (2017). Use of social media across the trip experience: An application of latent transition analysis. Journal of Travel & Tourism Marketing, 34(4), 431–443. https://doi.org/10.1080/10548408.2016.1182459
  • Choi, Y., Hickerson, B., & Kerstetter, D. (2018). Understanding the sources of online travel information. Journal of Travel Research, 57(1), 116–128. https://doi.org/10.1177/0047287516683833
  • Cohen, L. W., Zimmerman, S., Reed, D., Sloane, P. D., Beeber, A. S., Washington, T., Cagle, J. G., & Gwyther, L. P. (2014). Dementia in relation to family caregiver involvement and burden in long-term care. Journal of Applied Gerontology, 33(5), 522–540. https://doi.org/10.1177/0733464813505701
  • Connell, J., & Page, S. J. (2019). Case study: Destination readiness for dementia-friendly visitor experiences: A scoping study. Tourism Management, 70, 29–41. https://doi.org/10.1016/j.tourman.2018.05.013
  • Domínguez Vila, T., Alén González, E., & Darcy, S. (2019). Accessible tourism online resources: A Northern European perspective. Scandinavian Journal of Hospitality and Tourism, 19(2), 140–156. https://doi.org/10.1080/15022250.2018.1478325
  • Fennell, D. A., & Garrod, B. (2022). Seeking a deeper level of responsibility for inclusive (eco)tourism duty and the pinnacle of practice. Journal of Sustainable Tourism, 30(6), 1403–1422. https://doi.org/10.1080/09669582.2021.1951278
  • Fodness, D., & Murray, B. (1997). Tourist information search. Annals of Tourism Research, 24(3), 503–523. https://doi.org/10.1016/S0160-7383(97)00009-1
  • Garcia-Ptacek, S., Dahlrup, B., Edlund, A.-K., Wijk, H., & Eriksdotter, M. (2019). The caregiving phenomenon and caregiver participation in dementia. Scandinavian Journal of Caring Sciences, 33(2), 255–265. https://doi.org/10.1111/scs.12627
  • Gladwell, N. J., & Bedini, L. A. (2004). In search of lost leisure: The impact of caregiving on leisure travel. Tourism Management, 25(6), 685–693. https://doi.org/10.1016/j.tourman.2003.09.003
  • Greenwood, N., Mezey, G., & Smith, R. (2018). Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness. Maturitas, 112, 39–45. https://doi.org/10.1016/j.maturitas.2018.03.011
  • Gretzel, U., Zarezadeh, Z., Li, Y., & Xiang, Z. (2019). The evolution of travel information search research: A perspective article. Tourism Review, 75(1), 319–323. https://doi.org/10.1108/TR-06-2019-0279
  • Hansen, M. (2022). Case study: Dementia-friendly heritage visitor attractions: A case study of the national trust. In A. Fyall, B. Garrod, A. Leask, & S. Wanhill (Eds.), Managing visitor attractions (3rd ed, pp. 399–405). Routledge.
  • Harland, J., & Bath, P. A. (2008). Understanding the information behaviours of carers of people with dementia: A critical review of models from information science. Aging & Mental Health, 12(4), 467–477. https://doi.org/10.1080/13607860802224300
  • Hicks, A. (2022). The missing link: Towards an integrated health and information literacy research agenda. Social Science & Medicine, 292, 114592. https://doi.org/10.1016/j.socscimed.2021.114592
  • Holda, R. (2015). Respite tourism for family caregivers. In M. Cooper, K. Vafadari, & M. Hieda (Eds.), Current issues and emerging trends in medical tourism (pp. 218–231). IGI Global. https://doi.org/10.4018/978-1-4666-8574-1.ch016.
  • Hunter-Jones, P. (2010). Consumer vulnerability and exclusion: A study of carers in the tourism marketplace. Journal of Marketing Management, 27(1-2), 165–180. https://doi.org/10.1080/02672571003737809
  • Hunter-Jones, P., Sudbury-Riley, L., Chan, J., & Al-Abdin, A. (2023). Barriers to participation in tourism linked respite care. Annals of Tourism Research, 98, 103508. https://doi.org/10.1016/j.annals.2022.103508
  • Innes, A., Page, S. J., & Cutler, C. (2016). Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia, 15(6), 1643–1665. https://doi.org/10.1177/1471301215570346
  • Jacobsen, J. K. S., & Munar, A. M. (2012). Tourist information search and destination choice in a digital age. Tourism Management Perspectives, 1, 39–47. https://doi.org/10.1016/j.tmp.2011.12.005
  • James, B. D., & Bennett, D. A. (2019). Causes and patterns of dementia: An update in the Era of redefining Alzheimer’s disease. Annual Review of Public Health, 40(1), 65–84. https://doi.org/10.1146/annurev-publhealth-040218-043758
  • Kah, J. A., & Lee, S.-H. (2016). A new approach to travel information sources and travel behaviour based on cognitive dissonance theory. Current Issues in Tourism, 19(4), 373–393. https://doi.org/10.1080/13683500.2015.1043246
  • Kang, S., Kim, W. G., & Park, D. (2021). Understanding tourist information search behaviour: The power and insight of social network analysis. Current Issues in Tourism, 24(3), 403–423. https://doi.org/10.1080/13683500.2020.1771290
  • Karg, N., Graessel, E., Randzio, O., & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: A cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatrics, 18(1), Article 189. https://doi.org/10.1186/s12877-018-0885-1
  • Karner, T. X., & Bobbitt-Zeher, D. (2005). Losing selves: Dementia care as disruption and transformation. Symbolic Interaction, 28(4), 549–570. https://doi.org/10.1525/si.2005.28.4.549
  • Khomsi, M. R., Delorme, K., & Martin-Colonna, C. (2022). Online travel planning for families with a child with a disability. In J. L. Stienmetz, B. Ferrer-Rosell, & D. Massimo (Eds.), Information and communication technologies in tourism 2022 (pp. 72–77). Springer International Publishing. https://doi.org/10.1007/978-3-030-94751-4_7.
  • Kozinets, R. V. (2006). Click to connect: Netnography and tribal advertising. Journal of Advertising Research, 46(3), 279–288. https://doi.org/10.2501/S0021849906060338
  • Kozinets, R. V. (2020). E-Tourism research, cultural understanding, and netnography. In Z. Xiang, M. Fuchs, U. Gretzel, & W. Höpken (Eds.), Handbook of e-Tourism (pp. 1–16). Springer International Publishing. https://doi.org/10.1007/978-3-030-05324-6_43-1.
  • Langer, R., & Beckman, S. C. (2005). Sensitive research topics: Netnography revisited. Qualitative Market Research: An International Journal, 8(2), 189–203. https://doi.org/10.1108/13522750510592454
  • Lee, Y., Xu, L., Kim, B. J., & Chen, L. (2020). Leisure activity, gender and depressive symptoms among dementia caregivers: Findings from the REACH II. Aging & Mental Health, 24(11), 1886–1893. https://doi.org/10.1080/13607863.2019.1660853
  • Lund, N. F., Cohen, S. A., & Scarles, C. (2018). The power of social media storytelling in destination branding. Journal of Destination Marketing & Management, 8, 271–280. https://doi.org/10.1016/j.jdmm.2017.05.003
  • Michopoulou, E., & Buhalis, D. (2013). Information provision for challenging markets: The case of the accessibility requiring market in the context of tourism. Information & Management, 50(5), 229–239. https://doi.org/10.1016/j.im.2013.04.001
  • Minnaert, L., Maitland, R., & Miller, G. (2011). What is social tourism? Current Issues in Tourism, 14(5), 403–415. https://doi.org/10.1080/13683500.2011.568051
  • Motta-Ochoa, R., Bresba, P., Da Silva Castanheira, J., Lai Kwan, C., Shaffer, S., Julien, O., William, M., & Blain-Moraes, S. (2021). “When I hear my language, I travel back in time and I feel at home”: Intersections of culture with social inclusion and exclusion of persons with dementia and their caregivers. Transcultural Psychiatry, 58(6), 828–843. https://doi.org/10.1177/13634615211001707
  • Nguyen, T., & Li, X. (2020). Understanding public-stigma and self-stigma in the context of dementia: A systematic review of the global literature. Dementia, 19(2), 148–181. https://doi.org/10.1177/1471301218800122
  • Olsson, M. (2005). Beyond ‘needy’ individuals: Conceptualizing information behavior. Proceedings of the American Society for Information Science and Technology, 42(1), https://doi.org/10.1002/meet.1450420161
  • Ory, M. G., Hoffman, R. R., III, Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177–186. https://doi.org/10.1093/geront/39.2.177
  • Park, K., Jeon, H., & Park, S. “Brian”. (2022). Disability e-inclusion for accessible tourism websites. Current Issues in Tourism, 25(22), 3571–3578. https://doi.org/10.1080/13683500.2022.2106195
  • Pop, R.-A., Săplăcan, Z., Dabija, D.-C., & Alt, M.-A. (2022). The impact of social media influencers on travel decisions: The role of trust in consumer decision journey. Current Issues in Tourism, 25(5), 823–843. https://doi.org/10.1080/13683500.2021.1895729
  • Reagle, J. (2022). Disguising Reddit sources and the efficacy of ethical research. Ethics and Information Technology, 24(3), Article 41. https://doi.org/10.1007/s10676-022-09663-w
  • Romero-Moreno, R., Losada, A., Márquez-González, M., & Mausbach, B. T. (2016). Stressors and anxiety in dementia caregiving: Multiple mediation analysis of rumination, experiential avoidance, and leisure. International Psychogeriatrics, 28(11), 1835–1844. https://doi.org/10.1017/S1041610216001009
  • Rubio-Escuderos, L., García-Andreu, H., Michopoulou, E., & Buhalis, D. (2021). Perspectives on experiences of tourists with disabilities: Implications for their daily lives and for the tourist industry. Tourism Recreation Research. Advance online publication. https://doi.org/10.1080/02508281.2021.1981071.
  • Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249. https://doi.org/10.1097/00019442-200405000-00002
  • Schüz, B., Czerniawski, A., Davie, N., Miller, L., Quinn, M. G., King, C., Carr, A., Elliott, K.-E. J., Robinson, A., & Scott, J. L. (2015). Leisure time activities and mental health in informal dementia caregivers. Applied Psychology: Health and Well-Being, 7(2), 230–248. https://doi.org/10.1111/aphw.12046
  • Skinner, M. S., Lorentzen, H., Tingvold, L., Sortland, O., Andfossen, N. B., & Jegermalm, M. (2021). Volunteers and informal caregivers’ contributions and collaboration with formal caregivers in Norwegian long-term care. Journal of Aging & Social Policy, 33(6), 647–672. https://doi.org/10.1080/08959420.2020.1745988
  • Soong, A., Au, S. T., Kyaw, B. M., Theng, Y. L., & Tudor Car, L. (2020). Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: A scoping review. BMC Geriatrics, 20(1), Article 61. https://doi.org/10.1186/s12877-020-1454-y
  • Stall, N. M., Kim, S. J., Hardacre, K. A., Shah, P. S., Straus, S. E., Bronskill, S. E., Lix, L. M., Bell, C. M., & Rochon, P. A. (2019). Association of informal caregiver distress with health outcomes of community-dwelling dementia care recipients. Journal of the American Geriatrics Society, 67(3), 609–617. https://doi.org/10.1111/jgs.15690
  • Tripadvisor. (2022). Investor Relations | Tripadvisor. Retrieved August 25, 2022 from http://ir.tripadvisor.com/.
  • Wen, J., Zheng, D., Hou, H., Phau, I., & Wang, W. (2022). Tourism as a dementia treatment based on positive psychology. Tourism Management, 92, Article 104556. https://doi.org/10.1016/j.tourman.2022.104556
  • WHO. (2023). Dementia. World Health Organization. Retrieved May 17, 2023, from https://www.who.int/news-room/fact-sheets/detail/dementia.
  • Wimo, A., Prince, M., & Gauthier, S. (2018). Global estimates of informal care. Alzheimer’s Disease International. Retrieved July 14, 2022, from https://www.alzint.org/resource/global-estimates-of-informal-care/.
  • Wu, M.-Y., & Pearce, P. L. (2014). Appraising netnography: Towards insights about new markets in the digital tourist era. Current Issues in Tourism, 17(5), 463–474. https://doi.org/10.1080/13683500.2013.833179
  • Xiang, Z., & Fesenmaier, D. R. (2020). Travel information search. In Z. Xiang, M. Fuchs, U. Gretzel, & W. Höpken (Eds.), Handbook of e-Tourism (pp. 1–20). Springer International Publishing. https://doi.org/10.1007/978-3-030-05324-6_55-1.
  • Xiang, Z., & Gretzel, U. (2010). Role of social media in online travel information search. Tourism Management, 31(2), 179–188. https://doi.org/10.1016/j.tourman.2009.02.016
  • Zarezadeh, Z. (Zara), Benckendorff, P., & Gretzel, U. (2019). Lack of progress in tourist information search research: A critique of citation behaviour and knowledge development. Current Issues in Tourism, 22(19), 2415–2429. https://doi.org/10.1080/13683500.2018.1459511
  • Zheng, D., Wen, J., Kozak, M., Phau, I., Hou, H., & Wang, W. (2023). Vulnerable populations with psychological disorders in tourism: Methodological challenges and recommended solutions for empirical research. Tourism Management, 98, 104760. https://doi.org/10.1016/j.tourman.2023.104760
  • Zillinger, M. (2020). The curious case of online information search. Current Issues in Tourism, 23(3), 276–279. https://doi.org/10.1080/13683500.2019.1639641

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.