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Culture, Health & Sexuality
An International Journal for Research, Intervention and Care
Volume 20, 2018 - Issue 11
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Articles

‘Hold on’ (Bambelela)! Lyrical interpretations of participation in an HIV prevention clinical trial

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Pages 1199-1213 | Received 12 Jun 2017, Accepted 23 Dec 2017, Published online: 08 Feb 2018

References

  • Barz, G., and J. Cohen. 2011. The Culture of AIDS in Africa. New York: Oxford University Press.10.1093/acprof:osobl/9780199744473.001.0001
  • Bastien, S. 2009. “Reflecting and Shaping the Discourse: The Role of Music in AIDS Communication in Tanzania.” Social Science & Medicine 68 (7): 1357–1360.10.1016/j.socscimed.2009.01.030
  • Benatar, Solomon R. 2002. “Reflections and Recommendations on Research Ethics in Developing Countries.” Social Science & Medicine 54 (7): 1131–1141.10.1016/S0277-9536(01)00327-6
  • Black, Steven P. 2015. “The Morality of Performance: HIV Disclosure in Speech and Song in South Africa.” Ethos 43: 247–266.10.1111/etho.2015.43.issue-3
  • Boga, M., A. Davies, D. Kamuya, Samson M. Kinyanjui, E. Kivaya, F. Kombe, T. Lang, et al. 2011. “Strengthening the Informed Consent Process in International Health Research through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience.” PLoS Medicine 8 (9): e1001089.10.1371/journal.pmed.1001089
  • Coplan, David B. 2005. “God Rock Africa: Thoughts on Politics in Popular Black Performance in South Africa.” African Studies 64 (1): 9–27.10.1080/00020180500139015
  • Epstein, S. 1997. “Activism, Drug Regulation, and the Politics of Therapeutic Evaluation in the AIDS Era: A Case Study of DdC and the Surrogate Markers’ Debate.” Social Studies of Science 27 (5): 691–726.10.1177/030631297027005001
  • Fairhead, J., M. Leach, and M. Small. 2006a. “Public Engagement with Science? Local Understandings of a Vaccine Trial in the Gambia.” Journal of Biosocial Science 38 (1): 103–116.
  • Fairhead, J., M. Leach, and M. Small. 2006b. “Where Techno-Science Meets Poverty: Medical Research and the Economy of Blood in the Gambia, West Africa.” Social Science & Medicine 63 (4): 1109–1120.10.1016/j.socscimed.2006.02.018
  • Gafos, M., M. Mzimela, S. Sukazi, R. Pool, C. Montgomery, and J. Elford. 2010. “Intravaginal Insertion in KwaZulu-Natal: Sexual Practices and Preferences in the Context of Microbicide Gel Use.” Culture, Health & Sexuality 12 (8): 929–942.10.1080/13691058.2010.507876
  • Geissler, P. W. 2005. “Blood–Stealing Rumours in Western Kenya: A Local Critique of Medical Research in Its Global Context.” In Managing Uncertainty: Ethnographic Studies of Illness, Risk, and the Struggle for Control, edited by R. Jenkins, H. Jessen, and V. Steffen, 123–148. Copenhagen: Museum Tusculanum.
  • Geissler, P. W., and R. Pool. 2006. “Editorial: Popular Concerns about Medical Research Projects in Sub-Saharan Africa – A Critical Voice in Debates about Medical Research Ethics.” Tropical Medicine and International Health 11 (7): 975–982.10.1111/tmi.2006.11.issue-7
  • Global Campaign for Microbicides. 2007. “Addressing Common Questions and Myths about Microbicide Clinical Trials.” GCM. http://www.globalcampaign.org/amag.htm
  • Harper, I. 2007. “Translating Ethics: Researching Public Health and Medical Practices in Nepal.” Social Science & Medicine 65 (11): 2235–2247.10.1016/j.socscimed.2007.08.007
  • Jewkes, R., and N. Abrahams. 2002. “The Epidemiology of Rape and Sexual Coercion in South Africa: An Overview.” Social Science & Medicine 55 (7): 1231–1244.10.1016/S0277-9536(01)00242-8
  • Kaler, A. 2009. “Health Interventions and the Persistence of Rumour: The Circulation of Sterility Stories in African Public Health Campaigns.” Social Science & Medicine 68 (9): 1711–1719.10.1016/j.socscimed.2009.01.038
  • Kroeger, Karen A. 2003. “AIDS Rumors, Imaginary Enemies, and the Body Politic in Indonesia.” American Ethnologist 30 (2): 243–257.10.1525/ae.2003.30.2.243
  • Lees, S. 2015. “Emergent HIV Technology: Urban Tanzanian Women's Narratives of Medical Research, Microbicides and Sexuality.” Culture Health & Sexuality 17 (4): 412–427.10.1080/13691058.2014.963680
  • Lutz, C., and Geoffrey M. White. 1986. “The Anthropology of Emotions.” Annual Review of Anthropology 15 (1): 405–436.10.1146/annurev.an.15.100186.002201
  • Lwanda, J. 2003. “The [in]Visibility of HIV/AIDS in the Malawi Public Sphere.” African Journal of AIDS Research 2 (2): 113–126.10.2989/16085906.2003.9626566
  • Marsh, V., D. Kamuya, Y. Rowa, C. Gikonyo, and S. Molyneux. 2008. “Beginning Community Engagement at a Busy Biomedical Research Programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya.” Social Science & Medicine 67 (5): 721–733.10.1016/j.socscimed.2008.02.007
  • McCormack, S., G. Ramjee, A. Kamali, H. Rees, Angela M. Crook, M. Gafos, U. Jentsch, et al. 2010. “PRO2000 Vaginal Gel for Prevention of HIV-1 Infection (Microbicides Development Programme 301): A Phase 3, Randomised, Double-Blind, Parallel-Group Trial.” The Lancet 376 (9749): 1329–1337.10.1016/S0140-6736(10)61086-0
  • McNeill, Fraser G. 2011. AIDS, Politics, and Music in South Africa. London: International African Institute and Cambridge University Press.10.1017/CBO9780511842580
  • Mdladla, B. 2001. “Kwaito Power.” Drum Magazine 12 July: 18–27.
  • Medeossi, B. J., J. Stadler, and S. Delany-Moretlwe. 2014. “‘I Heard about This Study on the Radio’: Using Community Radio to Strengthen Good Participatory Practice in HIV Prevention Trials.” BMC Public Health 14 (1): 876.10.1186/1471-2458-14-876
  • Mills, Edward J., S. Singh, Jerome A. Singh, James J. Orbinski, M. Warren, and Ross E. Upshur. 2005. “Designing Research in Vulnerable Populations: Lessons from HIV Prevention Trials That Stopped Early.” BMJ 331 (7529): 1403–1406.10.1136/bmj.331.7529.1403
  • Montgomery, C., and R. Pool. 2011. “Critically Engaging: Integrating the Social and the Biomedical in International Microbicide Research.” Journal of the International AIDS Society 14 (2): 1–7.
  • Montgomery, C., and R. Pool. 2016. “From ‘Trial Community’ to ‘Experimental Publics’: How Clinical Research Shapes Public Participation.” Critical Public Health 27 (1): 50–62.
  • Montgomery, C., M. Gafos, S. Lees, Neetha S. Morar, O. Mweemba, A. Ssali, J. Stadler, R. Pool, and the MDP team. 2010. “Re-Framing Microbicide Acceptability: Findings from the MDP301 Trial.” Culture, Health & Sexuality 12 (6): 649–662.10.1080/13691051003736261
  • Mweemba, O. 2014. The Social Construction of Masculinities, Sexual Behaviour, and Acceptability of Vaginal Microbicides in Zambia. Leeds: Leeds Metropolitan University.
  • Newman, P. 2006. “Towards a Science of Community Engagement.” The Lancet 367 (9507): 302.10.1016/S0140-6736(06)68067-7
  • Niehaus, Isak A., and G. Jonsson. 2005. “Dr. Wouter Basson, Americans and Wild Beasts: Men’s Conspiracy Theories of HIV/AIDS in the South African Lowveld.” Medical Anthropology 24: 177–206.
  • Niehaus, Isak A., and Jonathan J. Stadler. 2004. “Muchongolo Dance Contests: Deep Play in the South African Lowveld.” Ethnology 4 (4): 363–380.10.2307/3774033
  • Nunn, A., S. McCormack, A. M. Crook, R. Pool, C. Rutterford, and R. Hayes. 2009. “Microbicides Development Programme: Design of a Phase III Trial to Measure the Efficacy of the Vaginal Microbicide pRO 2000/5 for HIV Prevention.” Trials 10 (1): 43.10.1186/1745-6215-10-99
  • Peterson, B. 2003. “‘Kwaito, ‘Dawgs’ and the Antimonies of Hustling.” African Identities 1 (2): 197–213.10.1080/1472584032000175650
  • Petryna, A. 2005. “Ethical Variability: Drug Development and Globalizing Clinical Trials.” American Ethnologist 32 (2): 183–197.10.1525/ae.2005.32.2.183
  • Petryna, A. 2007. “Clinical Trials Offshored: On Private Sector Science and Public Health.” BioSocieties 2 (1): 21–40.10.1017/S1745855207005030
  • Pettifor, Audrey E., Diana M. Measham, Helen V. Rees, and Nancy S. Padian. 2004. “Sexual Power and HIV Risk, South Africa.” Emerging Infectious Diseases 10 (11): 1996–2004.10.3201/eid1011.040252
  • Phiri, I. A., and S. Nadar. 2009. “‘Going through the Fire with Eyes Wide Open’: African Women’s Perspectives on Indigenous Knowledge, Patriarchy and Sexuality.” Journal for the Study of Religion 22 (2): 5–21.
  • Pollock, D. 2009. “Community Engagement and Science.” Medical Anthropology Quarterly 23 (2): 119–121.10.1111/j.1548-1387.2009.01050.x
  • Pool, R., C. Montgomery, Neetha S. Morar, O. Mweemba, A. Ssali, M. Gafos, S. Lees, et al. 2010. “A Mixed Methods and Triangulation Model for Increasing the Accuracy of Adherence and Sexual Behaviour Data: The Microbicides Development Program.” PLoS ONE 5 (7): e11600.10.1371/journal.pone.0011600
  • Prince, R. 2006. “Popular Music and Luo Youth in Western Kenya: Ambiguities of Modernity, Morality and Gender Relations in the Era of AIDS.” In Navigating Youth, Generating Adulthood: Social Becoming in an African Context, edited by C. Christiansen, M. Utas, and H. Vigh, 117–152. Uppsala: Nordiska Afrikainstitutet.
  • Reid, S. 2014. “The ‘Medical Humanities’ in Health Sciences Education in South Africa.” South African Medical Journal 104 (2): 109–110.10.7196/samj.7928
  • Roberts, Allen F. 2001. “‘Break the Silence’: Art and HIV/AIDS in KwaZulu-Natal.” African Arts 34 (1): 37–95.
  • Saethre, E., and J. Stadler. 2010. “Gelling Medical Knowledge: Innovative Pharmaceuticals, Experience, and Perceptions of Efficacy.” Anthropology & Medicine 17 (1): 99–111.10.1080/13648470903569396
  • Saethre, E., and J. Stadler. 2013. “Malicious Whites, Greedy Women, and Virtuous Volunteers.” Medical Anthropology Quarterly 27 (1): 103–120.10.1111/maq.12018
  • Sankar, P. 2004. “Communication and Miscommunication in Informed Consent to Research.” Medical Anthropology Quarterly 18 (4): 429–446.10.1525/maq.2004.18.issue-4
  • Schäfer, Mike S. 2009. “From Public Understanding to Public Engagement: An Empirical Assessment of Changes in Science Coverage.” Science Communication 30 (4): 475–505.10.1177/1075547008326943
  • Stadler, J. 2003. “Rumour, Gossip and Blame: Implications for HIV/AIDS Prevention in the South African Lowveld.” AIDS Education & Prevention 15 (4): 357–368.10.1521/aeap.15.5.357.23823
  • Stadler, J., and E. Saethre. 2010. “Rumours about Blood and Reimbursements in a Microbicide Gel Trial.” African Journal of AIDS Research 9 (4): 345–353.10.2989/16085906.2010.545636
  • Stadler, J., and E. Saethre. 2011. “Blockage and Flow: Intimate Experiences of Condoms and Microbicides in a South African Clinical Trial.” Culture Health & Sexuality 13 (1): 31–44.10.1080/13691058.2010.511270
  • Stein, Z. 1990. “HIV Prevention: The Need for Methods Women Can Use.” American Journal of Public Health 80 (4): 460–462.10.2105/AJPH.80.4.460
  • Steingo, G. 2011. “Kwaito and the Culture of AIDS in South Africa.” In The Culture of AIDS in Africa, edited by G. Barz and J. M. Cohen, 343–361. Oxford and New York: Oxford University Press.10.1093/acprof:osobl/9780199744473.001.0001
  • Thomas, K. 2014. Impossible Mourning: HIV/AIDS and Visuality after Apartheid. Lewisburg: Bucknell University Press.
  • Treichler, P. 1999. How to Have Theory in an Epidemic: Cultural Chronicles of AIDS. Durham and London: Duke University Press.
  • Trench, B. 2008. “Towards an Analytical Framework of Science Communication Models.” In Communicating Science in Social Contexts, edited by D. Cheng, M. Claessens, T. Gascoigne, J. Metcalfe, B. Schiele, and S. Shi, 119–135. Berlin: Springer.10.1007/978-1-4020-8598-7
  • UNAIDS/AVAC. 2007. Good Participatory Practice Guidelines for Biomedical HIV Prevention Trials. 1st ed. Geneva: UNAIDS.
  • Vallely, A., C. Shagi, S. Kasindi, N. Desmond, S. Lees, B. Chiduo, R. Hayes, C. Allen, and D. Ross. 2007. “The Benefits of Participatory Methodologies to Develop Effective Community Dialogue in the Context of a Microbicide Trial Feasibility Study in Mwanza, Tanzania.” BMC Public Health 7 (147): 133.10.1186/1471-2458-7-133
  • Vallely, A., C. Shagi, S. Lees, K. Shapiro, J. Masanja, L. Nikolau, J. Kazimoto, et al. 2009. “Microbicides Development Programme: Engaging the Community in the Standard of Care Debate in a Vaginal Microbicide Trial in Mwanza, Tanzania.” BMC Medical Ethics 10 (17): 1–12.
  • Wentzell, E. 2017. “Medical Research Participation as ‘Ethical Intercorporeality’: Caring for Bio-Social Bodies in a Mexican Human Papillomavirus (HPV) Study.” Medical Anthropology Quarterly 31 (1): 115–132.10.1111/maq.2017.31.issue-1
  • Whittaker, L. 2016. “No-Go Zones and Comfortable Places: Musical Challenges to the Displacements of HIV and AIDS in South Africa.” In Soundscapes of Wellbeing in Popular Music, edited by G. Andrews, P. Kingsbury, and R. Kearns, 237–256. New York: Routledge.
  • Wood, K. 2005. “Contextualizing Group Rape in Post‐Apartheid South Africa.” Culture, Health & Sexuality 7 (4): 303–317.10.1080/13691050500100724
  • Zigon, J., and C. J. Throop. 2014. “Moral Experience: Introduction.” Ethos 42 (1): 1–15.10.1111/etho.2014.42.issue-1

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