Publication Cover
Culture, Health & Sexuality
An International Journal for Research, Intervention and Care
Latest Articles
92
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Peer advice for women living with HIV in the Southern USA

, , , , &
Received 16 Jun 2023, Accepted 06 Nov 2023, Published online: 04 Dec 2023

References

  • Adimora, A. A., C. Ramirez, V. J. Schoenbach, and M. S. Cohen. 2014. “Policies and Politics that Promote HIV Infection in the Southern United States.” AIDS 28 (10): 1393–1397. https://doi.org/10.1097/QAD.0000000000000225
  • Berg, R. C., S. Page, and A. Ogard-Repal. 2021. “The Effectiveness of Peer-support for People Living with HIV: A Systematic Review and Meta-analysis.” PLoS One 16 (6): e0252623-e. https://doi.org/10.1371/journal.pone.0252623
  • Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Brody, L. R., D. C. Jack, D. L. Bruck-Segal, E. G. Ruffing, Y. M. Firpo-Perretti, S. K. Dale, K. M. Weber, and M. H. Cohen. 2016. “Life Lessons from Women with HIV: Mutuality, Self-Awareness, and Self-Efficacy.” AIDS Patient Care and STDs 30 (6): 261–273. https://doi.org/10.1089/apc.2016.0031
  • Caiola, C., J. Barroso, and S. L. Docherty. 2018. “Black Mothers Living With HIV Picture the Social Determinants of Health.” The Journal of the Association of Nurses in AIDS Care 29 (2): 204–219. https://doi.org/10.1016/j.jana.2017.09.011
  • Caiola, C., J. Barroso, and S. L. Docherty. 2017. “Capturing the Social Location of African American Mothers Living with HIV: An Inquiry into How Social Determinants of Health are Framed.” Nursing Research 66 (3): 209–221. https://doi.org/10.1097/NNR.0000000000000213
  • Caiola, C., S. L. Docherty, M. Relf, and J. Barroso. 2014. “Using an Intersectional Approach to Study the Impact of Social Determinants of Health for African American Mothers Living With HIV.” Advances in Nursing Science 37 (4): 287–298. https://doi.org/10.1097/ANS.0000000000000046
  • Casad, B. J., J. E. Franks, C. E. Garasky, M. M. Kittleman, A. C. Roesler, D. Y. Hall, and Z. W. Petzel. 2021. “Gender Inequality in Academia: Problems and Solutions for Women Faculty in STEM.” Journal of Neuroscience Research 99 (1): 13–23. https://doi.org/10.1002/jnr.24631
  • CDC. 2021. "HIV in the Southern United States." Division of HIV/AIDS Prevention, Accessed August 1, 2022. https://www.cdc.gov/hiv/pdf/policies/cdc-hiv-in-the-south-issue-brief.pdf.
  • CDC. "2022. Funding Opportunity Announcement: PS22-2201: List of States in South Census Region." Accessed on December 14, 2022. https://www.cdc.gov/hiv/funding/announcements/ps22-2201/attachments/south-cesus-region.html.
  • CDC. "2022. HIV Among Women." Accessed on August 18, 2022. https://www.cdc.gov/hiv/group/gender/women/index.html.
  • Centers for Disease Control and Prevention. 2020. "Diagnoses of HIV Infection in the United States and Dependent Areas, 2018: Women." Accessed on October 24, 2022. https://www.cdc.gov/hiv/library/reports/hiv-surveillance/vol-31/content/women.html#:∼:text=In%202018%20in%20the%20United%20States%2C%20the%20South%20had%20more,in%20the%20Northeast%20(23.5.
  • Chandran, A., L. Benning, R. J. Musci, T. E. Wilson, J. Milam, A. Adedimeji, C. Parish, A. A. Adimora, J. Cocohoba, M. H. Cohen, et al. 2019. “The Longitudinal Association between Social Support on HIV Medication Adherence and Healthcare Utilization in the Women’s Interagency HIV Study.” AIDS and Behavior 23 (8): 2014–2024. https://doi.org/10.1007/s10461-018-2308-x
  • Corrigan, L. M., and A. Vats. 2020. “The Structural Whiteness of Academic Patronage.” Communication and Critical/Cultural Studies 17 (2): 220–227. https://doi.org/10.1080/14791420.2020.1770824
  • Cressman, A. E., C. J. Howe, A. S. Nunn, A. A. Adimora, D. R. Williams, M.-C. Kempf, A. Chandran, E. L. Wentz, O. J. Blackstock, S. G. Kassaye, et al. 2020. “The Relationship Between Discrimination and Missed HIV Care Appointments Among Women Living with HIV.” AIDS and Behavior 24 (1): 151–164. https://doi.org/10.1007/s10461-019-02522-8
  • D’Avanzo, P. A., S. B. Bass, J. Brajuha, L. Gutierrez-Mock, N. Ventriglia, C. Wellington, and J. Sevelius. 2019. “Medical Mistrust and PrEP Perceptions Among Transgender Women: A Cluster Analysis.” Behavioral Medicine 45 (2): 143–152. https://doi.org/10.1080/08964289.2019.1585325
  • Dale, S. K., C. Pierre-Louis, L. M. Bogart, C. O’Cleirigh, and S. A. Safren. 2018. “Still I Rise: The Need for Self-Validation and Self-Care in the Midst of Adversities Faced by Black Women with HIV.” Cultural Diversity & Ethnic Minority Psychology 24 (1): 15–25. https://doi.org/10.1037/cdp0000165
  • Earnshaw, V. A., L. M. Bogart, J. F. Dovidio, and D. R. Williams. 2013. “Stigma and Racial/Ethnic HIV Disparities: Moving Toward Resilience.” The American Psychologist 68 (4): 225–236. https://doi.org/10.1037/a0032705
  • Eisinger, R. W., C. W. Dieffenbach, and A. S. Fauci. 2019. “HIV Viral Load and Transmissibility of HIV Infection: Undetectable Equals Untransmittable.” Journal of the American Medical Association 321 (5): 451–452. https://doi.org/10.1001/jama.2018.21167
  • Farnood, A., B. Johnston, and F. S. Mair. 2022. “An Analysis of the Diagnostic Accuracy and Peer‐to‐Peer Health Information Provided on Online Health Forums for Heart Failure.” Journal of Advanced Nursing 78 (1): 187–200. https://doi.org/10.1111/jan.15009
  • Feng, B. 2009. “Testing an Integrated Model of Advice Giving in Supportive Interactions.” Human Communication Research 35 (1): 115–129. https://doi.org/10.1111/j.1468-2958.2008.01340.x
  • Fletcher, F. E., N. R. Sherwood, W. S. Rice, I. Yigit, S. N. Ross, T. E. Wilson, S. D. Weiser, M. O. Johnson, M.-C. Kempf, D. Konkle-Parker, et al. 2020. “Resilience and HIV Treatment Outcomes Among Women Living with HIV in the United States: A Mixed-Methods Analysis.” AIDS Patient Care and STDs 34 (8): 356–366. https://doi.org/10.1089/apc.2019.0309
  • Ford, P., A. Clifford, K. Gussy, and C. Gartner. 2013. “A Systematic Review of Peer-Support Programs for Smoking Cessation in Disadvantaged Groups.” International Journal of Environmental Research and Public Health 10 (11): 5507–5522. https://doi.org/10.3390/ijerph10115507
  • Graham-Wisener, L., and M. Dempster. 2017. “Peer Advice Giving from Posttreatment to Newly Diagnosed Esophageal Cancer Patients.” Diseases of the Esophagus 30 (10): 1–7. https://doi.org/10.1093/dote/dox089
  • Hankivsky, O., L. Doyal, G. Einstein, U. Kelly, J. Shim, L. Weber, and R. Repta. 2017. “The Odd Couple: Using Biomedical and Intersectional Approaches to Address Health Inequities.” Global Health Action 10 (sup2): 1326686. https://doi.org/10.1080/16549716.2017.1326686
  • Harvey, O., S. Keen, M. Parrish, and E. van Teijlingen. 2019. “Support for People Who Use Anabolic Androgenic Steroids: A Systematic Scoping Review into What They Want and What They Access.” BMC Public Health 19 (1): 1024. https://doi.org/10.1186/s12889-019-7288-x
  • HIV.gov. "2023. National Rural Health Day: Spotlight on HIV Prevention and Treatment in Rural Communities." Accessed on April 4, 2023. https://www.hiv.gov/blog/national-rural-health-day-spotlight-hiv-prevention-and-treatment-rural-communities/
  • Iliffe, L. L., and A. R. Thompson. 2019. “Investigating the Beneficial Experiences of Online Peer Support for Those Affected by Alopecia: An Interpretative Phenomenological Analysis Using Online Interviews.” The British Journal of Dermatology 181 (5): 992–998. https://doi.org/10.1111/bjd.17998
  • Institute for Women’s Policy Research. "2022. Briefing Paper: Poverty, Gender, and Public Policies." Accessed on November 22, 2022. https://iwpr.org/wp-content/uploads/2020/08/D505-Poverty-Gender-and-Public-Policies.pdf
  • Jiang, T., V. Osadchiy, J. N. Mills, and S. V. Eleswarapu. 2020. “Is It All in My Head? Self-reported Psychogenic Erectile Dysfunction and Depression Are Common Among Young Men Seeking Advice on Social Media.” Urology 142: 133–140. https://doi.org/10.1016/j.urology.2020.04.100
  • Johnson, S. B., M. Parsons, T. Dorff, M. S. Moran, J. H. Ward, S. A. Cohen, W. Akerley, J. Bauman, J. Hubbard, D. E. Spratt, et al. 2022. “Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report.” Journal of the National Cancer Institute 114 (7): 1036–1039. https://doi.org/10.1093/jnci/djab141
  • Kalichman, S. C., H. Katner, E. Banas, M. Hill, and M. O. Kalichman. 2020. “Cumulative Effects of Stigma Experiences on Retention in HIV Care Among Men and Women in the Rural Southeastern United States.” AIDS Patient Care and STDs 34 (11): 484–490. https://doi.org/10.1089/apc.2020.0144
  • Kay, E. S., A. Edmonds, C. Ludema, A. Adimora, M. L. Alcaide, A. Chandran, M. H. Cohen, M. O. Johnson, S. Kassaye, M.-C. Kempf, et al. 2021. “Health Insurance and AIDS Drug Assistance Program (ADAP) Increases Retention in Care Among Women Living with HIV in the United States.” AIDS Care 33 (8): 1044–1051. https://doi.org/10.1080/09540121.2020.1849529
  • Kelly, J. T., K. L. Campbell, T. Hoffmann, and D. P. Reidlinger. 2018. “Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study.” Journal of Renal Nutrition 28 (6): 393–402. https://doi.org/10.1053/j.jrn.2017.07.008
  • Lin, T.-C., J. S.-C. Hsu, H.-L. Cheng, and C.-M. Chiu. 2015. “Exploring the Relationship Between Receiving and Offering Online Social Support: A Dual Social Support Model.” Information & Management 52 (3): 371–383. https://doi.org/10.1016/j.im.2015.01.003
  • Litchman, M. L., E. Rothwell, and L. S. Edelman. 2018. “The Diabetes Online Community: Older Adults Supporting Self-Care Through Peer Health.” Patient Education and Counseling 101 (3): 518–523. https://doi.org/10.1016/j.pec.2017.08.023
  • Logie, C. H., L. James, W. Tharao, and M. R. Loutfy. 2011. “HIV, Gender, Race, Sexual Orientation, and Sex work: A Qualitative Study of Intersectional Stigma Experienced by HIV-Positive Women in Ontario, Canada.” PLoS Medicine 8 (11): e1001124-e. https://doi.org/10.1371/journal.pmed.1001124
  • MacGeorge, E. L., B. Feng, and E. R. Thompson. 2011. “Good” and “Bad” Advice: How to Advise More Effectively.” In M. Motley (ed.) Studies in Applied Interpersonal Communication. Thousand Oaks, CA: SAGE.
  • MacGeorge, E. L., L. M. Guntzviller, K. S. Brisini, L. C. Bailey, S. K. Salmon, K. Severen, S. E. Branch, H. M. Lillie, C. K. Lindley, R. G. Pastor, et al. 2017. “The Influence of Emotional Support Quality on Advice Evaluation and Outcomes.” Communication Quarterly 65 (1): 80–96. https://doi.org/10.1080/01463373.2016.1176945
  • McLaren, R. M., and A. C. High. 2019. “The Effect of Under- and Over-Benefited Support Gaps on Hurt Feelings, Esteem, and Relationships.” Communication Research 46 (6): 785–810. https://doi.org/10.1177/0093650215605155
  • National Resource Center on HIV & Aging. "Long-Term Survivors." https://aginghiv.org/communities/long-term-survivors/#:∼:text=Long-Term%20Survivors%20are%20defined,were%20available%20in%201995-96.
  • Oser, T. K., S. M. Oser, J. A. Parascando, D. Hessler-Jones, C. N. Sciamanna, K. Sparling, D. Nease, and M. L. Litchman. 2020. “Social Media in the Diabetes Community: A Novel Way to Assess Psychosocial Needs in People with Diabetes and Their Caregivers.” Current Diabetes Reports 20 (3): 10. https://doi.org/10.1007/s11892-020-1294-3
  • Pellowski, J. A., S. C. Kalichman, K. A. Matthews, and N. Adler. 2013. “A Pandemic of the Poor: Social Disadvantage and the U.S. HIV Epidemic.” The American Psychologist 68 (4): 197–209. https://doi.org/10.1037/a0032694
  • Pellowski, J. A., D. M. Price, A. D. Harrison, E. L. Tuthill, L. Myer, D. Operario, and M. N. Lurie. 2019. “A Systematic Review and Meta-analysis of Antiretroviral Therapy (ART) Adherence Interventions for Women Living with HIV.” AIDS and Behavior 23 (8): 1998–2013. https://doi.org/10.1007/s10461-018-2341-9
  • Positive Women’s Network. 2023. Accessed March 13, 2023. https://www.pwn-usa.org.
  • Quinn, K. G., M. K. Murphy, Z. Nigogosyan, and A. E. Petroll. 2020. “Stigma, Isolation and Depression Among Older Adults Living with HIV in Rural Areas.” Ageing and Society 40 (6): 1352–1370. https://doi.org/10.1017/S0144686X18001782
  • Randolph, S. D., C. Golin, H. Welgus, A. F. Lightfoot, C. J. Harding, and L. F. Riggins. 2020. “How Perceived Structural Racism and Discrimination and Medical Mistrust in the Health System Influences Participation in HIV Health Services for Black Women Living in the United States South: A Qualitative, Descriptive Study.” The Journal of the Association of Nurses in AIDS Care 31 (5): 598–605. https://doi.org/10.1097/JNC.0000000000000189
  • Reif, S. S., K. Whetten, E. R. Wilson, C. McAllaster, B. W. Pence, S. Legrand, and W. Gong. 2014. “HIV/AIDS in the Southern USA: A Disproportionate Epidemic.” AIDS Care 26 (3): 351–359. https://doi.org/10.1080/09540121.2013.824535
  • Relf, M. V., W. Pan, A. Edmonds, C. Ramirez, S. Amarasekara, and A. A. Adimora. 2019. “Discrimination, Medical Distrust, Stigma, Depressive Symptoms, Antiretroviral Medication Adherence, Engagement in Care, and Quality of Life Among Women Living With HIV in North Carolina: A Mediated Structural Equation Model.” Journal of Acquired Immune Deficiency Syndromes 81 (3): 328–335. https://doi.org/10.1097/qai.0000000000002033
  • Robillard, A., A. Padi, K. Lewis, C. Julious, and J. Troutman. 2017. “Advice for Prevention from HIV-positive African-American Women: ‘My Story is Not Just A Story.” Culture, Health & Sexuality 19 (5): 630–642. https://doi.org/10.1080/13691058.2016.1243732
  • Rueger, J., W. Dolfsma, and R. Aalbers. 2021. “Perception of Peer Advice in Online Health Communities: Access to Lay Expertise.” Social Science & Medicine 277: 113117. https://doi.org/10.1016/j.socscimed.2020.113117
  • Sandelowski, M. 2000. “Whatever Happened to Qualitative Description?” Research in Nursing & Health 23 (4): 334–340. https://doi.org/10.1002/1098-240X(200008)23:4 < 334::AID-NUR9 > 3.0.CO;2-G
  • Sandelowski, M. 2010. “What’s in A Name? Qualitative Description Revisited.” Research in Nursing & Health 33 (1): 77–84. https://doi.org/10.1002/nur.20362
  • Sangaramoorthy, T., A. Jamison, and T. Dyer. 2017. “Intersectional Stigma Among Midlife and Older Black Women Living with HIV.” Culture, Health & Sexuality 19 (12): 1329–1343. https://doi.org/10.1080/13691058.2017.1312530
  • Smith-Merry, J., G. Goggin, A. Campbell, K. McKenzie, B. Ridout, and C. Baylosis. 2019. “Social Connection and Online Engagement: Insights From Interviews With Users of a Mental Health Online Forum.” JMIR Mental Health 6 (3): e11084. e https://doi.org/10.2196/11084
  • Sokol, R., and E. Fisher. 2016. “Peer Support for the Hardly Reached: A Systematic Review.” American Journal of Public Health 106 (7): E1–E8. https://doi.org/10.2105/AJPH.2016.303180
  • Starks, H., and S. B. Trinidad. 2007. “Choose Your Method: A Comparison of Phenomenology, Discourse Analysis, and Grounded Theory.” Qualitative Health Research 17 (10): 1372–1380. https://doi.org/10.1177/1049732307307031
  • The Well Project. https://www.thewellproject.org/
  • Tiako, M. J. N., H. P. Forman, and M. Nuñez‐Smith. 2021. “Racial Health Disparities, COVID‐19, and a Way Forward for US Health Systems.” Journal of Hospital Medicine 16 (1): 50–52. https://doi.org/10.12788/jhm.3545
  • Turan, B., A. M. Hatcher, S. D. Weiser, M. O. Johnson, W. S. Rice, and J. M. Turan. 2017. “Framing Mechanisms Linking HIV-Related Stigma, Adherence to Treatment, and Health Outcomes.” American Journal of Public Health 107 (6): 863–869. https://doi.org/10.2105/AJPH.2017.303744
  • Wallace, J., Y. Xiao, J. Howell, A. Thompson, N. Allard, E. Adamson, J. Richmond, B. Hajarizadeh, M. Eagle, J. Doyle, et al. 2022. “Understanding How to Live with Hepatitis B: A Qualitative Investigation of Peer Advice for Chinese People Living with Hepatitis B in Australia.” BMC Public Health 22 (1): 536. https://doi.org/10.1186/s12889-022-12907-5

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.