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Research Article

(In)visibilising pregnancy loss in Southern Malawi

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Received 03 Sep 2023, Accepted 23 Feb 2024, Published online: 12 Mar 2024

References

  • Adolfsson, J. S., and S. M. Moss. 2023. “‘Even the NGOs Never Talk About Ufiti [Witchcraft]’: A Decolonial and Feminist Cultural Psychological Analysis of Individualized Development Clashing with Communal Ways of Being.” Human Arenas 6 (3): 423–443.
  • Andipatin, M. G., A. D. Naidoo, and R. Roomaney. 2019. “The Hegemonic Role of Biomedical Discourses in the Construction of Pregnancy Loss.” Women and Birth: Journal of the Australian College of Midwives 32 (6): E 552–e559. https://doi.org/10.1016/j.wombi.2019.03.006
  • Andrews, A. 2023. “Loss.” Facebook, August 8, 2023. https://fb.watch/oMjf9CgO4x/
  • Ayebare, E., T. Lavender, J. Mweteise, A. Nabisere, A. Nendela, R. Mukhwana, R. Wood, S. Wakasiaka, G. Omoni, B. S. Kagoda, et al. 2021. “The Impact of Cultural Beliefs and Practices on Parents’ Experiences of Bereavement Following Stillbirth: A Qualitative Study in Uganda and Kenya.” BMC Pregnancy and Childbirth 21 (1): 443. https://doi.org/10.1186/s12884-021-03912-4
  • Baffour-Awua, A., and S. Richter. 2020. “Perinatal Loss in Sub-Saharan Africa: A Scoping Review.” Africa Journal of Nursing & Midwifery 22 (2): 1–20.
  • Bakari, A., A. J. Bell, S. Oppong, J. Woodford, E. Kaselitz, and C. A. Moyer. 2021. “Asram is Really Killing Us Here’: Attribution for Pregnancy Losses and Newborn Mortality in the Ashanti Region of Ghana.” Journal of Biosocial Science 53 (4): 497–507. https://doi.org/10.1017/S0021932020000322
  • Berry, N. S. 2010. Unsafe Motherhood: Mayan Maternal Mortality and Subjectivity in Post-War Guatemala. New York: Berghahn Books.
  • Bohren, M. A., H. Mehrtash, B. Fawole, T. M. Maung, M. D. Balde, E. Maya, S. S. Thwin, A. K. Aderoba, J. P. Vogel, T. A. Irinyenikan, et al. 2019. “How Women Are Treated During Facility-based Childbirth in Four Countries: A cross-sectional Study With Labour Observations and Community-based Surveys.” Lancet 394 (10210): 1750–1763. https://doi.org/10.1016/S0140-6736(19)31992-0
  • Bornstein, M., J. D. Gipson, G. Failing, V. Banda, and A. Norris. 2020. “Individual and Community-Level Impact of Infertility-related Stigma in Malawi.” Social Science & Medicine 251: 112910. https://doi.org/10.1016/j.socscimed.2020.112910
  • Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101.
  • Castro, A., and P. Farmer. 2005. “Understanding and Addressing AIDS-related Stigma: From Anthropological Theory to Clinical Practice in Haiti.” American Journal of Public Health 95 (1): 53–59. https://doi.org/10.2105/AJPH.2003.028563
  • Cecil, R. 1996. Anthropology of Pregnancy Loss: Comparative Studies in Miscarriage, Stillbirth and Neo-Natal Death. London: Routledge.
  • De Kok, B. C. 2015. “Global Maternal Health: From Women’s Survival to Respectful Care.” BJOG: An International Journal of Obstetrics and Gynaecology 122 (2): 248–248. https://doi.org/10.1111/1471-0528.13156
  • De Kok, B. C. 2019. “Between Orchestrated and Organic: Accountability for Loss and the Moral Landscape of Childbearing in Malawi.” Social Science & Medicine 220: 441–449. https://doi.org/10.1016/j.socscimed.2018.09.036
  • de Kok, B., J. Hussein, and P. Jeffery. 2010. “Joining-up thinking: Loss in childbearing from inter-disciplinary perspectives.” Social Science & Medicine 71 (10): 1703–1710. https://doi.org/10.1016/j.socscimed.2010.08.021
  • Dierickx, S. 2022. “With the Kanyaleng and the Help of God, You Don’t Feel Ashamed’: Women Experiencing Infertility in Casamance, Senegal.” Culture, Health & Sexuality 24 (2): 268–283. https://doi.org/10.1080/13691058.2020.1833366
  • Erviti, J., R. Castro, and A. Collado. 2004. “Strategies Used by Low-income Mexican Women to Deal With Miscarriage and “Spontaneous” Abortion.” Qualitative Health Research 14 (8): 1058–1076. https://doi.org/10.1177/1049732304267693
  • Flenady, V., F. Boyle, L. Koopmans, T. Wilson, W. Stones, and J. Cacciatore. 2014. “Meeting the Needs of Parents After a Stillbirth or Neonatal Death.” British Journal of Obstetrics and Gynaecology, 121 (Suppl 4): 137–140.
  • Foucault, M. 1978. The History of Sexuality. London: Pantheon Books.
  • Frøen, J. F., J. Cacciatore, E. M. McClure, O. Kuti, A. H. Jokhio, M. Islam, and J. Shiffman. 2011. “Stillbirths: Why They Matter.” Lancet 377 (9774): 1353–1366. https://doi.org/10.1016/S0140-6736(10)62232-5
  • Galtung, J. 1975. Peace: Research, Education, Action: Essays in Peace Research. Copenhagen: Christian Ejlers.
  • Gee, J. P. 2014. An Introduction to Discourse Analysis: Theory and method. London: Routledge.
  • Gerrits, T., H. Kroes, S. Russell, and F. van Rooij. 2023. “Breaking the Silence Around Infertility: A scoping Review of Interventions Addressing Infertility-Related Gendered Stigmatisation in Low-and Middle-income Countries.” Sexual and Reproductive Health Matters 31 (1): 2134629. https://doi.org/10.1080/26410397.2022.2134629
  • Geschiere, P. 2003. “Witchcraft as the Dark Side of Kinship: Dilemmas of Social Security in New Contexts.” Etnofoor 16 (1): 43–61.
  • Goffman, E. 1963. Stigma: Notes on the Management of Spoiled Identity. Harmondsworth: Penguin.
  • Gumperz, J. J. 1982. Discourse strategies. Cambridge: Cambridge University Press.
  • Han, S. 2013. Pregnancy in Practice: Expectation and Experience in the Contemporary US. New York: Berghahn Books.
  • Haws, R. A., I. Mashasi, M. Mrisho, J. A. Schellenberg, G. L. Darmstadt, and P. J. Winch. 2010. “These are Not Good Things for Other People to Know’: How Rural Tanzanian Women’s Experiences of Pregnancy Loss and Early Neonatal Death May Impact Survey Data Quality.” Social Science & Medicine 71 (10): 1764–1772. https://doi.org/10.1016/j.socscimed.2010.03.051
  • Homer, C. S., A. Malata, and P. Ten Hoope-Bender. 2016. “Supporting Women, Families and Care Providers After Stillbirths.” Lancet 387 (10018): 516–517. https://doi.org/10.1016/S0140-6736(15)01278-7
  • Jordan, B. 1997. “Authoritative Knowledge and Its Construction.” In Childbirth and Authoritative Knowledge: Cross-Cultural Perspectives, edited by R. E. Davis-Floyd and C. Sargent, 55–79. Berkely: University of California Press.
  • Kiguli, J., S. Namusoko, K. Kerber, S. Peterson, and P. Waiswa. 2015. “Weeping in Silence: Community Experiences of Stillbirths in Rural Eastern Uganda.” Global Health Action 8 (1): 24011. https://doi.org/10.3402/gha.v8.24011
  • Kleinman, A. 1997. “Everything That Really Matters’: Social Suffering, Subjectivity, and the Remaking of Human Experience in a Disordering World.” Harvard Theological Review 90 (3): 315–336. https://doi.org/10.1017/S0017816000006374
  • Kopp, D. M., A. Bula, S. Maman, L. Chinula, M. Tsidya, M. Mwale, and J. H. Tang. 2018. “Influences on Birth Spacing Intentions and Desired Interventions among Women Who Have Experienced a Poor Obstetric Outcome in Lilongwe Malawi: A Qualitative Study.” BMC Pregnancy and Childbirth 18 (1): 197. https://doi.org/10.1186/s12884-018-1835-9
  • Lappeman, M., and L. Swartz. 2019. “Care and the Politics of Shame: Medical Practitioners and Stillbirths in a South African District Hospital.” Psychodynamic Practice 25 (4): 325–341. https://doi.org/10.1080/14753634.2019.1670093
  • Lawn, J. E., H. Blencowe, R. Pattinson, S. Cousens, R. Kumar, I. Ibiebele, J. Gardosi, L. T. Day, and C. Stanton, Lancet’s Stillbirths Series steering committee. 2011. “Stillbirths: Where? When? Why? How to make the data count?” Lancet (London, England) 377 (9775): 1448–1463.
  • Layne, L. 2022. “Personhood’ in the Anthropology of Reproduction.” In The Routledge Handbook of Anthropology and Reproduction, edited by C. Han and C. Tomori, 323–339. Oxford: Routledge.
  • Layne, L. 1997. “Breaking the Silence: An Agenda For a Feminist Discourse of Pregnancy Loss.” Feminist Studies 23 (2): 289–315. https://doi.org/10.2307/3178398
  • Link, B. G., and J. C. Phelan. 2001. “Conceptualizing Stigma.” Annual Review of Sociology 27 (1): 363–385. https://doi.org/10.1146/annurev.soc.27.1.363
  • Logie, C. H., and M. F. Gibson. 2013. “A Mark That is No Mark? Queer Women and Violence in HIV Discourse.” Culture, Health & Sexuality 15 (1): 29–43. https://doi.org/10.1080/13691058.2012.738430
  • Maclean, G. D. 2010. “An historical overview of the first two decades of striving towards Safe Motherhood.” Sexual & Reproductive Healthcare 1 (1): 7–14. https://doi.org/10.1016/j.srhc.2009.10.002
  • Mooij, R., R. Kapanga, I. H. Mwampagatwa, G. C. Mgalega, J. van Dillen, J. Stekelenburg, and B. C. de Kok. 2021. “Beyond Severe Acute Maternal Morbidity: A mixed‐methods Study on the Long‐term Consequences of Severe (Pre‐) Eclampsia in Rural Tanzania.” Tropical Medicine & International Health: TM & IH 26 (1): 33–44. https://doi.org/10.1111/tmi.13507
  • Morgan, L. M. 1997. “Imagining the Unborn in the Ecuadoran Andes.” Feminist Studies 23 (2): 322. https://doi.org/10.2307/3178403
  • Morgan, L. M., and E.- F. S. Roberts. 2012. “Reproductive governance in Latin America.” Anthropology & Medicine 19 (2): 241–254. https://doi.org/10.1080/13648470.2012.675046
  • Müller-Rockstroh, B. 2012. “Appropriate and Appropriated Technology: Lessons Learned From Ultrasound in Tanzania.” Medical Anthropology 31 (3): 196–212.
  • Pollock, D., T. Ziaian, E. Pearson, M. Cooper, and J. Warland. 2020. “Understanding Stillbirth Stigma: A Scoping Literature Review.” Women and Birth 33 (3): 207–218. https://doi.org/10.1016/j.wombi.2019.05.004
  • Popoola, T., J. Skinner, and M. Woods. 2022. “Beliefs and Strategies for Coping With Stillbirth: A Qualitative Study in Nigeria.” Bereavement 1: 1–11. https://doi.org/10.54210/bj.2022.10
  • Putter, C. 2003. “Unfolding Tragedies: The Impact of a Mother’s Death on Her Kin and Community: An Ethnography from Southern Malawi.” PhD diss., Queen Margaret University.
  • Quenby, S., I. D. Gallos, R. K. Dhillon-Smith, M. Podesek, M. D. Stephenson, J. Fisher, J. J. Brosens, J. Brewin, R. Ramhorst, E. S. Lucas, et al. 2021. “Miscarriage Matters: The Epidemiological, Physical, Psychological, and Economic Costs of Early Pregnancy Loss.” Lancet 397 (10285): 1658–1667. https://doi.org/10.1016/S0140-6736(21)00682-6
  • Rose, G. 2016. Visual Methodologies. London: Sage.
  • Scheper-Hughes, N. 1993. Death Without Weeping: The Violence of Everyday Life in Brazil. Berkeley: University of California Press.
  • Simwaka, A. N. K., B. de Kok, and W. Chilemba. 2014. “Women’s perceptions of Nurse-Midwives’ Caring Behaviours During Perinatal Loss in Lilongwe, Malawi: An Exploratory Study.” Malawi Medical Journal 26 (1): 8–11.
  • Sisay, M. M., R. Yirgu, A. G. Gobezayehu, and L. M. Sibley. 2014. “A Qualitative Study of Attitudes and Values Surrounding Stillbirth and Neonatal Mortality Among Grandmothers, Mothers, and Unmarried Girls in Rural Amhara and Oromiya Regions, Ethiopia: Unheard Souls in the Backyard.” Journal of Midwifery Women’s Health 59: S110–S17.
  • Storeng, K. T., M. S. Akoum, and S. F. Murray. 2013. “This Year I Will Not Put her to Work’: The Production/Reproduction Nexus in Burkina Faso.” Anthropology & Medicine 20 (1): 85–97. https://doi.org/10.1080/13648470.2012.692360
  • Sturrock, C., and J. Louw. 2013. “Meaning-Making After Neonatal Death: Narratives of Xhosa-Speaking Women in South Africa.” Death Studies 37 (6): 569–588. https://doi.org/10.1080/07481187.2012.673534
  • United Nations Inter-agency Group for Child Mortality Estimation (UNIGME). 2020. A Neglected Tragedy: The global burden of stillbirths. New York: United Nations Children’s Fund.
  • Van Dijk, T. 2015. Chapter 22“Critical Discourse Analysis.” In The Handbook of Discourse Analysis, edited by Deborah Tannen, Heidi E. Hamilton and D. Schiffrin, 466–485. London: Wiley Blackwell.
  • Van der Sijpt, E. 2014. “The Unfortunate Sufferer: Discursive Dynamics around Pregnancy Loss in Cameroon.” Medical Anthropology 33 (5): 395–410. https://doi.org/10.1080/01459740.2013.828286
  • Van der Sijpt, E. 2010. “Marginal matters: Pregnancy loss as a social event.” Social Science & Medicine 71 (10): 1773–1779. https://doi.org/10.1016/j.socscimed.2010.03.055
  • World Health Organization. n.d. “Why we need to talk about losing a baby.” Accessed 1 March 2024. https://www.who.int/news-room/spotlight/why-we-need-to-talk-about-losing-a-baby.