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Original Articles

Constructing the digital patient: Patient organizations and the development of health websites

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Pages 657-675 | Published online: 17 Feb 2007

References

  • Akrich , M. 1995 . “ ‘User representations: practices, methods and sociology’ ” . In Managing Technology in Society – The Approach of Constructive Technology Assessment , Edited by: Rip , A. , Misa , T. J. and Schot , J. 167 – 184 . London and New York : Pinter Publishers .
  • Barbot , J. 2006 . ‘How to build an active'patient? The normative work of associations fighting Aids in France’ . Social Science and Medicine , forthcoming
  • Bos , R. and Bastiaansen , L. 2001 . Patientenorganisaties, actuele informatie en internet. Programma-overzicht (plenaire bijeenkomsten en individuele begeleiding) en dagprogramma's (plenaire bijeenkomsten) , Den Haag : Zon-Mw .
  • Depressie Stichting . 2001a . ‘Projectplan voor de realisatie van het internetproject van ZON’ . Projectplan Depressie Stichting
  • Depressie Stichting . 2001b . ‘Bijlage opzet en structuur website’ . Projectplan Depressie Stichting
  • Epstein , S. 1996 . Impure Science: Aids, Activism, and the Politics of Knowledge , Berkeley : University of California Press .
  • Eysenbach , G. 2000 . ‘Consumer health informatics’ . British Medical Journal , 320 : 1713 – 1716 .
  • Eysenbach , G. and Diepgen , T. 1999 . ‘Patients looking for information on the Internet and seeking teleadvice’ . Journal of the American Medical Association , 135 : 151 – 156 .
  • Ferguson , T. 1997 . ‘Health online and the empowered medical consumer’ . Journal of Quality Improvement , 23 ( 5 ) : 251 – 257 .
  • Ferguson , T. 2002 . ‘From patients to end users: quality of online patient networks needs more attention than quality of online health information’ . British Medical Journal , 334 : 556 – 557 .
  • Giddens , A. 1991 . Modernity and Self-Identity , Oxford : Polity Press .
  • Henwood , F. , Wyatt , S. , Hart , A. and Smith , J. 2003 . ‘Ignorance is bliss sometimes: constraints on the emergence of the ‘informed patient’ in the changing landscapes of health information’ . Sociology of Health and Illness , forthcoming
  • Institute for the Future . 2000 . Health and Health Care 2010: the Forecast, the Challenge , Trenton, NJ : Robert Johnson Foundation .
  • Kendall , L. 2001 . The Future Patient , London : Institute for Public Policy Research .
  • Ministerie van Volksgezondheid, Welzijn en Sport . 1995 . Beleidsbrief Patienten/consumentenbeleid in de Zorgsector , Den Haag : Ministerie van VWS .
  • Mittman , R. and Cain , M. 2001 . “ ‘The future of the Internet in health care’ ” . In The Internet and Health Communication. Experiences and Expectations , Edited by: Rice , R. E. and Katz , J. E. 47 – 75 . Thousand Oaks, London, New Delhi : Sage Publications .
  • Mort , M. , May , C. R. and Williams , T. 2003 . ‘Remote doctors and absent patients: acting at a distance in telemedicine?’ . Science, Technology & Human Values , 28 ( 2 ) : 274 – 296 .
  • Oudshoorn , N. , Rommes , E. and Stienstra , M. 2004 . ‘Configuring the user as everybody: gender and cultures of design in information and communication technologies’ . Science, Technology & Human Values , 29 ( 1 ) : 30 – 64 .
  • Oudshoorn , N. , Brouns , M. and van Oost , E. 2005 . “ ‘Diversity and distributed agency in the design and use of medical video-communication technologies’ ” . In Inside the Politics of Technology. Agency and Normativity in the Co-Production of Technology and Society , Edited by: Harbers , H. Amsterdam : Amsterdam University Press .
  • Parr , S. P. 2001 . ‘Inclusive Internet technologies for people with communication impairment’ . Stroke News , September
  • Rice , R. E. and Katz , J. E. 2001 . The Internet and Health Communication: Experiences and Expectations , Thousand Oaks, London, New Delhi : Sage Publications .
  • Rommes , E. , van Oost , E. and Oudshoorn , N. 1999 . ‘Gender and the design of a digital city’ . Information, Communication & Society , 2 ( 4 ) : 476 – 495 .
  • Rosmovits , L. and Ziebland , S. 2004 . ‘What do patients with prostate cancer or breast cancer want from an Internet site? A qualitative study of information needs’ . Patient Education and Counseling , 53 : 57 – 64 .
  • RSI Patientenvereniging . 2001 . “ ‘Uitgangspunten RSI’ ” . Zon Project . versie 1.0
  • RSI Patientenvereniging . 2002 . ‘RSI-patienten: van shoppen naar kiezen – projectplan voor keuzeondersteunende informatie over RSI en Internet’ . projectplan voor de realisatie van het internetproject van ZON
  • Stichting Jongeren en Kanker . 2002a . ‘Project internethaven. Plan en realisatie’ . projectplan voor de realisatie van het internetproject van ZON
  • Stichting Jongeren en Kanker . 2002b . ‘Uitnodiging Kick Off Internet Haven’ .
  • Ziebland , S. 2004 . ‘The importance of being expert: the quest for cancer information on the Internet’ . Social Science and Medicine , 59 : 1783 – 1793 .
  • Zon-Mw . 2001a . ‘Nieuwsbrief Consumenteninformatie. Special Consumenteninformatie op Internet’ . 5 ( 4 )
  • Zon-Mw . 2001b . ‘Overzicht van de project plannen’ . June 2001
  • Zorg Onderzoek Nederland . 1997 . Informatie op Koers , Den Haag : Zon-Mw .

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