3,717
Views
2
CrossRef citations to date
0
Altmetric
Articles

‘Which part of my group do I represent?’: disability activism and social media users with concealable communicative disabilities

Pages 619-636 | Received 04 Feb 2021, Accepted 09 Jul 2021, Published online: 06 Aug 2021

References

  • Alper, M. (2017). Giving Voice: Mobile communication, disability, and inequality. MIT Press.
  • Banet-Weiser, S, & Miltner, K. M. (2016). #MasculinitySoFragile: Culture, Structure, and networked misogyny. Feminist Media Studies, 16(1), 171–174. https://doi.org/10.1080/14680777.2016.1120490
  • Barassi, V. (2018). Social media activism, self-representation and the construction of political biographies. In G. Miekle (Ed.), The Routledge companion to activism and media (pp. 142–150). Routledge.
  • Berghs, M., Chataika, T., El-Lahib, Y., & Dube, K. (2020). The Routledge handbook of disability activism. Routledge.
  • Betilsdotter Rosqvist, H. B, Stenning, A., & Chown, N. (2020). Introduction. In H. B Bertilsdotter Rosqvist, N. Chown, & A. Stenning (Eds.), Neurodiversity Studies: A New Critical Paradigm (pp. 1–13). Routledge.
  • Bitman, N. (2021). Rethinking the concept of 'subaltern-researcher': different D/deaf identities and communicative modalities as conflict factors in in-depth interviews. Qualitative Research. https://doi.org/10.1177/1468794121994461
  • Bitman, N, & John, N. A. (2019). Deaf and Hard of Hearing Smartphone Users: Intersectionality and the Penetration of Ableist Communication Norms. Journal of Computer-Mediated Communication, 24(2), 56–70. https://doi.org/10.1093/jcmc/zmy024
  • Broyer, N., & Hammer, G. (2019). Disability and the performance of everyday life. In T. Heller, S. P. Harris, C. Gill, & R. Gould R (Eds.), Disability in American life: An encyclopedia of policies, concepts, and controversies (pp. 189–191). ABC Clio.
  • Carlson, J. (2010). Avoiding traps in member checking. Qualitative Report, 15(5), 1102–1113.
  • Cocq, C., & Ljuslinder, K. (2020). Self-representations on social media. Reproducing and Challenging Discourses on Disability. Alter, 14(2), 71–84. https://doi.org/10.1016/j.alter.2020.02.001
  • Couldry, N. (2008). Mediatization or mediation? Alternative understandings of the emergent space of digital storytelling. New Media & Society, 10(3), 373–391. https://doi.org/10.1177/1461444808089414
  • Dienlin, T., & Metzger, M. J. (2016). An extended privacy calculus model for SNSs: Analyzing self-disclosure and self-withdrawal in a representative US sample. Journal of Computer-Mediated Communication, 21(5), 368–383. https://doi.org/10.1111/jcc4.12163
  • Dube, K. (2020). The tragedy of the hidden lamps: In search of disability rights activists from the global south in the digital era. In M. Berghs, T. Chataika, Y. El-Lahib, & K. Dube (Eds.), The Routledge handbook of disability activism (pp. 247–257). Routledge.
  • Ellis, K., & Goggin, G. (2018). Disability and media activism. In G. Miekle (Ed.), The Routledge companion to media and activism (pp. 355–364). Routledge.
  • Ellis, K., & Kent, M. (2017). Disability and social media: Global perspectives (pp. 1–10). Routledge.
  • Evans, H. D. (2019). ‘Trial by fire’: Forms of impairment disclosure and implications for disability identity. Disability & Society, 34(5), 726–746. https://doi.org/10.1080/09687599.2019.1580187
  • Garland-Thomson, R. (2017). Extraordinary bodies: Figuring physical disability in American culture and literature. : Columbia University Press.
  • Goffman, E. (1959). The presentation of self in everyday life. London: Penguin.
  • Goffman, E. (1963). Stigma. Spectrum.
  • Hadley, B. (2014). Disability, public space performance and spectatorship: Unconscious performers. Palgrave McMillan.
  • Halupka, M. (2018). The legitimisation of clicktivism. Australian Journal of Political Science, 53(1), 130–141. https://doi.org/10.1080/10361146.2017.1416586
  • Hamraie, A., & Fritsch, K. (2019). Crip technoscience manifesto. Catalyst: Feminism, Theory, Technoscience, 5(1), 1–33. https://doi.org/10.28968/cftt.v5i1.29607
  • Kozuh, I., & Debevc, M. (2020). The utilisation of social media among users with hearing loss: an analysis of Facebook communities. Universal Access in the Information Society, 19(3), 541–555. https://doi.org/10.1007/s10209-019-00658-x
  • Li, H., Bora, D., Salvi, S., & Brady, E. (2018, April). Slacktivists or activists? Identity work in the virtual disability march. Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (pp. 1-13).
  • Liao, S. (2019). ‘# IAmGay# What about You?’: Storytelling, discursive politics, and the affective dimension of social media activism against censorship in China. International Journal of Communication, 13(2019), 2314–2333.
  • Lund, N. F., Cohen, S. A., & Scarles, C. (2018). The power of social media storytelling in destination branding. Journal of Destination Marketing & Management, 8(2018), 271–280. https://doi.org/10.1016/j.jdmm.2017.05.003
  • Lyons, B. J., Volpone, S. D., Wessel, J. L., & Alonso, N. M. (2017). Disclosing a disability: Do strategy type and onset controllability make a difference?. Journal of Applied Psychology, 102(9), 1375–1383. https://doi.org/10.1037/apl0000230
  • Marwick, A. E., & Boyd, D. (2011). I tweet honestly, I tweet passionately: Twiter users, context collapse, and the imagined audiences. New Media and Society, 13(1), 114–133. https://doi.org/10.1177/1461444810365313
  • McLean, J. (2020). Changing digital geographies. Palgrave Macmillan.
  • McRuer, R. (2006). Crip theory: Cultural signs of queerness and disability (Vol. 9). NYU press.
  • Milan, S. (2015). Mobilizing in times of social media. From a politics of identity to a politics of visibility. In L. Dencik & O. Leistert (Eds.), Critical perspectives on social media and protest: Between control and emancipation (pp. 53–71). Rowman & Littlefield international LTD.
  • Miller, R. A. (2017). ‘My voice is definitely strongest in online communities’: students using social media for queer and disability identity-making. Journal of College Student Development, 58(4), 509–525. https://doi.org/10.1353/csd.2017.0040
  • Milošević-Đorđević, J. S., & Žeželj, I. L. (2017). Civic activism online: Making young people dormant or more active in real life? Computers in Human Behavior, 70(2017), 113–118. https://doi.org/10.1016/j.chb.2016.12.070
  • Mitchell, D., & Snyder, S. (2015). The biopolitics of disability: Neoliberalism, ablenationalism, and peripheral embodiment. University of Michigan Press.
  • Moors, M. R. (2019). What is Flint? Place, storytelling, and social media narrative reclamation during the Flint water crisis. Information, Communication & Society, 22(6), 808–822. https://doi.org/10.1080/1369118X.2019.1577477
  • Morris, J. (1992). Personal and Political: A Feminist Perspective on Researching Physical Disability. Disability, Handicap & Society, 7(2), 157–166.
  • Newheiser, A. K., & Barreto, M. (2014). Hidden costs of hiding stigma: Ironic interpersonal consequences of concealing a stigmatized identity in social interactions. Journal of Experimental Social Psychology, 52, 58–70. https://doi.org/10.1016/j.jesp.2014.01.002
  • Parsloe, S. M., & Holton, A. E. (2018). #Boycottautismspeaks: Communicating a counternarrative through cyberactivism and connective action. Information, Communication & Society, 21(8), 1116–1133. https://doi.org/10.1080/1369118X.2017.1301514
  • Pearson, C., & Trevisan, F. (2015). Disability activism in the new media ecology: Campaigning strategies in the digital era. Disability & Society, 30(6), 924–940. https://doi.org/10.1080/09687599.2015.1051516
  • Pierre, J. S. (2017). Becoming dysfluent: Fluency as biopolitics and hegemony. Journal of Literary & Cultural Disability Studies, 11(3), 339–365.
  • Quinn, D. M., & Chaudoir, S. R. (2009). Living with a concealable stigmatized identity: the impact of anticipated stigma, centrality, salience, and cultural stigma on psychological distress and health. Journal of Personality and Social Psychology, 97(4), 634–651. https://doi.org/10.1037/a0015815
  • Robards, B., & Lincoln, S. (2020). Growing up with Facebook. Peter Lang.
  • Rosenberg, H., & Kohn, A. (2016). Temptations of fluency and dilemmas of self definition: Stutterers' usage and avoidance of new media technologies. Computers in Human Behavior, 62(2016), 536–544. https://doi.org/10.1016/j.chb.2016.04.008
  • Salisbury, M., & Pooley, J. D. (2017). The# nofilter self: The contest for authenticity among social networking sites, 2002–2016. Social Sciences, 6(1), 10–34. https://doi.org/10.3390/socsci6010010
  • Seidmann, V. (2020). On blogs, autistic bloggers, and autistic space. Information, Communication & Society, 1–16. https://doi.org/10.1080/1369118X.2020.1754878
  • Smith, B. G., Krishna, A., & Al-Sinan, R. (2019). Beyond slacktivism: Examining the entanglement between social media engagement, empowerment, and participation in activism. International Journal of Strategic Communication, 13(3), 182–196. https://doi.org/10.1080/1553118X.2019.1621870
  • Strauss, A., & Corbin, J. (1998). Basics of qualitative research techniques. Sage Publications.
  • Thomas, C. (1999). Female Forms: Experiencing and understanding disability. Open University Press.
  • Treré, E. (2015). Reclaiming, proclaiming, and maintaining collective identity in the# YoSoy132 movement in Mexico: An examination of digital frontstage and backstage activism through social media and instant messaging platforms.. Information, Communication & Society, 18(8), 901–915. https://doi.org/10.1080/1369118X.2015.1043744
  • Trevisan, F. (2017). Disability rights advocacy online: Voice, empowerment and global connectivity. Taylor & Francis.
  • Vivienne, S. (2016). Digital identity and everyday activism: Sharing private stories with networked publics. Springer.
  • Zhang, R., & Fu, J. S. (2020). Privacy management and self-disclosure on social network sites: The moderating effects of stress and gender. Journal of Computer-Mediated Communication, 25(3), 236–251. https://doi.org/10.1093/jcmc/zmaa004

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.