808
Views
7
CrossRef citations to date
0
Altmetric
Articles

Exploring the value of involving experts-by-experience in social work research: experiences from Slovenia and the UK

Raziskovanje vrednosti vključevanja ljudi z osebno izkušnjo v raziskovanje v socialnem delu: izkušnje iz Slovenije in Združenega kraljestva

&

References

  • Arnstein, S. R. (1969). A ladder of citizen participation. Journal of the American Institute of Planners, 35, 216–224. doi: 10.1080/01944366908977225
  • Banks, S., & Barnes, D. (2009). Planning research and evaluation projects in social work. In R. Adams, L. Dominelli, & M. Payne (Eds.), Practising social work in a complex world (pp. 257–271). London: Palgrave: Macmillan.
  • Barnes, M., & Bowl, R. (2001). Taking over the asylum: Empowerment and mental health. New York, NY: Palgrave.
  • Beresford, P. (2000). Service user’ knowledge and social work theory. British Journal of Social Work, 30, 489–503. doi: 10.1093/bjsw/30.4.489
  • Beresford, P. (2001). Social work and social care: The struggle for knowledge. Educational Action Research, 9, 343–354. doi: 10.1080/09650790100200158
  • Beresford, P., & Croft, S. (1993). Citizen involvement: A practice guide for change. London: Macmillan Press.
  • Bratec, J., & Kos, H. (2011). Kvaliteta dela in življenja odraslih oseb z invalidnostjo, uporabnikov socialnih storitev [Quality of work and living for adult people with disabilities that use social services]. Sonček, 2, March. 9–14.
  • Carers-one-to-one-Link. (2003). Cool recovery for carers. Exeter: Authors. Retrieved January 1, 2013, from http://www.coolrecovery.org.uk/recoveryforcarers.php
  • Cigoj, N. (2009). Možnosti zaposlovanja ljudi s težavami v duševnem zdravju [Employment possibilities for people with mental health difficulties]. Unpublished. Razpis MOL. Prijavitelj društvo Mostovi.
  • CSIP, RCPsysch, SCIE. (2007). A common purpose: Recovery in future mental health services. London: Author. Retrieved August 7, 2011, from http://www.scie.org.uk/publications/positionpapers/pp08.pdf
  • Department of Health. (2006). Our health, our care, our say. London: HMSO.
  • Department of Health. (2011). No health without mental health: Delivering better mental health outcomes for people of all ages. London: HMSO. Retrieved July 1, 2011, from www.dh.gov.uk/publications
  • Evans, C., & Fisher, M. (1999). User controlled research and empowerment. In W. Shera & W. Wells (Eds.), Empowerment practice in social work: Developing richer conceptual foundation (pp. 348–356). Toronto: Canadien Scholars’ Press.
  • Faulkner, A. (2010). Summary changing our worlds: Examples of user-controlled research in action. Eastleigh: INVOLVE. Retrieved June 2012, from www.invo.org
  • Flaker, V., Rode, N., Jurančič, I., Vončina, M., Škerjanc, J., Kavar-Vidmar, A., … Šircelj, J. (1999). Oblike bivanja za odrasle ljudi, ki potrebujejo organizirano skrb in podporo: analiza in predlog ukrepov [Forms of living for adult service users who need support for independent living: Analysis and proposal measures] (Research report). Ljubljana: Faculty of Social Work.
  • Flemming, J., & Ward, D. (1999). Research as empowerment: The social action approach. Toronto: Canadian Scholars’ Press.
  • Fox, J. (2009). A participatory action research project evaluating a Carers’ Representation Group – carers against stigma. Mental Health Review Journal, 14, 25–35. doi: 10.1108/13619322200900024
  • Fox, J. (2013). An exploration of the role of carers in the recovery of people with schizophrenia (PhD). Cambridge: Anglia Ruskin University.
  • Fox, J. (2015). The contribution of experiential wisdom to the development of the mental health professional discourse. Schizophrenia Bulletin. doi:10.1093/schbul/sbv082
  • Fox, J., Ramon, S., & Morant, N. (2015). Exploring the meaning of recovery for carers: Implications for social work practice. The British Journal of Social Work, 45(suppl. 1), i117–i134. doi:10.1093/bjsw/bcv109
  • Freire, P. (1970). Pedagogy of the oppressed. New York, NY: Seabury Press.
  • Goffman, E. (1961). Asylums: Essays on the social situation of mental patients and other inmates. Garden City, NY: Anchor Books.
  • Grebenc, V. (2014). Understanding the needs of older people: Shifting toward more community based responses. Revija socialna politika, 21(2), 133–160.
  • Grebenc, V., & Šabič, A. (2013). Ljubljanske zgodbe: biografije navadnih ljudi [Stories form Ljubljana: Biographies of ordinary people]. Ljubljana: Fakulteta za socialno delo.
  • Haaster, van H., & Koster, Y. (2007). Philosophy of curriculum. In van H. P. M. Haaster (Ed.), Training programme for people with experience in the mental health crisis to work as a trainer and peer supporter (pp. 8). Retrieved March 4, 2008, from http://www.ex-in.info/produkte2.php?WEBYEP_DI=5. EX IN_Modules_Curriculum_engl.pdf file
  • Hanley, B., Bradburn, J., Barnes, M., Evans, C., Goodare, H., Kelson, M., … Wallcraft, J. (2000, 2004, 2012). Involving the public in NHS, public health, and social care research: Briefing notes for researchers. London: INVOLVE. Retrieved July 2006, from http://www.invo.org.uk/wp-content/uploads/2012/04/INVOLVEBriefingNotesApr2012.pdf
  • Heron, J. (1996). Co-operative inquiry: Research into the human condition. London: SAGE.
  • Home, A. (1999). Group empowerment: An elusive goal. In W. Shera & L. M. Wells (Eds.), Empowerment practice in social work: Developing richer conceptual foundation (pp. 234–246). Toronto: Canadien Scholars’ Press.
  • Hughes, R., & Huby, M. (2004). The construction and interpretation of vignettes in social research. Social Work and Social Sciences Review, 11, 36–51.
  • Humphries, B. (2001). Putting participative research into practice. Care Plan, March, 23–25.
  • Kilyon, J., & Smith, T. (Eds.). (2009). A straight talking introduction to caring for someone with mental health problems. Ross-on-Wye: PCCS Books.
  • Lamovec, T. (1995). Ko rešitev postane problem in zdravilo postane strup: nove oblike skrbi za osebe v duševni krizi [When solutions become the problem and the medicine becomes the poison: New forms of support for people in mental crisis]. Ljubljana: Lumi. Repinted 2006 by Faculty of Social Work.
  • Levin, E. (2004). Involving service users and carers in social work education. Resource guide no 2. London: Social Care Institute for Excellence. Retrieved July 20, 2007, from http://www.scie.org.uk/publications/guides/guide04/
  • Maglajlić, R. A. (2007). Cross National Co-operative inguriy of social work education in England and Bosnia and Hercegovina (Ph.D. dissertation). Anglia Ruskin University, England.
  • Mayer, J., & Timms, N. (1970). The client speaks: Working class impressions of casework. London: Routledge.
  • Mental Health Research Network. (2012). Good practice guidance for involving carers, family members and close friends of service users in research. London: Author. Retrieved September 12, 2012, from http://www.mhrn.info/pages/reports.html
  • Morgan, D. L. (1998). The focus group guidebook. Focus group kit 1. Thousand Oaks, CA: Sage.
  • Nicholls, V. (2001). Doing research ourselves: A report on the strategies for living support project. London: The Mental Health Foundation, Strategies for Living.
  • Oliver, M. (1992). Changing the social relations of research production? Disability, Handicap & Society, 7, 101–114. doi: 10.1080/02674649266780141
  • Pečarič, E. (2004). Neodvisno življenje [Independent living]. Ljubljana: YHD.
  • Ramon, S. (1991). Principles and conceptual knowledge. In S. Ramon (Ed.), Beyond community care: Normalisation and integration work (pp. 6–33). Basingstoke: Macmillan and Mind.
  • Ramon, S. (Ed.). (2003). Users researching health and social care: An empowering agenda. Birmingham: Venture Press.
  • Rapp, C. A. (1992). The strengths perspective of case management with people suffering from severe mental illness. In D. Saleeby (Ed.), The strengths approach in social work (pp. 45–48). New York, NY: Longman.
  • Rapp, C. A., & Goscha, R. J. (2012). The strengths model: A recovery oriented approach to mental health services. Oxford: Oxford University Press.
  • Reason, P. (1994). Human inquiry. London: Palgrave Macmillan.
  • Rose, D. (2001). Users’ voices: The perspectives of mental health service users on community and hospital care. London: The Sainsbury Centre for Mental Health.
  • Schafer, T. (2003). Researching user empowerment in practice: Lessons from the field. In S. Ramon (Ed.), Users researching health and social care: An empowering agenda (pp. 97–110). Birmingham: Venture Press.
  • Schultz, D. (2007). Resource- and resilience-oriented work with immigrant and black patients. In D. Zaviršek, J. Zorn, L. Rihter, & S. Žnidarec Demšar (Eds.), Ethnicity in Eastern Europe: A challenge for social work education (pp. 63–85). Ljubljana: Faculty of Social Work.
  • Scottish Recovery Network. (2009). Carers and supporting recovery: A report commissioned by the Scottish Recovery Network. Glasgow: Author. Retrieved September 1, 2009, from www.scottishrecovery.net
  • Slade, M., Bird, V., Chandler, R., Fox, J., Larsen, J., Tew, J., & Leamy, M. (2010). The contribution of advisory committees and public involvement to large studies: Case study. BMC Health Services Research, 10, 220–332. doi: 10.1186/1472-6963-10-220
  • Staley, K. (2009). Exploring impact: Public involvement in NHS, public health and social care research. INVOLVE: Eastleigh Involve. Retrieved June 2012, from www.invo.org
  • Sweeney, A., & Morgan, L. (2009). The levels and stages of service user/survivor involvement in research. In J. Wallcraft, B. Schrank, & M. Amering (Eds.), Handbook of service user involvement in mental health research (pp. 25–35). Chichester: Wiley and Blackwell.
  • Thompson, N. (2002). Social movements, social justice and social work. British Journal of Social Work, 32, 711–722. doi: 10.1093/bjsw/32.6.711
  • Uhm, S., Liabo, K., Stewart, R., Rees, R., & Oliver, S. (2012). Patient and public perspectives shaping scientific and medical research: Panels for data, discussions, and decisions. Patient Intelligence, 4, 1–10.
  • Urek, M. (2005). Zgodbe na delu: pripovedovanje, zapisovanje in poročanje v socialnem delu [Stories in social work: Narration, records and reports in social work]. Ljubljana: *Cf.
  • Van Haaster, H., & Koster, Y. (Eds.). (2005). What is an expert by experience? Retrieved February 4, 2008, from http://www.ex-in.info/hinterground.php-expert_by_experience.pdf
  • Videmšek, P. (2009). From the margin to the centre: Service users as researchers in social work practice. In V. Leskošek (Ed.), Theories and methods of social work. Exploring different perspectives (pp. 179–194). Ljubljana: Faculty of Social Work.
  • Videmšek, P. (2011). Vpliv ljudi s težavami v duševnem zdravju na delovanje skupnostnih služb za duševno zdravje v Sloveniji [Influence of people with mental ill-health on the operation of social services in Slovenia] (Doctoral dissertation). Ljubljana: Faculty of Social Work.
  • Videmšek, P. (2013). From the margin to the centre: Service users as researchers in social work practice. In V. Leskošek (Ed.), Theories and methods of social work. Exploring different perspectives (pp. 179–194). Ljubljana: Faculty of Social Work.
  • Videmšek, P. (2014). From definition to action: Empowerment as a tool for change in social work practice. In A. L. Matthies & L. Uggerhøj (Eds.), Participation, marginalization and welfare services: Concepts, politics and practices across European countries (pp. 63–76). Farnham, MD: Ashgate.
  • Videmšek, P. (2017). Expert by experience research as grounding for social work education. Social Work Education. doi:10.1080/02615479.2017.1280013
  • Vodopivec, K. (1959). Priročniku iz metodike socialnega dela [Handbook of social work methodology]. Ljubljana: Faculty of Social Work.
  • Willis Commission. (2012). Quality with compassion: The future of nursing education. Report of the Willis Commission on nursing education. London: Royal College of Nursing. Retrieved December 5, 2014, from www.rcn.org.uk/williscommission
  • Worthington, A., & Rooney, P. (2009). Triangle of care: Carers included: A guide to best practice in acute mental health care. London: National Mental Health Development Unit and The Princess Royal Trust for Carers.
  • Zaviršek, D., & Videmšek, P. (2009). Service user involvement in research and teaching: Is there a place for it in Eastern European social work? Zagreb: Ljetopis socialnog rada, 16, 189–207.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.