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Original Article

Being in control of Parkinson’s disease: A qualitative study of community-dwelling patients’ coping with changes in care

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Pages 138-145 | Received 24 Nov 2016, Accepted 21 Feb 2018, Published online: 23 Mar 2018

References

  • Goldman JG, Postuma R. Premotor and nonmotor features of Parkinson's disease. Curr Opin Neurol. 2014;27:434–441.
  • van der Marck MA, Bloem BR. How to organize multispecialty care for patients with Parkinson's disease. Parkinsonism Relat Disord. 2014;20(Suppl 1):S167–S173.
  • Coleman EA, Boult C; American Geriatrics Society Health Care Systems Committee. Improving the quality of transitional care for persons with complex care needs. J Am Geriatr Soc. 2003;51:556–557.
  • Kripalani S, Jackson AT, Schnipper JL, et al. Promoting effective transitions of care at hospital discharge: a review of key issues for hospitalists. J Hosp Med. 2007;2:314–323.
  • Kripalani S, LeFevre F, Phillips CO, et al. Deficits in communication and information transfer between hospital-based and primary care physicians: implications for patient safety and continuity of care. JAMA. 2007;297:831–841.
  • Doos L, Bradley E, Rushton CA, et al. Heart failure and chronic obstructive pulmonary disease multimorbidity at hospital discharge transition: a study of patient and carer experience. Health Expect. 2015;18:2401–2412.
  • Guassora AD, Jarlbaek L, Thorsen T. Preparing general practitioners to receive cancer patients following treatment in secondary care: a qualitative study. BMC Health Serv Res. 2015;15:202.
  • Coleman EA, Smith JD, Frank JC, et al. Development and testing of a measure designed to assess the quality of care transitions. Int J Integr Care. 2002;2:e02.
  • Reeve J, Cooper L. Rethinking how we understand individual healthcare needs for people living with long-term conditions: a qualitative study. Health Soc Care Community. 2016;24:27–38.
  • Geijer RM, Tuut MK, in't Veen JC, et al. [The NHG guidelines 'Adult asthma' and 'COPD']. Ned Tijdschr Geneeskd. 2015;159:A9076.
  • Bouma M, Rutten GE, de Grauw WJ, et al. [Summary of the practice guideline 'Diabetes mellitus type 2′ (second revision) from the Dutch college of general practitioners]. Ned Tijdschr Geneeskd. 2006;150:2251–2256.
  • den Brok MG, van Dalen JW, van Gool WA, et al. Apathy in Parkinson's disease: a systematic review and meta-analysis. Mov Disord. 2015;30:759–769.
  • Getz SJ, Levin B. Cognitive and neuropsychiatric features of early Parkinson's disease. Arch Clin Neuropsychol. 2017;32:769–785.
  • Stange KC, Ferrer RL. The paradox of primary care. Ann Fam Med. 2009;7:293–299.
  • Plouvier AO, Olde Hartman TC, van Weel C, et al. Transitions in Parkinson's disease in primary care: protocol of a longitudinal mixed methods study. BMJ Open. 2015;5:e007171.
  • Plouvier AOA, Olde Hartman TC, Verhulst CEM, et al. Parkinson's disease: patient and general practitioner perspectives on the role of primary care. Fam Pract. 2017;34:227–233.
  • Hoehn MM, Yahr MD. Parkinsonism: onset, progression and mortality. Neurology. 1967;17:427–442.
  • Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
  • Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant. 2002;36:391–409.
  • Huber M, Knottnerus JA, Green L, et al. How should we define health? BMJ. 2011;343:d4163.
  • Kang MY, Ellis-Hill C. How do people live life successfully with Parkinson's disease? J Clin Nurs. 2015;24:2314–2322.
  • Navarta-Sanchez MV, Caparros N, Fernandez MR, et al. Core elements to understand and improve coping with Parkinson's disease in patients and family carers: a focus group study. J Adv Nurs. 2017;73:2609–2621.
  • Robottom BJ, Gruber-Baldini AL, Anderson KE, et al. What determines resilience in patients with Parkinson's disease? Parkinsonism Relat Disord. 2012;18:174–177.
  • Kralik D, Koch T, Price K, et al. Chronic illness self-management: taking action to create order. J Clin Nurs. 2004;13:259–267.
  • Davies F, Edwards A, Brain K, et al. 'You are just left to get on with it': qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis. BMJ Open. 2015;5:e007674.
  • Uebelacker LA, Epstein-Lubow G, Lewis T, et al. A survey of Parkinson's disease patients: most bothersome symptoms and coping preferences. J Parkinsons Dis. 2014;4:717–723.
  • Haahr A, Kirkevold M, Hall EO, et al. Living with advanced Parkinson's disease: a constant struggle with unpredictability. J Adv Nurs. 2011;67:408–417.
  • van der Eijk M, Faber MJ, Al Shamma S, et al. Moving towards patient-centered healthcare for patients with Parkinson's disease. Parkinsonism Relat Disord. 2011;17:360–364.