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RESEARCH REPORT

Psychosocial Adjustment to Visual Loss in Patients with Retinitis Pigmentosa

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Pages 25-30 | Accepted 12 Oct 2006, Published online: 08 Jul 2009

REFERENCES

  • Heckenlively J R. Retinitis pigmentosa. JB Lippincott, Philadelphia 1988; 68–89
  • Szlyk J P, Fishman G A, Alexander K R, Revelins B I, Derlacki D J, Anderson R J. Relationship between difficulty in performing daily activities and clinical measures of visual function in patients with retinitis pigmentosa. Arch Ophthalmol. 1997; 115: 53–59
  • Ruther K, Banhart F, Kremmer B, Aptelstedt-Bylla E, Zrenner E. Social ophthalmologic aspects of retinitis pigmentosa. Ophthalmologe. 1995; 92: 704–707
  • Turano K A, Geruschat D R, Stahl J W, Massof R W. Perceived visual ability for visual mobility in persons with retinitis pigmentosa. Invest Ophthalmol Vis Sci. 1999; 40: 865–877
  • Szlyk J P, Seiple W, Fishman G A, Alexander K R, Grover S, Mahler C L. Perceived and actual performance of daily tasks: relationship to visual function tests in individuals with retinitis pigmentosa. Ophthalmology. 2001; 108: 65–75
  • Nemshick L A, Vernon M C, Ludman F. The impact of retinitis pigmentosa on young adults: psychosocial, educational, vocational, and social considerations. J Vis Impair Blind. 1986; 80: 859–862
  • Wainapel S F. Attitudes of visually impaired persons toward cane use. J Vis Impair Blind. 1989; 83: 446–448
  • Reis J B. The psychological experience of retinitis pigmentosa. Diss Abstr Int. 1996; 57: 1504–1
  • Antonak R F, Livneh H. Psychosocial adaptation to disability and its investigation among persons with multiple sclerosis. Soc Sci Med. 1995; 40: 1099–1108
  • Allen M. Adjusting to visual impairment. J Ophthalmic Nurs Technol. 1990; 9: 47–51
  • Broman A T, Munoz B, Rodriguez J, Sanchez R, Quigley H A, Klein R, et al. The impact of visual impairment and eye disease on vision-related quality of life in a Mexican-American population: Proyecto VER. Invest Ophthalmol Vis Sci. 2002; 43: 3393–3398
  • Wulsin L R, Jacobson A M, Rand L I. Psychosocial adjustment to advanced proliferative diabetic retinopathy. Diabetes Care. 1993; 16: 1061–1066
  • Heller B W, Flohr L M, Zegans L S. Psychosocial interventions with sensorially disabled persons. Grune and Stratton, New York 1987
  • Derogatis L R, Fleming M P. Psychological adjustment to illness scale: PAIS and PAIS-SR. Quality of life and pharmacoeconomics in clinical trials, 2nd ed, B Spilker. Lippincott-Raven, Philadelphia 1996
  • Globe D R, Levin S, Chang T S, Mackenzie P J, Azen S. Validity of the SF-12 quality of life instrument in patients with retinal diseases. Ophthalmology 2002; 109: 1793–1798
  • Stelmack J A, Stelmack T R, Massof R W. Measuring low-vision rehabilitation outcomes with the NEI-VFQ-25. Invest Ophthalmol Vis Sci 2002; 43: 2859–2868
  • Derogatis L R, Lopez M C. The psychosocial adjustment to illness scale: administration, scoring, and procedures manual—I. Clinical Psychometric Research, Inc., Towson 1991
  • Rodrigue J R, Kanasky W F, jr, Jackson S I, Perri M G. The Psychosocial Adjustment to Illness Scale-Self-Report: factor structure and item stability. Psychol Assess 2000; 12: 409–413
  • Szlyk J P, Fishman G A, Master S P, Alexander K R. Peripheral vision screening for driving in retinitis pigmentosa patients. Ophthalmology. 1991; 98: 612–618
  • Scott I U, Schein O D, Feur W J, Folstein M F, Bandeen-Roche K. Emotional distress in patients with retinal disease. Am J Ophthalmol. 2001; 131: 584–589

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