Clinical utility of the ECLECTIC framework in providing culturally-informed autism spectrum disorder evaluations: A pediatric case-based approach

References

• American Education Research Association, American Psychological Association, & the National Council on Measurement in Education. (2014). Standards for educational and psychological testing (2nd ed.). American Education Research Association.
   Google Scholar
• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.).
   Google Scholar
• American Psychological Association. (2017a). Ethical principles of psychologists and code of conduct (2002, amended effective June 1, 2010, and January 1, 2017). https://www.apa.org/ethics/code/
   Google Scholar
• American Psychological Association. (2017b). Multicultural guidelines: An ecological approach to context, identity, and intersectionality. http://www.apa.org/about/policy/multicultural-guidelines.pdf
   Google Scholar
• Attwood, T. (2006). Asperger syndrome and girls: The pattern of abilities and development of girls with asperger’s syndrome. Future Horizons.
   Google Scholar
• Bernier, R., Mao, A., & Yen, J. (2010). Psychopathology, families, and culture: Autism. Child and Adolescent Psychiatric Clinics of North America, 19, 855–867. https://doi.org/https://doi.org/10.1016/j.chc.2010.07.005
   PubMed Web of Science ®Google Scholar
• Bernier, R., Mao, A., & Yen, J. (2010). Psychopathology, families, and culture: autism. Child Adolesc Psychiatr Clin N Am, 19(4), 855–867. https://doi.org/https://doi.org/10.1016/j.chc.2010.07.005
   PubMed Web of Science ®Google Scholar
• Blanche, E. I., Diaz, J., Barretto, T., & Cermak, S. A. (2015). Caregiver experiences of Latino families with autism spectrum disorder. American Journal of Occupational Therapy, 69(5), 6905185010p1. https://doi.org/https://doi.org/10.5014/ajot.2015.017848
   PubMed Web of Science ®Google Scholar
• Burkett, K., Morris, E., Manning-Courtney, P., Anthony, J., & Shambley-Ebron, D. (2015). African American families on autism diagnosis and treatment: The influence of culture. Journal of Autism and Developmental Disorders, 45, 3244–3254. https://doi.org/https://doi.org/10.1007/s10803-015-2482-x
   PubMed Web of Science ®Google Scholar
• Canas, A., Bordes Edgar, V., & Neumann, J. (2020). Practical considerations in the Neuropsychological Assessment of Bilingual (Spanish-English) Children in the United States: Literature review and case series. Developmental Neuropsychology, 45(4), 211–231. https://doi.org/https://doi.org/10.1080/87565641.2020.1746314
   PubMed Web of Science ®Google Scholar
• Cardenas, A., Villavicencio, L., & Pavuluri, M. (2017). Considerations in the neuropsychological evaluation and treatment of children with limited English proficiency. The Permanente Journal, 21(3), 16–149. https://doi.org/https://doi.org/10.7812/TPP/16-149
   PubMedGoogle Scholar
• Committee on Practice and Ambulatory Medicine, American Academy of Pediatrics (AAP) Bright Futures Periodicity Schedule Workgroup. (2020). 2020 recommendations for preventive pediatric health care. Pediatrics, 145(3), e20200013.
   PubMedGoogle Scholar
• Constantino, J. N., Abbacchi, A. M., Saulnier, C., Klaiman, C., Mandell, D. S., Zhang, Y., Hawks, Z., Bates, J., Klin, A., Shattuck, P., Molholm, S., Fitzgerald, R., Roux, A., Lowe, J. K., & Geschwind, D. H. (2020). Timing of the diagnosis of autism in African American children. Pediatrics, 146 (3), e20193629. https://doi.org/https://doi.org/10.1542/peds.2019-3629
   PubMed Web of Science ®Google Scholar
• Cormier, D., Davidson, E., Young, A., & Augustyn, M. (2018). A young man with Trisomy 21 and sudden behavioral changes. Journal of Developmental and Behavioral Pediatrics, 39, 1–3.
   PubMed Web of Science ®Google Scholar
• Cory, J. M. (2021). White privilege in neuropsychology: An 'invisible knapsack' in need of unpacking? The Clinical Neuropsychologist, 35(2), 206–213. https://doi.org/https://doi.org/10.1080/13854046.2020.1801845
   PubMed Web of Science ®Google Scholar
• Daugherty, J. C., Puente, A. E., Fasfous, A. F., Hidalgo-Ruzzante, N., & Pérez-Garcia, M. (2017). Diagnostic mistakes of culturally diverse individuals when using North American neuropsychological tests. Applied Neuropsychology Adult, 24, 16–22. https://doi.org/https://doi.org/10.1080/23279095.2015.1036992
   PubMed Web of Science ®Google Scholar
• Dean, M., Harwood, R., & Kasari, C. (2017). The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder. Autism, 21(6), 678–689. https://doi.org/https://doi.org/10.1177/1362361316671845
   PubMed Web of Science ®Google Scholar
• Dean, M., Kasari, C., Shih, W., Frankel, F., Whitney, R., Landa, R., Lord, C., Orlich, F., King, B., & Harwood, R. (2014). The peer relationships of girls with ASD at school: comparison to boys and girls with and without ASD. Journal of Child Psychology and Psychiatry, 55(11), 1218–1225. https://doi.org/https://doi.org/10.1111/jcpp.12242
   PubMed Web of Science ®Google Scholar
• Denmark, T., Atklnson, J., Campbell, R., & Swettenham, J. (2019). Signing with the face: Emotional expression in narrative production in deaf children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 49, 294–306. https://doi.org/https://doi.org/10.1007/s10803-018-3756-x
   PubMed Web of Science ®Google Scholar
• Durkin, M. S., Maenner, M. J., Baio, J., Christensnen, D., Daniels, J., Fitzgerald, R., Imm, P., Lee, L., Schieve, L. A., Braun, K. V. N., Wingate, M. S., & Yeargin-Allsopp, M. (2017, November). Autism spectrum disorder among US children (2002–2010): Socioeconomic, racial, and ethnic disparities. American Journal of Public Health, 107(11), 1818–1826. https://doi.org/https://doi.org/10.2105/AJPH.2017.304032
   PubMed Web of Science ®Google Scholar
• Dyches, T. T. (2011). Assessing diverse students with autism and the role of SLPs: ASHA documents offer guidance. Leader, 16, 11–15. www.asha.org/leader.aspx.
   Google Scholar
• El-Ghoroury, N. H., & Krackow, E. (2012). Enhancing the identification of autism spectrum disorders via a model of culturally sensitive childhood assessment. Professional Psychology: Research and Practice, 43(3), 249–255. https://doi.org/https://doi.org/10.1037/a0027354
   Web of Science ®Google Scholar
• Elsabbagh, M., Divan, G., Koh, Y., Kim, Y. S., Kauchali, S., Marcin, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T., & Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5, 160–179. https://doi.org/https://doi.org/10.1002/aur.239
   PubMed Web of Science ®Google Scholar
• Farver, J. M., Kim, Y. K., & Lee, Y. (1995). Cultural differences in Korean- and Anglo-American preschoolers' social interaction and play behaviors. Child Development, 66, 1088–1099. https://doi.org/https://doi.org/10.2307/1131800
   PubMed Web of Science ®Google Scholar
• Fujii, D. E. M. (2018). Developing a cultural context for conducting a neuropsychological evaluation within a culturally diverse client: the ECLECTIC framework. The Clinical Neuropsychologist, 32(8), 1356–1392. https://doi.org/https://doi.org/10.1080/13854046.2018.1435826
   PubMed Web of Science ®Google Scholar
• Harrison, A. J., Long, K. A., Tommet, D. C., & Jones, R. N. (2017). Examining the role of race, ethnicity, and gender on social and behavioral ratings within the Autism Diagnostic Observation Schedule. Journal of Autism and Developmental Disorders, 47(9), 2770–2782. https://doi.org/https://doi.org/10.1007/s10803-017-2176-3
   PubMed Web of Science ®Google Scholar
• Hobson, J. A., Tarver, L., Beurkens, N., & Hobson, R. P. (2016). The relation between severity of autism and caregiver-child interaction: A study in the context of relationship development intervention. Journal of Abnormal Child Psychology, 44(4), 745–755. https://doi.org/https://doi.org/10.1007/s10802-015-0067-y
   PubMed Web of Science ®Google Scholar
• Ilias, K., Cornish, K., Kummar, A. S., Park, M. S., & Golden, K. J. (2018). Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in Psychology, 9 (, 280. https://doi.org/https://doi.org/10.3389/fpsyg.2018.00280
   PubMed Web of Science ®Google Scholar
• Interagency Autism Coordinating Committee (IACC). (2020). IACC strategic plan for autism spectrum disorder (ASD) 2018–2019 update. http://iacc.hhs.gov/strategic-plan/2019/.
   Google Scholar
• International Test Commission. (2010). International test commission guidelines for translating and adapting tests. http://www.intestcom.org
   Google Scholar
• Kids Count Data Center. (2018, January 11). The number of bilingual kids in America continues to rise. https://datacenter.kidscount.org/updates/show/184-the-number-of-bilingual-kids-in-america-continues-to-rise
   Google Scholar
• Kopp, S., & Gillberg, C. (1992). Girls with social deficits and learning problems: autism, atypical Asperger syndrome or a variant of these conditions. European Child & Adolescent Psychiatry, 1, 89–99. https://doi.org/https://doi.org/10.1007/BF02091791
   PubMedGoogle Scholar
• La Roche, M. J., Bush, H. H., & D'Angelo, E. (2018). The assessment and treatment of autism spectrum disorder: A cultural examination. Practice Innovations, 3(2), 107–122. https://doi.org/https://doi.org/10.1037/pri0000067
   Google Scholar
• Landa, R. J. (2018). Efficacy of early interventions for infants and young children with, and at risk for, autism spectrum disorders. International Review of Psychiatry, 30(1), 25–39. https://doi.org/https://doi.org/10.1080/09540261.2018.1432574
   PubMed Web of Science ®Google Scholar
• Leeuw, A. D., Happe, F., & Hoekstra, R. A. (2020). A conceptual framework for understanding the cultural and contextual factors on autism across the globe. Autism Research, 13(7), 1029–1022. https://doi.org/https://doi.org/10.1002/aur.2276
   PubMed Web of Science ®Google Scholar
• Lipkin, P. H., Macias, M. M., & American Academy of Pediatrics (AAP) Council on Children with Disabilities, section on Developmental Behavioral Pediatrics. (2020). Promoting optimal development: Identifying infants and young children with developmental disorders through developmental surveillance and screening. Pediatrics, 145(1), e20193449. https://doi.org/https://doi.org/10.1542/peds.2019-3449
   PubMed Web of Science ®Google Scholar
• Lopez, K., Marroquin, J. M., & Gutierrez, C. (2020). Methods to decrease disparities in age of autism diagnosis and treatment access among Latinx children. Social Work, 65(2), 140–148. https://doi.org/https://doi.org/10.1093/sw/swaa012
   PubMed Web of Science ®Google Scholar
• Lund, E. M., Kohlmeier, T. L., & Duran, L. K. (2017). Comparative language development in bilingual and monolingual children with autism spectrum disorder: A systematic review. Journal of Early Intervention, 39(2), 106–124. doi: https://doi.org/10.1177/1053815117690871.
   Web of Science ®Google Scholar
• Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRenzo, M., Christensen, D. L., Wiggins, L. D., Pettygrove, S., Andrews, J. G., Lopez, M., Hudson, A., Baroud, T., Schwenk, Y., White, T., Rosenberg, C. R., Lee, L., Harrington, R. A., et al. (2020). Prevalence of autism spectrum disorder among children aged 8 years- Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016. MMWE Surveill Summ, 69(SS-4), 1–12. https://doi.org/https://doi.org/10.15585/mmwr.ss6904a1
   Web of Science ®Google Scholar
• Mandell, D. S., Ittenbach, R. F., Levy, S. E., & Pinto-Martin, J. A. (2007). Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1795–1802. https://doi.org/https://doi.org/10.1007/s10803-006-0314-8
   PubMed Web of Science ®Google Scholar
• Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., Giarelli, E., Morrier, M. J., Nicholas, J. S., Pinto-Martin, J. A., Shattuck, P. T., Thomas, K. C., Yeargin-Allsopp, M., & Kirby, R. S. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99, 493–498. https://doi.org/https://doi.org/10.2105/AJPH.2007.131243
   PubMed Web of Science ®Google Scholar
• Mesman, J., & Groeneveld, M. G. (2018). Gendered parenting in early childhood: Subtle unmistakable if you know where to look. Child Development Perspectives, 12(1), 22–27. https://doi.org/https://doi.org/10.1111/cdep.12250
   Web of Science ®Google Scholar
• Nisbett, R. E., Peng, K., Choi, I., & Norenzayan, A. (2001). Culture and systems of thought: Holistic versus analytic cognition. Psychological Review, 108, 291–310. https://doi.org/https://doi.org/10.1037/0033-295x.108.2.291
   PubMed Web of Science ®Google Scholar
• Nowell, K. P., Brewton, C. M., Allain, E., & Mire, S. S. (2015). The influence of demographic factors on the identification of autism spectrum disorder: A review and call for research. Review Journal of Autism and Developmental Disorders, 2(3), 300–309. https://doi.org/https://doi.org/10.1007/s40489-015-0053-x
   Web of Science ®Google Scholar
• Pearson, J. N., & Meadan, H. (2018). African American parents’ perceptions of diagnosis and services for children with autism. Education and Training in Autism and Developmental Disabilities, 53(1), 17–32.
   Web of Science ®Google Scholar
• Pittenger, A. A., Erklin, S., & Wodka, E. L. (2019). The influence of demographic and child characteristics on referral for neuropsychological evaluation. Archives of Clinical Neuropsychology, 34(8), 1418–1424. https://doi.org/https://doi.org/10.1093/arclin/acy107
   PubMed Web of Science ®Google Scholar
• Rachubinski, A., Hepburn, S., Elias, E., Gardiner, K., & Shaikh, T. (2017). The co-occurrence of DS and autism spectrum disorder: Is it because of additional genetic variations? Prenatal Diagnosis, 37(1), 31–36. https://doi.org/https://doi.org/10.1002/pd.4957
   PubMed Web of Science ®Google Scholar
• Rothe, E. M., Tzuang, D., & Pumariega, A. J. (2010). Acculturation, development, and adaptation. Child and Adolescent Psychiatric Clinics of North America, 19, 681–696. https://doi.org/https://doi.org/10.1016/j.chc.2010.07.002
   PubMed Web of Science ®Google Scholar
• Salinas, C. M., Edgar, V. B., & Puente, A. E. (2016). Barriers and practical approaches to neuropsychological assessment of Spanish speakers. In F. R. Ferraro (Ed.), Studies on neuropsychology, neurology and cognition. Minority and cross-cultural aspects of neuropsychological assessment: Enduring and emerging trends (pp. 229–258). Taylor & Francis.
   Google Scholar
• Schieve, L. A., Boulet, S. L., Blumberg, S. J., Kigan, M. D., Yeargin-Allsopp, M., Boyle, C. A., Visser, S. N., & Rice, C. (2012). Association between parental nativity and autism spectrum disorder among US-born non-Hispanic white and Hispanic children, 2007 National Survey of Children’s Health. Disability Health Journal, 5 (1), 18–25. https://doi.org/https://doi.org/10.1016/j.dhjo.2011.09.001
   PubMed Web of Science ®Google Scholar
• Shattuck, P. T., Durkin, M., & Maenner, M. (2009). Timing of identification among children with an autism spectrum disorder: findings from a population-based surveillance study. Journal of the American Academy of Child and Adolescent Psychiatry, 48(5), 474–483. https://doi.org/https://doi.org/10.1097/CHI.0b013e31819b3848
   PubMed Web of Science ®Google Scholar
• Shorey, S., Ng, E. D., Haugan, G., & Law, E. (2020). The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-analysis. Autism, 24(3), 591–604. https://doi.org/https://doi.org/10.1177/1362361319886513
   PubMed Web of Science ®Google Scholar
• Stein, D., Munir, K., Karweck, A., Davidson, E., & Stein, M. (2013). Developmental regression, depression, and psychosocial stress in an adolescent with DS. Journal of Developmental & Behavioral Pediatrics, 34(3), 216–218. https://doi.org/https://doi.org/10.1097/DBP.0b013e31828b2b42
   PubMed Web of Science ®Google Scholar
• Stoll, C., Palluel-Germain, R., Caldara, R., Lao, J., Dye, M. W., Aptel, F., & Pascalis, O. (2018, January). Face recognition is shaped by the use of sign language. The Journal of Deaf Studies and Deaf Education, 23(1), 62–70. https://doi.org/https://doi.org/10.1093/deafed/enx034
   PubMed Web of Science ®Google Scholar
• Sweet, J. J., Klipfel, K. K., Nelson, N. W., & Moberg, P. J. (2021). Professional practices, beliefs, and incomes of U.S. neuropsychologists: The AACN, NAN, SCN 2020 practice and “salary survey. The Clinical Neuropsychologist, 35(1), 7–80. https://doi.org/https://doi.org/10.1080/13854046.2020.1849803
   PubMed Web of Science ®Google Scholar
• Szarkowski, A., Mood, D., Shield, A., Wiley, S., & Yoshinaga-Itano, C. (2014). A summary of current understanding regarding children with autism spectrum disorder who are deaf or hard of hearing. Seminars in Speech and Language, 35(4), 241–259. https://doi.org/https://doi.org/10.1055/s-0034-1389097
   PubMed Web of Science ®Google Scholar
• Thurm, A., Farmer, C., Salzman, E., Lord, C., & Bishop, S. (2019). State of the field: Differentiating intellectual disability from autism spectrum disorder. Frontiers in Psychiatry, 10, 526. https://doi.org/https://doi.org/10.3389/fpsyt.2019.00526
   PubMed Web of Science ®Google Scholar
• Valicenti-McDermott, M., Tarshis, N., Schouls, M., Galdston, M., Hottinger, K., Seijo, R., Shulman, L., & Shinnar, S. (2013). Language differences between monolingual English and bilingual English-Spanish young children with autism spectrum disorders. Journal of Child Neurology, 28(7), 945–948. https://doi.org/https://doi.org/10.1177/0883073812453204
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2019, November 7). Autism spectrum disorders key facts. https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders.
   Google Scholar
• Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., Danielson, M. L., Bitsko, R. H., Blumberg, S. J., Kogan, M. D., & Boyle, C. A. (2019). Prevalence and trends of developmental disabilities among children in the United States: 2009–2017. Pediatrics, 144(4), e20190811. https://doi.org/https://doi.org/10.1542/peds.2019-0811
   PubMed Web of Science ®Google Scholar
• Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013). Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics, 132 (3), 445–453. doi: https://doi.org/10.1542/peds.2013-0383　
   PubMed Web of Science ®Google Scholar