Concordance of informant and self-reported ratings on the Frontal Systems Behavior Scale in adult survivors of pediatric brain tumor

References

• Barrett, R. D., McLellan, T. L., & McKinlay, A. (2013). Self versus family ratings of the Frontal Systems Behaviour Scale and measured executive functions: Adult outcomes following childhood traumatic brain injury. PloS One, 8(10), e76916. https://doi.org/10.1371/journal.pone.0076916
   PubMed Web of Science ®Google Scholar
• Bland, J. M., & Altman, D. G. (2003). Applying the right statistics: Analyses of measurement studies. Ultrasound in Obstetrics & Gynecology: The Official Journal of the International Society of Ultrasound in Obstetrics and Gynecology, 22(1), 85–93. https://doi.org/10.1002/uog.122
   PubMed Web of Science ®Google Scholar
• Brinkman, T. M., Krasin, M. J., Liu, W., Armstrong, G. T., Ojha, R. P., Sadighi, Z. S., Gupta, P., Kimberg, C., Srivastava, D., Merchant, T. E., Gajjar, A., Robison, L. L., Hudson, M. M., & Krull, K. R. (2016). Long-term neurocognitive functioning and social attainment in adult survivors of pediatric CNS tumors: Results from the St Jude Lifetime Cohort Study. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 34(12), 1358–1367. https://doi.org/10.1200/jco.2015.62.2589
   PubMed Web of Science ®Google Scholar
• Carroll, C., Watson, P., Spoudeas, H. A., Hawkins, M. M., Walker, D. A., Clare, I. C. H., Holland, A. J., & Ring, H. A. (2013). Prevalence, associations, and predictors of apathy in adult survivors of infantile (<5 years of age) posterior fossa brain tumors†. Neuro-Oncology, 15(4), 497–505. https://doi.org/10.1093/neuonc/nos320
   PubMed Web of Science ®Google Scholar
• Carvalho, J. O., Ready, R. E., Malloy, P., & Grace, J. (2013). Confirmatory factor analysis of the Frontal Systems Behavior Scale (FrSBe). Assessment, 20(5), 632–641. https://doi.org/10.1177/1073191113492845
   PubMed Web of Science ®Google Scholar
• Di Cara, M., Palmeri, R., Formica, C., Lo Buono, V., Andaloro, A., Bonanno, L., Romeo, L., Rifici, C., Bramanti, P., Marino, S., & Corallo, F. (2020). Assessment of insight in hospitalized neurological patient: Cognitive profile and mood disorder. Journal of Clinical Neuroscience: Official Journal of the Neurosurgical Society of Australasia, 79, 104–107. https://doi.org/10.1016/j.jocn.2020.07.050
   PubMed Web of Science ®Google Scholar
• Egan, K. N., Cohen, L. A., & Limbers, C. (2019). Parent–child agreement on the Behavior Rating Inventory of Executive Functioning (BRIEF) in a community sample of adolescents. Applied Neuropsychology. Child, 8(3), 264–271. https://doi.org/10.1080/21622965.2018.1438896
   PubMed Web of Science ®Google Scholar
• Fleiss, J. L. (1981). Balanced incomplete block designs for inter-rater reliability studies. Applied Psychological Measurement, 5(1), 105–112. https://doi.org/10.1177/014662168100500115
   Web of Science ®Google Scholar
• Fox, M. E., & King, T. Z. (2016). Pituitary disorders as a predictor of apathy and executive dysfunction in adult survivors of childhood brain tumors. Pediatric Blood & Cancer, 63(11), 2019–2025. https://doi.org/10.1002/pbc.26144
   PubMed Web of Science ®Google Scholar
• Grace, J., Stout, J. C., & Malloy, P. F. (1999). Assessing frontal lobe behavioral syndromes with the Frontal Lobe Personality Scale. Assessment, 6(3), 269–284. https://doi.org/10.1177/107319119900600307
   PubMed Web of Science ®Google Scholar
• Gregg, N., Arber, A., Ashkan, K., Brazil, L., Bhangoo, R., Beaney, R., Gullan, R., Hurwitz, V., Costello, A., & Yágüez, L. (2014). Neurobehavioural changes in patients following brain tumour: Patients and relatives perspective. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 22(11), 2965–2972. https://doi.org/10.1007/s00520-014-2291-3
   PubMed Web of Science ®Google Scholar
• Gudrunardottir, T., Lannering, B., Remke, M., Taylor, M. D., Wells, E. M., Keating, R. F., & Packer, R. J. (2014). Treatment developments and the unfolding of the quality of life discussion in childhood medulloblastoma: A review. Child’s Nervous System: ChNS: Official Journal of the International Society for Pediatric Neurosurgery, 30(6), 979–990. https://doi.org/10.1007/s00381-014-2388-5
   PubMed Web of Science ®Google Scholar
• Haller, O. C., Aleksonis, H. A., Krishnamurthy, L. C., & King, T. Z. (2022, November 22) White matter hyperintensities relate to executive dysfunction, apathy, but not disinhibition in long-term adult survivors of pediatric cerebellar tumor. NeuroImage. Clinical, 33, 102891. https://doi.org/10.1016/j.nicl.2021.102891
   PubMed Web of Science ®Google Scholar
• Kautiainen, R. J., Fox, M. E., & King, T. Z. (2021). The neurological predictor scale predicts adaptive functioning via executive dysfunction in young adult survivors of childhood brain tumor. Journal of the International Neuropsychological Society: JINS, 27(1), 1–11. https://doi.org/10.1017/s1355617720000624
   PubMed Web of Science ®Google Scholar
• Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. Guilford Publications.
   Google Scholar
• King, T. Z., Ailion, A. S., Fox, M. E., & Hufstetler, S. M. (2019). Neurodevelopmental model of long-term outcomes of adult survivors of childhood brain tumors. Child Neuropsychology: A Journal on Normal and Abnormal Development in Childhood and Adolescence, 25(1), 1–21. https://doi.org/10.1080/09297049.2017.1380178
   PubMed Web of Science ®Google Scholar
• King, T. Z., Wang, L., & Mao, H. (2015). Disruption of white matter integrity in adult survivors of childhood brain tumors: Correlates with long-term intellectual outcomes. PloS One, 10(7), e0131744. https://doi.org/10.1371/journal.pone.0131744
   PubMed Web of Science ®Google Scholar
• Lycke, M., Lefebvre, T., Pottel, L., Pottel, H., Ketelaars, L., Stellamans, K., Van Eygen, K., Vergauwe, P., Werbrouck, P., Cool, L., Boterberg, T., Liefhooghe, N., Schofield, P., & Debruyne, P. R. (2019). Subjective, but not objective, cognitive complaints impact long-term quality of life in cancer patients. Journal of Psychosocial Oncology, 37(4), 427–440. https://doi.org/10.1080/07347332.2018.1504154
   PubMed Web of Science ®Google Scholar
• McCurdy, M. D., Turner, E. M., Barakat, L. P., Hobbie, W. L., Deatrick, J. A., Paltin, I., Fisher, M. J., & Hocking, M. C. (2016). Discrepancies among measures of executive functioning in a subsample of young adult survivors of childhood brain tumor: Associations with treatment intensity. Journal of the International Neuropsychological Society, 22(9), 900–910. https://doi.org/10.1017/s1355617716000771
   PubMed Web of Science ®Google Scholar
• Mehren, A., Özyurt, J., Zu Klampen, P., Boekhoff, S., Thiel, C. M., & Müller, H. L. (2018). Self- and informant-rated apathy in patients with childhood-onset craniopharyngioma. Journal of Neuro-Oncology, 140(1), 27–35. https://doi.org/10.1007/s11060-018-2936-z
   PubMed Web of Science ®Google Scholar
• Moscato, E. L., Fisher, A. P., Gies, L. M., Smith-Paine, J. M., Miley, A. E., Beebe, D. W., Quinton, T. L., Pai, A. L. H., Salloum, R., & Wade, S. L. (2021). A mixed-methods analysis of family perceptions of neuropsychological evaluation and resources for pediatric brain tumor survivors. Archives of Clinical Neuropsychology, 36(8), 1485–1501. https://doi.org/10.1093/arclin/acab014
   Google Scholar
• Moscato, E., Patronick, J., & Wade, S. L. (2022). Family functioning and adaptation following pediatric brain tumor: A systematic review. Pediatric Blood & Cancer, 69(2), e29470. https://doi.org/10.1002/pbc.29470
   PubMed Web of Science ®Google Scholar
• Murdaugh, D. L., King, T. Z., & O’Toole, K. (2019). The efficacy of a pilot pediatric cognitive remediation summer program to prepare for transition of care. Child Neuropsychology, 25(2), 131–151. https://doi.org/10.1080/09297049.2017.1391949
   PubMed Web of Science ®Google Scholar
• Netson, K. L., Ashford, J. M., Skinner, T., Carty, L., Wu, S., Merchant, T. E., & Conklin, H. M. (2016). Executive dysfunction is associated with poorer health-related quality of life in pediatric brain tumor survivors. Journal of Neuro-Oncology, 128(2), 313–321. https://doi.org/10.1007/s11060-016-2113-1
   PubMed Web of Science ®Google Scholar
• Palmer, S. L., & Leigh, L. (2009). Survivors of pediatric posterior fossa tumors: Cognitive outcome, intervention, and risk-based care. European Journal of Oncology Nursing, 13(3), 171–178. https://doi.org/10.1016/j.ejon.2008.09.002
   PubMed Web of Science ®Google Scholar
• Pennington, C., Duncan, G., & Ritchie, C. (2021). Altered awareness of cognitive and neuropsychiatric symptoms in Parkinson’s disease and Dementia with Lewy Bodies: A systematic review. International Journal of Geriatric Psychiatry, 36(1), 15–30.
   PubMed Web of Science ®Google Scholar
• Pfeifer, L., Horn, A. B., Maercker, A., & Forstmeier, S. (2017). Caregiver perception of apathy in persons with mild cognitive impairment or Alzheimer’s disease: a longitudinal study. Aging & Mental Health, 21(5), 494–500. 10.1080/13607863.2015.111867826666575
   PubMed Web of Science ®Google Scholar
• Puhr, A., Ruud, E., Anderson, V., Due-Tønnessen, B. J., Skarbø, A. B., Finset, A., & Andersson, S. (2021). Executive function and psychosocial adjustment in adolescent survivors of pediatric brain tumor. Developmental Neuropsychology, 46(2), 149–168. https://doi.org/10.1080/87565641.2021.1900191
   PubMed Web of Science ®Google Scholar
• Schiehser, D. M., Liu, L., Lessig, S. L., Song, D. D., Obtera, K. M., Burke Iii, M. M., Earl, S. R., & Vincent Filoteo, J. (2013). Predictors of discrepancies in Parkinson’s disease patient and caregiver ratings of apathy, disinhibition, and executive dysfunction before and after diagnosis. Journal of the International Neuropsychological Society, 19(3), 295–304. https://doi.org/10.1017/s1355617712001385
   PubMed Web of Science ®Google Scholar
• Stavinoha, P., Askins, M., Powell, S., Pillay Smiley, N., & Robert, R. (2018). Neurocognitive and psychosocial outcomes in pediatric brain tumor survivors. Bioengineering, 5(3), 73. https://doi.org/10.3390/bioengineering5030073
   PubMedGoogle Scholar
• Stolarova, M., Wolf, C., Rinker, T., & Brielmann, A. (2014, June 04). How to assess and compare inter-rater reliability, agreement and correlation of ratings: An exemplary analysis of mother-father and parent-teacher expressive vocabulary rating pairs. Frontiers in Psychology, 5(509), 1–13. https://doi.org/10.3389/fpsyg.2014.00509
   PubMedGoogle Scholar
• Stout, J. C., Ready, R. E., Grace, J., Malloy, P. F., & Paulsen, J. S. (2003). Factor analysis of the Frontal Systems Behavior Scale (FrSBe). Assessment, 10(1), 79–85. https://doi.org/10.1177/1073191102250339
   PubMed Web of Science ®Google Scholar
• Teglasi, H., Ritzau, J., Sanders, C., Kim, M. J., & Scott, A. (2017). Explaining discrepancies in assessment protocols: Trait relevance and functional equivalence. Psychological Assessment, 29(12), 1517–1530. https://doi.org/10.1037/pas000044728230407
   PubMed Web of Science ®Google Scholar
• Tierney, S. M., Woods, S. P., Weinborn, M., & Bucks, R. S. (2018). Real-world implications of apathy among older adults: Independent associations with activities of daily living and quality of life. Journal of Clinical and Experimental Neuropsychology, 40(9), 895–903. https://doi.org/10.1080/13803395.2018.1444736
   PubMed Web of Science ®Google Scholar
• Van Der Linden, S. D., Gehring, K., De Baene, W., Emons, W. H. M., Rutten, G.-J M., & Sitskoorn, M. M. (2020). Assessment of executive functioning in patients with meningioma and low-grade glioma: A comparison of self-report, proxy-report, and test performance. Journal of the International Neuropsychological Society, 26(2), 187–196. https://doi.org/10.1017/s1355617719001164
   PubMed Web of Science ®Google Scholar
• Willard, V. W., Conklin, H. M., Huang, L., Zhang, H., & Kahalley, L. S. (2016, September). Concordance of parent-, teacher- and self-report ratings on the Conners 3 in adolescent survivors of cancer. Psychological Assessment, 28(9), 1110–1118. https://doi.org/10.1037/pas0000265
   PubMed Web of Science ®Google Scholar
• Windows, I. S. S. f. (2021). IBM SPSS statistics for windows, version 28.0.
   Google Scholar
• Wochos, G. C., Semerjian, C. H., & Walsh, K. S. (2014). Differences in parent and teacher rating of everyday executive function in pediatric brain tumor survivors. The Clinical Neuropsychologist, 28(8), 1243–1257. https://doi.org/10.1080/13854046.2014.971875
   PubMed Web of Science ®Google Scholar