Communication and older people with lifelong disability: A role for speech pathologists?

REFERENCES

• American Gastroenterological Association Clinical Practice and Practice Economics Committee. Australian Gastroenterological Association technical review on management of oropharyngeal dysphagia. Gastroenterology 1999; 116: 455–478
   PubMed Web of Science ®Google Scholar
• Ashman A.F., Suttie J., Bramley J. Older Australians with an intellectual disability. Fred and Eleanor Schonell Special Education Research Centre, Brisbane 1993
   Google Scholar
• Australian Institute of Health and Welfare. Disability and ageing: Australian population patterns and implications. Australian Institute of Health and Welfare, Canberra 2000
   Google Scholar
• Balandin S. Aging—is it a communication issue?. Intellectual Disability Australia 1997; 18(2)7–7
   Google Scholar
• Balandin S. Witnessing without words. Intellectual disability & the law: Contemporary Australian issues, T. Shaddock, M. Bond, I. Bowen, K. Hales. ASSID Inc., NewcastleAustralia 2000; 31–40, In
   Google Scholar
• Balandin S., Iacono T. AAC and Australian speech pathologists: A report on a national survey. Augmentative and Alternative Communication 1998; 14: 239–249
   Google Scholar
• Balandin S., Kerse N. Aged care. Management guidelines. People with developmental and intellectual disabilities, N. Lennox, J. Diggens. Therapeutic Guidelines, Melbourne 1999; 47–60, In
   Google Scholar
• Balandin S., Morgan J. Adults with cerebral palsy: What's happening?. Journal of Intellectual and Developmental Disability 1997; 22(2)109–124
   Web of Science ®Google Scholar
• Balandin S., Morgan J. Preparing for the future: Aging and AAC. Augmentative and Alternative Communication 2001; 17: 99–108
   Google Scholar
• Beange H. Caring for a vulnerable population. Medical Journal of Australia 1996; 164(5)159–160
   PubMedGoogle Scholar
• Beange H., Bauman A. Caring for the developmentally disabled in the community. Australian Family Physician 1990; 19(10)1555–1563
   PubMedGoogle Scholar
• Beange H., Gale L., Stewart L. Project renourish: A dietary intervention to improve nutritional status in people with multiple disabilities. Australia and New Zealand Journal of Developmental Disabilities 1995; 20(3)165–174
   Google Scholar
• Beange H., McElduff A., Baker W. Medical disorders of adults with mental retardation: A population study. American Journal on Mental Retardation 1995; 99(6)595–604
   PubMedGoogle Scholar
• Bergman, J.S. Protecting the Mobility of the Aging Person with Cerebral Palsy or Spina Bifida. Paper presented at the Preventing Secondary Conditions associated with Spina Bifida or Cerebral Palsy ConferenceCrystal City, VirginiaMay, 1994
   Google Scholar
• Bigby C. Later life for adults with intellectual disability: A time of opportunity and vulnerability. Journal of Intellectual and Developmental Disability 1997a; 22(2)97–108
   Web of Science ®Google Scholar
• Bigby C. Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work 1997b; 29(1)3–21
   Web of Science ®Google Scholar
• Bigby C. Moving on without parents: Planning, transitions and sources of support for older adults with intellectual disabilities. Mclennan+Petty/Paul H. Brookes Publishing, Sydney/Baltimore, MD 2000
   Google Scholar
• Bigby, C., Balandin, S. Issues in researching the aging of people with intellectual disability. International handbook of applied research in intellectual disabilities, E. Emerson, Hatton, C., Parmenter, T., Thompson, T. John Wiley & Sons Ltd., ChichesterUK, (in press), In
   Google Scholar
• Bigby C., Fyffe C., Balandin S., McCubbery G., Gordon M. Ensuring successful aging: Report of a national study of day support service options for older adults with a disability unrelated to aging. Latrobe University, Melbourne 2001
   Google Scholar
• Bloomberg K., Johnson H. A statewide demographic survey of people with severe communication impairments. Augmentative and Alternative Communication 1990; 6(1)50–60
   Google Scholar
• Bourgeois M.S., Dijkstra K., Burgio L., Allen-Burge R. Memory aids as an augmentative and alternative communication strategy for nursing home residents with dementia. Augmentative and Alternative Communication 2001; 17: 196–210
   Google Scholar
• Burt D.B. Dementia and depression. Dementia, aging, and intellectual disabilities, M.P. Janicki, A.J. Dalton. Brunner/Mazel, Philadelphia, PA 1999; 198–216, In
   Google Scholar
• Clemson L., Cumming R., Roland M. Home environmental hazards and the risk of falls and hip fracture. Age and Ageing 1996; 25: 97–101
   PubMed Web of Science ®Google Scholar
• Coleman L.M., DePaulo B.M. Uncovering the human spirit: Moving beyond disability and “missed” communication. “Miscommunication” and problematic talk, N. Coupland, H. Giles, J.M. Wiemann. Sage Publications, Newbury Park, CA 1991; 61–84, In
   Google Scholar
• Connell B.R., Wolf S.L. Environmental and behavioural circumstances associated with falls at home among healthy elderly individuals. Archives of Physical and Medical Rehabilitation February, 1997; 78: 179–186
   PubMed Web of Science ®Google Scholar
• Connelly G., Keilty J. Making a statement. Intellectual Disability Rights Service, Sydney 2000
   Google Scholar
• Conway R.N.F., Bergin L., Thornton K. Abuse and adults with intellectual disability living in residential services. National Council on Intellectual Disability, Canberra 1996
   Google Scholar
• Cosgrave M.P., Tyrrell J., McCarron M., Gill M., Lawlor B.A. Age at onset of dementia and age of menopause in women with Down's syndrome. Journal of Intellectual Disability Research 1999; 43: 461–465
   PubMed Web of Science ®Google Scholar
• Costello J.M. AAC intervention in the intensive care unit: The Children's Hospital Boston model. Augmentative and Alternative Communication 2000; 16: 137–153
   Google Scholar
• Crichton J.U., Mackinnon M., White C.P. The life expectancy of persons with cerebral palsy. Developmental Medicine and Child Neurology 1995; 37: 567–576
   PubMed Web of Science ®Google Scholar
• Detmar S.B., Muller M.J., Wever L.D., Schornagel J.H., Aaronson N.K. The patient-physician relationship. Patient-physician communication during outpatient palliative treatment visits: An observational study. Journal of the American Medical Association 2001; 285(10)1351–1357
   Web of Science ®Google Scholar
• Duchan J.F. Impairment and social views of speech-language pathology: Clinical practices re-examined. Advances in Speech-Language Pathology 2001; 1(1)37–47
   Google Scholar
• Evenhuis H.M., Mul M., Lemaire E.K.G., Wijs J.P.M. Diagnosis of sensory impairment in people with intellectual disability in general practice. Journal of Intellectual Disability Research 1997; 41: 422–429
   PubMed Web of Science ®Google Scholar
• Gordon G.H., Joos S.K., Byrne J. Physician expressions of uncertainty during patient encounters. Patient Education & Counseling 2000; 40(1)59–65
   PubMed Web of Science ®Google Scholar
• Hemsley, B., Balandin, S. Ageing, disability, dysphagia, and severe communication impairment. ISAAC Research Symposim 2000, S.v. Tetzchner, Clibbens, J. International Society of Augmentative and Alternative Communication, Toronto, (in press), In
   Google Scholar
• Hemsley B., Sigafoos J., Balandin S., Forbes R., Taylor C., Green V.A., Parmenter T. Nursing the patient with severe communication impairment. Journal of Advanced Nursing 2001; 35(6)827–835
   PubMed Web of Science ®Google Scholar
• Herr S., Weber G. Prospects of ensuring rights, quality supports, and a good old age. Aging, rights, and quality of life, S. Herr, G. Weber. Paul H. Brookes Publishing, Baltimore, MD 1999; 343–366, In
   Google Scholar
• Hickson L., Lind C., Worrall L., Yiu E., Barnett H., Lovie-Kitchin J. Hearing and vision in healthy older Australians: Objective and self-report measures. Advances in Speech Language Pathology 1999; 1(2)95–105
   Google Scholar
• Hogg J. Intellectual disability and aging: Ecological perspectives from recent research. Journal of Intellectual Disability Research 1997; 41(2)136–143
   PubMedGoogle Scholar
• Hogg J., Lucchino R., Wang K., Janicki M.P., Group W. Healthy aging—Adults with intellectual disabilities: Ageing and social policy. World Health Organization, GenevaSwitzerland 2000
   Google Scholar
• Human Rights and Equal Opportunity Commission. Disability Discrimination Act Action Plans: A guide for the tertiary sector. Government Publishing Services, Canberra 1999
   Google Scholar
• ISAAC. From the President. ISAAC Bulletin February, 2002; 67: 2–2
   Google Scholar
• Janicki M.P. Aging, cerebral palsy, and older persons with mental retardation. Australia and New Zealand Journal of Developmental Disabilities 1989; 15(3 & 4)311–320
   Google Scholar
• Janicki M.P. Policies and supports for older people with mental retardation. Life course perspectives on adulthood and old age, M.M. Seltzer, M.W. Krauss, M.P. Janicki. American Association on Mental Retardation, Washington, DC 1994; 143–166, In
   Google Scholar
• Community supports for aging adults with lifelong disabilities, M.P. Janicki, E.F. Ansello. Paul H. Brookes Publishing, Baltimore, MD 2000
   Google Scholar
• Dementia, aging, and intellectual disabilities, M.P. Janicki, A.J. Dalton. Brunner/Mazel, Philadelphia, PA 1999
   Google Scholar
• Kaatzke-McDonald M. Dysphagia: The social perspective. Current Therapeutics May, 2000; 69–72
   Google Scholar
• Kailes J.I. Aging with a disability: Educating myself. The Networker 1993; 7(1)6–9
   Google Scholar
• Kendig H., Browning C.J., Young A.E. Impacts of illness and disability on the well-being of older people. Disability & Rehabilitation 2000; 22(1/2)15–22
   PubMed Web of Science ®Google Scholar
• Laerum E., Schattner P., McCall L., Steine S., Murtagh J. The patient perspective survey. Can consultations for complex health problems be enhanced?. Australian Family Physician 2001; 30(6)616–619
   PubMedGoogle Scholar
• Logemann J. Evaluation and treatment of swallowing disorders2nd ed. Pro-Ed, Austin, TX 1998
   Google Scholar
• Lubinski R. Perspectives on aging and communication. Communication technologies for the elderly, R. Lubinski, D.J. Higginbotham. Singular Publishing Group, San Diego, CA 1997; 1–22, In
   Google Scholar
• Ludlow B.L. Life after loss—Legal, ethical, and practical issues. Aging, rights, and quality of life, S. Herr, G. Weber. Paul H. Brookes Publishing, Baltimore, MD 1999; 189–221, In
   Google Scholar
• Aging and developmental disabilities—An in-service curriculum, R.H. Machemer. University of Rochester, Rochester, NY 1997
   Google Scholar
• McCallion P. Maintaining communication. Dementia, aging, and intellectual disabilities, M.P. Janicki, A.J. Dalton. Brunner/Mazel, Philadelphia, PA 1998; 261–277, In
   Google Scholar
• McFee G., Bray G. Older people in New South Wales: A profile (Government report 4108.1). Australian Bureau of Statistics, Canberra 1995
   Google Scholar
• Ministerial Council of Review on Ageing. Positive ageing: On our agenda. NSW Government Printing Office, Sydney 1994
   Google Scholar
• Mitsuda P., Baarslag-Benson R., Hazel K., Therriault T. Augmentative communication in intensive and acute care settings. Augmentative communication in the medical setting, K. Yorkston. Communication Skill Builders, Tucson, AZ 1992; 5–58, In
   Google Scholar
• Morse J.L. Assessment procedures for people with mental retardation: The dilemma and suggested adaptive procedures. Communication assessment and intervention for adults with mental retardation, S.N. Calculator, J.L. Bedrosian. Taylor and Francis, London 1988; 109–138, In
   Google Scholar
• Moss S., Hogg J., Horne M. Demographic characteristics of a population of people with moderate, severe and profound intellectual disability (mental handicap) age structure, IQ and adaptive skills. Journal of Intellectual Disability Research 1992; 36: 387–401
   PubMed Web of Science ®Google Scholar
• Murphy K.P., Molnar G.E., Lankasky K. Medical and functional status of adults with cerebral palsy. Developmental Medicine and Child Neurology 1995; 37: 1075–1084
   PubMed Web of Science ®Google Scholar
• Overeynder J. Aging and cerebral palsy: Pathways to successful aging. The UCPA Networker 1994; 7: 2–4
   Google Scholar
• Overeynder J., Turk M., Dalton A.J., Janicki M.P. I'm worried about the future: The aging of adults with cerebral palsy. New York State Developmental Disabilities Planning Council, Albany 1992
   Google Scholar
• Parke B. The young adult as a nursing home client … the challenge of Karl's legacy. Canadian Nursing Home 1997; 8(1)27–28
   Google Scholar
• Paterson W.G. Dysphagia in the elderly. Canadian Family Physician 1996; 42: 925–932
   PubMed Web of Science ®Google Scholar
• Pellegrino L. Cerebral palsy: A paradigm for developmental disabilities. Developmental Medicine and Child Neurology 1995; 37: 834–839
   PubMed Web of Science ®Google Scholar
• Robillard A.B. Communication problems in the intensive care unit. Qualitative Sociology 1994; 17: 383–395
   Google Scholar
• Scott J., Balandin S. AAC and the Law. Paper presented at Silent Voices, Kolkata, India, (in press)
   Google Scholar
• Seltzer M., Krauss M. Aging and mental retardation. Extending the continuum. AAMR, Washington, DC 1987
   Google Scholar
• Spirduso W.W. Physical dimensions of aging. Human Kinetics, Clapham, SA 1995
   Google Scholar
• Strauss D., Cable W., Shavelle R. Causes of excess mortality in cerebral palsy. Developmental Medicine and Child Neurology 1999; 41: 580–585
   PubMed Web of Science ®Google Scholar
• Thorpe L. Psychiatric disorders. Dementia, aging, and intellectual disabilities, M.P. Janicki, A.J. Dalton. Brunner/Mazel, Philadelphia, PA 1999; 217–231, In
   Google Scholar
• Turk, M.A. Attaining and Retaining Mobility: Clinical Issues. Paper presented at the Preventing Secondary Conditions Associated with Spina Bifida or Cerebral Palsy ConferenceCrystal City, VirginiaNovember, 1994
   Google Scholar
• Turk M.A., Geremski C.A., Rosenbaum P.F., Weber R.J. The health status of women with cerebral palsy. Archives of Physical Medicine and Rehabilitation December, 1997; 78: S–10
   Web of Science ®Google Scholar
• Uncertain Future—Aging and cerebral palsy: Clinical concerns, M.A. Turk, J.C. Overeynder, M.P. Janicki. New York State Developmental Disabilities Planning Council, Albany 1995
   Google Scholar
• Wallace K.L., Middleton S., Cook I.J. Development and validation of a self-report symptom inventory to assess the severity of oral-pharyngeal dysphagia. Gastroenterology 2000; 118: 678–687
   PubMed Web of Science ®Google Scholar
• Ward D. Adult/elderly care nursing. Ageism and the abuse of older people in health and social care. British Journal of Nursing 2000; 9(9)560–563
   PubMedGoogle Scholar
• Warren A.C., Holroyd S., Folstein M.F. Major depression in Down's syndrome. British Journal of Psychiatry 1989; 155: 202–205
   PubMed Web of Science ®Google Scholar
• West C., Frankel R.M. Miscommunication in medicine. Miscommunication and problematic talk, N. Coupland, H. Giles, J.M. Wiemann. Sage Publications, London 1991; 166–194, In
   Google Scholar
• Williams M.B. Getting older. The UCPA Networker 1993; 7(1)13–13
   Google Scholar
• Willner L., Dunning D. Ageing with cerebral palsy. SCOPE, London 1993
   Google Scholar
• World Health Organization. Ageing and intellectual disabilities—Improving longevity and promoting healthy ageing: Summative report. World Health Organization, GenevaSwitzerland 2000
   Google Scholar