Occupation and Identity: Perspectives of Children with Disabilities and their Parents

REFERENCES

• Asaba, E., & Jackson, J. (2011). Social ideologies embedded in everyday life: A narrative analysis about disability, identities, and occupation. Journal of Occupational Science, 18, 139–152. doi:10.1080/14427591.2011.579234
   Google Scholar
• Baxter, P., & Jack, S. (2008). Qualitative case study methodology: Study design and implementation for novice researchers. The Qualitative Report, 13(4), 544–559. Retrieved from http://www.nova.edu/ssss/QR/QR13-4/baxter.pdf
   Google Scholar
• Berger, P. L., & Luckman, T. (1966). The social construction of reality: A treatise in the sociology of knowledge. New York, NY: Anchor Books.
   Google Scholar
• Burr, V. (2003). Social constructionism (2nd ed.). New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: Sage.
   Google Scholar
• Christiansen, C. H. (1999). Defining lives: Occupation as identity: An essay on competence, coherence and the creation of meaning. American Journal of Occupational Therapy, 53, 547–558. doi:10.5014/ajot.53.6.547
   PubMed Web of Science ®Google Scholar
• Christiansen, C. (2000). Identity, personal projects and happiness: Self construction in everyday action. Journal of Occupational Science, 7, 98–107. doi:10.1080/14427591.2000.9686472
   Google Scholar
• Christiansen, C. (2004). Occupation and identity: Becoming who we are through what we do. In C. H. Christiansen & E. A. Townsend (Eds.), Introduction to occupation: The art and science of living (pp. 121–139). Upper Saddle River, NJ: Prentice Hall.
   Google Scholar
• Connors, C., & Stalker, K. (2007). Children's experiences of disability: Pointers to a social model of childhood disability. Disability & Society, 22, 19–33. doi:10.1080/09687590601056162
   Web of Science ®Google Scholar
• Cote, J. E., & Levine, C. G. (2002). Identity formation, agency, and culture. A social psychological synthesis. Mahwah, NJ: Lawrence Erlbaum.
   Google Scholar
• Croghan, R., Griffin, C., Hunter, J., & Phoenix, A. (2008). Young people's constructions of self: Notes on the use and analysis of the photo-elicitation methods. International Journal of Social Research Methodology, 11, 345–356. doi:10.1080/13645570701605707
   Web of Science ®Google Scholar
• Cutchin, M. P. (2003). The process of mediated aging-in-place: A theoretically and empirically based model. Social Science & Medicine, 57, 1077–1090. Retrieved from http://dx.doi.org/10.1016/S0277-9536(02)00486-010.1016/S0277-9536(02)00486-0
   PubMed Web of Science ®Google Scholar
• Daley, B. (2004). Using concept maps in qualitative research. In A. J. Cañas, J. D. Novak, & F. M. González, Concept maps: Theory, methodology, technology. Proceedings of the first international conference on concept mapping. Pamplona, Spain: Universidad Publica de Navarra. Retrieved from http://cmc.ihmc.us/1st%20Concept%20Mapping%20Conference.html
   Google Scholar
• Davis, L. J. (2006). Constructing normalcy: The bell curve, the novel, the invention of the disabled body in the nineteenth century. In L. J. Davis (Ed.), The disability studies reader (2nd ed.), (pp. 3–16). New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Dell Clark, C. (1999). The autodriven interview: A photographic viewfinder into children's experience. Visual Sociology, 14, 39–50. doi:10.1080/14725869908583801
   Google Scholar
• Erikson, E. (1963). Childhood and society. New York: W. W. Norton & Company.
   Google Scholar
• Finlay, L. (2004). From ‘gibbering idiot’ to ‘iceman’ Kenny's story: A critical analysis of an occupational narrative. British Journal of Occupational Therapy, 67, 474–480.
   Google Scholar
• Gergen, K. J. (1994). Realities and relationships. Soundings in social construction. Cambridge, MA: Harvard University Press.
   Google Scholar
• Gergen, K. J. (2000). The saturated self: Dilemmas of identity in contemporary life. New York: Basic Books.
   Google Scholar
• Gergen, K. J. (2003). Knowledge as socially constructed. In M. Gergen, & K. J. Gergen (Eds.), Social construction: A reader (pp. 15–17). Thousand Oaks, CA: Sage.
   Google Scholar
• Gergen, K. J. (2009). Relational being: Beyond self and community. New York: Oxford.
   Google Scholar
• Goffman, E. (1968). Stigma: Notes in the management of spoiled identity. Harmondsworth, UK: Penguin.
   Google Scholar
• Hammell, K. W. (2009). Sacred texts: A skeptical exploration of the assumptions underpinning theories of occupation. Canadian Journal of Occupational Therapy, 76, 6–13.
   PubMed Web of Science ®Google Scholar
• Harper, D. (2002). Talking about pictures: A case for photo elicitation. Visual Studies, 17, 13–26. doi:10.1080/14725860220137345
   Google Scholar
• Hocking, C. (2012). Occupations through the looking glass: Reflecting on occupational scientists’ ontological assumptions. In G. E. Whiteford & C. Hocking (Eds.), Occupational science: Society, inclusion, participation (pp. 54–66). Hoboken, NJ: Wiley-Blackwell.
   Google Scholar
• Howie, L., Coulter, M., & Feldman, S. (2004). Crafting the self: Older persons’ narratives of occupational identity. American Journal of Occupational Therapy, 58, 446–454. doi:10.5014/ajot.58.4.446
   PubMed Web of Science ®Google Scholar
• Iwama, M. (2003). Toward culturally relevant epistemologies in occupational therapy. American Journal of Occupational Therapy, 57, 582–588. doi:10.5014/ajot.57.5.582
   PubMed Web of Science ®Google Scholar
• Kielhofner, G. (2008). Model of human occupation: Theory and application. (4th ed.). Baltimore, MD: Lippincott Williams & Wilkins.
   Google Scholar
• Kinsella, E. A., Bossers, A., & Ferreira, D. (2008). Enablers and challenges to international practice education: A case study. Learning in Health and Social Care, 7, 79–92. doi:10.1111/j.1473-6861.2008.00178.x
   Google Scholar
• Laliberte Rudman, D. (2002). Linking occupation and identity: Lessons learned through qualitative exploration. Journal of Occupational Science, 9(1), 12–19. doi:10.1080/14427591.2002.9686489
   Google Scholar
• Laliberte Rudman, D., & Dennhardt, S. (2008). Shaping knowledge regarding occupation: Examining the cultural underpinnings of the evolving concept of occupational identity. Australian Occupational Therapy Journal, 55, 153–162. doi:10.1111/j.1440-1630.2007.00715.x
   PubMed Web of Science ®Google Scholar
• Lauckner, H., Paterson, M., & Krupa, T. (2012). Using constructivist case study methodology to understand community development processes: Proposed methodological questions to guide the research process. The Qualitative Report, 17(Art. 25), 1–22. Retrieved from http://www.nova.edu/ssss/QR/QR17/lauckner.pdf
   Google Scholar
• Lysack, C. L., & Seipke, H. L. (2002). Communicating the occupational self: A qualitative study of the oldest-old American women. Scandinavian Journal of Occupational Therapy, 9, 130–139. doi:10.1080/11038120260246969
   Google Scholar
• Magnus, E. (2001). Everyday occupations and the process of redefinition: A study of how meaning in occupation influences redefinition of identity in women with a disability. Scandinavian Journal of Occupational Therapy, 8, 115–124. doi:10.1080/110381201750464467
   Google Scholar
• Mandich, A. D., Polatajko, H. J., Miller, L. T., & Baum, C. (2004). Pediatric Activity Card Sort (PACS). Ottawa, ON: CAOT Publications ACE.
   Google Scholar
• Marks, D. (1999). Disability: Controversial debates and psychosocial perspectives. New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Merriam, S. B. (2009). Qualitative research. A guide to design and implementation. San Francisco, CA: Jossey-Bass.
   Google Scholar
• Molineux, M., & Whiteford, G. (2006). Occupational science: Genesis, evolution and future contributions. In E. Duncan (Ed.), Foundations for practice in occupational therapy (pp. 297–313). London, : Elsevier.
   Google Scholar
• Morris, J. (2001). Impairment and disability: Constructing an ethics of care that promotes human rights. Hypatia, 16, 1–16. doi:10.1111/j.1527-2001.2001.tb00750.x
   Google Scholar
• Morrison, R., & Burgman, I. (2009). Friendship experiences among children with disabilities who attend mainstream Australian schools. Canadian Journal of Occupational Therapy, 76, 145–152.
   PubMed Web of Science ®Google Scholar
• Patton, M. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park, CA: Sage.
   Google Scholar
• Penuel, W. R., & Wertsch, J. V. (1995). Vygotsky and identity formation: A sociocultural approach. Educational Psychologist, 30, 83–92. doi:10.1207/s15326985ep3002_5
   Web of Science ®Google Scholar
• Phelan, S. K. (2011). Constructions of disability: A call for critical reflexivity in occupational therapy. Canadian Journal of Occupational Therapy, 78, 164–172. doi:10.2182/cjot.2011.78.3.4
   PubMed Web of Science ®Google Scholar
• Phelan, S., & Kinsella, E. A. (2009). Occupational identity: Engaging socio-cultural perspectives. Journal of Occupational Science, 16, 85–91. doi:10.1080/14427591.2009.9686647
   Google Scholar
• Phelan, S., & Kinsella, E. A. (2011). Photoelicitation interview methods and research with children: Possibilities, pitfalls and ethical considerations. In J. Higgs, A. Titchen, D. Horsfall & D. Bridges, Creative spaces for qualitative researching: Living research (pp. 125–134). Rotterdam, The Netherlands: Sense Publishers. doi:10.1007/978-94-6091-761-5_13
   Google Scholar
• Phelan, S. K., & Kinsella, E. A. (In Press). Picture this … safety, dignity, and voice. Ethical research with children: Practical considerations for the reflexive researcher. Qualitative Inquiry.
   Google Scholar
• Priestly, M. (1999). Discourse and identity: Disabled children in mainstream high schools. In M. Corker, & S. French (Eds.), Disability discourse (pp. 92–102). Philadelphia, PA: Open University Press.
   Google Scholar
• Prosser, J., & Burke, C. (2008). Imaged-based educational research: Childlike perspectives. In J. G. Knowles, & A. L. Cole (Eds.), Handbook of the arts in qualitative research (pp. 407–419). Thousand Oaks, CA: Sage.
   Google Scholar
• Reynolds, F. (2003). Reclaiming a positive identity in chronic illness through artistic occupation. OTJR: Occupation, Participation and Health, 23, 118–127.
   Web of Science ®Google Scholar
• Segal, R. (1999). Doing for others: Occupations within families with children who have special needs. Journal of Occupational Science, 6, 53–60. doi:10.1080/14427591.1999.9686451
   Google Scholar
• Shank, K. W., & Cutchin, M. P. (2010). Transactional occupations of older women aging-in-place: Negotiating change and meaning. Journal of Occupational Science, 17, 4–13. doi:10.1080/14427591.2010.9686666
   PubMed Web of Science ®Google Scholar
• Siebers, T. (2006). Disability in theory. From social constructionism to the new realism of the body. In L. J. Davis (Ed.), The disability studies reader (2nd ed.. pp. 173–183). New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Sorell, G. T., & Montgomery, M. J. (2001). Feminist perspectives on Erikson's theory: Their relevance for contemporary identity development research. Identity: An International Journal of Theory and Research, 1, 91–128. doi:10.1207/S1532706XID0102_01
   Google Scholar
• Stake, R. E. (1995). The art of case study research. Thousand Oaks, CA: Sage.
   Google Scholar
• Stake, R. E. (2000). Case studies. In N. K. Denzin, & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 435–454). Thousand Oaks, CA: Sage.
   Google Scholar
• Stake, R. E. (2006). Multiple case study analysis. New York, NY: Guilford.
   Google Scholar
• Strauss, A. L. (1987). Qualitative analysis for social scientists. New York: Cambridge University Press.
   Google Scholar
• Swain, J., & Cameron, C. (1999). Unless otherwise stated: Discourses of labeling and identity in coming out. In M. Corker, & S. French (Eds.), Disability discourse (pp. 68–78). Philadelphia, PA: Open University Press.
   Google Scholar
• Taylor, C. (1992). The ethics of authenticity. Cambridge, MA: Harvard University Press.
   Google Scholar
• Unruh, A. M. (2004). Reflections on: “So … what do you do?” Occupation and the construction of identity. Canadian Journal of Occupational Therapy, 71, 290–295.
   PubMedGoogle Scholar
• Unruh, A. M., Versnel, J., & Kerr, N. (2002). Spirituality unplugged: A review of commonalities and contentions, and a resolution. Canadian Journal of Occupational Therapy, 69, 5–19.
   PubMedGoogle Scholar
• Vygotsky, L. S. (1978). Mind in society. The development of higher psychological processes. Cambridge, MA: Harvard University Press.
   Google Scholar
• Wendell, S. (1996). The rejected body. Feminist philosophical reflections on disability. New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Wendell, S. (2006). Towards a feminist theory of disability. In L. J. Davis (Ed.), The disability studies reader (2nd ed. (pp. 243–256). New York, NY: Routledge Taylor & Francis.
   Google Scholar
• Wertsch, J. V. (1985). Vygotsky and the social formation of mind. Cambridge, MA: Harvard University Press.
   Google Scholar
• Yin, R. K. (2009). Case study research: Design and methods (4th ed.). Thousand Oaks, CA: Sage.
   Google Scholar