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Feature Articles

Beyond custodial care: Mediating choice and participation for adults with intellectual disabilities

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Pages 546-560 | Accepted 19 Jul 2017, Published online: 16 Aug 2017

References

  • American Occupational Therapy Association. (2014). Occupational therapy practice framework: Doman and process (3rd. ed.). American Journal of Occupational Therapy, 68(Suppl.1), S1–S48. doi: 10.5014/ajot.56.6.609
  • Americans with Disabilities Act Participatory Action Research Consortium (n.d.). [Graph illustration]. Percentage of people with disabilities living in an institution, 2010 to 14. Retrieved from http://centerondisability.org/ada_parc/utils/indicators.php?id=1&palette=3
  • Braddock, D., Hemp, R., Rizzolo, M., Tanis, E., Haffer, L., & Wu, J. (2015). The state of the states in intellectual and developmental disabilities: Emerging from the great recession (10th ed.). Washington, DC: The American Association on Intellectual and Developmental Disabilities.
  • Campbell, M., & Gregor, F. (2004). Mapping social relations: A primer in doing institutional ethnography. Walnut Creek, CA: Alta Mira Press.
  • Channon, A. (2014). Intellectual disability and activity engagement: Exploring the literature from an occupational perspective. Journal of Occupational Science, 21(4), 443–458. doi: 10.1080/14427591.2013.829398
  • Charlton, J. (1998). Nothing about us without us: Disability oppression and empowerment. Berkely, CA: University of California Press.
  • DeVault, M. L., & McCoy, L. (2001). Institutional ethnography: Using interviews to investigate ruling relations. In J. F. Gubrium and J. A. Holstein (Eds.), Handbook of interview research: Context and methods (p. 751–776). Thousand Oaks, CA: Sage.
  • DeVault, M. L. (2006). What is institutional ethnography? Social Problems, 53(3), 294–298. doi: 10.1525/sp.2006.53.3.294
  • Developmental Disabilities Assistance and Bill of Rights Act of 2000, Pub. L. 106–402, 114 Stat. 1677. (2000).
  • Dickie, V., Cutchin, M., & Humphry, R. (2006). Occupation as transactional experience: A critique of individualism in occupational science. Journal of Occupational Science, 13(1), 83–93. doi: 10.1080/14427591.2006.9686573
  • Hallrup, L. B. (2014). The meaning of lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: A reflective lifeworld approach. Journal of Clinical Nursing, 23(11–12), 1583–1592. doi:10.1111/j.1365–2702.2012.04208.x doi: 10.1111/j.1365-2702.2012.04208.x
  • Hamilton, C., & Atkinson, D. (2009). “A story to tell”: Learning from the life-stories of older people with intellectual disability in Ireland. British Journal of Intellectual Disability, 37(4), 316–322. doi:10.1111/j.1468–3156.2009.00588.x
  • Hart, E., & Shank, K. (2016). Participating at the mall: Possibilities and tensions that shape older adults’ occupations. Journal of Occupational Science, 23(1), 67–81. doi: 10.1080/14427591.2015.1020851
  • Johnson, K. (2016). Daily life participation in a residential facility for adults with intellectual disabilities: An institutional ethnography (Unpublished doctoral dissertation). University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
  • Laliberte Rudman, D. (2010). Occupational terminology: Occupational possibilities. Journal of Occupational Science, 17(1), 55–59. doi: 10.1080/14427591.2010.9686673
  • Law, M. (2002). Participation in the occupations of everyday life, 2002 Distinguished Scholar Lecture. American Journal of Occupational Therapy, 56(6), 640–649. doi: 10.5014/ajot.56.6.640
  • Lawlor, M. (2003). The significance of being occupied: The social construction of childhood occupations. American Journal of Occupational Therapy, 57(4), 424–434. doi: 10.5014/ajot.57.4.424
  • Lopez, S. (2007). Efficiency and the fix revisited: Information relations and mock routinization in a nonprofit nursing home. Qualitative Sociology, 30(3), 225–247. doi:10.1007/s11133–007–9062–0 doi: 10.1007/s11133-007-9062-0
  • Miles, M., Huberman, A., & Saldaña. J. (2014). Qualitative data analysis: A methods sourcebook (3rd ed.). Thousand Oaks, CA: Sage.
  • National Council on Disability. (2012, September 18). National disability policy: A progress report. Retrieved from https://ncd.gov/rawmedia_repository/NCD_2012ProgressReport_Sep14FIN508.pdf
  • Noll, S. (2005). The public face of southern institutions for the “feeble-minded.” The Public Historian, 27(2), 25–41. doi: 10.1525/tph.2005.27.2.25
  • Noll, S., & Trent, J. (2004). Mental retardation in America: A historical review. New York, NY: New York University Press.
  • Olmstead v. L.C. 527 U.S. 581. (1999). Retrieved from https://www.law.cornell.edu/supct/html/98–536.ZS.html
  • Prodinger, B., Laliberte Rudman, D., & Shaw, L. (2015). Institutional ethnography: Studying the situated nature of human occupation. Journal of Occupational Science, 22(1), 71–81. doi: 10.1080/14427591.2013.813429
  • Prodinger, B., & Turner, S. (2013). Using institutional ethnography to explore how social policies infiltrate into daily life. Journal of Occupational Science, 20(4), 357–369. doi: 10.1080/14427591.2013.808728
  • Renblad, K. (2002). People with intellectual disability: Activities, social contacts and opportunities to exert influence (an interview study with staff). International Journal of Rehabilitation Research, 25(4), 279–286. doi: 10.1097/00004356-200212000-00005
  • Smith, D. (1987). The everyday world as problematic: A feminist sociology. Boston, MA: Northeastern University Press.
  • Smith, D. (2003). Making sense of what people do: A sociological perspective. Journal of Occupational Science, 10(1), 61–64. doi: 10.1080/14427591.2003.9686512
  • Smith, D. (2005). Institutional ethnography: A sociology for people. Toronto, Canada: AltaMira.
  • Smith, D. (2006). Institutional ethnography as practice. Oxford, UK: Rowman & Littlefield.
  • Townsend, E. (1996). Institutional ethnography: A method for showing how the context shapes practice. OTJR: Occupation, Participation and Health, 16(3), 179–199.
  • Townsend, E., Langille, L., & Ripley, D. (2003). Professional tensions in client-centered practice: Using institutional ethnography to generate understanding and transformation. American Journal of Occupational Therapy, 57(1), 17–28. doi: 10.5014/ajot.57.1.17
  • Weber, M. (1968). On charisma and institution building. Chicago, IL: The University of Chicago Press.
  • Wehmeyer, M. (2013). The story of intellectual disability: An evolution of meaning, understanding, and public perception. Baltimore, MD: Paul Brookes Publishing.
  • Whiteford, G. (2000). Occupational deprivation: Global challenge in the new millennium. British Journal of Occupational Therapy, 63(5), 200–204. doi: 10.1177/030802260006300503
  • Wyatt v. Aderholt. 503 F.2d 1305. (1974). Retrieved from http://www.apa.org/about/offices/ogc/amicus/wyatt.aspx

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