References
- Act respecting health services and social services. (2002). CQLR c S-4.2 http://legisquebec.gouv.qc.ca/fr/showdoc/cs/s-4.2.
- Andelic, N., Arango-Lasprilla, J. C., Perrin, P. B., Sigurdardottir, S., Lu, J., Landa, L. O., Forslund, M. V., & Roe, C. (2016). Modeling of community integration trajectories in the first five years after traumatic brain injury. Journal of Neurotrauma, 33(1), 95–100. https://doi.org/https://doi.org/10.1089/neu.2014.3844
- Andelic, N., Howe, E. I., Hellstrom, T., Sanchez, M. F., Lu, J., Lovstad, M., & Roe, C. (2018). Disability and quality of life 20 years after traumatic brain injury. Brain and Behavior, 8(7), e01018. https://doi.org/https://doi.org/10.1002/brb3.1018
- Baker, A., Barker, S., Sampson, A., & Martin, C. (2017). Caregiver outcomes and interventions: A systematic scoping review of the traumatic brain injury and spinal cord injury literature. Clinical Rehabilitation, 31(1), 45–60. https://doi.org/https://doi.org/10.1177/0269215516639357
- Blundon, G., & Smits, E. (2000). Cognitive rehabilitation: A pilot survey of therapeutic modalities used by Canadian occupational therapists with survivors of traumatic brain injury. Canadian Journal of Occupational Therapy, 67(3), 184–196.
- Borgen, W., Amundson, N., & Butterfield, L. (2008). Critical incident technique. In The SAGE encyclopedia of qualitative research methods (pp. 158–159). Sage. https://doi.org/https://doi.org/10.4135/9781412963909
- Brown, M., & Vandergoot, D. (1998). Quality of life for individuals with traumatic brain injury: Comparison with others living in the community. Journal of Head Trauma Rehabilitation, 13(4), 1–23. https://doi.org/https://doi.org/10.1097/00001199-199808000-00002
- Bryson-Campbell, M., Shaw, L., O’Brien, J., Holmes, J., & Magalhães, L. (2013). A scoping review on occupational and self identity after a brain injury. Work, 44(1), 57–67. https://doi.org/https://doi.org/10.3233/WOR-2012-01561
- Burleigh, S. A., Farber, R. S., & Gillard, M. (1998). Community integration and life satisfaction after traumatic brain injury: Long-term findings. American Journal of Occupational Therapy, 52(1), 45–52. https://doi.org/https://doi.org/10.5014/ajot.52.1.45
- Butterfield, L. D., Maglio, A-S. T., Borgen, W. A., & Amundson, N. E. (2009). Using the enhanced critical incident technique in counselling psychology research. Canadian Journal of Counselling and Psychotherapy, 43(4), 265–282.
- Chamberlain, D. J. (2006). The experience of surviving traumatic brain injury. Journal of Advanced Nursing, 54(4), 407–417. https://doi.org/https://doi.org/10.1111/j.1365-2648.2006.03840.x
- Cicerone, K. D., Langenbahn, D. M., Braden, C., Malec, J. F., Kalmar, K., Fraas, M., Felicetti, T., Laatsch, L., Harley, J. P., Bergquist, T., Azulay, J., Cantor, J., & Ashman, T. (2011). Evidence-based cognitive rehabilitation: Updated review of the literature from 2003 through 2008. Archives of Physical Medicine and Rehabilitation, 92(4), 519–530. https://doi.org/https://doi.org/10.1016/j.apmr.2010.11.015
- Colantonio, A., Howse, D., Kirsh, B., Chiu, T., Zulla, R., & Levy, C. (2010). Living environments for people with moderate to severe acquired brain injury. Healthcare Policy, 5(4), e120.
- Colantonio, A., Ratcliff, G., Chase, S., Kelsey, S., Escobar, M., & Vernich, L. (2004). Long term outcomes after moderate to severe traumatic brain injury. Disability & Rehabilitation, 26(5), 253–261. https://doi.org/https://doi.org/10.1080/09638280310001639722
- Conseil Québécoise des Entreprises Adaptées (CQEA). (2016). Trouvez un produit ou un service [Find a product or a service]. https://cqea.ca/
- Corrigan, J. D., Cuthbert, J. P., Harrison-Felix, C., Whiteneck, G. G., Bell, J. M., Miller, A. C., Coronado, V. G., & Pretz, C. R. (2014). US population estimates of health and social outcomes 5 years after rehabilitation for traumatic brain injury. Journal of Head Trauma Rehabilitation, 29(6), E1–9. https://doi.org/https://doi.org/10.1097/htr.0000000000000020
- Devitt, R., Colantonio, A., Dawson, D., Teare, G., Ratcliff, G., & Chase, S. (2006). Prediction of long-term occupational performance outcomes for adults after moderate to severe traumatic brain injury. Disability & Rehabilitation, 28(9), 547–559. https://doi.org/https://doi.org/10.1080/00222930500219258
- Dewan, M. C., Rattani, A., Gupta, S., Baticulon, R. E., Hung, Y. C., Punchak, M., Agrawal, A., Adeleye, A. O., Shrime, M. G., Rubiano, A. M., Rosenfeld, J. V., & Park, K. B. (2018). Estimating the global incidence of traumatic brain injury. Journal of Neurosurgery, 130(4), 1080–1097. https://doi.org/https://doi.org/10.3171/2017.10.JNS17352.
- Douglas, J. M. (2010). Placing brain injury rehabilitation in the context of the self and meaningful engagement. Seminars in Speech and Language, 31(3), 197–204. doi: https://doi.org/10.1055/s-0030-1257536
- Durocher, E., Gibson, B. E., & Rappolt, S. (2014). Occupational justice: A conceptual review. Journal of Occupational Science, 21(4), 418–430. https://doi.org/https://doi.org/10.1080/14427591.2013.775692
- Erler, K. S., Juengst, S. B., Smith, D. L., O’Neil-Pirozzi, T. M., Novack, T. A., Bogner, J. A., Kaminski, J., Giacino, J. T., & Whiteneck, G. G. (2018). Examining driving and participation 5 years after traumatic brain injury. OTJR: Occupation, Participation and Health, 38(3), 143–150. https://doi.org/https://doi.org/10.1177/1539449218757739
- Erler, K. S., Whiteneck, G. G., Juengst, S. B., Locascio, J. J., Bogner, J. A., Kaminski, J., & Giacino, J. T. (2018). Predicting the trajectory of participation after traumatic brain injury: A longitudinal analysis. Journal of Head Trauma Rehabilitation, 33(4), 257–265. https://doi.org/https://doi.org/10.1097/HTR.0000000000000383
- Flanagan, J. C. (1954). The critical incident technique. Psychological Bulletin, 51(4), 327–358. https://doi.org/https://doi.org/10.1037/h0061470
- Fu, T. S., Jing, R., McFaull, S. R., & Cusimano, M. D. (2016). Health & economic burden of traumatic brain injury in the emergency department. Canadian Journal of Neurological Sciences, 43(2), 238–247. https://doi.org/https://doi.org/10.1017/cjn.2015.320
- Gray, J. A., Zimmerman, J. L., & Rimmer, J. H. (2012). Built environment instruments for walkability, bikeability, and recreation: Disability and universal design relevant? Disability and Health Journal, 5(2), 87–101. https://doi.org/https://doi.org/10.1016/j.dhjo.2011.12.002
- Hammell, K. R. W. (2016). Empowerment and occupation: A new perspective. Canadian Journal of Occupational Therapy, 83(5), 281–287. https://doi.org/https://doi.org/10.1177/0008417416652910
- Hammell, K. W. (2008). Reflections on … well-being and occupational rights. Canadian Journal of Occupational Therapy, 75(1), 61–64. https://doi.org/https://doi.org/10.2182/cjot.07.007
- Hammell, K. W. (2015). Quality of life, participation and occupational rights: A capabilities perspective. Australian Occupational Therapy Journal, 62(2), 78–85. https://doi.org/https://doi.org/10.1111/1440-1630.12183
- Hammell, K. R. W., & Beagan, B. (2017). Occupational injustice: A critique. Canadian Journal of Occupational Therapy, 84(1), 58–68. https://doi.org/https://doi.org/10.1177/0008417416638858
- Hocking, C. (2017). Occupational justice as social justice: The moral claim for inclusion. Journal of Occupational Science, 24(1), 29–42. https://doi.org/https://doi.org/10.1080/14427591.2017.1294016
- Jacobsson, L. J., Westerberg, M., Malec, J. F., & Lexell, J. (2011). Sense of coherence and disability and the relationship with life satisfaction 6-15 years after traumatic brain injury in northern Sweden. Neuropsychological Rehabilitation, 21(3), 383–400. https://doi.org/https://doi.org/10.1080/09602011.2011.566711
- Jacobsson, L. J., Westerberg, M., Soderberg, S., & Lexell, J. (2009). Functioning and disability 6-15 years after traumatic brain injuries in northern Sweden. Acta Neurologica Scandinavica, 120(6), 389–395. https://doi.org/https://doi.org/10.1111/j.1600-0404.2009.01238.x
- Johnson, J. M. (2001). In-depth interviewing. In J. F. Gubrium & J. A. Holstein (Eds.), Handbook of interview research (pp. 103–119). Sage.
- Juengst, S. B., Adams, L. M., Bogner, J. A., Arenth, P. M., O'Neil-Pirozzi, T. M., Dreer, L. E., Hart, T., Bergquist, T. F., Bombardier, C. H., Dijkers, M. P., & Wagner, A. K. (2015). Trajectories of life satisfaction after traumatic brain injury: Influence of life roles, age, cognitive disability, and depressive symptoms. Rehabilitation Psychology, 60(4), 353–364. https://doi.org/https://doi.org/10.1037/rep0000056
- Kelley, E., Sullivan, C., Loughlin, J. K., Hutson, L., Dahdah, M. N., Long, M. K., Schwab, K. A., & Poole, J. H. (2014). Self-awareness and neurobehavioral outcomes, 5 years or more after moderate to severe brain injury. Journal of Head Trauma Rehabilitation, 29(2), 147–152. https://doi.org/https://doi.org/10.1097/HTR.0b013e31826db6b9
- Klinger, L. (2005). Occupational adaptation: Perspectives of people with traumatic brain injury. Journal of Occupational Science, 12(1), 9–16. https://doi.org/https://doi.org/10.1080/14427591.2005.9686543
- Kolakowsky-Hayner, S. A., Wright, J., Englander, J., Duong, T., & Ladley-O’Brien, S. (2013). Impact of late post-traumatic seizures on physical health and functioning for individuals with brain injury within the community. Brain Injury, 27(5), 578–586. https://doi.org/https://doi.org/10.3109/02699052.2013.765595
- Lamontagne, M-E., Poncet, F., Careau, E., Sirois, M-J., & Boucher, N. (2013). Life habits performance of individuals with brain injury in different living environments. Brain Injury, 27(2), 135–144. https://doi.org/https://doi.org/10.3109/02699052.2012.722253
- Lefebvre, H., Cloutier, G., & Levert, M. J. (2008). Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury, 22(7-8), 535–543. https://doi.org/https://doi.org/10.1080/02699050802158243
- Lefebvre, H., Vanier, M., Swaine, B., Dutil, É., Pépin, M., Fougeyrollas, P., Rainville, C., McColl, M. A., Dumont, C., Pelchat, D., Michallet, B., Gélinas, I., Denis, S., Morin, M., Trottier, H., & Levert, M. J. (2004). La participation sociale à long terme des personnes ayant subi un traumatisme crânien et l’impact chez les proches, 10 ans post-traumatisme [Long-term social participation of people who have sustained a traumatic brain injury and the impact on relatives, 10 years post-injury] [Research report]. https://www.connexiontccqc.ca/wp-content/uploads/2019/06/La-participation-sociale-des-personnes-ayant-subi-un-tcc-et-impact-chez-les-proches..pdf
- Maas, A. I. R., Menon, D. K., Adelson, P. D., Andelic, N., Bell, M. J., Belli, A., Bragge, P., Brazinova, A., Buki, A., Chesnut, R. M., Citerio, G., Coburn, M., Cooper, D. J., Crowder, A. T., Czeiter, E., Czosnyka, M., Diaz-Arrastia, R., Dreier, J. P., Duhaime, A. C., … Yaffe, K. (2017). Traumatic brain injury: Integrated approaches to improve prevention, clinical care, and research. Lancet Neurology, 16(12), 987–1048. https://doi.org/https://doi.org/10.1016/S1474-4422(17)30371-X
- McIsaac, K. E., Moser, A., Moineddin, R., Keown, L. A., Wilton, G., Stewart, L. A., Colantonio, A., Nathens, A. B., & Matheson, F. I. (2016). Association between traumatic brain injury and incarceration: A population-based cohort study. CMAJ open, 4(4), E746–E753. https://doi.org/https://doi.org/10.9778/cmajo.20160072
- McMillan, T. M., Laurie, M., Oddy, M., Menzies, M., Stewart, E., & Wainman-Lefley, J. (2015). Head injury and mortality in the homeless. Journal of Neurotrauma, 32(2), 116–119. https://doi.org/https://doi.org/10.1089/neu.2014.3387
- Metzl, J. M., & Hansen, H. (2014). Structural competency: Theorizing a new medical engagement with stigma and inequality. Social Science & Medicine, 103, 126–133. https://doi.org/https://doi.org/10.1016/j.socscimed.2013.06.032
- Odgaard, L., Johnsen, S. P., Pedersen, A. R., & Nielsen, J. F. (2017). Return to work after severe traumatic brain injury: A nationwide follow-up study. Journal of Head Trauma Rehabilitation, 32(3), E57–E64. https://doi.org/https://doi.org/10.1097/HTR.0000000000000239
- Parvaneh, S., & Cocks, E. (2012). Framework for describing community integration for people with acquired brain injury. Australian Occupational Therapy Journal, 59(2), 131–137. https://doi.org/https://doi.org/10.1111/j.1440-1630.2012.01001.x
- Patton, M. Q. (1990). Qualitative evaluation and research methods. Sage.
- Philippus, A., Mellick, D., O’Neil-Pirozzi, T., Bergquist, T., Guller Bodien, Y., Sander, A. M., Dreer, L. E., Giacino, J., & Novack, T. (2016). Impact of religious attendance on psychosocial outcomes for individuals with traumatic brain injury: A NIDILRR funded TBI Model Systems study. Brain Injury, 30(13/14), 1605–1611. https://doi.org/https://doi.org/10.1080/02699052.2016.1199903
- Ponsford, J., Whelan-Goodinson, R., & Bahar-Fuchs, A. (2007). Alcohol and drug use following traumatic brain injury: A prospective study. Brain Injury, 21(13-14), 1385–1392. https://doi.org/https://doi.org/10.1080/02699050701796960
- Rosenfeld, J. V., Maas, A. I., Bragge, P., Morganti-Kossmann, M. C., Manley, G. T., & Gruen, R. L. (2012). Early management of severe traumatic brain injury. Lancet, 380(9847), 1088–1098. https://doi.org/https://doi.org/10.1016/s0140-6736(12)60864-2
- Ruet, A., Bayen, E., Jourdan, C., Ghout, I., Meaude, L., Lalanne, A., Pradat-Diehl, P., Nelson, G., Charanton, J., Aegerter, P., Vallat-Azouvi, C., & Azouvi, P. (2019). A detailed overview of long-term outcomes in severe traumatic brain injury eight years post-injury. Frontiers in Neurology, 10, 120. https://doi.org/https://doi.org/10.3389/fneur.2019.00120
- Rutterford, N. A., & Wood, R. L. (2006). Evaluating a theory of stress and adjustment when predicting long-term psychosocial outcome after brain injury. Journal of the International Neuropsychological Society, 12(3), 359–367. https://doi.org/https://doi.org/10.1017/s1355617706060450
- Shankar, S. (2018). An autoethnography about recovering awareness following brain injury: Is my truth valid? Qualitative Inquiry, 24(1), 56–69. https://doi.org/https://doi.org/10.1177/1077800417728960
- Stadnyk, R., Townsend, E., & Wilcock, A. (2010). Occupational justice. In C. H. Christiansen & E. A. Townsend (Eds.), Introduction to occupation: The art and science of living (2nd ed., pp. 329–358). Pearson Education.
- Steadman-Pare, D., Colantonio, A., Ratcliff, G., Chase, S., & Vernich, L. (2001). Factors associated with perceived quality of life many years after traumatic brain injury. Journal of Head Trauma Rehabilitation, 16(4), 330–342. doi: https://doi.org/10.1097/00001199-200108000-00004
- Stein, S. C., Georgoff, P., Meghan, S., Mizra, K., & Sonnad, S. S. (2010). 150 years of treating severe traumatic brain injury: A systematic review of progress in mortality. Journal of Neurotrauma, 27(7), 1343–1353. https://doi.org/https://doi.org/10.1089/neu.2009.1206
- Stocchetti, N., & Zanier, E. R. (2016). Chronic impact of traumatic brain injury on outcome and quality of life: A narrative review. Critical Care, 20(1), 148. https://doi.org/https://doi.org/10.1186/s13054-016-1318-1
- Strandberg, T. (2009). Adults with acquired traumatic brain injury: Experiences of a changeover process and consequences in everyday life. Social Work in Health Care, 48(3), 276–297. https://doi.org/https://doi.org/10.1080/00981380802599240
- Townsend, E., & Wilcock, A. (2004). Occupational justice and client-centred practice: A dialogue in progress. Canadian Journal of Occupational Therapy, 71(2), 75–87. https://doi.org/https://doi.org/10.1177/000841740407100203
- Truelle, J. L., Fayol, P., Montreuil, M., & Chevignard, M. (2010). Community integration after severe traumatic brain injury in adults. Current Opinion in Neurology, 23(6), 688–694. https://doi.org/https://doi.org/10.1097/WCO.0b013e3283404258
- Winkler, D., Unsworth, C., & Sloan, S. (2005). Time use following a severe traumatic brain injury. Journal of Occupational Science, 12(2), 69–81. https://doi.org/https://doi.org/10.1080/14427591.2005.9686550
- Wise, E. K., Mathews-Dalton, C., Dikmen, S., Temkin, N., Machamer, J., Bell, K., & Powell, J. M. (2010). Impact of traumatic brain injury on participation in leisure activities. Archives of Physical Medicine & Rehabilitation, 91(9), 1357–1362. https://doi.org/https://doi.org/10.1016/j.apmr.2010.06.009
- World Federation of Occupational Therapists. (2019). Position statement on human rights (revised). https://www.wfot.org/resources/occupational-therapy-and-human-rights
- World Health Organization. (2001). International classification of functioning, disability, and health: ICF. Author.