Publication Cover
New Genetics and Society
Critical Studies of Contemporary Biosciences
Volume 29, 2010 - Issue 1
1,467
Views
14
CrossRef citations to date
0
Altmetric
Symposium on genetics and responsibility in Germany and Israel

Between social hypocrisy and social responsibility: professional views of eugenics, disability and repro-genetics in Germany and Israel

&
Pages 87-102 | Published online: 04 Mar 2010

References

  • Agar, N., 2004. Liberal eugenics: in defence of human enhancement. Oxford: Blackwell; 2004.
  • Barilan, Y. M., 2003. The Israeli bioethical discourse and the Steinberg Report regarding a proposed Bill of Rights of the terminally ill, Ethik in der Medizin 15 (2003), pp. 59–62.
  • Bruun, H. H., 2007. Science, values and politics in Max Weber's methodology. London: Ashgate; 2007.
  • Buchanan, A., et al., 2000. From chance to choice. Cambridge: Cambridge University Press; 2000.
  • Caplan, A., 1992. When medicine went mad: bioethics and the Holocaust. Totowa, NJ: Humana Press; 1992.
  • Caplan, A., 1993. "Neutrality is not morality: the ethics of genetic counselling". In: Bartels, D., Leroy, B., and Caplan, A., eds. Prescribing our future: ethical challenges in genetic counselling. New York: Aldine de Gruyter; 1993. pp. 149–165.
  • Caplan, A., McGee, G., and Magnus, D., 1999. What's immoral about eugenics?, British Medical Journal 319 (1999), pp. 1284–1285.
  • Chemke, Juan M. and Steinberg, A. Ethics and Medical Genetics in Israel. In: D.C. Wertz and J.C. Fletcher, (eds). Ethics and Human Genetics: A Cross Cultural Perspective. Berlin: Springer-Verlag, 1989. pp. 271–284..
  • Cowan, R. S., 2008. Heredity and hope: the case for genetic screening. Cambridge, MA: Harvard University Press; 2008.
  • Deichmann, U., 2002. Emigration, isolation and the slow start of molecular biology in Germany, Studies in the History and Philosophy of Biological and Biomedical Sciences 33 (2002), pp. 433–455.
  • Denzin, N. K., and Lincoln, Y. S., 1994. Denzin, N. K., and Lincoln, Y. S., eds. Handbook of qualitative research. Thousand Oaks, CA: Sage; 1994.
  • Duster, T., 2003. Backdoor to eugenics. London: Routledge; 2003.
  • Erikson, S., 2003. Post-diagnostic abortion in Germany: reproduction gone awry, again?, Social Science & Medicine 56 (2003), pp. 1987–2001.
  • Ettorre, E., 2000. Reproductive genetics, gender and the body: “Please Doctor, may I have a normal baby?”, Sociology 34 (2000), pp. 403–420.
  • Ettorre, E., 2002. Reproductive genetics, gender and the body. London: Routledge; 2002.
  • Ettorre, E., Rothman, B., and Steinberg, D. L., 2006. Feminism confronts the genome: introduction, New Genetics and Society 25 (2) (2006), pp. 133–142.
  • Falk, R., 2006. Zionism and the biology of the Jews. Tel-Aviv: Resling Publishing [in Hebrew]; 2006.
  • Feldman, J., 2008. Above the death pits, beneath the flag: youth voyages to Poland and the performance of the Israeli national identity. New York: Berghahn; 2008.
  • Firer, R., 1989. Agents of morality [Sochnim Shel Halekach]. Tel Aviv: Hakibbutz Hame'uchad [in Hebrew]; 1989.
  • Gottweis, H., and Prainsack, B., 2006. Emotion in political discourse: contrasting approaches to stem cell governance: the US, UK, Israel, and Germany, Regenerative Medicine 1 (2006), pp. 823–829.
  • Harris, R., and Reid, M., 1997. Medical genetic services in 31 countries: an overview, European Journal of Human Genetics 5 (2) (1997), pp. 3–21.
  • Hashiloni-Dolev, Y., 2007. A life (un)worthy of living: reproductive genetics in Israel and Germany. Berlin: Springer-Kluwer; 2007.
  • Hashiloni-Dolev, Y., and Shkedi, S., 2007. On new reproductive technologies and family ethics: preimplantation genetic diagnosis (PGD) for sibling donor (SD) in Israel and Germany, Social Science & Medicine 65 (2007), pp. 2081–2092.
  • Hazan, H., 2002. Simulated dreams: Israel youth and virtual Zionism. New York: Berghahn Books; 2002.
  • Hirsch, D., 2009. Zionist eugenics, mixed marriage, and the creation of “a new Jewish type.”, Journal of Royal Anthropological Institute 15 (3) (2009), pp. 592–609.
  • Jacobs-Huey, L., 2002. The natives are gazing and talking back: reviewing the problematics of positionality, voice, and accountability among “native” anthropologists, American Anthropologist 104 (3) (2002), pp. 791–804.
  • Kannai, R., and Chertok, I., 2006. Prenatal panel screening considerations for non-neuronopathic Gaucher disease in the Ashkenazi-Jewish population, IMAJ 8 (2006), pp. 347–350.
  • Kerr, A., and Shakespeare, T., 2002. Genetic politics: from eugenics to genome. Cheltenham: New Clarion Press; 2002.
  • Kerr, A., Cunningham-Burley, S., and Amos, A., 1998. Eugenics and the new genetics in Britain: examining contemporary professionals' accounts, Science, Technology, & Human Values 23 (2) (1998), pp. 175–198.
  • Kirsch, N., 2003. Population genetics in Israel in the 1950 s: the unconscious internalization of ideology, Isis 94 (2003), pp. 631–655.
  • Krones, T., and Richter, G., 2004. Preimplantation genetic diagnosis (PGD): European perspectives and the German situation, Journal of Medicine and Philosophy 29 (5) (2004), pp. 623–640.
  • Krones, T., Schlüter, E., and Manolopoulos, K., 2005. Public, expert and patients opinions on preimplantaion genetic diagnosis in Germany, Reproductive Biomedicine Online 10 (1) (2005), pp. 116–123.
  • Leichtentritt, R. D., Rettig, K. D., and Miles, S. H., 1999. Holocaust survivors' perspectives on the euthanasia debate, Social Science & Medicine 48 (1999), pp. 185–196.
  • Lemke, T., 2005. Beyond genetic discrimination: problems and perspectives of a contested notion, Genomics, Society and Policy 1 (3) (2005), pp. 22–40.
  • Lemke, T., 2007. "Susceptible individuals and risky rights: dimensions of genetic responsibility". In: Dumit, J., and Burry, V., eds. Biomedicine as culture: instrumental practices technoscientific knowledge and new modes of life. London: Routledge; 2007. pp. 151–165.
  • Levy, D., and Sznaider, N., 2006. The Holocaust and memory in the global age. Philadelphia, PA: Temple University Press; 2006.
  • Mahowald, M. B., 2003. Aren't we all eugenicists? Commentary on Paul Lombardo's “Taking eugenics seriously.”, Florida State University Law Review 30 (2003), pp. 219–234.
  • Mazumdar, P. M.H., 1992. Eugenics, human genetics and human failings: the eugenics society, its sources and its critics in Britain. London: Routledge; 1992.
  • Michie, S., et al., 1997. Nondirectiveness in genetic counseling: an empirical study, American Journal of Human Genetics 60 (1997), pp. 40–47.
  • Nippert, I., 1998. "Country report from Germany". In: Nippert, I., and Clausen, H., eds. Evaluating cystic fibrosis carrier screening development in Northern Europe: Denmark, the Federal Republic of Germany, the Netherlands, and the United Kingdom. Muenster: Wilhelms-Universitaet, Women's Health Research Series; 1998. pp. 43–70.
  • Novas, C., and Rose, N., 2000. Genetic risk and the birth of the somatic individual, Economy and Society 29 (4) (2000), pp. 485–513.
  • Parens, E., and Asch, A., 2000. Parens, E., and Asch, A., eds. Prenatal testing and disability rights. Washington, DC: Georgetown University Press; 2000.
  • Paul, D. B., 1994. "Eugenic anxieties, social realities, and political choices". In: Cranor, C. F., ed. Are genes us? The social consequences of the new genetics. New Brunswick, NJ: Rutgers University Press; 1994.
  • Paul, D. B., 1995. Controlling human heredity: 1865 to the present. Atlantic Highlands, NJ: Humanities Press; 1995.
  • Pels, P., and Salemink, O., 2000. "Introduction: locating the colonial subjects of anthropology". In: Pels, P., and Salemink, O., eds. Colonial subjects. Ann Arbor: University of Michigan Press; 2000. pp. 1–52.
  • Raz, A., 1994. "Rewriting the Holocaust: an Israeli case study in the sociology of the novel". In: Zenner, W., and Scott, R., eds. Critical essays on Israeli social issues and scholarship, Books on Israel. Vol. III. Albany: State University of New York Press, Ch. 1; 1994.
  • Raz, A., 2004. “Important to test, important to support”: attitudes toward disability rights and prenatal diagnosis among leaders of support groups for genetic disorders in Israel, Social Science & Medicine 59 (9) (2004), pp. 1857–1866.
  • Raz, A., 2005. Disability rights, prenatal diagnosis and eugenics: a cross-cultural view, Journal of Genetic Counseling 14 (3) (2005), pp. 183–189.
  • Raz, A., 2009. Community genetics and genetic alliances: eugenics, carrier testing, and networks of risk. London: Routledge; 2009.
  • Richardt, Nicole. A comparative analysis of embryological research debate in Great Britian and Germany. Social Politics. 2003. Spring: 86–128..
  • Sand, S., 2008. When and how the Jewish people was invented?. Tel-Aviv: Resling [in Hebrew]; 2008.
  • Schöne-Seifert, B., and Rippe, K. P., 1991. Silencing the singer: antibioethics in Germany, The Hastings Center Report 21 (6) (1991), pp. 20–27.
  • Schroeder-Kurth, T., 1999. "Screening in Germany". In: Chadwick, R., et al., eds. The ethics of genetic screening. Dordrecht: Kluwer; 1999. pp. 81–89.
  • Segev, T., 1991. The seventh million. London: Maxwell-Macmillan; 1991.
  • Singer, M. A., 2000. Humanity at the limit: the impact of the Holocaust experience on Jews and Christians. Bloomington: Indiana University Press; 2000.
  • Stern, A., 2005. Eugenic nation: faults and frontiers of better breeding in modern America. Berkeley and Los Angeles: University of California Press; 2005.
  • Stoler-Liss, S., 2003. Mothers birth the nation: the social construction of Zionist motherhood in wartime Israeli parent's manuals, Nashim 6 (2003), pp. 104–118.
  • Stone, D., 2002. Breeding superman: Nietzsche, race, and eugenics in Edwardian and interwar Britain. Liverpool: Liverpool University Press; 2002.
  • Turner, L., 2009. Bioethics and social studies of medicine: overlapping concerns, Cambridge Quarterly of Healthcare Ethics 18 (2009), pp. 36–42.
  • Weindling, P., 2005. Nazi medicine and the Nuremberg trials: from medical warcrimes to informed consent. Hampshire: Macmillan; 2005.
  • Wertz, D. C., and Fletcher, J. C., 1989. Wertz, D. C., and Fletcher, J. C., eds. Ethics and human genetics: a cross-cultural perspective. Berlin: Springer-Verlag; 1989.
  • Wertz, Dorothy, 1998. Eugenics is Alive and Well, Science in Context 11 (3–4) (1998), pp. 493–510.
  • Winau, R., and Wiesemann, C., 1996. Medizin und Ethik im Zeichen von Ausschwitz: 50 Jahre Nurnberger Urzteprozess. Berlin: Erlangen; 1996.
  • Wuerth, A., 1997. "Re-unification and reproductive rights: abortion in the German public sphere, 1989–1990". 1997, Working Paper, Center for European Studies. University of North Carolina, Chapel Hill.
  • Zimran, A., Zaizov, R., and Zlotogora, J., 1997. Large scale screening for Gaucher's disease in Israel – a position paper by the National Gaucher Committee of the Ministry of Health, Harefuah [Medicine] 133 (1997), pp. 107–108, [in Hebrew].
  • Zlotogora, J., et al., 2009. A targeted population carrier screening programme for severe and frequent genetic diseases in Israel, European Journal of Human Genetics 17 (2009), pp. 591–597.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.