References
- Mitsumoto H, Chad D, Pioro EP. Monograph. Amyotrophic lateral sclerosis (Contemporary Neurology Series 49). Philadelphia: FA Davis, 1997: 1–480.
- Center L. One day at a time: the experience of an ALS care- giver. In: Oliver D, Borasio GD, Walsh D, eds. Palliative Care in Amyotrophic Lateral Sclerosis. New York: Oxford University Press, 2000: 183–187.
- Cobb AK, Reckling JB, Fernengel KJ. The ALS Caregiver’s Experience. In: Mitsumoto H, Munsat TL, eds. Amyotrophic Lateral Sclerosis. A guide for patients and families. New York: Demos, 2001: 251–261.
- Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci 1997; 152(Suppl 1): S82–S89.
- Goldstein LH, Adamson M, Jeffrey L et al. The psychological impact of MND on patients and carers. J Neurol Sci 1998; 160(Suppl 1): S114–S121.
- Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med 2000; 62: 271–279.
- Gelinas DF, O’Connor P, Miller RG. Quality of life for venti- lator-dependent ALS patients and their caregivers. J Neurol Sci 1998; 160(Suppl 1): S134–S136.
- Ushikubo M, Kawamura S, Inaba Y, Shima C, Nakamura T. Characteristics of home care patients with intractable neuro- logical diseases (Nanbyo) in Tokyo. Nippon Koshu Eisei Zasshi [Jap J Public Health] 1998; 45: 653–663.
- Zarit SH, Reever K, Bach-Peterson J. Relatives of the impaired elderly: correlates of feeling of burden. Gerontologist 1980; 20: 649–655.