The development and implementation of the Nottingham early cognitive and listening links (Early CaLL); A framework designed to support expectation counselling and to monitor the progress, post cochlear implantation, of deaf children with severe (SLD) and profound and multiple learning difficulties (PMLD) and associated complex needs

References

• American Psychiatric Association. 2013. The diagnostic and statistical manual of mental disorders. 5th ed. Washington, DC: American Psychiatric Association.
   Google Scholar
• Archbold, S., Lutman, M., Marshall, D. 1995. Categories of auditory performance. international cochlear implant, speech and hearing symposium, Melbourne. Annals of Otology, Rhinology & Laryngology, 104(Suppl 166): 312–314.
   Google Scholar
• Archbold, S., Athalye, S., Mulla, I., Harrigan, S., Wolters-Leermakers, N., Isarin, J., Knoors, H. 2015. Cochlear implantation in children with complex needs: the perceptions of professionals at cochlear implant centres. Cochlear Implants International, 16(6): 303–311. doi:10.1179/1754762815Y.0000000012 doi: 10.1179/1754762815Y.0000000012
   PubMedGoogle Scholar
• Baron-Cohen, S., Scott, F.J., Allison, C., Williams, J., Bolton, P., Matthews, F.E., et al. 2009. Prevalence of autism-spectrum conditions: UK school-based population study. British Journal of Psychiatry, 194(6): 500–509. doi:10.1192/bjp.bp.108.059345 doi: 10.1192/bjp.bp.108.059345
   PubMed Web of Science ®Google Scholar
• Beer, J., Harris, M., Kronenberger, W., Frush-Holt, R., Pisoni, D. 2012. Auditory skills, language development, and adaptive behavior of children with cochlear implants and additional disabilities. International Journal of Audiology, 51(6): 491–498. doi:10.3109/14992027.2012.664291 doi: 10.3109/14992027.2012.664291
   PubMed Web of Science ®Google Scholar
• Bellman, M., Lingham, S., Aukett, A. 1996. Schedule of growing skills II. London: NFER-Nelson.
   Google Scholar
• Brugha, T., McManus, S., Meltzer, H., Smith, J., Scott, F.J., Purdon, S., et al. 2009. Autism spectrum disorders in adults living in households throughout England: report from the Adult Psychiatric Morbidity Survey. NHS Information Centre for Health and Social Care. http://www.hscic.gov.uk/catalogue/PUB01131.
   Google Scholar
• Cantle Moore, R. 2004. The infant monitor of vocal production (IMP). North Rocks, NSW: Royal Institute for Deaf and Blind Children.
   Google Scholar
• Ching, T.Y., Dillon, H., Marnane, V., Hou, S., Day, J., Seeto, M., et al. 2013. Outcomes of early and late-identified children at 3 years of age: findings from a prospective population-based study. Ear and Hearing, 34(5): 535–552. doi: 10.1097/AUD.0b013e3182857718
   PubMed Web of Science ®Google Scholar
• Choo, D., Creighton, J., Meinzen-Derr, J., Wiley, S. 2005. Auditory skills checklist, Cincinnati Children’s Hospital Medical Center. Available from: http://www.chdr.org.
   Google Scholar
• Colletti, V., Carner, M., Miorelli, V., Guida, M., Colletti, L., Fiorino, F.G. 2005. Cochlear implantation at under 12 months: report on 10 patients. The Laryngoscope, 115(3): 445–449. doi: 10.1097/01.mlg.0000157838.61497.e7
   PubMed Web of Science ®Google Scholar
• Corrales, C., Oghalai, J. 2013. Cochlear implant considerations in children with additional disabilities. Current Otorhinolaryngology Reports 1(2): 61–68. doi:10.1007/s40136-013-0011-z.
   Google Scholar
• Cupples, L., Ching, T., Crowe, K., Seeto, M., Leigh, G., Street, L., Day, J., Marnane, V., Thomson, J. 2014. Outcomes of 3-year-old children with hearing loss and different types of additional disabilities. The Journal of Deaf Studies and Deaf Education, 19(1): 20–39. doi: 10.1093/deafed/ent039
   PubMed Web of Science ®Google Scholar
• Datta, G., Kitterick, P., Ramirez-Inscoe, J. 2018. Development and validation of the Nottingham auditory Milestones (NAMES) profile for deaf children under 2 years old, using cochlear implants. Cochlear Implants International, 19(4): 181–192. doi: 10.1080/14670100.2018.1452560
   PubMedGoogle Scholar
• Department for Education and Skills. 2004. Monitoring protocol for deaf babies and children. London: Crown. Available from: www.ncb.org.uk/
   Google Scholar
• Department for Education and Skills. 2005. Data collection by type of special educational need. London: Crown.
   Google Scholar
• Department for Education and Skills. 2013. The developmental Journal for children and young people with multiple needs. London: Crown. Available from: www.ncb.org.uk/early-support.
   Google Scholar
• Dewart, H., Summers, S. 1995. The pragmatics profile of everyday communication skills in preschool children. Swindon: NFER Nelson.
   Google Scholar
• Donaldson, A.I., Heavner, K.S., Zwolan, T.A. 2004. Measuring progress in children with autism spectrum disorder who have cochlear implants. Archives of Otolaryngology, Head and Neck Surgery, 130: 666–671. doi: 10.1001/archotol.130.5.666
   PubMed Web of Science ®Google Scholar
• Edwards, L. 2007. Children with cochlear implants and complex needs. A review of outcome research and psychological practice. The Journal of Deaf Studies and Deaf Education, 12(3): 258–268. doi:10.1093/deafed/enm007 doi: 10.1093/deafed/enm007
   PubMed Web of Science ®Google Scholar
• Edwards, L.C., Frost, R., Witham, F. 2006. Developmental delay and outcomes in paediatric cochlear implantation: implications for candidacy. International Journal of Pediatric Otorhinolaryngology, 70: 1593–1600. doi: 10.1016/j.ijporl.2006.04.008
   PubMed Web of Science ®Google Scholar
• Emerson, E., Baines, S. 2010. The estimated prevalence of autism among adults with learning disabilities. http://www.improvinghealthandlives.org.uk/projects/autism.
   Google Scholar
• Griffiths, R. 1984. Griffiths mental development scales. The abilities of young children. Oxford: The Test Agency.
   Google Scholar
• Grunwell, P. 1981. The development of phonology: a descriptive profile. First Language, 2: 161–191. doi: 10.1177/014272378100200601
   Google Scholar
• Harrison, R., Gordon, K., Mount, R. 2005. Is there a critical period for cochlear implantation in congenitally deaf children? Analyses of hearing and speech perception performance after implantation. Journal of Developmental Psychobiology, 46(3): 252–261. Onlinelibrary.wiley.com/toc/10982302/2005/46/3. doi: 10.1002/dev.20052
   PubMed Web of Science ®Google Scholar
• Hayward, D., Ritter, K., Grueber, J., Howarth, T. 2013. Outcomes that matter for children with severe multiple disabilities who use cochlear implants: the first step in an instrument development process. Otology & Neurotology, 34(8): 1385–1393. doi: 10.1097/MAO.0b013e3182a004b3
   PubMedGoogle Scholar
• McCracken, W., Turner, O. 2012. Deaf children with complex needs: parental experience of access to cochlear implants and ongoing support. Deafness & Education International, 14(1): 22–35. doi:10.1179/1557069X12Y.0000000005 doi: 10.1179/1557069X12Y.0000000005
   Google Scholar
• Meinzen-Derr, J., Wiley, S., Grether, S., Choo, D. 2011. Children with cochlear implants and developmental disabilities: a language skills study with developmentally matched hearing peers. Research in Developmental Disabilities, 32(2): 757–767. doi: 10.1016/j.ridd.2010.11.004
   PubMed Web of Science ®Google Scholar
• Nasralla, H., Montefusco, A., Hoshino, A.C.H., Samuel, P.A., de Matos Magalhães, A.T., Goffi-Gomez, M.V.S., et al. 2018. Benefit of cochlear implantation in children with multiple-handicaps: parent’s perspective. International Archives of Otorhinolaryngology, 22(4): 415–427. doi: 10.1055/s-0038-1642607
   PubMed Web of Science ®Google Scholar
• National Deaf Children’s Society. 2012. Prevalence of additional disabilities with deafness: a review of the literature. London: National Deaf Children’s Society.
   Google Scholar
• Nwaneka, E., Ofo, E., Dan, J., O’Connor, A. 2013. Systematic review of cochlear implantation in children with developmental disability. Otology & Neurotology, 34(8): 1385–1393. doi:10.1097/MAO.0b013e3182a004b3 doi: 10.1097/MAO.0b013e3182a004b3
   PubMed Web of Science ®Google Scholar
• Oghalai, J., Caudle, S.E., Bentley, B., Abaya, H., Lin, J., Baker, D., et al. 2012. Cognitive outcomes and familial stress after cochlear implantation in deaf children with and without developmental delays. Palo Alto, CA: Department of Otolaryngology – Head and Neck Surgery, Stanford University.
   Google Scholar
• Palmieri, M., Forli, F., Berrettini, S. 2014. Cochlear implantation outcomes for deaf children with additional disabilities: a systematic review. Hearing, Balance and Communication, 12(1): 6–19. doi:10.3109/21695717.2014.883205 doi: 10.3109/21695717.2014.883205
   Google Scholar
• Qualifications and Curriculum Development Agency (QCA). 2009. The P scales: level descriptors 1–8. London: Qualifications and Curriculum Development Agency.
   Google Scholar
• Ramirez-Inscoe, J., Bones, C. 2016. Additional difficulties associated with aetiologies of deafness: outcomes from a parent questionnaire of 540 children using cochlear implants. Cochlear Implants International, 17(1): 21–30. doi: 10.1179/1754762815Y.0000000017
   PubMedGoogle Scholar
• Rowland, C., Fried-Oken, M. 2010. Communication Matrix: a clinical and research assessment tool targeting children with severe communication disorders. Journal of Paediatric Rehabilitation Medicine: An Interdisciplinary Approach, 3: 319–329. doi:10.3233/PRM20100144 doi: 10.3233/PRM-2010-0144
   PubMedGoogle Scholar
• Sessa, B., Sutherland, H. 2013. Addressing mental health needs of deaf children and their families: the National deaf child and adolescent mental health service. The Psychiatrist, 37(5): 175–178. doi:10.1192/pb.bp.112.038604 doi: 10.1192/pb.bp.112.038604
   Google Scholar
• Sharma, A., Dorman, M. 2006. Central auditory development in children with cochlear implants: clinical implications. Advanced Otorhinolaryngology, 64: 66–68.
   PubMedGoogle Scholar
• Sheridan, M., Frost, M., Sharma, A. 1997. From birth to five years, children’s developmental progress. Publ Routledge.
   Google Scholar
• Speaker, R., Robertson, J., Simoes-Franklin, C., Glynn, F., Walshe, P., Viani, L. 2018. Quality of life outcomes in cochlear implantation of children with profound and multiple learning disability. Cochlear Implants International, 19(3): 162–166. doi:10.1080/14670100.2018.1434451 doi: 10.1080/14670100.2018.1434451
   PubMedGoogle Scholar
• Wakil, N., Fitzpatrick, E., Olds, J., Schramm, D., Whittingham, J. 2014. Long-term outcome after cochlear implantation in children with additional developmental disabilities. International Journal of Audiology, 53(9): 587–594. doi:10.3109/14992027.2014.905716 doi: 10.3109/14992027.2014.905716
   PubMed Web of Science ®Google Scholar
• Wiley, S., Meinzen-Derr, J., Grether, S., Choo, D., Hughes, M. 2012. Longitudinal functional performance among children with cochlear implants and disabilities: a prospective study using the paediatric evaluation of disability inventory. International Journal of Pediatric Otorhinolaryngology, 76(5): 693–697. doi: 10.1016/j.ijporl.2012.02.022
   PubMed Web of Science ®Google Scholar
• Zimmerman, I., Steiner, V., Evatt Pond, R. 2014. Preschool Language Scales (PLS5) UK edition, Pearsonclinical.co.uk.
   Google Scholar