References
- Aggleton, P., and C. Campbell. 2000. “Working with Young People-towards an Agenda for Sexual Health.” Sexual and Relationship Therapy 15 (3): 283–296. doi:https://doi.org/10.1080/14681990050109863.
- Alderson, J., A. Madill, and A. Balen. 2004. “Fear of Devaluation: Understanding the Experience of Intersexed Women with Androgen Insensitivity Syndrome.” British Journal of Health Psychology 9 (1): 81–100. doi:https://doi.org/10.1348/135910704322778740.
- Allen, L. 2004. “Beyond the Birds and the Bees: Constituting a Discourse of Erotics in Sexuality Education.” Gender and Education 16 (2): 151–167. doi:https://doi.org/10.1080/09540250310001690555.
- Allen, L. 2005. “‘Say Everything’: Exploring Young People’s Suggestions for Improving Sexuality Education.” Sex Education 5 (4): 389–404. doi:https://doi.org/10.1080/14681810500278493.
- Austin, A. 2016. ““There I Am”: A Grounded Theory Study of Young Adults Navigating A Transgender or Gender Nonconforming Identity within A Context of Oppression and Invisibility.” Sex Roles 75 (5): 215–230. doi:https://doi.org/10.1007/s11199-016-0600-7.
- Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:https://doi.org/10.1191/1478088706qp063oa.
- Breu, C. 2009. “Middlesex Meditations: Understanding and Teaching Intersex.” English Journal 98 (4): 102–108.
- Breu, C. 2016. “Identity Vs. Embodiment: A Materialist Rethinking of Intersex and Queerness.” Symploke 24 (1–2): 65–79. doi:https://doi.org/10.5250/symploke.24.1-2.0065.
- Brömdal, A., M. L. Rasmussen, F. Sanjakdar, L. Allen, and K. Quinlivan. 2017. “Intersex Bodies in Sexuality Education: On the Edge of Cultural Difference.” In The Palgrave Handbook of Sexuality Education, edited by L. Allen and M. L. Rasmussen, 369–390. London: Palgrave Macmillan.
- Carpenter, M. 2016. “The Human Rights of Intersex People: Addressing Harmful Practices and Rhetoric of Change.” Reproductive Health Matters 24 (47): 74–84. doi:https://doi.org/10.1016/j.rhm.2016.06.003.
- Carroll, L., C. Graff, M. Wicks, and A. D. Thomas. 2020. “Living with an Invisible Illness: A Qualitative Study Exploring the Lived Experiences of Female Children with Congenital Adrenal Hyperplasia.” Quality of Life Research 29 (3): 673–681. doi:https://doi.org/10.1007/s11136-019-02350-2.
- Davis, G. 2015. Contesting Intersex: The Dubious Diagnosis. New York: New York University Press.
- Davis, G., and C. Wakefield. 2017. “The Intersex Kids are All Right? Diagnosis Disclosure and the Experiences of Intersex Youth.” In Gender, Sex, and Sexuality among Contemporary Youth: Generation Sex, edited by P. N. Claster and S. L. Blair, 43–65. Bingley: Emerald.
- Edwards, R., and M. Mauthner. 2012. “Ethics and Feminist Research: Theory and Practice.” In Ethics in Qualitative Research, edited by T. Miller, M. Birch, M. Mauthner, and J. Jessop, 14–28. London: SAGE.
- Engberg, H., A. Möller, K. Hagenfeldt, A. Nordenskjöld, and F. Louise. 2016. “The Experience of Women Living with Congenital Adrenal Hyperplasia: Impact of the Condition and the Care Given.” Clinical Endocrinology 85 (1): 21–28. doi:https://doi.org/10.1111/cen.13054.
- Enzendorfer, M., and P. Haller. 2020. “Intersex and Education: What Can Schools and Queer School Projects Learn from Current Discourses on Intersex in Austria?” In Queer Social Movements and Outreach Work in Schools A Global Perspective, edited by D. A. Francis, J. I. Kjaran, and J. Lehtonen, 261–284. Cham: Palgrave Macmillan.
- Ernst, M. E., D. E. Sandberg, C. Keegan, E. H. Quint, A. C. Lossie, and B. M. Yashar. 2016. “The Lived Experience of MRKH: Sharing Health Information with Peers.” Journal of Pediatric and Adolescent Gynecology 29 (2): 154–158. doi:https://doi.org/10.1016/j.jpag.2015.09.009.
- The European Union Fundamental Rights Agency. 2020. “A Long Way to Go Fo LGBTI Equality.” FRA - European Union Agency For Fundamental Rights. https://fra.europa.eu/en/news/2020/does-hope-or-fear-prevail-among-europes-lgbti-people
- Fine, M. 1988. “Sexuality, Schooling, and Adolescent Females: The Missing Discourse of Desire.” Harvard Educational Review 58 (1): 29–54. doi:https://doi.org/10.17763/haer.58.1.u0468k1v2n2n8242.
- Fine, M., and M. Sara. 2006. “Sexuality Education and Desire: Still Missing after All These Years.” Harvard Educational Review 76 (3): 297–338. doi:https://doi.org/10.17763/haer.76.3.w5042g23122n6703.
- Foucault, M. 1978. History of Sexuality, Volume 1: An Introduction. Translated by. R. Hurley. New York:Random House.
- Frank, S. E. 2018. “Intersex and Intimacy: Presenting Concerns about Dating and Intimate Relationships.” Sexuality & Culture 22 (1): 127–147. doi:https://doi.org/10.1007/s12119-017-9456-4.
- Freire, P. 1972. Pedagogy of the Oppressed. New York: Herder.
- Frost, D. M. 2011. “Social Stigma and Its Consequences for the Socially Stigmatized.” Social and Personality Psychology Compass 5 (11): 824–839. doi:https://doi.org/10.1111/j.1751-9004.2011.00394.x.
- Ghattas, D. C. 2015. “Standing up for the Human Rights of Intersex People – How Can You Help?”. ILGA Europe and OII Europe. http://www.ilga-europe.org/sites/default/files/how_to_be_a_great_intersex_ally_a_toolkit_for_ngos_and_decision_makers_december_2015_updated.pdf
- Guntram, L., and K. Zeiler. 2016. “‘You Have All Those Emotions inside that You Cannot Show because of What They Will Cause’: Disclosing the Absence of One’s Uterus and Vagina.” Social Science & Medicine 167: 63–70. doi:https://doi.org/10.1016/j.socscimed.2016.08.028.
- Guth, L. J., R. I. Witchel, S. F. Witchel, and P. A. Lee. 2006. “Relationships, Sexuality, Gender Identity, Gender Roles, and Self-concept of Individuals Who Have Congenital Adrenal Hyperplasia: A Qualitative Investigation.” Journal of Gay & Lesbian Psychotherapy 10 (2): 57–75. doi:https://doi.org/10.1300/J236v10n02_04.
- Holman, E. G. 2018. “Theoretical Extensions of Minority Stress Theory for Sexual Minority Individuals in the Workplace: A Cross-Contextual Understanding of Minority Stress Processes.” Journal of Family Theory & Review 10 (1): 165–180. doi:https://doi.org/10.1111/jftr.12246.
- Irvine, J. M. 2004. Talk about Sex: The Battles over Sex Education in the United States. Berkeley, CA: University of California Press.
- Jones, T. 2011. “A Sexuality Education Discourses Framework: Conservative, Liberal, Critical, and Postmodern.” American Journal of Sexuality Education 6 (2): 133–175. doi:https://doi.org/10.1080/15546128.2011.571935.
- Jones, T., B. Hart, M. Carpenter, G. Ansara, W. Leonard, and J. Lucke. 2016. Intersex: Stories and Statistics from Australia. Cambridge: Open Book Publishers.
- Kanem, N. 2019. “The Battle for Sexual and Reproductive Health and Rights for All.” Sexual and Reproductive Health Matters 27 (1): 323–325. doi:https://doi.org/10.1080/26410397.2019.1676545.
- King, B. W. 2016. “Becoming the Intelligible Other: Speaking Intersex Bodies against the Grain.” Critical Discourse Studies 13 (4): 359–378. doi:https://doi.org/10.1080/17405904.2015.1113190.
- Koyama, E., and L. Weasel. 2002. “From Social Construction to Social Justice: Transforming How We Teach about Intersexuality.” Women’s Studies Quarterly 30 (3/4): 169.
- Lee, P. A., C. P. Houk, S. F. Ahmed, and I. A. Hughes. 2006. “Consensus Statement on Management of Intersex Disorders. In Collaboration with the Participants in the International Consensus Conference on Intersex Organized by the Lawson Wilkins Pediatric Endocrine Society the European Society for Paediatric Endocrinology.” Pediatrics 118 (2): e488–e500. doi:https://doi.org/10.1542/peds.2006-0738.
- Lee, P. A., A. Nordenstrom, C. P. Houk, S. F. Ahmed, R. Auchus, A. Baratz, K. Baratz Dalke, et al., The Global DSD Update Consortium. 2016. “Global Disorders of Sex Development Update since 2006: Perceptions, Approach and Care.” Hormone Research in Paediatrics 85 (3): 158–180.doi: https://doi.org/10.1159/000442975.
- Liao, L.-M. 2003. “Learning to Assist Women Born with Atypical Genitalia: Journey through Ignorance, Taboo and Dilemma.” Journal of Reproductive and Infant Psychology 21 (3): 229–238. doi:https://doi.org/10.1080/0264683031000154971.
- Liao, L. M., H. Green, S. M. Creighton, N. S. Crouch, and G. S. Conway. 2010. “Service Users’ Experiences of Obtaining and Giving Information about Disorders of Sex Development.” BJOG: An International Journal of Obstetrics & Gynaecology 117 (2): 193–199.
- Lundberg, T., P. Hegarty, and K. Roen. 2018. “Making Sense of ‘Intersex’ and ‘DSD’: How Laypeople Understand and Use Terminology.” Psychology & Sexuality 9 (2): 161–173. doi:https://doi.org/10.1080/19419899.2018.1453862.
- Lundberg, T., A. Lindström, K. Roen, and P. Hegarty. 2017. “From Knowing Nothing to Knowing Now: Parents’ Experiences of Caring for Their Children with Congenital Adrenal Hyperplasia.” Journal of Pediatric Psychology 42 (5): 520–529. doi:https://doi.org/10.1093/jpepsy/jsw001.
- Lundberg, T., K. Roen, A. L. Hirschberg, and L. Frisén. 2016. ““It’s Part of Me, Not All of Me”: Young Women’s Experiences of Receiving a Diagnosis Related to Diverse Sex Development.” Journal of Pediatric and Adolescent Gynaecology 29 (4): 338–343. doi:https://doi.org/10.1016/j.jpag.2015.11.009.
- MacKenzie, D., A. Huntington, and J. A. Gilmour. 2009. “The Experiences of People with an Intersex Condition: A Journey from Silence to Voice.” Journal of Clinical Nursing 18 (12): 1775–1783. doi:https://doi.org/10.1111/j.1365-2702.2008.02710.x.
- Malouf, M. A., A. G. Inman, A. G. Carr, J. Franco, and L. M. Brooks. 2010. “Health-Related Quality of Life, Mental Health and Psychotherapeutic Considerations for Women Diagnosed with a Disorder of Sexual Development: Congenital Adrenal Hyperplasia.” International Journal of Pediatric Endocrinology 2010 (1): 253465. doi:https://doi.org/10.1186/1687-9856-2010-253465.
- McAvoy, P. 2013. “The Aims of Sex Education: Demoting Autonomy and Promoting Mutuality.” Educational Theory 63 (5): 483–496. doi:https://doi.org/10.1111/edth.12036.
- Meyer-Bahlburg, H. F., L. Jananne Khuri, J. Reyes-Portillo, and M. I. New. 2017. “Stigma in Medical Settings as Reported Retrospectively by Women with Congenital Adrenal Hyperplasia (CAH) for Their Childhood and Adolescence.” Journal of Pediatric Psychology 42 (5): 496–503. doi:https://doi.org/10.1093/jpepsy/jsw034.
- Montemurro, B., J. Bartasavich, and L. Wintermute. 2015. “Let’s (Not) Talk about Sex: The Gender of Sexual Discourse.” Sexuality & Culture 19 (1): 139–156. doi:https://doi.org/10.1007/s12119-014-9250-5.
- Moran, J. P. 2009. Teaching Sex: The Shaping of Adolescence in the 20th Century. Cambridge, MA: Harvard University Press.
- RFSU. 2016. “Idéprogram [Conceptual Programme].” Stockholm: Riksförbundet för Sexuell Upplysning [Swedish Association for Sexuality Education]. Retrieved from https://www.rfsu.se/globalassets/pdf/rfsu-ideprogram-2015.pdf
- Roen, K. 2009. “Clinical Intervention and Embodied Subjectivity: Atypically Sexed Children and Their Parents.” In Critical Intersex, edited by M. Holmes, 15–40. Farnham: Ashgate.
- Roen, K. 2019. “Intersex or Diverse Sex Development: Critical Review of Psychosocial Health Care Research and Indications for Practice.” The Journal of Sex Research 56 (4–5): 511–528. doi:https://doi.org/10.1080/00224499.2019.1578331.
- Rubin, D. A. 2017. Intersex Matters: Biomedical Embodiment, Gender Regulation, and Transnational Activism. Albany: SUNY Press.
- Sani, A. M., K. L. Soh, I. A. Ismail, M. M. Arshad, I. A. Mungadi, S. L. Yau, and K. G. Soh. 2019. “Experiences of People Living with Disorders of Sex Development and Sex Reassignment: Meta‐ethnography of Qualitative Studies.” Journal of Advanced Nursing 75 (2): 277–290. doi:https://doi.org/10.1111/jan.13833.
- Schweizer, K., F. Brunner, B. Gedrose, C. Handford, and H. Richter-Appelt. 2017. “Coping with Diverse Sex Development: Treatment Experiences and Psychosocial Support during Childhood and Adolescence and Adult Well-being.” Journal of Pediatric Psychology 42 (5): 504–519. doi:https://doi.org/10.1093/jpepsy/jsw058.
- Sedgwick, E. K. 2008. Epistemology of the Closet. Berkeley: University of California Press.
- Sherlock, L. 2012. “Sociopolitical Influences on Sexuality Education in Sweden and Ireland.” Sex Education 12 (4): 383–396. doi:https://doi.org/10.1080/14681811.2012.686882.
- Skarpås, E. 2010. “Dundermycket Sexualundervisning: Falluckor Och Positiva Resultat I Ett Försök Att Göra Teori till Praktik [Loads of Sex Education: Trapdoors and Positive Results in an Attempt to Make Theory into Practice].” RFSU-Gruppen Malmö, accessed 31 December 2017. http://www.rfsu.se/Bildbank/Lokalt/Malmo/dokument/Dundermycket_web.pdf?epslanguage=sv
- UNAIDS Inter-agency Task Team on Young People, David A. Ross, Bruce Dick, Jane Ferguson, and World Health Organization. 2006. Preventing HIV/AIDS in Young People: A Systematic Review of the Evidence from Developing Countries. In WHO Technical Report Series, No.938. Geneva: World Health Organization. https://apps.who.int/iris/handle/10665/43453
- Weeks, J. 2011. The Languages of Sexuality. London: Routledge.