Measuring health-related quality of life in patients treated for substance dependence: differences among instruments and methods of eliciting preferences

References

• Drummond MF, Sculpher MJ, Claxton K, et al. Methods for the economic evaluation of health care programmes. Fourth ed. Oxford: Oxford University Press; 2015.
   Google Scholar
• McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res. 1995;4(4):293–307.
   PubMed Web of Science ®Google Scholar
• Ahmed S, Berzon RA, Revicki DA, et al., International Society for Quality of Life Research. The use of patient-reported outcomes (PRO) within comparative effectiveness research: implications for clinical practice and health care policy. Med Care. 2012;50(12):1060–1070. .
   PubMed Web of Science ®Google Scholar
• Karow A, Wittmann L, Schottle D, et al. The assessment of quality of life in clinical practice in patients with schizophrenia. Dialogues Clin Neurosci. 2014;16(2):185–195.
   PubMed Web of Science ®Google Scholar
• Muennig P, Lubetkin E, Jia H, et al. Gender and the burden of disease attributable to obesity. Am J Public Health. 2006;96(9):1662–1668.
   PubMed Web of Science ®Google Scholar
• Jarl J, Johansson P, Eriksson A, et al. The societal cost of alcohol consumption: an estimation of the economic and human cost including health effects in sweden, 2002. Eur J Health Econ. 2008;9(4):351–360.
   PubMed Web of Science ®Google Scholar
• Konnopka A, Konig HH. The health and economic consequences of moderate alcohol consumption in germany 2002. Value Health. 2009;12(2):253–261.
   PubMed Web of Science ®Google Scholar
• EuroQol Group. EuroQol—a new facility for the measurement of health-related quality of life. Health Policy. 1975;19(6):199–208.
   Google Scholar
• Brazier JE, Roberts J. The estimation of a preference-based measure of health from the SF-12. Med Care. 2004;42(9):851–859.
   PubMed Web of Science ®Google Scholar
• Brazier J, Roberts J, Deverill M. The estimation of a preference-based measure of health from the SF-36. J Health Econ. 2002;21(2):271–292.
   PubMed Web of Science ®Google Scholar
• Ware JE, Snow KK, Kolinski M, et al. SF-36 health survey manual and interpretation guide. Boston, MA: The Health Institute, New England Medical Center; 1993.
   Google Scholar
• Torrance GW. Social preferences for health states: an empirical evaluation of three measurement techniques. Socio Econ Plan Sci. 1976;10(3):129–136.
   Web of Science ®Google Scholar
• Farquhar PH. State of the art—utility assessment methods. Manage Sci. 1984;30(11):1283–1300.
   Web of Science ®Google Scholar
• Bharmal M, Thomas J. Comparing the EQ-5D and the SF-6D descriptive systems to assess their ceiling effects in the US general population. Value Health. 2006;9(4):262–271.
   PubMed Web of Science ®Google Scholar
• Tsuchiya A, Brazier J, Roberts J. Comparison of valuation methods used to generate the EQ-5D and the SF-6D value sets. J Health Econ. 2006;25(2):334–346.
   PubMed Web of Science ®Google Scholar
• Fryback DG, Palta M, Cherepanov D, et al. Comparison of 5 health-related quality-of-life indexes using item response theory analysis. Med Decis Making. 2010;30(1):5–15.
   PubMed Web of Science ®Google Scholar
• McCord M, De Neufville R. “Lottery equivalents”: reduction of the certainty effect problem in utility assessment. Manage Sci. 1986;32(1):56–60.
   Web of Science ®Google Scholar
• Pinto-Prades JL, Abellán-Perpinan JM. Measuring the health of populations: the veil of ignorance approach. Health Econ. 2005;14(1):69–82.
   PubMed Web of Science ®Google Scholar
• Wakker P, Deneffe D. Eliciting von Neumann-Morgenstern utilities when probabilities are distorted or unknown. Manage Sci. 1996;42(8):1131–1150.
   Web of Science ®Google Scholar
• Kahneman D, Tversky A. Prospect Theory: an Analysis of Decision under Risk. Econometrica. 1979;47(2):263–291.
   Web of Science ®Google Scholar
• Bleichrodt H. A new explanation for the difference between time trade-off utilities and standard gamble utilities. Health Econ. 2002;11(5):447–456.
   PubMed Web of Science ®Google Scholar
• Oppe M, Devlin NJ, van Hout B, et al. A program of methodological research to arrive at the new international EQ-5D-5L valuation protocol. Value Health. 2014;17(4):445–453.
   PubMed Web of Science ®Google Scholar
• Devlin NJ, Shah KK, Feng Y, et al. Valuing health-related quality of life: an EQ-5D-5L value set for england. Health Econ. 2018;27(1):7–22. .
   PubMed Web of Science ®Google Scholar
• Ramos-Goni JM, Craig BM, Oppe M, et al. Handling data quality issues to estimate the spanish EQ-5D-5L value set using a hybrid interval regression approach. Value Health. 2018;21(5):596–604. .
   PubMed Web of Science ®Google Scholar
• Ferreira LN, Ferreira PL, Pereira LN, et al. Reducing the floor effect in the SF-6D: a feasibility study. Appl Res Qual Life. 2012;7(2):193–208.
   Web of Science ®Google Scholar
• Abellán Perpinan JM, Sanchez Martinez FI, Martinez Perez JE, et al. Lowering the ‘floor’ of the SF-6D scoring algorithm using a lottery equivalent method. Health Econ. 2012;21(11):1271–1285.
   PubMed Web of Science ®Google Scholar
• Petrie D, Doran C, Shakeshaft A, et al. The relationship between alcohol consumption and self-reported health status using the EQ5D: evidence from rural australia. Soc Sci Med. 2008;67(11):1717–1726.
   PubMed Web of Science ®Google Scholar
• Essex HN, White IR, Khadjesari Z, et al. Quality of life among hazardous and harmful drinkers: EQ-5D over a 1-year follow-up period. Qual Life Res. 2014;23(2):733–743.
   PubMed Web of Science ®Google Scholar
• Chavez LJ, Bradley K, Tefft N, et al. Preference weights for the spectrum of alcohol use in the US Population. Drug Alcohol Depend. 2016;161:206–213.
   PubMed Web of Science ®Google Scholar
• Dijkgraaf MG, van der Zanden BP, de Borgie CA, et al. Cost utility analysis of co-prescribed heroin compared with methadone maintenance treatment in heroin addicts in two randomised trials. BMJ Brit Med J. 2005;330(7503):1297.
   Web of Science ®Google Scholar
• Byford S, Barrett B, Metrebian N, et al. Cost-effectiveness of injectable opioid treatment v. oral methadone for chronic heroin addiction. Brit J Psychiat. 2013;203(5):341–349.
   PubMed Web of Science ®Google Scholar
• Walters D, Connor JP, Feeney GF, et al. The cost effectiveness of naltrexone added to cognitive-behavioral therapy in the treatment of alcohol dependence. J Addict Dis. 2009;28(2):137–144.
   PubMed Web of Science ®Google Scholar
• Pyne JM, Tripathi S, French M, et al. Longitudinal association of preference‐weighted health‐related quality of life measures and substance use disorder outcomes. Addiction. 2011;106(3):507–515.
   PubMed Web of Science ®Google Scholar
• Nosyk B, Sun H, Guh DP, et al. The quality of eight health status measures were compared for chronic opioid dependence. J Clin Epidemiol. 2010;63(10):1132–1144.
   PubMed Web of Science ®Google Scholar
• Raisch DW, Campbell HM, Garnand DA, et al. Health-related quality of life changes associated with buprenorphine treatment for opioid dependence. Qual Life Res. 2012;21(7):1177–1183.
   PubMed Web of Science ®Google Scholar
• Payakachat N, Ali MM, Tilford JM. Can the EQ-5D detect meaningful change? A systematic review. Pharmacoeconomics. 2015;33(11):1137–1154.
   PubMed Web of Science ®Google Scholar
• Günther OH, Roick C, Angermeyer MC, et al. Responsiveness of EQ-5D utility indices in alcohol-dependent patients. Drug Alcohol Depend. 2008;92(1–3):291–295.
   PubMed Web of Science ®Google Scholar
• Brazier J, Connell J, Papaioannou D, et al. A systematic review, psychometric analysis and qualitative assessment of generic preference-based measures of health in mental health populations and the estimation of mapping functions from widely used specific measures. Health Technol Asses. 2014;18(34):vii–viii, xiii–xxv, 1–188.
   Web of Science ®Google Scholar
• De Maeyer J, Vanderplasschen W, Broekaert E. Quality of life among opiate-dependent individuals: A review of the literature. Int J Drug Policy. 2010;21(5):364–380.
   PubMed Web of Science ®Google Scholar
• McCrone P, Patel A, Knapp M, et al. A comparison of SF-6D and EQ-5D utility scores in a study of patients with schizophrenia. J Ment Health Policy. 2009;12:27–31.
   PubMed Web of Science ®Google Scholar
• Oviedo-Joekes E, Guh D, Brissette S, et al. Effectiveness of diacetylmorphine versus methadone for the treatment of opioid dependence in women. Drug Alcohol Depend. 2010;111(1–2):50–57.
   PubMed Web of Science ®Google Scholar
• Nogueira JM, Rodriguez-Miguez E. Using the SF-6D to measure the impact of alcohol dependence on health-related quality of life. Eur J Health Econ. 2015;16(4):347–356.
   PubMed Web of Science ®Google Scholar
• Beattie A, Marques EM, Barber M, et al. Script in a Day intervention for individuals who are injecting opioids: a feasibility randomized control trial. J Public Health. 2015;38:712–721.
   Google Scholar
• Tran BX, Nguyen LT. Impact of methadone maintenance on health utility, health care utilization and expenditure in drug users with HIV/AIDS. Int J Drug Policy. 2013;24(6):e105–10.
   PubMedGoogle Scholar
• EMCDDA. Statistical Bulletin 2018 – treatment demand. Luxembourg: Publications Office of the European Union; 2018.
   Google Scholar
• Kim TH, Jo MW, Lee SI, et al. Psychometric properties of the EQ-5D-5L in the general population of South Korea. Qual Life Res. 2013;22(8):2245–2253.
   PubMed Web of Science ®Google Scholar
• Janssen MF, Pickard AS, Golicki D, et al. Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: A multi-country study. Qual Life Res. 2013;22(7):1717–1727.
   PubMed Web of Science ®Google Scholar
• Sayah FA, Qiu W, Xie F, et al. Comparative performance of the EQ-5D-5L and SF-6D index scores in adults with type 2 diabetes. Qual Life Res. 2017;26(8):2057–2066.
   PubMed Web of Science ®Google Scholar
• Wong CKH, Lang BHH, Yu HMS, et al. EQ-5D-5L and SF-6D utility measures in symptomatic benign thyroid nodules: acceptability and psychometric evaluation. Patient. 2017;10(4):447–454.
   PubMedGoogle Scholar
• Ye Z, Sun L, Wang Q. A head-to-head comparison of EQ-5D-5L and SF-6D in Chinese patients with low back pain. Health Qual Life Out. 2019;17(1):57.
   PubMed Web of Science ®Google Scholar
• Bleichrodt H, Abellan-Perpiñan JM, Pinto-Prades JL, et al. Resolving inconsistencies in utility measurement under risk: tests of generalizations of expected utility. Manage Sci. 2007;53(3):469–482.
   Web of Science ®Google Scholar
• Rodríguez-Míguez E, Mosquera-Nogueira J. Measuring the impact of alcohol-related disorders on quality of life through general population preferences. Gac Sanit. 2017;31(2):89–94.
   PubMed Web of Science ®Google Scholar
• Goranitis I, Coast J, Day E, et al. Measuring health and broader well-being benefits in the context of opiate dependence: the psychometric performance of the ICECAP-A and the EQ-5D-5L. Value Health. 2016;19(6):820–828.
   PubMed Web of Science ®Google Scholar
• Juel A, Kristiansen CB, Madsen NJ, et al. Interventions to improve lifestyle and quality-of-life in patients with concurrent mental illness and substance use. Nord J Psychiat. 2017;71(3):197–204.
   PubMed Web of Science ®Google Scholar
• Pasareanu AR, Opsal A, Vederhus JK, et al. Quality of life improved following in-patient substance use disorder treatment. Health Qual Life Outcomes. 2015;13(1):35.
   PubMed Web of Science ®Google Scholar
• Tracy EM, Laudet AB, Min MO, et al. Prospective patterns and correlates of quality of life among women in substance abuse treatment. Drug Alcohol Depend. 2012;124(3):242–249.
   PubMed Web of Science ®Google Scholar
• Dunn KM, Jordan K, Croft PR. Does questionnaire structure influence response in postal surveys? J Clin Epidemiol. 2003;56(1):10–16.
   PubMed Web of Science ®Google Scholar
• Cheung YB, Wong LC, Tay MH, et al. Order effects in the assessment of quality of life in cancer patients. Qual Life Res. 2004;13(7):1217–1223.
   PubMed Web of Science ®Google Scholar
• Norman R, Cronin P, Viney R, et al. International comparisons in valuing EQ-5D health states: A review and analysis. Value Health. 2009;12(8):1194–1200.
   PubMed Web of Science ®Google Scholar