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Perspective

Story completion (SC) – an epistemological approach to the interpretation of patient-reported outcomes?

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Pages 49-56 | Received 07 Jun 2023, Accepted 05 Oct 2023, Published online: 13 Oct 2023

References

  • McClimans L. A theoretical framework for patient-reported outcome measures. Theor Med Bioeth. 2010;31(3):225–240. doi: 10.1007/s11017-010-9142-0
  • U.S. Department of Health and Human Services Food and Drug Administration. Guidance for industry: patient-reported outcome measures: use in medical product development to support labelling claims. 2009.
  • Allport GW. Personality: a psychological interpretation. New York: Holt, Rinehart & Winston; 1937.
  • Harvey L Social research glossary. Quality Research International. 2012–20. http://www.qualityresearchinternational.com/glossary/.
  • Romm NRA. Employing questionnaires in terms of a constructivist epistemological stance: reconsidering researchers’ involvement in the Unfolding of social life. Int J Qual Methods. 2013;12(1):652–659. doi: 10.1177/160940691301200136
  • Hughes J. The Philosophy of social research. London: Longman; 1980.
  • Travers M. Qualitative research through case studies. Thousand Oaks: Sage; 2001.
  • Meadows K. Patient-reported outcome measures – a call for more narrative evidence. J Patient Exp. 2021;8(1):237437352110496. doi: 10.1177/23743735211049666
  • Meadows K. Do patient-reported outcome measures tell us the full story? Clin Nurs Res. 2022;31(2):159–162. doi: 10.1177/10547738221078335
  • Montague GP. Who am I? Who is she? A Naturalistic, holistic, somatic approach to personal identity. Piscataway NJ: Transaction Books; 2012.
  • Carr AJ, Higginson IJ. Are quality of life measures patient centred? Br Med J. 2001;322(7298):1357–1360. doi: 10.1136/bmj.322.7298.1357
  • Reaney M, ed. Using patient experience data to evaluate medical interventions. Generating, understanding and using patient experience data within and alongside clinical trials. IQVIA;2023.
  • Riessman CK. Narrative analysis. CA: Newbury Park, Sage; 1993.
  • Gravett K. SC: storying as a method of meaning-making and discursive discovery. Int J Qual Methods. 2019;18:160940691989315. doi: 10.1177/1609406919893155
  • Frith H. Accounting for orgasmic absence: exploring heterosex using the SC method. Psychology & Sexuality. 2013;4:310–322. doi: 10.1080/19419899.2012.760172
  • Hayfield N, Wood M. (2019) Looking heteronormatively good! Combining story completion with Bitstrips to explore understandings of sexuality and appearance. Qual Res Psychol. 2019;16(1):115–135. doi: 10.1080/14780887.2018.1536390
  • Lloyd CEM, Panagopoulos MC. ‘Mad, bad, or possessed’? Perceptions of self-harm and mental illness in evangelical Christian communities. Pastoral Psychol. 2022;71(3):291–311. doi: 10.1007/s11089-022-01005-3
  • McDonald A, Braun V. Right, yet impossible? Constructions of healthy eating. Qual Res Health. 2022;2:100100. doi: 10.1016/j.ssmqr.2022.100100
  • Clarke V, Braun V, Hayfield N. Thematic analysis. In: Smith J, editor Qualitative psychology: a practical guide to research methods. London: SAGE Publications; 2015. p. 222–248.
  • Braun V, Clarke V, Hayfield N, et al. Story completion: a method with exciting promise. In: Liamputtong P, editor. Handbook of research methods in health social sciences. Singapore: Springer; 2019. p. 1–18.
  • Holloway L, Freshwater D. Narrative research in nursing. Oxford: Blackwell Publishing; 2007.
  • Meadows K. Interpreting patient-reported outcome measures: narrative and the “fusion of horizons. Philosophy Of Med. 2021;2(2):1–14. doi: 10.5195/philmed.2021.66.
  • Clark J. Philosophy, understanding and the consultation: a fusion of horizons. Br J Gen Pract. 2008;58(546):58–60. doi: 10.3399/bjgp08X263929
  • Meadows KA, Reaney M. (2023) bringing the patient’s perspectives forward in drug development and health-care evaluation. Expert Rev Pharmacoecon Outcomes Res. 2023;23(3):267–271. doi: 10.1080/14737167.2023.2166492.
  • Reaney M, Gladwin T, Chmiel N, et al. Encouraging foot care in people with and without diabetes through narrative communication. J Health Psychol. 2022;27(9):1993–2012. doi: 10.1177/13591053211017206
  • Reaney M, Gladwin T, Churchill S. Is information about foot care provided to people with diabetes with or without their partners: impact on recommended foot care behaviour. Applied Psych Health & Well. 2022 May;14(2):465–482. doi: 10.1111/aphw.12314
  • Richardson L. Narrative and sociology. J Contemp Ethnogr. 1990;19(1):116–135. doi: 10.1177/089124190019001006
  • Freshwater D, Ed. Therapeutic nursing improving patient care through self-awareness and reflection. London: Sage; 2002.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi: 10.1191/1478088706qp063oa
  • Bury M. Illness narratives: fact or fiction? Sociology Of Health And Illness. 2001;23(3):263–285. doi: 10.1111/1467-9566.00252
  • Moller NP, Clarke V, Braun V. Qualitative story completion for counseling psychology research: a creative method to interrogate dominant discourses. J Couns Psycho. 2021;68(3):286–298. doi: 10.1037/cou0000538
  • Bruner J. The narrative construction of reality. Clinical Inquiry. 1991;18(1):1–21. doi: 10.1086/448619
  • Meyers O 3151 concept elicitation via structured review of memoirs: the ISROM method. Presented at ISOQOL, Oct 2021, Virtual
  • Renner S, Marty T, Khadhar M, et al. New method to extract health-related quality of life data from social media testimonies algorithm development and validation. Med Internet Res. 2022;24(1):e31528. doi: 10.2196/31528
  • Cotté FE, Voillot P, Bennett B, et al. Exploring the Health-related quality of life of patients treated with immune checkpoint inhibitors: social media study. J Med Internet Res. 2020;2(9):e19694. doi: 10.2196/19694
  • Lee Ventola PT. Social media and Health care professionals: benefits, risks, and best practices. Canc Nurs. 2014;39:491–520.
  • Lee J, Park A, Roberge M, et al. What can social media tell us about patient symptoms: a text-mining approach to online ovarian cancer forum. Canc Nurs. 2022;45(1):E27–E35. doi: 10.1097/NCC.0000000000000860
  • Makady A, Kalf RJ, Ryll B, et al. Social media as a tool for assessing patient perspectives on quality of life in metastatic melanoma: a feasibility study. Health Qual Life Outcomes. 2018;16(1):222. doi: 10.1186/s12955-018-1047-z
  • Zhu F, Patumcharoenpol P, Zhang C, et al. Biomedical text mining and its applications in cancer research. J Biomed Inform. 2013;46(2):200–211. doi: 10.1016/j.jbi.2012.10.007
  • Onwude O, Casamayor M, Saraykar T, et al. Quality of life (QOL) related mentions for prevalent diseases on social media platforms in the United States (U.S. Value Health. 2022;25(12):S433. doi: 10.1016/j.jval.2022.09.2158
  • Polkinghorne DE. Narrative knowing and human sciences. (NY): Sate University of New York; 1988.
  • StudySmarter [Internet]. Post-structuralism StudySmarter. 2023.
  • Braun V, Clarke V, Gray D. Innovations in qualitative methods. In: Gough B, editor The Palgrave handbook of critical social psychology. Palgrave; 2017. p. 243–266.
  • Your Story [Internet]. New Zealand: University of New Zealand. 2023. https://www.storycompletion.net/
  • Urry K, Hunter S, Feo R, et al. Qualitative SC: opportunities and considerations for Health research. Qual Health Res. 2023 Mar;3(4):345–355. doi: 10.1177/10497323221150130
  • Tischner I. Tomorrow is the start of the rest of their life — so who cares about health? Exploring constructions of weight-loss motivations and health using story completion. Qual Res Psychol. 2019;16(1):54–73. doi: 10.1080/14780887.2018.1536385
  • Jones A, Caes L, Eccleston C, et al. Loss-adjusting: Young people’s constructions of a future living with complex regional pain syndrome. Clin J Pain. 2020;36(12):932–939. doi: 10.1097/AJP.0000000000000880
  • Clarke V, Braun V, Hannah F, et al. Editorial Introduction to the special issue: using story completion methods in qualitative research, qualitative research in psychology. Qual Res Psychol. 2019;16(1):1–20. doi:10.1080/14780887.2018.1536378.
  • Gavin H. The social construction of the child sex offender explored by narrative. Qual Rep. 2005;10:395–415.
  • Moore SM. Girls’ understanding and social construction of menarche. J Adolesc. 1995;18(1):87–104. doi: 10.1006/jado.1995.1007
  • Hunt X, Swartz L, Carew MT, et al. Dating persons with physical disabilities: the perceptions of South Africans without disabilities. Cult Health Sex. 2018;20(2):141–155. doi: 10.1080/13691058.2017.1334964
  • Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales, qualitative research in sport. Qual Res Sport Exercise Health. 2021;13(2):201–216. doi: 10.1080/2159676X.2019.1704846
  • O’Reilly M, Parker N. ‘Unsatisfactory saturation’: a critical exploration of the notion of saturated sample sizes in qualitative research. Qualitative Research. 2013;13(2):190–197. doi: 10.1177/1468794112446106
  • Hooker E. The adjustment of the male overt homosexual. Journal Of Projective Techniques. 1957;21:18–31. doi: 10.1080/08853126.1957.10380742
  • Beres M, Terry G, Senn, et al. Accounting for men’s refusal of heterosex: a story-completion study with young adults. J Sex Res. 2017;56(1):127–136. doi: 10.1080/00224499.2017.1399978
  • Skellett L. Cultural awareness and cultural safety. Australian Pharmacist. 2012;31:382–384.
  • Mueller RA. Episodic narrative interview: capturing stories of experience with a methods fusion. Int J Qual Methods. 2019;18:1–11. Page. doi: 10.1177/1609406919866044.
  • Suler J. The online disinhibition effect. CyberPsychology & Behavior. 2004 Jun;7(3):321–326. doi: 10.1089/1094931041291295
  • STUDENTS 4 BEST ADVICE [Internet]. Cochrane UK. 2023. https://s4be.cochrane.org/
  • Riessman CK. Narrative analysis. In: Jupp V, editor. The sage dictionary of social research methods. London: Sage; 2006. p. 186–189.
  • Meadows K. Interpreting patient-reported outcome measures: narrative and the “fusion of horizons. Philosophy Of Med. 2021;2(2). doi: 10.5195/philmed.2021.66
  • Gadamer H-G. Truth and method. 2nd. Joel Weinsheimer and Donald G. Marshall, Translated by. (NY): Continuum; 2003.
  • Kitzinger C, Powell D. Engendering infidelity: essentialist and social constructionist readings of a story completion task. Feminism & Psychology. 1995;5(3):345–372. doi: 10.1177/0959353595053004
  • Walsh E, Malson H. Discursive constructions of eating disorders: a SC task. Feminism & Psychology. 2010;20(4):529–537. doi: 10.1177/0959353509350759
  • Smith AKJ, Haire B, Newman C, et al. ‘Challenges of using the story completion method to research clinical encounters’, in SAGE research methods. SAGE; 2022.
  • Braun V, Clarke V, Frith H, et al. Qualitative story completion: possibilities and potential pitfalls—Virginia Braun, Victoria Clarke, Han- nah Frith, Nikki Hayfield, Helen Malson, Naomi Moller and Iduna Shah-Beckley in conversation. Qual Res Psychol. 2000;16(1):136–155. doi: 10.1080/14780887.2018.1536395
  • Eassey D, Reddel HK, Foster JM, et al. “ … I’ve said I wish I was dead, you’d be better off without me”: a systematic review of people’s experiences of living with severe asthma. J Asthma. 2019 Mar;56(3):311–322. Epub 2018 Apr 4. PMID: 29617182. doi: 10.1080/02770903.2018.1452034.
  • Wiering B, de Boer D, Delnoij D. Patient involvement in the development of patient-reported outcome measures: the developers’ perspective. BMC Health Serv Res. 2017;17(1):635. doi: 10.1186/s12913-017-2582-8

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