References
- Compston A, Coles A. Multiple sclerosis. Lancet. 2008;372(9648):1502–1517.
- Lublin FD, Reingold SC, Cohen JA, et al. Defining the clinical course of multiple sclerosis: the 2013 revisions. Neurology. 2014;83(3):278–286.
- De Jager PL. Identifying patient subtypes in multiple sclerosis and tailoring immunotherapy: challenges for the future. Ther Adv Neurol Disord. 2009;2(6):8–19.
- Boissy AR, Cohen JA. Multiple sclerosis symptom management. Expert Rev Neurother. 2007;7(9):1213–1222.
- Toosy A, Ciccarelli O, Thompson A. Symptomatic treatment and management of multiple sclerosis. Handb Clin Neurol. 2014;122:513–562.
- Strupp J, Voltz R, Golla H. Opening locked doors: Integrating a palliative care approach into the management of patients with severe multiple sclerosis. Mult Scler. 2016;22(1):13–18.
- Knies AK, Golla H, Strupp J, et al. A palliative care hotline for multiple sclerosis: A pilot feasibility study. Palliat Support Care. 2015;13(4):1071–1078.
- Strupp J, Golla H, Galushko M, et al. Self-rating makes the difference: identifying palliative care needs of patients feeling severely affected by multiple sclerosis. Palliat Support Care. 2015;13(3):733–740.
- Veronese S, Gallo G, Valle A, et al. Specialist palliative care improves the quality of life in advanced neurodegenerative disorders: NE-PAL, a pilot randomised controlled study. BMJ Support Palliat Care. 2015;bmjspcare-2014-000788. [Epub ahead of print].
- Higginson IJ, McCrone P, Hart SR, et al. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage. 2009;38(6):816–826.
- Edmonds P, Hart S, Gao W, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler. 2010;16(5):627–636.
- Hui D, Bruera E. Integrating palliative care into the trajectory of cancer care. Nat Rev Clin Oncol. 2016;13(3):159–171.
- Aldridge MD, Hasselaar J, Garralda E, et al. Education, implementation, and policy barriers to greater integration of palliative care: A literature review. Palliat Med. 2016;30(3):224–239.
- Morrison RS, Meier DE. The national palliative care research center and the center to advance palliative care: a partnership to improve care for persons with serious illness and their families. J Pediatr Hematol Oncol. 2011;33(Suppl 2):S126–31.
- Strupp J, Hartwig A, Golla H, et al. Feeling severely affected by multiple sclerosis: What does this mean? Palliat Med. 2012;26:1001–1010.
- Moens K, Higginson IJ, Harding R. Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review. J Pain Symptom Manage. 2014;48:660–677.
- Borreani C, Bianchi E, Pietrolongo E, et al. Unmet needs of people with severe multiple sclerosis and their carers: qualitative findings for a home-based intervention. PLoS One. 2014;9:e109679.
- Turner AP, Williams RM, Bowen JD, et al. Suicidal ideation in multiple sclerosis. Arch Phys Med Rehabil. 2006;87:1073–1078.
- Edmonds P, Vivat B, Burman R, et al. “Fighting for everything”: service experiences of people severely affected by multiple sclerosis. Mult Scler. 2007 Jun;13(5):660–667.
- Buecken R, Galushko M, Golla H, et al. Patients feeling severely affected by multiple sclerosis: how do patients want to communicate about end-of-life issues? Patient Educ Couns. 2012;88:318–324.
- Scalfari A, Knappertz V, Cutter G, et al. Mortality in patients with multiple sclerosis. Neurology. 2013;81(2):184–192.
- Brenner P, Burkill S, Jokinen J, et al. Multiple sclerosis and risk of completed and attempted suicide - a national cohort study. ECTRIMS Online Library. 2015 Oct 8;116688.
- Ramagopalan SV, Goldacre R, Goldacre MK. Risk of self-harm and suicide in people admitted to hospital with multiple sclerosis: record-linkage study. ECTRIMS Online Library. 2015;116688:Abstract 404.
- Viner R, Patten SB, Berzins S, et al. Prevalence and risk factors for suicidal ideation in a multiple sclerosis population. J Psychosomat Res. 2014;76:312–316.
- Golla H, Galushko M, Pfaff H, et al. Unmet needs of severely affected multiple sclerosis patients: the health professionals’ view. Palliat Med. 2012 Mar;26(2):139–151.
- Galushko M, Golla H, Strupp J, et al. Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study. J Palliat Med. 2014;17:195–199.
- Golla H, Mammeas S, Galushko M, et al. Unmet needs of caregivers of severely affected multiple sclerosis patients: a qualitative study. Palliat Support Care. 2015 Dec;13(6):1685–1693.
- Bausewein C, Fegg M, Radbruch L, et al. Validation and clinical application of the German version of the palliative care outcome scale. J Pain Symptom Manage. 2005;30:51–62.
- Bausewein C, Le Grice C, Simon S, et al. The use of two common palliative outcome measures in clinical care and research: a systematic review of POS and STAS. Palliat Med. 2011 Jun;25(4):304–313.
- Sleeman KE, Higginson IJ. A psychometric validation of two brief measures to assess palliative need in patients severely affected by multiple sclerosis. J Pain Symptom Manage. 2013;46:406–412.
- Centeno C, Lynch T, Garralda E, et al. Coverage and development of specialist palliative care services across the world health organization European region (2005-2012): results from a European association for palliative care task force survey of 53 countries. Palliat Med. 2016 Apr;30(4):351–362.
- Oliver DJ, Borasio GD, Caraceni A, et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 2016;23(1):30–38.
- Provinciali L, Tarquini D, De Falco FA, et al. Palliative care in neurology. Recenti Prog Med. 2015;106(7):316–321.
- Howie L, Peppercorn J. Early palliative care in cancer treatment: rationale, evidence and clinical implications. Ther Adv Med Oncol. 2013;5(6):318–323.
- Higginson IJ, Costantini M, Silber E, et al. Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained. Postgrad Med J. 2011;87:769–775.
- Solari A, Giordano A, Grasso MG, et al. Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial. Trials. 2015;16:184.
- Knies AK, Golla H, Strupp J, et al. A palliative care hotline for multiple sclerosis: a pilot feasibility study. Palliat Support Care. 2015 Aug;13(4):1071–1078.
- Strupp J, Romotzky V, Galushko M, et al. Palliative care for severely affected patients with multiple sclerosis: when and why? results of a Delphi survey of health care professionals. J Palliat Med. 2014 Oct;17(10):1128–1136.