References
- Agency for Toxic Substances & Disease Registry. (2019a). CDC/ATSDR exposure assessments and health study update. https://www.atsdr.cdc.gov/pfas/docs/PFAS-EA-and-Multi-Site-Study-508.pdf
- Agency for Toxic Substances & Disease Registry. (2019b). An overview of the science and guidance for clinicians on per- and polyfluoroalkyl substances (PFAS). https://www.atsdr.cdc.gov/pfas/docs/clinical-guidance-12-20-2019.pdf
- Agency for Toxic Substances & Disease Registry. (2019c). Toxicological profile for perfluoroalkyls. https://www.atsdr.cdc.gov/toxprofiles/tp.asp?id=1117&tid=237
- Agency for Toxic Substances & Disease Registry. (2020). Multi-site health study – PFAS cooperative agreement. https://www.atsdr.cdc.gov/pfas/Multi-Site-Health-Study.html
- Andrews, D. Q., & Naidenko, O. V. (2020). Population-wide exposure to per-and polyfluoroalkyl substances from drinking water in the United States. Environmental Science & Technology Letters, 7(12), 931–939. https://doi.org/10.1021/acs.estlett.0c00713
- Armstrong, E. A., & Bernstein, M. (2008). Culture, power, and institutions: A multi‐institutional politics approach to social movements. Sociological Theory, 26(1), 74–99. https://doi.org/10.1111/j.1467-9558.2008.00319.x
- Benford, R. D., & Snow, D. A. (2000). Framing processes and social movements: An overview and assessment. Annual Review of Sociology, 26(1), 611–639. https://doi.org/10.1146/annurev.soc.26.1.611
- Bennington College. (2020). Understanding PFOA. https://www.bennington.edu/center-advancement-of-public-action/environment-and-public-action/understanding-pfoa
- Bilott, R. (2019). Exposure: Poisoned water, corporate greed, and one lawyer’s twenty-year battle against Dupont. Simon & Schuster.
- Birnbaum, L., Southerland, B., & Sussman, R. (2021, July 30). EPA must protect public health by regulating PFAS as a class. The Hill. https://thehill.com/opinion/energy-environment/565528-epa-must-protect-public-health-by-regulating-pfas-as-a-class
- Breysse, P. (2019, March 28). Examining the federal response to the risks associated with per- and polyfluoroalkyl substances (PFAS). Testimony before the Senate Environment and Public Works Committee. https://www.cdc.gov/washington/testimony/2019/t20190328.htm.
- Brody, J. G., Tickner, J., & Rudel, R. A. (2005). Community-initiated breast cancer and environment studies and the precautionary principle. Environmental Health Perspectives, 113(8), 920–925. https://doi.org/10.1289/ehp.7784
- Brown, P. (1992). Popular epidemiology and toxic waste contamination: Lay and professional ways of knowing. Journal of Health and Social Behavior, 33(3), 267–281. https://doi.org/10.2307/2137356
- Brown, P. (2007). Toxic exposures: Contested illnesses and the environmental health movement. Columbia University Press.
- C8 Science Panel. (2020a). C8 study publications. http://www.c8sciencepanel.org/publications.html
- C8 Science Panel. (2020b). The science panel website. http://www.c8sciencepanel.org/
- Calafat, A. M., Wong, L. Y., Kuklenyik, Z., Reidy, J. A., & Needham, L. L. (2007). Polyfluoroalkyl chemicals in the US population: Data from the National Health and Nutrition Examination Survey (NHANES) 2003–2004 and comparisons with NHANES 1999–2000. Environmental Health Perspectives, 115(11), 1596–1602. https://doi.org/10.1289/ehp.10598
- Conservation Law Foundation. (2018, October 25). Petition for rulemaking to establish a treatment technique drinking water standard for per-and polyfluoroalkyl substances.
- Cordner, A., & Brown, P. (2015). A multisector alliance approach to environmental social movements: Flame retardants and chemical reform in the United States. Environmental Sociology, 1(1), 69–79. https://doi.org/10.1080/23251042.2015.1016685
- Cordner, A., Poudrier, G., DiValli, J., & Brown, P. (2019a). Combining social science and environmental health research for community engagement. International Journal of Environmental Research and Public Health, 16(18), 3483. https://doi.org/10.3390/ijerph16183483
- Cordner, A., Richter, L., & Brown, P. (2019b). Environmental chemicals and public sociology: Engaged scholarship on highly fluorinated compounds. Environmental Sociology, 5(4), 339–351. https://doi.org/10.1080/23251042.2019.1629271
- Epstein, S. (1996). Impure science: AIDS, activism, and the politics of knowledge. University of California Press.
- Frickel, S., & Gross, N. (2005). A general theory of scientific/intellectual movements. American Sociological Review, 70(2), 204–232. https://doi.org/10.1177/000312240507000202
- Frickel, S., Torcasso, R., & Anderson, A. (2015). The organization of expert activism: Shadow mobilization in two social movements. Mobilization: An International Quarterly, 20(3), 305–323. https://doi.org/10.17813/1086-671X-20-3-305
- Goeden, H. M., Greene, C. W., & Jacobus, J. A. (2019). A transgenerational toxicokinetic model and its use in derivation of Minnesota PFOA water guidance. Journal of Exposure Science & Environmental Epidemiology, 29(2), 183–195. https://doi.org/10.1038/s41370-018-0110-5
- Goodwin, J., & Jasper, J. M. (1999). Caught in a winding, snarling vine: The structural bias of political process theory. Sociological Forum, 14(1), 27–54. https://doi.org/10.1023/A:1021684610881
- Grandjean, P., & Budtz-Jørgensen, E. (2013). Immunotoxicity of perfluorinated alkylates: Calculation of benchmark doses based on serum concentrations in children. Environmental Health, 12(1), 35. https://doi.org/10.1186/1476-069X-12-35
- Hess, D., Breyman, S., Campbell, N., & Martin, B. (2008). Science, technology, and social movements. In Hackett, Amsterdanska, Lynch, & Wajcman (Eds.), The handbook of science and technology studies (pp. 273-298, 3rd ed.). MIT Press.
- Hickey, M. (2019, September 18). The administration’s priorities and policy initiatives under the Clean Water Act. Testimony before the Committee on Transportation and Infrastructure, Subcommittee on Water Resources and Environment. https://transportation.house.gov/imo/media/doc/Hickey%20testimony.pdf
- Hilson, C. (2002). New social movements: The role of legal opportunity. Journal of European Public Policy, 9(2), 238–255. https://doi.org/10.1080/13501760110120246
- Hu, X. C., Andrews, D. Q., Lindstrom, A. B., Bruton, T. A., Schaider, L. A., Grandjean, P., Lohmann, R., Carignan, C. C., Blum, A., Balan, S. A., Higgins, C. P., & Sunderland, E. M. (2016). Detection of poly-and perfluoroalkyl substances (PFASs) in US drinking water linked to industrial sites, military fire training areas, and wastewater treatment plants. Environmental Science & Technology Letters, 3(10), 344–350. https://doi.org/10.1021/acs.estlett.6b00260
- Irwin, A. (1995). Citizen science: A study of people, expertise, and sustainable development. Routledge.
- Judge, J. M., Brown, P., Brody, J. G., & Ryan, S. (2016). The exposure experience: Ohio River Valley residents respond to local perfluorooctanoic acid (PFOA) contamination. Journal of Health and Social Behavior, 57(3), 333–350. https://doi.org/10.1177/0022146516661595
- Keep Your Promises DuPont. (2020). Keep your promises. http://keepyourpromisesdupont.com/
- Kinchy, A. J. (2010). Anti-genetic engineering activism and scientized politics in the case of “contaminated” Mexican maize. Agriculture and Human Values, 27(4), 505–517. https://doi.org/10.1007/s10460-009-9253-2
- Kitschelt, H. P. (1986). Political opportunity structures and political protest: Anti-nuclear movements in four democracies. British Journal of Political Science, 16(1), 57–85. https://doi.org/10.1017/S000712340000380X
- Kwiatkowski, C. F., Andrews, D. Q., Birnbaum, L. S., Bruton, T. A., DeWitt, J. C., Knappe, D. R., Maffini, M. V., Miller, M. F., Pelch, K. E., Reade, A., Soehl, A., Trier, X., Venier, M., Wagner, C. C., Wang, Z., & Blum, A. (2020). Scientific basis for managing PFAS as a chemical class. Environmental Science & Technology Letters, 7(8), 532–543. https://doi.org/10.1021/acs.estlett.0c00255
- Lau, C. (2015). Perfluorinated compounds: An overview. In J. DeWitt (Ed.), Toxicological effects of perfluoroalkyl and polyfluoroalkyl substances (pp. 1–21). Springer.
- Lerner, S. (2019, June 18). Teflon toxin safety level should be 700 times lower than current EPA guideline. The Intercept. https://theintercept.com/2019/06/18/pfoa-pfas-teflon-epa-limit/
- Lozano, A. A. (2018). Knowledge co-production with social movement networks. Redefining grassroots politics, rethinking research. Social Movement Studies, 17(4), 451–463. https://doi.org/10.1080/14742837.2018.1457521
- Lyons, C. (2007). Stain resistant, nonstick, waterproof, and lethal: The hidden dangers of C8. Praeger.
- Massachusetts Department of Environmental Protection. (2020). Per- and polyfluoroalkyl substances (PFAS). https://www.mass.gov/info-details/per-and-polyfluoroalkyl-substances-pfas.
- McAdam, D., McCarthy, J. D., & Zald, M. N. (Eds.). (1996). Comparative perspectives on social movements: Political opportunities, mobilizing structures, and cultural framings. Cambridge University Press.
- McCormick, S. (2007). Democratizing science movements: A new framework for mobilization and contestation. Social Studies of Science, 37(4), 609–623. https://doi.org/10.1177/0306312707076598
- McMenemy, J. (2018, May 10). Pease to lead off first nationwide PFAS health study. Seascoastonline.com. https://www.seacoastonline.com/news/20180510/pease-to-lead-off-first-nationwide-pfas-health-study
- Meyer, D. S., & Minkoff, D. C. (2004). Conceptualizing political opportunity. Social Forces, 82(4), 1457–1492. https://doi.org/10.1353/sof.2004.0082
- Meyer, D. S., & Staggenborg, S. (1996). Movements, countermovements, and the structure of political opportunity. The American Journal of Sociology, 101(6), 1628–1660. https://doi.org/10.1086/230869
- Minkler, M., & Wallerstein, N. (Eds.). (2011). Community-based participatory research for health: From process to outcomes. John Wiley & Sons.
- Moore, K. (2008). Disrupting science: Scientists, social movements and the politics of the military. Princeton University Press.
- National Academies of Sciences, Engineering, and Medicine. (2021). Guidance on PFAS testing and health outcomes. https://www.nationalacademies.org/our-work/guidance-on-pfas-testing-and-health-outcomes
- National Academies of Sciences, Engineering, and Medicine. (2022). Guidance on PFAS exposure, testing, and clinical follow-up. The National Academies Press. https://doi.org/10.17226/26156.
- New Hampshire Department of Environmental Services. (2019). New information may change NHDES proposed PFAS drinking water standards. https://www4.des.state.nh.us/nh-pfas-investigation/?p=945
- New York State Department of Health. (2018). Information sheet: Hoosick falls area PFOA. https://www.health.ny.gov/environmental/investigations/hoosick/docs/infosheetgrouplong.pdf
- New York State Senate. (2017, January 3). Water quality and contamination. Standing Committee on Health and Standing Committee on Environmental Conservation. https://www.nysenate.gov/sites/default/files/articles/attachments/hannon_water_quality_report.pdf
- Panikkar, B., Lemmond, B., Allen, L., DiPirro, C., & Kasper, S. (2019). Making the invisible visible: Results of a community-led health survey following PFAS contamination of drinking water in Merrimack, New Hampshire. Environmental Health, 18(1), 79. https://doi.org/10.1186/s12940-019-0513-3
- Parthasarathy, S. (2010). Breaking the expertise barrier: Understanding activist strategies in science and technology policy domains. Science & Public Policy, 37(5), 355–367. https://doi.org/10.3152/030234210X501180
- PFAS Project Lab. (2020). Per- and polyfluoroalkyl substances. https://pfasproject.com/
- Ragin, C. C., & Amoroso, L. M. (2019). Constructing social research: The unity and diversity of method. Sage.
- Rich, N. (2016, January 6). The lawyer who became DuPont’s worst nightmare. The New York Times. https://www.nytimes.com/2016/01/10/magazine/the-lawyer-who-became-duponts-worst-nightmare.html
- Richter, L. (2018). Constructing insignificance: Critical race perspectives on institutional failure in environmental justice communities. Environmental Sociology, 4(1), 107–121. https://doi.org/10.1080/23251042.2017.1410988
- Richter, L., Cordner, A., & Brown, P. (2018). Non-stick science: Sixty years of research and (in) action on fluorinated compounds. Social Studies of Science, 48(5), 691–714. https://doi.org/10.1177/0306312718799960
- Richter, L., Cordner, A., & Brown, P. (2020). Producing ignorance through regulatory structure: The case of per-and polyfluoroalkyl substances (PFAS). Sociological Perspectives, 64(4), 631–656. https://doi.org/10.1177/0731121420964827
- Schurman, R. (2004). Fighting “Frankenfoods”: Industry opportunity structures and the efficacy of the anti-biotech movement in Western Europe. Social Problems, 51(2), 243–268. https://doi.org/10.1525/sp.2004.51.2.243
- Silent Spring Institute. (2020). PFAS-Reach. https://silentspring.org/project/pfas-reach.
- Taylor, V., & Zald, M. N. (2010). The shape of collective action in the U.S. health sector. In J. Banaszak-Holl, S. Levitsky, & M.N. Zald (Eds.), Social movements and the transformation of American health care (pp. 300–317). Oxford University Press.
- U.S. Environmental Protection Agency. (2009). Provisional health advisories for Perfluorooctanoic Acid (PFOA) and Perfluorooctane Sulfonate (PFOS). https://www.epa.gov/sites/production/files/2015-09/documents/pfoa-pfos-provisional.pdf
- U.S. Environmental Protection Agency. (2016a). Drinking water health advisory for Perfluorooctane Sulfonate (PFOS). Office of Water Document 822-R-16-004. U.S. EPA.
- U.S. Environmental Protection Agency. (2016b). Drinking water health advisory for Perfluorooctanoic Acid (PFOA). Office of Water Document 822-R-16-005. U.S. EPA.
- U.S. Environmental Protection Agency. (2018). Third unregulated contaminant monitoring rule. https://www.epa.gov/dwucmr/third-unregulated-contaminant-monitoring-rule
- U.S. Environmental Protection Agency. (2021a). 2010/2015 PFOA stewardship program. https://www.epa.gov/assessing-and-managing-chemicals-under-tsca/fact-sheet-20102015-pfoa-stewardship-program
- U.S. Environmental Protection Agency. (2021b). PFAS master list of PFAS substances (last updated 8/10/2021). https://comptox.epa.gov/dashboard/chemical_lists/pfasmaster
- U.S. Environmental Protection Agency. (2021c). PFAS strategic roadmap. https://www.epa.gov/pfas/pfas-strategic-roadmap-epas-commitments-action-2021-2024
- Wallerstein, N., Duran, B., Oetzel, J. G., & Minkler, M. (Eds.). (2008). Community-based participatory research for health: Advancing social and health equity. Jossey-Bass.
- Xiao, X., Ulrich, B. A., Chen, B., & Higgins, C. P. (2017). Sorption of poly-and perfluoroalkyl substances (PFASs) relevant to aqueous film-forming foam (AFFF)-impacted groundwater by biochars and activated carbon. Environmental Science & Technology, 51(11), 6342–6351. https://doi.org/10.1021/acs.est.7b00970