Development of the PREMature Infant Index (PREMII™), a clinician-reported outcome measure assessing functional status of extremely preterm infants

References

• Stoll BJ, Hansen NI, Bell EF, et al. Trends in care practices, morbidity, and mortality of extremely preterm neonates, 1993–2012. JAMA. 2015;314(10):1039–1051.
   PubMed Web of Science ®Google Scholar
• World Health Organization. Preterm birth: fact sheet n°363 2014. [cited 2017 Nov 16]. Available from: http://www.who.int/mediacentre/factsheets/fs363/en/.
   Google Scholar
• Blencowe H, Cousens S, Chou D, et al. Born too soon: the global epidemiology of 15 million preterm births. Reprod Health. 2013;10(Suppl 1):S2.
   PubMed Web of Science ®Google Scholar
• Moore T, Hennessy EM, Myles J, et al. Neurological and developmental outcome in extremely preterm children born in England in 1995 and 2006: the EPICure studies. BMJ. 2012;345:e7961.
   PubMed Web of Science ®Google Scholar
• Stoll BJ, Hansen NI, Bell EF, et al. Neonatal outcomes of extremely preterm infants from the NICHD Neonatal Research Network. Pediatrics. 2010;126(3):443–456.
   PubMed Web of Science ®Google Scholar
• Kuban KCK, Allred EN, O’Shea M, et al. An algorithm for identifying and classifying cerebral palsy in young children. J Pediatr. 2008;153(4):466–472.
   PubMed Web of Science ®Google Scholar
• Ancel P-Y, Goffinet F, Kuhn P, et al. Survival and morbidity of preterm children born at 22 through 34 weeks’ gestation in France in 2011: results of the EPIPAGE-2 cohort study. JAMA Pediatr. 2015;169(3):230–238.
   PubMed Web of Science ®Google Scholar
• Committee on Fetus and Newborn. Hospital discharge of the high-risk neonate. Pediatrics. 2008;122(5):1119–1126.
   PubMed Web of Science ®Google Scholar
• Altman M, Vanpée M, Cnattingius S, et al. Moderately preterm infants and determinants of length of hospital stay. Arch Dis Child Fetal Neonatal Ed. 2009;94(6):F414–F418.
   PubMed Web of Science ®Google Scholar
• Richardson DK, Gray JE, McCormick MC, et al. Score for Neonatal Acute Physiology: a physiologic severity index for neonatal intensive care. Pediatrics. 1993;91(3):617–623.
   PubMed Web of Science ®Google Scholar
• Richardson DK, Corcoran JD, Escobar GJ, et al. SNAP-II and SNAPPE-II: simplified newborn illness severity and mortality risk scores. J Pediatr. 2001;138(1):92–100.
   PubMed Web of Science ®Google Scholar
• The International Neonatal Network. The CRIB (clinical risk index for babies) score: a tool for assessing initial neonatal risk and comparing performance of neonatal intensive care units. Lancet. 1993;342(8865):193–198.
   PubMed Web of Science ®Google Scholar
• Parry G, Tucker J, Tarnow-Mordi W. CRIB II: an update of the clinical risk index for babies score. Lancet. 2003;361(9371):1789–1791.
   PubMed Web of Science ®Google Scholar
• US Department of Health and Human Services. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims 2009; [cited 2017 Oct 3]. Available from: https://www.fda.gov/media/77832/download.
   Google Scholar
• von der Gracht HA. Consensus measurement in Delphi studies. Technol Forecast Soc Change. 2012;79(8):1525–1536.
   Web of Science ®Google Scholar
• Barone G, Corsello M, Papacci P, et al. Feasibility of transferring intensive cared preterm infants from incubator to open crib at 1600 grams. Ital J Pediatr. 2014;40:41.
   PubMed Web of Science ®Google Scholar
• Bender GJ, Koestler D, Ombao H, et al. Neonatal Intensive Care Unit: predictive models for length of stay. J Perinatol. 2013;33(2):147–153.
   PubMed Web of Science ®Google Scholar
• Eichenwald EC, Blackwell M, Lloyd JS, et al. Inter-neonatal intensive care unit variation in discharge timing: influence of apnea and feeding management. Pediatrics. 2001;108(4):928–933.
   PubMed Web of Science ®Google Scholar
• Gaal BJ, Blatz S, Dix J, et al. Discharge planning utilizing the discharge train: improved communication with families. Adv Neonatal Care. 2008;8(1):42–55.
   PubMedGoogle Scholar
• Hintz SR, Bann CM, Ambalavanan N, et al. Predicting time to hospital discharge for extremely preterm infants. Pediatrics. 2010;125(1):e146–e154.
   PubMed Web of Science ®Google Scholar
• Jeremic A, Tan K. Predicting the length of stay for neonates using heart-rate Markov models. Conf Proc IEEE Eng Med Biol Soc. 2008;2008:2912–2915.
   PubMedGoogle Scholar
• Lee HC, Bennett MV, Schulman J, et al. Accounting for variation in length of NICU stay for extremely low birth weight infants. J Perinatol. 2013;33(11):872–876.
   PubMed Web of Science ®Google Scholar
• Manktelow B, Draper ES, Field C, et al. Estimates of length of neonatal stay for very premature babies in the UK. Arch Dis Child Fetal Neonatal Ed. 2010;95(4):F288–F292.
   PubMed Web of Science ®Google Scholar
• Merritt TA, Pillers D, Prows SL. Early NICU discharge of very low birth weight infants: a critical review and analysis. Semin Neonatol. 2003;8(2):95–115.
   PubMedGoogle Scholar
• Picone S, Paolillo P, Franco F, et al. The appropriateness of early discharge of very low birth weight newborns. J Matern Fetal Neonatal Med. 2011;24(supp 1):138–143.
   PubMedGoogle Scholar
• Seki K, Iwasaki S, An H, et al. Early discharge from a neonatal intensive care unit and rates of readmission. Pediatr Int. 2011;53(1):7–12.
   PubMed Web of Science ®Google Scholar
• Temple MW, Lehmann CU, Fabbri D. Predicting discharge dates from the NICU using progress note data. Pediatrics. 2015;136(2):e395–e405.
   PubMed Web of Science ®Google Scholar
• Ye G, Jiang Z, Lu S, et al. Premature infants born after preterm premature rupture of membranes with 24–34 weeks of gestation: a study of factors influencing length of neonatal intensive care unit stay. J Matern Fetal Neonatal Med. 2011;24(7):960–965.
   PubMed Web of Science ®Google Scholar
• Berry MA, Shah PS, Brouillette RT, et al. Predictors of mortality and length of stay for neonates admitted to children’s hospital neonatal intensive care units. J Perinatol. 2008;28(4):297–302.
   PubMed Web of Science ®Google Scholar
• Nankervis CA, Martin EM, Crane ML, et al. Implementation of a multidisciplinary guideline-driven approach to the care of the extremely premature infant improved hospital outcomes. Acta Paediatr. 2010;99(2):188–193.
   PubMed Web of Science ®Google Scholar
• McGrath JM, Braescu AV. State of the science: feeding readiness in the preterm infant. J Perinat Neonatal Nurs. 2004;18(4):353–368. quiz 369–370.
   PubMed Web of Science ®Google Scholar
• Altman M, Vanpée M, Bendito A, et al. Shorter hospital stay for moderately preterm infants. Acta Paediatr. 2006;95(10):1228–1233.
   PubMed Web of Science ®Google Scholar
• Cotten CM, Oh W, McDonald S, et al. . Prolonged hospital stay for extremely premature infants: risk factors, center differences, and the impact of mortality on selecting a best-performing center. J Perinatol. 2005;25(10):650–655.
   PubMedGoogle Scholar
• Robison M, Pirak C, Morrell C. Multidisciplinary discharge assessment of the medically and socially high-risk infant. J Perinat Neonatal Nurs. 2000;13(4):67–86.
   PubMed Web of Science ®Google Scholar
• Jefferies AL, Canadian Paediatric Society, Fetus and Newborn Committee. Going home: facilitating discharge of the preterm infant. Paediatr Child Health. 2014;19(1):31–42.
   PubMed Web of Science ®Google Scholar