Improving self-report measures of non-adherence to HIV medications

References

• Adam , BD , Maticka-Tyndale , E and Cohen , J . Adherence practices and realities . Paper presented at the Ninth Annual Canadian Conference on HIV/AIDS research . Montreal, Quebec.
   Google Scholar
• “AHC” . 1998 . Adherence and the HIV Community . Bulletin of Experimental Treatments for AIDS , Available: http:www.sfaf.org/treatment/beta/b35/b35adhere.html
   Google Scholar
• Allaire , D . 1988 . “ Questionnaires: mesure verbale du comportement ” . In Fondements et étapes de la recherche scientifique en psychologie , Edited by: Robert M , Edisem . 229 – 275 . Ste-Hyacinthe : Edisem . 3e ed.
   Google Scholar
• Bangsberg , DR , Hecht , FM Chralebois , BC . Spontaneous adherence ADH Audit (SAA) predict viral suppression in the REACH cohort . 6th conference on Retroviruses and Opportunistic Infections . Chicago, Ill. Abstract 93 .
   Google Scholar
• Blaschke , TF . Noncompliance and resistance to protease inhibitors . Paper presented at the Fourth conference on retroviruses and opportunistic infections . Chicago, IL.
   Google Scholar
• Brooks , CM , Richards , JM , Kohler , CL , Soong , S-J , Martin , B , Windsor , RA and Bailey , WC . 1994 . Assessing adherence to asthma medication and inhaler regimens: A psychometric analysis of adult self-report scales . Medical Care , 32 : 298 – 307 .
   PubMed Web of Science ®Google Scholar
• Cannell , CF , Oksenberg , L and Converse , JM . 1979 . Experiments in Interviewing Techniques. Field Experiments in Health Reporting, 1971–1977 , Institute for Social Research .
   Google Scholar
• Carr , A and Cooper , DA . 1998 . Gap between biology and reality in AIDS . Lancet , 352 ( suppl IV: 16 )
   PubMedGoogle Scholar
• Catz , SL , Kelly , JA , Bogart , LM , Benotsch , EG and McAuliffe , TL . 2000 . Patterns, correlates, and barriers to medication adherence among persons prescribed new treatments for HIV disease . Health Psychology , 19 : 124 – 133 .
   PubMed Web of Science ®Google Scholar
• Cheever , LW . To take or not to take that mound of medicine . The Hopkins HIV Report . At: http://hopkins-aids.edu/publications/report/nov98_3.html
   Google Scholar
• Chesney , M . New Antiretroviral Therapies: Adherence Challenges and Strategies . Presented à the ICAAC 1997 Satellite Symposium: Evolving HIV Treatments: Advances and the Challence of Adherence . At www.healthcg.com/hiv/treatment/icaac97/adherence/chesney.html
   Google Scholar
• Chesney , M . 1997b . Compliance: How physicians can help . Insite. Gateway to AIDS knowledge , Available: http://HIVInSite.ucsf.edu/topics/adherence/2098.3540.html [1997, dec. 04]
   Google Scholar
• Chesney , M . 1999 . The Challenge of Adherence . Bulletin of Experimental Treatments for AIDS , Available: http://www.sfaf.org/treatment/beta/b35/b35adhere.html
   Google Scholar
• Crespi , I and Swinehart , JW . 1982 . Some effects of sequenced questions using different time intervals on behavioral self-reports: A field experiment . Paper presented at the Annual conference of the American association for public opinion research . May 1982 .
   Google Scholar
• Des Jarlais , DC , Paone , D , Milliken , J , Furner , CF , Miller , H , Gribble , J , Shi , Q , Hagan , H and Friedman , SR . 1999 . Audio-computer interviewing to measure risk behavior for HIV among injecting drug users: A quasi-randomised trial . The Lancet , 353 : 1657 – 1661 .
   PubMed Web of Science ®Google Scholar
• DeVellis , R . 1991 . Scale development , Vol. 26 , Sage Publications .
   Google Scholar
• Eldred , LJ , Wu , AW , Chaisson , RE and Moore , RD . 1998 . Adherence to Antiretroviral and Pneumocystis Prophylaxis in HIV disease . Journal of Aquired Immune Deficiency Syndrome and Human Retrovirology , 18 : 117 – 125 .
   PubMed Web of Science ®Google Scholar
• Eldred , L and Cheever , L . 1998 . Update on adherence to HIV therapy , The Johns Hopkins University AIDS Service . Available: http://www.ama-assn.org/special/hiv/treatment/hopkins/adhere.htm
   Google Scholar
• Felkey , BG . 1995 . Adherence screening and monitoring . American Pharmacy , NS35 : 42 – 53 .
   PubMedGoogle Scholar
• Fowler , FJ . 1984 . Survey Research Methods , Beverly Hills : Sage Publications .
   Google Scholar
• Fowler , F-JJ . 1995 . Improving Survey Questions: Design and Evaluation , Vol. 38 , Thousand Oaks, CA, , USA : Sage Publications, Inc. .
   Google Scholar
• Frick , PA , Gal , P and Lane , TW . 1998 . Antiretroviral medication compliance in patients with AIDS . AIDS patient care and STDs , 12 : 463 – 470 .
   PubMed Web of Science ®Google Scholar
• Godin , G , Bradet , R , Morrison , K and Carsley , J . 1996 . L’environnement social des hommes ayant des relations sexuelles avec d’autres hommes. Résultat de l’enquête québecoise . Service Social , 42 : 5 – 19 .
   Google Scholar
• Gordillo , V , del Amo , J , Soriano , V and Gonzalez-Lahoz , J . 1999 . Sociodemographic and psychological variables influencing adherence to antiretroviral therapy . AIDS , 13 : 1763 – 1769 .
   PubMed Web of Science ®Google Scholar
• Gordis , L . 1976 . “ Methodological issues in the measurement of patient compliance ” . In Compliance with Therapeutic Regimens , Edited by: Sackett , DL and Haynes , RB . 51 – 66 . Baltimore : Johns Hopkins University Press .
   Google Scholar
• Gordis , L , Markowitz , M and Lilienfeld , AM . 1969 . Studies in the epidemiology and preventability of rheumatic fever IV. A quantitative determination of compliance in children on oral penicillin prophylaxis . Pediatrics , 43 : 173 – 182 .
   PubMedGoogle Scholar
• Gray , A . 1999 . A spoonful of sugar: A guide to taking combination anti-HIV therapy, 1–15 , Available: http://www.tht.org.uk/pubs/Spoonfulofsugar.htm
   Google Scholar
• Gray , L , Edmondson , E and Lemke , AL . 1998 . HIV treatment adherence: A guide for program development , Seattle, Washington : HIV/AIDS Project Development and Evaluation Unit, University of Washington School of Social Work .
   Google Scholar
• Grymonpre , RE , Didur , CD , Montgomery , PR and Sitar , DS . 1998 . Pill count, self-report, and pharmacy claims data to measure medication adherence in the elderly . The Annals of Pharmachotherapy , 32 : 749 – 754 .
   PubMed Web of Science ®Google Scholar
• Guimond , J . 1986 . L’observance du régime médicamenteux chez les aînés fréquentant un centre de jour , Montréal : Université de Montréal .
   Google Scholar
• Hays , RD and DiMatteo , MR . 1987 . Key issues and suggestions for patient compliance assessment: Sources of information, focus of measures, and nature of response options . The Journal of Compliance in Health Care , 2 : 37 – 53 .
   Google Scholar
• Holzemer , WL , Corless , IB , Nokes , KM , Turner , JG , Brown , M-A , Powell-Cope , GM , Inouye , J , Henry , SB , Nicholas , PK and Portillo , CJ . 1999 . Predictors of self-reported adherence in persons living with HIV disease . AIDS Patient Care and STDs , 13 : 185 – 197 .
   PubMed Web of Science ®Google Scholar
• Hulka , BS , Kupper , L , Cassel , JC and Mayo , F . 1975 . Doctor-patient communication and outcomes among diabetic patients . Journal of Community Health , 1 : 15 – 27 .
   PubMedGoogle Scholar
• Ickovics , JR , Ethier , KA and Fox , RA . Recruitment, adherence and retention in AIDS clinical trials: A prospective study . Paper presented at the AIDS Clinical Trials Group . Washington, DC : National Institute of Allergy and Infectious Disease .
   Google Scholar
• Ickovics , JR and Meisler , AW . 1997 . Adherence in AIDS clinical trials: A framework for clinical research and clinical care . Journal of clinical epidemiology , 50 : 385 – 391 .
   PubMed Web of Science ®Google Scholar
• Jaccard , J . 1995 . A paradigm for studying the accuracy of self-reports of risk behavior relevant to AIDS: Empirical perspectives on stability, recall bias, and transitory influences . Journal of Applied Social Psychology , 25 : 1831 – 1858 .
   Web of Science ®Google Scholar
• Johnson Bennett , S . 1992 . Methodological issues in diabetes research. Measuring adherence . Diabetes Care , 15 : 1658 – 1667 .
   PubMedGoogle Scholar
• Kastrissios , H , Suarez , J-R , Katzenstein , D , Girard , P , Sheiner , LB and Blaschke , TF . 1998 . Characterizing patterns of drug-taking behavior with a multiple drug regimen in an AIDS clinical trail . AIDS , 12 : 2295 – 2303 .
   PubMed Web of Science ®Google Scholar
• Lefebvre , E-A . 1999 . Fidèle, libre ou les deux? Maximiser l’efficacité du traitement anti VIH , Londres : Harcourt Publishers Ltd. . (A.-M. Joly, Trans.)
   Google Scholar
• Loftus , EF , Smith , KD , Klinger , MR and Fiedler , J . 1992 . “ Memory and mismemory of health events ” . In Questions about questions. Inquiries into the cognitive bases of surveys , 102 – 137 . New York : Russell Sage Foundation .
   Google Scholar
• “MAH” . 1997 . Maintaining adherence to HAART . Project Inform Perspective , 22 : 1 – 6 . Available: http://www.projinf.org/pub/22/HAART.html
   Google Scholar
• Marer , M and Sowadsky , R . 1998 . Adherence . Women Alive , summer
   Google Scholar
• Menon , G and Yorkston , EA . 2000 . “ The use of memory and contextual cues in the formation of behavioral frequency judgments ” . In The science of self-report. Implications for research and practices , Edited by: Stone , AA , Turkkan , JS , Bachrach , CA , Jobe , JB , Kurtzman , HS and Cain , VS . 63 – 79 . Lawrence Erlbaum Associates .
   Google Scholar
• Montaer , JSB , Reiss , P Cooper , D . 1998 . A randomized, double blind trial combinations of nevirapine, didanosine, and zidovudine for HIV infected patients: The INCAS Trial . Journal of American Medical Association , 279 : 930 – 937 .
   Google Scholar
• Moriski , DE , Green , LW and Levine , DM . 1986 . Concurrent and predictive validity of a self-reported measure of medication adherence . Medical Care , 24 : 67 – 73 .
   PubMedGoogle Scholar
• Payne , SL . 1951 . The Art of Asking Questions , Princeton, N.J. : Princeton University Press .
   Google Scholar
• Pekovic , V , Mayanja , H , Vjecha , M , Johnson , J , Okwera , A , Nsubuga , P , Mugerwa , R and Whalen , JE . 1998 . Comparison of three composite compliance indices in a trial of self-administered preventive therapy for turberculosis in HIV-infected uganda adults . Journal of Clinical Epidemiology , 51 : 597 – 607 .
   PubMedGoogle Scholar
• Rand , CS . 2000 . “I took the medicine like you told me doctor”: Self-report of adherence with medical regimens ” . In The science of self-report. Implications for research and practices , Edited by: Stone , AA , Turkkan , JS , Bachrach , CA , Jobe , JB , Kurtzman , HS and Cain , VS . 257 – 276 . Lawrence Erlbaum Associates .
   Google Scholar
• Rudd , P . 1993 . “ The Measurement of compliance: Medication taking ” . In Developmental aspects of Health Compliance Behavior , Edited by: Krasnegor , NA , Epstein , L , Bennett Johnson , S and Yaffe , SJ . 185 – 213 . Hillsdale, New Jersey : Lawrence Erlbaum Associates .
   Google Scholar
• Rudd , P , Byyny , RL , Zachary , V , LoVerde , ME , Titus , C , Mitchell , WD and Marshall , G . 1989 . The natural history of medication compliance in a drug trial: Limitations of pill counts . Clinical Pharmacology and Therapeutics , 46 : 169 – 176 .
   PubMed Web of Science ®Google Scholar
• Samet , JH . 1992 . Compliance with Zidovudine therapy in patients infected with Human Immunodeficieny Virus, type 1: A cross-sectional study in a municipal hospital clinic . The American Journal of Medicine , 92 : 495 – 502 .
   PubMed Web of Science ®Google Scholar
• Schuman , H and Presser , S . 1981 . Questions and answers in attitude surveys: Experiments on question form, wording, and context , New-York : Acamedic Press .
   Google Scholar
• Schwarz , N and Hippler , HJ . 1987 . “ What response scales may tell your respondents ” . In Social information processing and survey methodology , Edited by: Hippler , HJ , Schwartz , N and Sudman , S . 163 – 178 . New York : Springer Verlag .
   Google Scholar
• Schwarz , N , Hippler , H-J , Deutsch , B and Strack , F . 1985 . Response scales: Effects of category range on reported behavior and comparative judgments . Public Opinion Quarterly , 49 : 388 – 395 .
   Web of Science ®Google Scholar
• Schwarz , N , Strack , F and Mai , H-P . 1991 . Assimilation and contrast effects in part-whole question sequences: A conversational logic analysis . Public Opinion Quarterly , 55 : 3 – 23 .
   Web of Science ®Google Scholar
• Strube , G . 1987 . “ Answering survey questions: The role of memory ” . In Social information processing and survey methodology , Edited by: Hippler , HJ , Schwarz , N and Sudman , S . 86 – 101 . New York : Springer Verlag .
   Google Scholar
• Sudman , S and Bradburn , NM . 1974 . Response Effects in Surveys , Aldine Publishing Company .
   Google Scholar
• Sudman , S and Bradburn , NM . 1999 . Asking questions. A Practical Guide to Questionnaire Design , Jossey-Bass Inc. . (First Edition)
   Google Scholar
• Svarstad , BL , Chewning , BA , Sleath , BL and Claesson , C . 1999 . The brief medication questionnaire: A tool for screening patient adherence and barriers th adherence . Patient Education and Counseling , 37 : 113 – 124 .
   PubMed Web of Science ®Google Scholar
• Tourangeau , R . 2000 . “ Remembering what happened: Memory errors and survey reports ” . In The science of self-report. Implications for research and practice , 29 – 48 . Lawrence Erlbaum Associates .
   Google Scholar
• Treisman , G . 1997 . A behavioral approach for the promotion of adherence in complicated patient populations. Presented at the ICAAC 1997 Satellite Symposiuim: Eveolving HIV Treatments: Advances and the Challenges of Adherence At www.healthch.com/hiv/treatment/icaac97/adherence/treisman.html
   Google Scholar
• “TRH” . 1998 . Transmission of Resistant HIV . Project Inform Perspective , 25 : 1 – 3 . Available: http://www.projinf.org/pub/25/transmission.html
   Google Scholar
• Wainberg , MA and Birch , C . Phenotypic and genotypic resistent emergent in naive HIV-! patients treated with combinations of reverse transcriptase inhibitors . Paper presented at the 3rd International Congress on Drug Therapy in HIV Infections . Birmingham, England.
   Google Scholar
• Wainberg , MA and Friedland , G . 1998 . Public health implications of antiretroviral therapy and HIV drug resistance . Journal of American Medical Association , 279 : 1977 – 1983 .
   PubMed Web of Science ®Google Scholar
• Weiss , NS and Sayvetz , TA . 1984 . Incidence of endometrial cancer in relation to the use of oral contraceptives . New England Journal of Medicine , 302 : 551 – 554 .
   Google Scholar
• Weiss , NS , Lyon , JL , Krishnamurthy , S , Dietert , SE , Liff , JM and Daling , JR . 1982 . Noncontraceptive estrogen use and the occurrence of ovarian cancer . Journal of National Cancer Institute , 68 : 95 – 98 .
   PubMedGoogle Scholar
• Williams , AB . 1999 . Adherence to highly active antiretroviral therapy . The Nursing Clinics of North America , 34 : 113 – 129 .
   PubMed Web of Science ®Google Scholar
• Wood , E , Low-Beer , S , Yip , B , O'Shaughnessy , M , Hogg , R and Montaner , J . Virologic success rates drop off sharply with decreasing levels of adherence to antiretroviral therapy . Paper presented at the Ninth Annual Canadian Conference on HIV/AIDS Research . Montreal, Quebec.
   Google Scholar